Patient PrepRheum Podcast
by CreakyJoints Australia
Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. In Patient PrepRheum, we are looking at three key areas:Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; andthe importance of good patient-doctor communication.Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit the CreakyJ
Episodes
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From Pain to Power – A Lupus Journey of Hope
In our second episode, Naomi chats with Julie Norris, who lives in rural Victoria and whose life has been profoundly shaped by resilience, compassion and advocacy. Living with lupus for more than 34 years, she has navigated the daily challenges of a chronic illness while raising her son as a…
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A New Horizon for Treating Lupus
In our first episode, host Naomi Creek discusses all things lupus with Professor Eric Morand, a Sir John Monash Distinguished Professor, a physician-scientist and Dean of the Sub-Faculty of Clinical and Molecular Medicine at Monash University. He is a clinical rheumatologist specialising in...
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Managing Daily Life and Self-Care with axSpA
Naomi and her guests discuss ways to manage axSpA in daily life in this third episode of the season. Janet Millner is an experienced physiotherapist and a valued member of the rheumatology team at the Royal Hobart Hospital in Tasmania. She has special interests in the management of...
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The Role of Inflammation in axSpA and Its Comorbidities
In episode 2 of this season, Naomi and her guests discuss the comorbidities associated with axial spondyloarthritis (axSpA). Dr Arupam Raman is a rheumatologist at South by Southwest Specialists in Gledswood Hills, NSW. She also holds a Master of Medicine (Internal Medicine) from the University…
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Understanding Axial Spondyloarthritis: Diagnosis and Treatment
In this episode, host Naomi Creek and her guests discuss the early stages of Axial Spondyloarthritis (axSpA). Cherie Cleland (70) lives with a non-specific form on axSpA. She has tried numerous treatments over the years and has developed other health conditions including inflammatory bowel…
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Psoriatic Arthritis: Self-Management and Getting on with Life
In our third episode, Naomi is chatting with Simone Bye from New South Wales, who lives with psoriatic arthritis. Simone was diagnosed in 2018 and is a mum of two young children. She says the hardest part of her journey has been trialling and medically failing so many treatments, which has made…
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Psoriatic Arthritis: Patient Journeys and the Road to Diagnosis
In this episode, Naomi is joined by two patients. Kay Boucker is from New South Wales and was diagnosed with psoriatic arthritis in 2013. Kay lived with psoriasis for many years before experiencing other symptoms like fatigue, tendon pain and uveitis. She said it took her GP a long time to be...
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Psoriatic Arthritis: An Underdiagnosed Disease
In this episode, we talk with Dr Premarani Sinnathurai, a specialist in the Rheumatology Department at Royal North Shore Hospital and Clinical Senior Lecturer at the University of Sydney. She was awarded her PhD from the University of Sydney in 2019 on Comorbidity and Patient-Centred Health...
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Methotrexate; Management, Myths and Milestones
In this episode, we’ll be talking about methotrexate and clarifying how it is used in rheumatology settings. Methotrexate is one of the main medications used to slow or stop the progression of autoimmune arthritis and reduce disease activity. We’ll hear from Janine Fisher, a patient who has lived...
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Audio Guide: Methotrexate
Learn more about the medication Methotrexate in this short audio guide that accompanies Episode 4: Methotrexate - Management, Myths and Milestones. The guide gives an overview of Methotrexate and delves deeper into how the medication works, how it is used and its side effects.
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Audio Guide: Patient/Doctor Communication
This is an audio guide about patient and doctor communication brought to you by CreakyJoints Australia. Be sure to go to the CreakyJoints Australia website, and join for free to keep updated on all of our resources. TRANSCRIPT This is an audio guide about Patient and Doctor Communication, brought...
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Audio Guide: Medicine Approval and Access in Australia
This is an audio guide about the approval and sale of therapeutic goods in Australia, brought to you by CreakyJoints Australia. Be sure to go to the CreakyJoints Australia website and join for free to keep updated on all of our resources. TRANSCRIPT This audio guide is about the approval and sale...
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Audio Guide: Biosimilars
This is an audio guide about biosimilar medications, brought to you by CreakyJoints Australia. Be sure to go to CreakyJoints Australia website, and join for free to keep updated on all of our resources. TRANSCRIPT Audio Guide 1: Biosimilar Medications This is an audio guide about biosimilar...
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Improving Patient/Doctor Communication
In our third episode, Naomi learns some top tips from fellow patient Sarah Clark about having good communication with your doctor. Sarah tells of her rocky start with her initial diagnosis and early treatment until she found a specialist who really listened to her. Rheumatologist, Dr David Liew...
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Accessible Medication Through the TGA & PBS
In episode 2, Naomi talks with Janine Monty, who lives with multiple autoimmune conditions. Janine shares why having access to a large range of affordable medicine is key to her being able to manage her everyday life. Having to take 17 different medications, not all on the Pharmaceutical Benefits...
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The Next Step with Biosimilars
In our premiere episode, we’ll be talking about biologic medicines and biosimilars. These are medicines that are used to slow or stop the progression of autoimmune arthritis and reduce disease activity when conventional tablet-form medications aren’t working well enough for you. We’ll hear from…
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Patient PrepRheum Trailer
Patient PrepRheum is a new podcast series hosted by Naomi Creek, who has lived with Rheumatoid Arthritis for nearly 40 years. Naomi speaks with fellow patients and renowned doctors to explore important and often-misunderstood aspects of living with autoimmune arthritis and related conditions in...
About this show
Patient PrepRheum is a podcast exploring important and often-misunderstood aspects of living with autoimmune arthritis and related conditions here in Australia. We'll speak with fellow patients and renowned doctors to help gain a better understanding of some of the less talked about topics of managing these diseases.At CreakyJoints Australia we are on a mission to raise awareness and deepen the collective understanding of arthritis, a disease which has more than 200 variations, empowering patients to put themselves at the centre of their own health. In Patient PrepRheum, we are looking at three key areas:Biosimilars - a group of biologic medicines used to slow and stop the progression of Autoimmune arthritis;How medications are approved via the Therapeutic Goods Administration and the Pharmaceutical Benefits Scheme; andthe importance of good patient-doctor communication.Hosted by CreakyJoints Australia National Coordinator Naomi Creek. For more information, visit the CreakyJ
Hosted by
CreakyJoints Australia