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Parenting Severe Autism

Parenting Severe Autism is a raw, unfiltered podcast for parents and caregivers raising children with Severe Autism. Hosted by Shannon Chamberlin - a parent, not a professional - this show is your emotional lifeline, real-talk resource, and reminder that you're not alone.From early childhood to adulthood and beyond, Shannon shares honest stories, painful truths, small victories, and survival strategies for the families the world forgets.Whether you're in crisis mode or just need someone who gets it, this is your space.No fluff. No sugarcoating. Just truth, hope, and community.Severe Autism and special needs considerations. This type of autism parenting is lifelong... it becomes adult autism parenting. Seek caregiver support when possible.

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  1. 88

    Fighting For Placement When Severe Autism Outgrows The System

    Send us Fan MailWe read through a run of 2019 school emails that show how fast life can spiral. We talk guardianship, money, work stress, rejections, and the small home routines that still help our son feel safe. • legal guardianship• how severe autism can make steady work nearly impossible for a family • the school’s behavior team admitting they lack capacity • asking for copies of staff and specialist videos to understand decisions • outside placement leads• being rejected from programs and what that does to a parent’s trust • touring a facility and confronting the reality of adult services • school-day accommodations around routine, lunchroom size, snack timing, soaps, and toothpaste • heavy metal detox attempts • therapy tradeoffs Please remember, you can help me keep this podcast free for those who need it simply by donating to the Buy Me a Coffee program. You can always contact me at contact.parentingsevereautism at gmail.com. Hey, let me know if you have anything to share about your experience with schools as of late, whether it's good, bad, or otherwise. S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  2. 87

    Writing Your Child’s Severe Autism Story At School

    Send us Fan MailA single email from school can change your whole day when you’re parenting severe autism and already running on fumes. We share what it looks like when classroom behavior reports, delayed meetings, and vague “behavior team” guidance collide with the reality at home.We start with a few real-life moments that many caregivers will recognize.Then we get into communication and receptive language, including why English slang and sound-alike words can be especially confusing for autistic kids with speech and language challenges. I also ask listeners to weigh in on how this plays out in other languages and cultures.From there, the tone shifts into the heavier stuff: a last-day-of-camp meltdown, plus the surprisingly effective de-escalation trick a great staff member uses to help our son regulate. Finally, we dig into the school timeline and the advocacy lesson at the center of it all, and what it feels like when parents are left out of behavior planning while the system “figures it out” on your child.If you’re navigating IEP meetings, challenging behaviors, attention-seeking cycles, or caregiver burnout, listen through and take what you need. Subscribe, share with another autism parent, and leave a review so more families can find this support.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  3. 86

    Advocating For A Severely Autistic Teen In High School

    Send us Fan MailWe share what it looks like when school support collides with severe autism, from the first weeks at a new high school to the moments we realize critical details are being missed. I walk through the exact language and protocols that help our son regulate and why consistency across adults is the difference between progress and meltdown. • remodeling and environment changes at home to reduce frustration • heat, low energy, shallow breathing and the suspected link between vitamin B complex and behavior or speech decline • the moment our son says “I’m stuck” • why life skills, OT, speech and socialization matter more than academics for our child • early high school wins like the popcorn and coffee cart job • working phrases that interrupt escalation• insisting the school call dad immediately for any self-injury • frustrations with vague incident reporting and the lack of timely OT support • reflections on staffing, caregiver consistency and a child’s need to feel cared for Please remember you can support this podcast in many different ways. Of course, you can always buy me a coffee by clicking the little support icon on your podcast player. You’re also able to visit my storefront by following the link in my show notes. Please let me know if you have any tips, tricks, or anything like that regarding school these days, please email me at contact.parenting severe autism at gmail.com. S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Fingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleNO MORE HANGERS!Hanging soft box closet organizerSAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaView My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  4. 85

    When Stress Turns A Child Into A Weapon

    Send us Fan MailVacation stress collides with severe autism routines, and can push a family to the edge. We share what happened on our Illinois getaway, then zoom out to the bigger lesson about family stress, boundaries, and the tiny moments of humor that keep us going. • caregiving isolation and what it feels like when support runs thin • why special needs travel often requires more than a simple hotel room• what Grand Bear Resort near Starved Rock advertises versus what works • a sweet sighting of a nonverbal teen having real joy • the danger of using a child’s disability as a tool in adult conflict • reaching for help instead of letting pressure build • funny connection moments as de-escalation Please remember you can always support this podcast first of all by sharing to others who have not yet heard it. And you can buy me a coffee, you can check out my merch. And if you can't support financially, that's totally fine. I would even be delighted to hear from you in email. So you can send me messages at contact.parentingsevereautism at gmail.com. S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyView My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Fingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleNO MORE HANGERS!Hanging soft box closet organizerSAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmBuzzsprout - Let's get your podcast launched!Start for FREESelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  5. 84

    What If The System Is Not Built For Them

    Send us Fan MailWe go back through the emails from our son’s first year in a new high school and relive how quickly “support” turned into constant crises. Then I share the most surprising update I have had in years!• school fees shock and using McKinney-Vento homeless status while doubled up • early attempts at communication through typing and why it feels complicated • IEP meeting overload and what caregiver burnout looks like in real time • why regular school is not built for many severe autism needs • adult autism communication breakthrough • small functional winsplease share your stories with me and check me out on my live streams. Leave me hearts and comments and stuff, and let's see how that goes. S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyView My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!SAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmNO MORE HANGERS!Hanging soft box closet organizerFingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  6. 83

    School Transitions Trigger Dysregulation In Profound Autism

    Send us Fan MailA “senior year” photo comes home and hits us like grief instead of celebration, opening up everything we wish educators understood about profound autism and the gap between labels and reality. We also share what regulation looks like in our house, from sensory touch and breathing to the surprising toll of loud, nonstop noise. • the emotional sting of “senior” messaging for a child who will need extended services • hoarding and studying turning into agitation and destruction • frequent IEP meetings and the limits of school preparation for severe autism • why constant transitions can create school-day overload • the exhaustion of fighting for our child • using touch while teaching boundaries • massage, yoga-style slow breathing, and noticing chronic muscle tension • loud remodeling and what it can do to regulation and sleep You can always email me at contact.parenting severe autism at gmail.com. Make sure you check my summer supplies shopping cart. S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.NO MORE HANGERS!Hanging soft box closet organizerFingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  7. 82

    The Great Midnight Coffee Heist

    Send us Fan MailA Mother’s Day “Happy Mother’s Day” song should be simple, but when you’re parenting severe autism, even the sweetest moment can sit right next to exhaustion you can’t quite explain. I’m sharing what’s been going on in my house lately, including the quiet fear that your family is holding together on the outside while things feel shaky underneath. If you’ve ever thought, “I’m the only one living like this,” I say the part out loud that we all need to hear: you’re not alone.Then I get into the behaviors, because the patterns changed in a way I didn’t expect. The picture smashing and frame breaking took on a new meaning when I realized which photos were being targeted, and it made me question what my son might be feeling but can’t say. From there, the story turns into a full-on midnight mystery: coffee, milk, a dragged blanket, and the slow realization that the “mess” was a routine aimed straight at Grandpa’s stuff. It’s gross, it’s maddening, and honestly it’s also weirdly funny once you finally see what’s happening. We also talk about the reality of living with locks, padlocks, and home safety setups that other people don’t understand.I share an update on self-injurious behavior like arm biting, what helped reduce it for us, and what popped up next when the biting got harder to do. If you’re dealing with headbanging, biting, property destruction, or sleep-disrupting routines, you’ll hear the unfiltered version of how it looks in real life, plus the small communication wins that make everything feel worth it again.If this connected with you, subscribe, share the episode with another autism caregiver, and leave a review so more families can find this support. And I’d love to hear your stories, what’s working, and what you’re stuck on right now.S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.NO MORE HANGERS!Hanging soft box closet organizerFingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  8. 81

    I Tried Oils And Herbs And Nothing Worked

    Send us Fan MailWe juggle a new school year for our high support needs severely autistic son while we question staffing, trust, and classes without enough help. We also share what happened when natural remedies and cannabis products worked unpredictably, plus a bigger idea about respite communities that could use technology to fill real care gaps. • Shifting into a new school era and tightening our focus on staff • Needing one-on-one support and sometimes more at school • Frustration with mainstreaming vs functioning level • Trying herbalism, homeopathic tablets, and essential oils as coping tools • Seeing “opposite” reactions and losing faith in what what we believe in • A funny morning script plus pizza day attitude after a bigger dose • Exploring safer lifestyles and respite communities with AI support • Asking for ideas to market the concept to the right people Don’t forget to send your comments, questions, and stories to me at [email protected]. Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  9. 80

    What Safety Costs A Family Living With Severe Autism

    Send us Fan MailWe talk through what happens when severe autism elopement becomes so constant that we start padlocking gates and doors, then realize those same locks can trap us when seconds matter. I share the fear, the guilt, the dark humor, and the safety steps that finally make our days a little more survivable. • padlocking after repeated escapes • the moment he scales the fence and I cannot get out • how elopement forces impossible split-second choices • how our long-term work and caregiving plan collapses  • desperation searches for safety tools and finding AngelSense GPS tracking • a woods search when he disappears • his running routes • the spiraling parent guilt story and the reminder that it is not you • first day of school stress and the constant baseline of aggression • a surprising improvement with arm biting and a rare proud moment • a full clear sentence during bedtime chaos • the workaround that makes walks calmer • noticing better focus and speech attempts with vitamin C and B complex • the local emergency box and special needs stickers for responders • building familiarity with police and fire so crises go safer And please remember, you can always buy me a coffee for as little as one dollar. You just click the little donation thing on your player. If you want to click my link at the bottom of this episode or any of my episodes, it would help me out and it doesn't cost you any more. Please remember you can always reach out to me at contact.parentingsevereautism at gmail.com. AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyS.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57Fingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleNO MORE HANGERS!Hanging soft box closet organizerSAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Organic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  10. 79

    EP.80 How Much Vigilance Can One Parent Hold Parenting Severe Autism

    Send us Fan MailWe relive a brutal stretch of severe autism insomnia where bedtime turns into instant chaos and every tool we have becomes about safety and survival. We share the phrases and hacks that actually land with our son, plus the day his dysregulation spills into the neighborhood and changes how we think about vigilance. • using two to three word scripts for receptive language limits • “no touchy” as a low conflict boundary cue • “stay down” and “time for sleep” as bedtime anchors • the baby monitor breaking and switching to low tech communication • the sting of unsolicited advice about medication and barriers to care • hypervigilance after neighborhood access Please remember you can support my podcast by clicking the Buy Me a Coffee icon on your podcast player. Please remember you can always email me at contact.parenting severe autism at gmail.com. S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyNO MORE HANGERS!Hanging soft box closet organizerFingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleSAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  11. 78

    EP.79 Retirement Villages For Everyone… Except Us?

    Send us Fan MailWe share raw truths from the frontline of severe autism care. From morning quiet-time rules to fingerprint locks and parent-led training, we fight for safety, structure, and a real village.• why isolation and burnout demand respite communities• how parent-led training creates consistent, safer care• the 15-minute morning rule as regulation, not preference• using fingerprint locks and auto-locks to reduce risk• new behaviors and responses• stepping back when interaction harms the caregiver• how weather and celestial shifts can amplify behaviors• a call for shared responsibility inside multigenerational homes• open request for stories, tips, and educator insights“Thank you for your donations. When I’m able to save up enough of your donations, we want to help another family in need who may not be able to afford the therapy items, clothing, or specialty food items that their loved one needs.”“I would love to hear from you and see if you guys have experienced any of this kind of stuff, and if you have any suggestions, or if you have any questions.”S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyFingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleSAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.NO MORE HANGERS!Hanging soft box closet organizerSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmRhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  12. 77

    EP.78 When Calm Snaps Into Chaos

    Send us Fan MailWe share a brutal garage meltdown from our Summer of Hell and the ripple effects that followed, then end with small, human moments that reminded us why we keep going. Fear, responsibility, and survival sit beside laughter, food, and connection.• moving from gratitude into a hard story• morning spiral and the sprint to the garage• real physical danger• being attacked and a late rescue• fear aftershock and weighing self‑defense options• dinner plans that calm anxiety• playful nudges done gently for once• Thai‑style stretches, safe roughhousing, and big laughs• eclipse surge, self‑injury, and moon or weather links• reminders to stay ready, ask for help, and keep sharingBuy merch: screaming pillows, insulated mugs, wine tumblers, and water bottles. Keep sharing my episodes. Support the show for as little as one dollar through Buy Me A Coffee. Contact: [email protected] the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  13. 76

    EP. 77: Our Son, The Welcome Mat, And The Pants Problem Severe Autism

    Send us Fan MailWe open our hearts about caregiver fatigue, broken trust, and the sharp edges of life with severe autism while weighing practical options like group homes and community respite. Along the way we face language boundaries, public behaviors, new obsessions, and small moments of joy that keep us going.• caregiver stress after years without respite• loss of trust with family after neglect• emotional needs of severe autism, not stereotypes• dependence vs dignity and pacing independence• marriage strain and the ethics of group homes• community-based respite and pooled solutions• summer of hell at day camp and stripping• language boundaries and slurs corrected• wardrobe tactics to reduce impulsive behaviors• emerging obsessions and safety concerns• gaps in medical care and self-regulation tools• family triggers and a moment of self-advocacy• humor, creativity, and small wins that sustain usPlease remember you can support this podcast and help me keep it free for everyone who needs it by donating through the Buy Me a Coffee programSupport the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  14. 75

    EP 76: Private Needs, Public Stress, And The Cost Of Sleepless Caregiving

    Send us Fan MailSleepless nights, decoding a taboo topic with compassion and clarity...Safety, dignity, and small wins guide the way while we keep reaching for calmer mornings and better tools.• naming severe autism risks and caregiver isolation• addressing startle responses• coping with sleep deprivation and night chaos• removing obsessional objects that spike aggression• setting consequences for self-injury on pizza day• discussing self-pleasure without shame while teaching hygienePlease contact us at [email protected]. If you can share this episode with anyone in your life, please do that to help me out. I also have the Buy Me a Coffee program if you would like to donate or support me in any way.S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.NO MORE HANGERS!Hanging soft box closet organizerFingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  15. 74

    EP 75: Morning Reset, Calmer Days, Regulating A Dysregulated Home

    Send us Fan MailWe share how escalating anxiety pushed our family to the edge, and how a simple morning reset brought peace back. Clear boundaries, a 20-minute quiet window, shifting behavior and energy fast. Also another item on the daily menu during the Summer of Hell.• closet destruction, failed fixes, safety locks• meds context• behavior as communication• mapping triggers• the non-negotiable• visible changes in anxiety, cannabis dose, and attention loops• family roles, energy, and being the calm leader• practical steps to observe antecedents and set boundariesPlease remember, you can always support this podcast and help me keep it free for those who need it by donation through Buy Me a Coffee or a MembershipAngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyNO MORE HANGERS!Hanging soft box closet organizerFingerprint Entry Door HandleBiometric Fingerprint Entry Interior Door HandleSAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  16. 73

    EP.74: What Soundtrack Does Your Severe Autism Child Live To?

    Send us Fan MailWe pause the summer saga to share what’s been blocking us: relentless environmental triggers, family drop‑ins, and a birthday derailed by overstimulation. We draw a hard line on media, lock doors during the 20‑minute adjustment window, and lean on body‑based tools to bring the baseline down.• why the home soundtrack drives meltdowns• a betrayal trigger and weeks of fallout• birthday routines, arcade overload, and damage control• the 20‑minute medication window • boundaries with relatives • kitchen dynamics and how roles change behavior• small wins in speech and humor that keep us going• vibration plate, B complex, and red light for calmIf any of my episodes or stories hit home for you, make you laugh, cry, or jump up and down and scream, please consider dropping me a line or even buying me a coffeeS.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57SAVE 5% LIFEPRO FITNESS PRODUCTSWe love our Waver Vibration Plate and BioHeal Plus Red Light Panel! Calming. Healing. YES.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Organic Matcha TeaI enjoy the calming and strengthening benefits of this tea.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  17. 72

    EP 73: From Chaos To Connection: Parenting Severe Autism Without Sleep, Space, Or Support

    Send us Fan MailWe trace a season of sleepless nights, stomping floors, and bathroom chaos into two quiet breakthroughs: independent handwashing and a shared Soup Dance that reveals connection inside repetition. A harsh LED light becomes a surprising trigger, and a softer presence opens space for growth.• recognizing environmental triggers like harsh LED lighting• coping with insomnia, nighttime roaming, and sensory seeking• testing the idea that less praise can reduce pressure• finding communication inside repetitive questions• celebrating independent hygiene and song completion• using calm spaces to invite regulation and connection• redefining wins as small, repeatable steps• sustaining caregivers with simple, steady routinesOne of the most important things at the end of my show notes is the link for my GoFundMe for the Safer Lifestyles respite communitiesYou can always contact me at [email protected] could still buy me a coffee, and all the coffees are helping me keep this podcast free for those who need itPlease remember to share my episodes the best that you canSupport the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  18. 71

    EP 72: Bathroom Battles And A Glimmer Of Hope

    Send us Fan MailWe share a hard summer of bathroom destruction, broken trust with family, and a support group that didn’t get it, then find relief in small wins: a playful de‑escalation, emerging words, and happy tears that we learned to name. • family boundary breaches and safety risks• obsessive bathroom behaviors and home damage• product lockdowns and supervision trade‑offs• safe medical sedation tip for procedures• a simple co‑regulation trick that worked• signs of speech returning after regression• nervous system healing and calmer dynamics• happy tears, labeling emotions, gentle support• holiday stress, criticism, and emotional armorPlease remember to share this podcast. Check my show notes for links to products that have worked for our family. You can also become a member for private locked episodes. Share the link to my GoFundMe for our safer lifestyles blueprint for respite communities for families like yours and mine.S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  19. 70

    EP.71: He Destroyed Things Because He Was Hurting Emotionally

    Send us Fan MailWe draw a hard line on boundaries after a “fun” day out breaks our son’s diet, a chaotic family visit disrupts routine, and grief surfaces through targeted destruction. We also name caregiver resentment without shame and share a simple tech tool that averted a meltdown.• fundraiser links, storefront resources, and coffee support• standing firm when family ignores diet rules• post-visit escalation and how we confronted it• targeted destruction as communication of loss• clearing environmental triggers and resetting routines• naming caregiver resentment without guilt• the camp “primal scream” report and levity• using phone filters as a fast regulation tool• subscriber-only episodes on relationships and stress• contact options for stories, questions, and supportPlease share my episodes and spread the word to get more awareness around the subject of severe or profound autism, and also to let people know that they can donate to either my Safer Lifestyles Respite Community Blueprint project, which is a GoFundMe, or they can just donate cups of coffee as wellS.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyWilbarger Therapy Therapressure BrushesWilbarger Therapy Brush, 2 Pack – Therapressure Brush for Occupational Therapy for Sensory Brushing Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  20. 69

    EP 70: It's Only Applesauce - Severe Autism Therapy Backfires

    Send us Fan MailA candid mention about staying when others say to leave, and how structure, safety, and short, clear language can turn daily chaos into small wins. From wall padding to therapy brushes to locks and applesauce mishaps, we share what worked, what failed, and why timing matters.• reducing attention-seeking by replacing constant input with predictable access• why soothing tools must be used before stress not during• protecting space and reducing hypervigilance• two to three word cues that cut through noise and guide behavior• community expectations vs real support and consistent presence• small wins • next steps to lower ambient stress in the home environmentCheck my show notes for links to tracking devices, therapy items, nervous system support, and my creator store. If you want the tea, I’ll drop more personal details in a subscriber-only episode.S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  21. 68

    What if compassion—not credentials—keeps our severe autism kids safest?

    Send us Fan MailWe share a raw stretch of our severe autism journey: the camp that finally said yes, why patient volunteers sometimes trump credentials, and what it costs to hold your home together when your child unravels. Along the way, we ask for community help and outline what support should look like.• subscriber‑only truth‑telling episodes and why we lock some content• GoFundMe for Safer Lifestyles Respite communities and how sharing helps• the “word accident” memory and self‑awareness moments• finding safety at a special needs day camp after rejection• why untrained, compassionate volunteers often succeed where pros don’t• survival routines, timed “cookies,” and car‑ride de‑escalation• violent escalations at home, property protection, and caregiver safety• the grandparents’ intervention and the need for real training for parents• the arcade story, limits, and humor as coping• self‑injury patterns, deterrent ideas, and community requests• interview policy, fees for self‑promoters, and listener‑driven topics• preview of shifting family support and next storiesPlease keep an eye out for my link to the GoFundMe that I started for the Safer Lifestyles Respite communities. I would love it if you would just share that link. You can always reach me at [email protected]. Send me a fan mail on BuzzSprout at PSA.buzzsprout.com.S.A.F.E.R. Lifestyles Respite GoFundMePlease share this GoFundMe to help raise funds for building our DREAM, Outlined in Episode 57AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  22. 67

    When Home Hurts: Moving, Meltdowns, and the Search for Care

    Send us Fan MailWe face the change in the story since moving back to Illinois: the first sign of aggression that changed everything between us. We also share GeneSite results, ask about Leucovorin, weigh group homes vs “never,” and find a quiet win by the river.• impact of the Illinois move on behavior and family strain• the car attack as a turning point in safety and trust• losing verbal leverage and rebuilding boundaries• GeneSite insights, med tweaks, and timelines• curiosity about Leucovorin and real-world outcomes• cannabis dosing as a flexible regulation tool• group homes vs institutions and future-proof care• building respite networks and care continuity• a small victory: silent connection and calm outdoorsPlease remember, if you would like to support this podcast, you can click the support the podcast link and buy me a coffee and buy me as many coffees as you likeYou can reach out to me at contact.parentingsevereautism at gmail.comYou can also drop me a fan mail message at psa.buzzsprout.comAngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  23. 66

    The Fight for Inclusion in a World of Exclusion Severe Autism

    Send us Fan MailMoving to Illinois with our severely autistic son brought unexpected challenges, including his increasingly violent behavior and our struggle to find appropriate medical and community support. Rejection has become an abnormally normal occurrence, but this is where it started.• Our son developed concerning rage behaviors in public• Housing search• Parent support group silence• Theatre program• Despite rejections, our son continues to show creativity and new skills• We're exploring disc golf as a new family activity• Looking for positive recreational activities remains an ongoing challengeIf you'd like to share your own experiences or what activities your child enjoys, email me at [email protected]. Support the podcast through the "buy me a coffee" link on your player or check out merchandise at psabuzzsprout.com.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  24. 65

    Navigating Severe Autism: Our Family's Difficult Relocation

    Send us Fan MailShannon shares the challenging journey of relocating from Wisconsin to Illinois with her severely autistic son, highlighting the unexpected difficulties they faced and the small victories that kept them going through the transition.• Preparing requires extensive preparation, ideally with videos of new locations• Transitioning to living with grandparents created significant challenges, including disrupted sleep patterns• Learning the ropes of medical cannabis in Illinois for Autism• Seeking special needs theatre opportunities• A stranger's understanding in a grocery store • Her son's attachment to his "Snowflake" obsidian rock shows his ability to connect and remember important detailsPlease support the show by sharing episodes with others who might benefit, as Shannon cannot advertise in parenting groups due to strict rules. You can also click the "support the show" link to help keep the podcast free for those who need it.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  25. 64

    EP. 64 When Teachers Don't Listen: A Parent's Struggle for Understanding Severe Autism

    Send us Fan MailShannon continues sharing emails between herself and her son Jacob's teachers in Wisconsin, revealing the challenges of advocating for a child with severe autism in the school system.• Ongoing battles with teachers about using food as a motivator despite Shannon's opposition due to potential eating disorders and specific dietary restrictions• Frustration with teachers repeatedly asking for guidance already provided in Shannon's comprehensive instruction letter• Teachers demonstrating defensiveness when Shannon suggests someone might be "unwittingly" triggering Jacob's behaviors• Failed experiment with CBD oil • Safety concerns with school van driver • Hilarious and endearing story about Jacob shaving• Recent breakthrough moment • Importance of scheduling IEPs as often as needed and bringing advocates to meetingsPlease share this podcast with anyone who might benefit, email your experiences to [email protected], or support the show through the "buy me a coffee" link to help keep this resource free for those who need it.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Organic Matcha TeaI enjoy the calming and strengthening benefits of this tea.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  26. 63

    Your Child Is Not a Zoo Animal: Fighting for Dignity in Special Education

    Send us Fan MailI share our experience with the public school system when Jacob returned after a previous traumatic incident, revealing the challenges, frustrations, and occasional victories during this difficult period.• The school promised an "adulting program" for independent living skills but Jacob never got to participate• Jacob needed three-to-one support instead of one-to-one, which the school couldn't provide• We struggled with getting consistent communication about Jacob's daily activities and behaviors• School staff disregarded Jacob's dietary restrictions• Jacob's therapists worked on skills at home that the school claimed he couldn't perform• The special education director's accusations• We eventually had to move and shut down our business because Jacob required more support than we could balance with work• Regular public schools often lack the capacity to properly support children with severe autismIf you find these episodes helpful, please consider sharing this podcast and supporting it by clicking the "buy me a coffee" link to help keep it free for those who need it. You can reach me at [email protected] DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyView My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Organic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  27. 62

    When Schools Fail: Navigating Autism Education and Therapy

    Send us Fan MailShannon shares the experience of returning her son to school after he was abused, revealing the challenges of finding appropriate accommodations and fighting the system at every turn.• School couldn't handle her son's needs, requiring a reduced schedule to prevent overwhelm• Battle over using a communication notebook that had always worked as a behavior management tool• School failed to provide mandated therapy services due to transitions being too difficult• Discovery of intensive therapy through Innovative Counseling that provided 40+ hours of effective support• Advocating for IEP rights and finding alternative solutions when schools fail to meet obligations• Recognizing that behaviors are communication and require understanding rather than judgment• Setting age-appropriate expectations even with developmental disabilities• Working toward creating Safer Lifestyles Respite Communities based on these experiencesPlease follow us on social media and help spread awareness about our GoFundMe for Safer Lifestyles Respite Communities. You can find the link in my bio on all platforms or email me at [email protected] with your stories and input.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  28. 61

    When They Function Better Without You: The Parental Paradox

    Send us Fan MailSevere autism presents unique challenges during summer months, particularly increased elopement risk and the need for constant vigilance. • Summer heat and reduced structure may trigger more elopement behaviors in autistic children• AngelSense GPS tracking device provides location tracking and two-way communication during elopement incidents• Children with severe autism sometimes function better when parents are not present• Schools often lack understanding of severe autism needs and may blame parents rather than providing appropriate support• Medication effectiveness can fluctuate dramatically, requiring specialized testing to understand metabolism issues• Vision for creating specialized respite communities designed specifically for severe autism families• These communities would include trusted respite, parent-trained staff, and wellness opportunities• Parents of severely autistic children must be "everything" to their child - advocate, therapist, and protectorCheck out the AngelSense GPS device link at the bottom of this episode to help protect your eloping child.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyView My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  29. 60

    My Son Deserves Joy Too: Fighting for Inclusion in a World That Says No To Severe Autism

    Send us Fan MailShannon shares a pivotal moment when she realized her son's autism was considered "severe" after he was excluded from a Disney on Ice event that his autism therapy group organized without inviting him.• Communication strategies using Disney movie references help her son understand complex concepts like family members leaving• Learning that her son requires multiple staff members for support at his therapy program• The heartbreak of discovering her son wasn't invited to a Disney event because his "needs were too great"• Fighting for inclusion and eventually attending the Disney on Ice show as a family• Funny shopping adventures with her son, including his perfect comedic timing saying "I want to be happy because people are stupid"• The hilarious struggle with a broken shopping cart and learning about boundaries• Importance of proper nutrition before outings to help manage behaviorsIf you'd like to support the podcast, click the support button on your audio player or visit psabuzzsprout.com to access merch and donation options. Small donations make a huge difference in keeping this podcast free for everyone.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyView My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaRhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Organic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  30. 59

    Healing From Within: How Self-Care Transforms Caregiving

    Send us Fan MailEDIT: I NO LONGER SUPPORT, ENDORSE, OR RECOMMEND THIS PROGRAM DUE TO FRAUDULENT ACTIVITY INVOLVING MY MEMBERSHIP.This one's about us. The caregivers. Not the children.After watching my health deteriorate despite years of consistent workouts and healthy eating attempts, I found myself drawn to a program focused on nervous system recalibration. What happened next shocked me. Through specialized therapy techniques and somatic healing, I experienced physical transformations as my body released stored trauma. Mysterious swelling disappeared, facial tension loosened, and for the first time in years, I felt my nervous system reset from its perpetual fight-or-flight state.The revelation came when I connected this personal healing journey to my observations of my son with severe autism. Like a baby bird who trembles at the sight of its mother, my son's behaviors seemed directly influenced by my internal state. This mirror effect isn't limited to autism – it appears throughout nature, from wild animals to domestic pets. As the Dog Whisperer taught us, animals respond to our internal energy more than our external commands.By shifting my focus from controlling my son's behaviors to regulating my own nervous system, unexpected changes began occurring in our household. When I stopped emotionally engaging with triggering patterns and simply stated, "I hope you get tired of this soon," long-established negative cycles began to dissolve. For autism parents perpetually stuck in hypervigilance mode, this approach offers a different path forward. While it won't cure autism, regulating our own nervous systems may create the calm foundation our sensitive children desperately need. The program I've joined provides tools for identifying food sensitivities, appropriate exercise levels for the state of your nervous system, and therapeutic techniques for processing stored trauma.If you've tried everything to help your child but haven't invested in healing yourself, this might be the missing piece. Our children mirror our energy more than we realize – what might change if you recalibrate from within?AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyView My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaRhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Organic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  31. 58

    EP. 58 The Exorcist in Room Two: Our Journey Through Severe Autism's Nighttime Challenges

    Send us Fan MailShannon shares her experience stepping back from caregiving duties to focus on her mental health after 18 years of continuous care for her son with severe autism.• Taking a temporary break in a camper near home to restore mental health after reaching burnout• Applying for fiscal sponsorship to pursue the dream of creating supportive communities for families affected by severe autism• Jacob demonstrating remembered turn-taking skills despite lack of formal therapy• Discovering disturbing nighttime behaviors through a video monitor that explained Jacob's severe insomnia• Using the monitor's intercom as an intervention until Jacob ultimately destroyed the equipment• Planning to share personal breakthroughs that have helped with mental health strugglesPlease feel free to contact me through email at [email protected], text fan mail at psabuzzsprout.com, or through the Parenting Severe Autism podcast Facebook page.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  32. 57

    Building S.A.F.E.R. Lifestyles: A Vision for Severe Autism Families

    Send us Fan MailI'm developing a social equity project called S.A.F.E.R. Lifestyles, designed to create communities for families dealing with severe autism. My vision addresses how most of us lack support, with villages abandoning us when we need them most.Contact us at [email protected] if you'd like to learn more or support the S.A.F.E.R. Lifestyles movement.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  33. 56

    Our Son Lost Everything When He Turned 15, and No One Warned Us

    Send us Fan MailImagine waking up one morning to discover your child has lost every skill they've ever learned. This devastating experience is the reality for many parents of teens with severe autism, yet it's rarely discussed in autism resources or by medical professionals.In this deeply personal episode, I share the heartbreaking story of my son losing all his functional abilities and speech within days of turning 15. What began with concerning behaviors—strange vocalizations, withdrawing to his room, repetitive actions—culminated in a complete regression that left him unable to perform even the simplest tasks he once mastered. His 100-word vocabulary vanished almost overnight, replaced only with the phrase "I love you," which he began saying indiscriminately to strangers.The most shocking part? After frantic research, I discovered this regression at age 15 is apparently a documented phenomenon in some children with severe autism—yet in all our years working with specialists and researching autism, not one professional had ever warned us this might happen. How could something so significant not be part of standard information given to parents of children with severe autism?Throughout the episode, I detail our attempts to help our son: cross-body exercises recommended by specialists, creating sensory-rich environments, increased therapy sessions, and constant engagement. I share both the frustrations and the rare moments of breakthrough, including a recent heartwarming moment when he perfectly mimicked a Tony the Tiger commercial from the depths of his memory.For parents with children under 15 with severe autism, this episode serves as both a warning and a call to maximize interventions while your child's brain remains receptive. For those who've already experienced this regression, you'll find validation and the comfort of knowing you're not alone on this journey. Sometimes being a parent to a child with severe autism means celebrating the smallest victories while navigating the most challenging losses.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  34. 55

    Living With My Decision to Accept Help From Family

    Send us Fan MailParenting a child with severe autism often means facing challenges that remain hidden from the outside world. In this deeply personal episode, I take listeners into the harrowing reality of what happened when my nonverbal teenage son began directing aggressive behaviors specifically toward me.The painful irony of being verbally abused by someone who professionals deemed "nonverbal" created a surreal existence where I developed physical pain responses to his targeting. My body would react with sharp pains in my side the moment I heard his aggressive vocalizations approaching—a visceral reminder of how deeply these interactions affected me. What made this situation uniquely isolating was his remarkable ability to transform into a sweet, compliant child whenever someone who could validate my experience was present.I share the heartbreaking moment when I found myself telling my husband "he's lying" after our son denied his behavior—a childish outburst that revealed my desperation to be believed. When my father-in-law finally offered help during a particularly brutal episode, I accepted without fully considering what form that help would take. The resulting verbal tirade he unleashed on our son temporarily changed his behavior but left me questioning everything about appropriate boundaries.Through mysterious new behaviors like stuffing deodorant down drains, flooding bathrooms, and eventually self-harm, we discovered a shocking truth—our son hadn't been sleeping for months. Family members living in our home had witnessed his nighttime activities but never thought to mention this crucial information as we searched desperately for answers.For parents facing similar hidden battles, this episode offers no easy solutions but something perhaps more valuable—the knowledge that you aren't alone in these complex, rarely-discussed aspects of raising a child with severe autism. Your experiences are valid, even when others can't see or understand them.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  35. 54

    EP.54 - The Caregiver's Dilemma: Fighting for Your Child While Fighting for Yourself

    Send us Fan MailShannon Chamberlin shares a devastating family betrayal that threatened her son's financial future and pushed her to physical and emotional breaking points, while also celebrating rare moments of communication breakthrough from her severely autistic son.• The purpose of the podcast is to warn parents about unexpected challenges in severe autism parenting• Shannon discusses her 19-year struggle with Hashimoto's autoimmune condition while caregiving• The family is taking legal precautions to protect their current living situation• Shannon's perspective on residential care evolved from heartbreak to desperately seeking options• Rare communication breakthroughs provide precious moments of connection with her son• Caregivers need time for personal development and thinking as adults, not just emergency parentsIf you have questions, comments, or stories to share, email [email protected] the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  36. 53

    Navigating Teenage Severe Autism: When Everything Changes and Nothing Makes Sense

    Send us Fan MailWe never expect our lives to require staying in high alert mode indefinitely, but parenting a severely autistic child often demands exactly that level of vigilance and adaptability.• Experiencing the heartbreak when your child begins hating everything they once loved• Dealing with family members who don't understand your child's needs or your parenting approach• Navigating the additional challenges of puberty with a nonverbal teenager• Learning to recognize when your child is being mistreated, even when they can't tell you directly• Finding creative solutions when traditional therapy approaches don't work• Discovering grants and financial assistance programs for autism servicesRemember to ask organizations about available grants if you need services for your child. Many places offer application assistance to help you qualify for these resources.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  37. 52

    The Unseen Struggles of Parenting a Child with Severe Autism

    Send us Fan MailUnderstanding the daily battles of parenting a child with severe autism takes center stage, emphasizing emotional toll, struggles, and small triumphs. Shannon shares her journey, revealing insights and experiences that resonate deeply with listeners.• Importance of online therapy solutions for caregivers • The critical impact of mismanaged medications • Strategies for finding joy amid daily struggles If you're interested in learning more about online therapy options and discounts, reach out to Shannon at [email protected] or visit her Buzzsprout page for more information. AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  38. 51

    Adventures in Parenting a Child with Unique Communication - Severe Autism

    Send us Fan MailThis week's episode dives into the humorous and heartfelt moments of parenting severe autism while highlighting communication challenges within the family. We discuss the impact of outside influences, share lively anecdotes, and celebrate the small victories and breakthroughs that define our experiences. • Contemplating media influence on son’s behavior • Reflecting on alarming moments with "The Tweedles"• Gaining valuable insights from an autism therapy group • Observing the impact of stimming on the body• Celebrating communication breakthroughs through mealtime interactions • Highlighting humorous, everyday moments that shape understanding Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  39. 50

    Navigating Parental Identity and Community Misunderstandings in Severe Autism Caregiving

    Send us Fan MailThis episode explores the complexities of parenting a child with severe autism, focusing on behavioral observations, shifts in household control, and the impact of communication. Throughout the conversation, the host reflects on personal experiences, shares strategies, and offers insights that encourage connection and understanding among listeners. • Observing and interpreting muscle twitching behaviors • Discussing the role and effectiveness of pharmaceuticals • The positive impacts of structured control in household dynamics • Celebrating Jacob's new communicative expressions • Addressing the obsession with dad and respect for boundaries • Misunderstandings surrounding non-sexual behaviors in therapy • Reflecting on identity loss and caregiver challengesSupport the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  40. 49

    Toileting and Dietary Challenges Amidst Family Clashes In Parenting Severe Autism

    Send us Fan MailOur latest podcast episode takes a raw look at the joys and challenges of parenting a child with severe autism, examining the delicate balance of striving for independence while facing recurrent setbacks. We delve into personal stories that highlight toileting challenges, dietary decisions, and the impact of family dynamics as we navigate the complexities of autism parenting.• The emotional toll of societal misjudgment • Toileting challenges and steps to fostering independence • Dietary implications on behavior and well-being• The clash of family expectations and respect for dietary needs • The necessity of collaboration and understanding within family dynamics++Please note++ Transcript unavailable for this episode due to the failure of AI to properly produce it.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  41. 48

    Embracing Unique Identities in Severe Autism Parenting

    Send us Fan MailHeads Up! This one gets a little emotional! What if you could transform your understanding of autism and turn challenging moments into opportunities of growth? Join me, Shannon Chamberlin, as I share our family's journey navigating early puberty with our son, who has severe autism. From managing the long transition periods between activities that disrupt his school therapies to ingeniously fostering his independence with themed alarm clocks, we uncover the unique patterns and preferences that shaped this complex phase of his life.Discover the power of communication in autism through our heartfelt experiences with my son’s profound communication challenges. After a well-intentioned attempt to guide him through articulating his emotions, we turned to a nonprofit autism group for expert guidance. This crucial step uncovered subtle behavioral cues and innovative communication strategies, like using keyboards, that helped us better understand his ever-evolving needs and the importance of a supportive network.We also explore the themes of acceptance and identity, underscoring how affirming an autism diagnosis can have a transformative impact. Through touching exchanges, my son and I navigate questions about his identity, reminding him that nothing is wrong with him—he's simply unique. A light-hearted moment with a young boy who humorously embraces his autism as "aw shazam" highlights the joy and strength that come from reimagining one's identity. Join this episode to witness the incredible power of connection and empathy in our autism journey.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Buzzsprout - Let's get your podcast launched!Start for FREEWilbarger Therapy Therapressure BrushesWilbarger Therapy Brush, 2 Pack – Therapressure Brush for Occupational Therapy for Sensory Brushing Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  42. 47

    Our Son's Severe Autism Test Results, Cherished Progress and Family Hurdles

    Send us Fan MailThis episode recounts our personal experience navigating Jacob's autism evaluation at 16 years old, detailing the process, insights, and outcomes that emerged from it. We explore key findings, discuss challenges within family dynamics, and share humorous anecdotes that highlight the unique aspects of parenting in the context of severe autism. • Discussion of the journey to find an appropriate evaluation center • Personal reflections on Jacob's evaluations and challenges faced • Overview of the Vineland and CARS assessment results • Insight into therapy recommendations and family dynamics • Touching stories about Jacob's understanding of family rolesTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmAngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  43. 46

    Behaviors, Coping Strategies, Empathy, Growth and Legislation in Severe Autism Living

    Send us Fan MailThe episode highlights the complexities of parenting a child with severe autism, touching on legislation like the Autism Cares Act, personal experiences, and behavioral challenges faced at home. We share humorous anecdotes alongside heartrending truths about navigating daily life, emphasizing the importance of understanding and compassion in our journey.• Discussion about the Autism Cares Act and its implications • Reflection on pulling Jacob from school and observed behaviors • Memories from a family trip to Animal Kingdom • Managing Jacob's challenging behaviors at home • Conversations surrounding animalistic behaviors and coping strategies • Using humor to navigate tough situations • Moments showcasing Jacob's empathy and growthTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmAngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyOrganic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.View My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  44. 45

    EP.45. Learning Differently: A Story of Severe Autism, Resilience, and Compassion

    Send us Fan MailOur latest episode explores the transformative journey of non-schooling for kids with severe autism, emphasizing the value of nature, creativity, and family engagement in a child's learning experience. We reflect on the challenges posed by traditional education methods and share insights on how we've adapted our parenting approach to better support Jacob's unique needs and interests. • Exploring the concept of non-schooling as an alternative education path• Emphasizing the importance of outdoor experiences and nature in learning• Reflecting on Jacob's interests in movies and theater as educational opportunities• Establishing structured family time and navigating Jacob's resistance• Communicating effectively with Jacob about his feelings and behaviors• Acknowledging resilient moments of growth and understanding in communication skills• Identifying external stressors affecting Jacob's emotional well-being• Planning future episodes focused on experiential learning and caregiver relationships.Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Buzzsprout - Let's get your podcast launched!Start for FREESelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaAngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyView My Summer Supplies Shopping Cart!iHerb supplies some of the safest summer products for sunscreen, bug screen, and stress management!Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

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    EP.44. Embracing Severe Autism's Challenges with Humor and Heart

    Send us Fan MailExploring the complexities of autism and family dynamics, this episode delves into vaccine concerns, genetic traits, communication challenges, and the necessity of parental advocacy. Listeners gain insight into the ongoing journey of understanding and supporting their children with autism. • Discussion on the potential link between vaccines and autism • Recognition of family traits and hereditary behaviors • Communication barriers and the detective role of parents • Importance of steadfast advocacy in supporting children • Loneliness and isolation felt by parents of children with autism • The power of music and shared activities in bonding • The practice of gratitude amidst challengesAngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  46. 43

    EP.43. Transformative Moments in Autism Education

    Send us Fan MailThis episode features a heartfelt conversation with my spouse Jason as he describes being a single father of a child newly diagnosed with autism, sharing insights about the journey through diagnosis, therapy, and the advocacy needed within education. The emotional rollercoaster of birthday reflections and the importance of understanding energy dynamics in their relationship forms a compelling narrative.• Jason's experience and journey through Jacob's diagnosis • The critical role of play-based therapy in early communication • Insights on advocating for quality education tailored to individual needs • Importance of emotional energy in interactions with children on the spectrum • Reflections on milestones and gratitude in the context of family experiencesAngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  47. 42

    EP.42. Empowering Choices and Building Support: An Unconventional Journey Through Severe Autism Parenting

    Send us Fan MailImagine navigating a world where words are scarce, but choices abound. Join me on a profound journey with my son Jacob, who has severe autism, as I unravel the intricacies of parenting beyond the conventional. Discover how we respect Jacob's autonomy through simple yet powerful acts like letting him choose whether to attend school, and explore the enchanting world of outdoor adventures that help him connect with the environment and conquer his fears, including his initial aversion to bugs. Delight in the whimsical world of Jacob's imagination as he bestows flowers with unexpected names, reminding us all of the small joys that punctuate our unique path.The adventure doesn’t stop there. Building a support network has been crucial, and I share how a pivotal relationship with a state-level caseworker opened doors to invaluable programs like the Katie Beckett program, all while offering emotional and logistical support. Experience a touching moment when Jacob uses words to express his desires, showing the power of persistence and open communication. Finally, revel in the joy of our family’s cherished "beat downs" with socks—a quirky tradition that never fails to light up Jacob's world. Through gratitude and laughter, we navigate this complex journey of parenting with severe autism, inviting you to connect and find inspiration in our story.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmMagnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaSelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Organic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

  48. 41

    EP.41. Navigating the Complex Terrain of Parenting: Severe Autism, Homeschooling, and Healing Journeys

    Send us Fan MailMisunderstandings with family, self-harming incidents, and heartbreaking decisions mark the emotional terrain of parenting a child with severe autism. Picture a moment where miscommunication with my son’s grandmother unravels, highlighting the delicate dance of maintaining family ties amidst the unique challenges of special needs parenting. I share a poignant story of a self-harming episode that led to the wrenching choice of withholding favorite treats—a testament to the ongoing struggle of balancing discipline with compassion.Traditional schooling was a battlefield that left our child unhappy and unsupported, pushing us toward the road less traveled: homeschooling. With emotional and logistical hurdles at every turn, we navigated through a frustrating lack of support from the school system to create a nurturing learning environment at home. From setting up structured schedules to integrating therapeutic support, we focused on tailoring educational experiences to honor our child's individuality and fostering a positive atmosphere where he could thrive.Through a non-schooling approach, we embraced the healing potential of nature and autonomy, allowing our son to explore life beyond structured education. Activities like riding a four-wheeler became symbols of freedom and joy, respecting his choices and supporting his journey toward comfort and healing. Amidst all this, we tackled the challenging task of adjusting medications, aiming to ease anxiety and unwanted behaviors. This episode is a heartfelt narrative of resilience, adaptability, and the unpredictable journey of parenting a child with severe autism, offering insights and encouragement for those walking a similar path.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyTherapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmWilbarger Therapy Therapressure BrushesWilbarger Therapy Brush, 2 Pack – Therapressure Brush for Occupational Therapy for Sensory Brushing Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Organic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Rhodiola AdaptogenicNervousSystemsupportThese are some of my favorite products - Organic with no fillers, no flow agents, and no synthetics.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

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    EP.40: Balancing Challenges and Triumphs: The Journey to Advocate for Our Son

    Send us Fan MailNavigating the world of parenting a child with severe autism can be both a heartwarming and harrowing journey. Join us as we recount the triumphs and trials of teaching our son, Jacob, to communicate and expand his vocabulary. While there are moments of joy, we also confront the struggles that come with Individualized Education Program (IEP) meetings and the frustration when communication with educators falls short. Discover how we balance the lack of clear guidance with the urgent need to advocate for our child's needs.As we brave the biting cold of winter, we face the unique challenges of ensuring Jacob is dressed appropriately, considering his sensory sensitivities. From the comic chaos of morning routines to the serious subject of empowering Jacob against bullying, we share how humor and patience are essential in tackling these everyday parenting challenges. We also confront the unsettling reality of potential mistreatment at school, underscoring the importance of vigilance and advocacy in ensuring a safe and supportive environment for our son.Reflecting on the emotional landscape of caregiving, we explore the delicate balance between managing screen time and fostering a nurturing community for our son. Our journey includes the unanticipated lessons learned about the psychological impacts of screen time, along with efforts to teach Jacob basic life skills like handwashing. Through stories of struggle and resilience, we aim to inspire fellow parents facing similar journeys, reminding them of the power of community support and the superhero strength needed to navigate the complexities of raising a child with severe autism.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlyOrganic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Select a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaDisclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

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    EP.39: Navigating Holiday Joys and Challenges with Severe Autism

    Send us Fan MailIs the holiday season a joyful experience for families navigating severe autism? Join me, Shannon Chamberlin, in this heartfelt episode of the Parenting Severe Autism Podcast as I share our journey through seasonal traditions with our son. Through these stories, I look at how we’ve managed to create a harmonious environment that supports Jacob's development and our family’s unity.Caring for a child with severe autism comes with its own set of challenges and celebrations. Learn about the routines we've embraced, from soothing spa days with sugar scrubs to creative solutions for bath time that empower Jacob’s independence. I’ll share how yoga and breathing exercises have become indispensable tools in easing his headaches and promoting emotional regulation, especially during transitions. These practices are not just about care; they’re about fostering joy and effectiveness while building resilience and independence. Our journey is filled with small victories that highlight the deep connection and mutual understanding I share with Jacob.Finally, we address the stress and complexities of managing behavioral challenges and maintaining emotional balance in the face of holiday disruptions. Whether dealing with meltdowns, medication adjustments, or the constant echolalia, we emphasize the importance of teaching choices and celebrating moments of responsibility. I discuss the impact of environmental factors and share personal reflections on resilience and self-care for parents. As the holiday season approaches, I encourage listeners to find moments of respite and support, preparing for a return to normalcy with renewed strength and understanding.AngelSense DeviceAngelSense GPS Monitoring Device Tracker For Kids, Teens, ElderlySelect a Size TV Screen Impact ProtectorHeavy Duty. Extensively tested; will deflect any thrown remote control or a toy.Magnesium Citrate Nervous System SupportNOW Foods - Magnesium Citrate Nervous System Support 400 mg. - 240 Vegetable Capsule(s) NOW Foods MaOrganic Herbal Liquid Tinctures For You!Mountain Rose Herbs supplies carefully formulated tinctures that fit in with our busy lifestyle.Therapressure Brush 6 Pack Latex FreeSpecial Supplies Sensory Brush for Occupational and Sensory Brushing 6 Pack Latex Free StimulateCalmOrganic Matcha TeaI enjoy the calming and strengthening benefits of this tea.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the showhttps://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.comGet Podcast Merch at the following link:   https://psapodcast.creator-spring.com/ https://www.facebook.com/people/Parenting-Severe-Autism-podcast/100083292374893/Email: [email protected]

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ABOUT THIS SHOW

Parenting Severe Autism is a raw, unfiltered podcast for parents and caregivers raising children with Severe Autism. Hosted by Shannon Chamberlin - a parent, not a professional - this show is your emotional lifeline, real-talk resource, and reminder that you're not alone.From early childhood to adulthood and beyond, Shannon shares honest stories, painful truths, small victories, and survival strategies for the families the world forgets.Whether you're in crisis mode or just need someone who gets it, this is your space.No fluff. No sugarcoating. Just truth, hope, and community.Severe Autism and special needs considerations. This type of autism parenting is lifelong... it becomes adult autism parenting. Seek caregiver support when possible.

HOSTED BY

Shannon Chamberlin

Frequently Asked Questions

How many episodes does Parenting Severe Autism have?

Parenting Severe Autism currently has 50 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.

What is Parenting Severe Autism about?

Parenting Severe Autism is a raw, unfiltered podcast for parents and caregivers raising children with Severe Autism. Hosted by Shannon Chamberlin - a parent, not a professional - this show is your emotional lifeline, real-talk resource, and reminder that you're not alone.From early childhood to...

How often does Parenting Severe Autism release new episodes?

Parenting Severe Autism has 50 episodes. Check the episode list to see recent publication dates and frequency.

Where can I listen to Parenting Severe Autism?

You can listen to Parenting Severe Autism on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.

Who hosts Parenting Severe Autism?

Parenting Severe Autism is created and hosted by Shannon Chamberlin.
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