PODCAST · business
Radio Rare
by Rare Cancers Australia
Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy.Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers.Produced by Rare Cancers Australia
Episodes
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ABC Radio interview with RCA CEO, Christine Cockburn
Our CEO, Christine Cockburn, caught up with James Valentine recently on ABC Radio. They chatted about James’s own experience with cancer, Oesophageal Cancer Awareness Month, and the devastating inequities facing people diagnosed with rare or less common cancers.
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The Australian genomic landscape and what we can learn from others | Policy Roundtable Series
Rare Cancers Australia and Australian Genomics invite you to a policy roundtable series exploring the enablers and barriers to genomic-led cancer care for people diagnosed with rare, less common and complex cancers. Your valuable perspective will contribute to discussions and a report, with...
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Fundraising for treatments only available overseas
Two-year-old Luna’s family is fundraising for treatments only available overseas for her rare childhood cancer, neuroblastoma. They sat down with Gary Hardgrave on the 4BC Radio Drive program to share their experiences.
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RCA CEO, Christine Cockburn, interviewed with i98 Power FM radio on the need for a pan-tumour approach to cancer care
People living with cancer urgently need action on expanded access to precision therapies Over the past two decades, our ability to rapidly obtain genomic information on an individual and their cancer has led to a dramatic shift in how we can diagnose, treat, monitor and prevent cancer, leading to...
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What happens when you are diagnosed with a rare cancer?
In this edition of The Conversation Hour, hosted by ABC Radio Melbourne, we hear the experiences of callers who have been diagnosed with a rare cancer and their families. We also learn about the latest developments in treatment and support with guests Professor Clare Scott who is a clinician...
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ABC Radio Interview: The cost of treatment for rare cancers
Noel Carmona, living with thymic carcinoma, and Rare Cancers Australia CEO Christine Cockburn, sat down with ABC Radio in the Upper Hunter to talk about the cost of treatment for people diagnosed with a rare cancer, and what needs to change to make things fair for rare.
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Thought Leader Series: Thinking big, how we can make a difference for patients, Professor Grant McArthur
Professor Grant McArthur Executive Director, VCCC Alliance Head of the Molecular Oncology Lab, Peter Mac Thinking big: how we can make a difference for patients In this episode, RCA Chief Executive Richard Vines speaks to Professor Grant McArthur about: · The challenges of personalising cancer...
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Thought Leader Series: The future of cancer and medical research, Emeritus Professor Ian Frazer
Emeritus Professor Ian Frazer University of Queensland The future of cancer and medical research In this episode, RCA Chief Executive Richard Vines speaks to Professor Ian Frazer about: Inventing the technology behind the world’s first cancer vaccine Vaccine hesitancy, and the potential of other...
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Thought Leader Series: Improving the patient voice in the Australian health system, Ann Single
Ann Single Patient Voice Initiative Improving the patient voice in the Australian health system In this episode, RCA Chief Executive Richard Vines speaks to Ann Single about: - The limitations of Australia’s Health Technology Assessment (HTA) process - How and why the HTA process needs to be…
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Thought Leader Series: Our responsibility to patients who can’t afford to wait, Professor John Zalcberg
Professor John Zalcberg Head, Cancer Research Program, School of Public Health, Monash University Our responsibility to patients who can’t afford to wait In this episode, RCA Chief Executive Richard Vines speaks to Professor John Zalcberg about: - How he was destinated to be in medicine since...
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Thought Leader Series: Risks and rewards: getting new medications into the hands of patients, Carlo Montagner
Carlo Montagner Co-Founder and CEO, Specialised Therapeutics Australia Risks and rewards: getting new medications into the hands of patients In this episode, RCA Chief Executive Richard Vines speaks to Carlo Montagner about: His move from psychology to pharma Building a strong foundation in the...
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Thought Leader Series: From Registered Nurse to Chief Executive, Professor Shelley Dolan
Professor Shelley Dolan Chief Executive, Peter MacCallum Cancer Centre From Registered Nurse to Chief Executive In this episode, RCA Chief Executive Richard Vines speaks to Professor Shelley Dolan about: Signing up as a nurse dressed in full punk rock gear, complete with pink hair Her love of...
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COVID Connect: COVID and its effect on people living with cancer, with Julie McGirr and Giovanna Raco
In the latest episode of the Radio Rare podcast, Clinical Nurse Specialists Julie and Giovanna from Cancer Council Victoria share how the turbulence of the last 18 months has affected people living with cancer, and what patients are most concerned about at the moment.
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COVID Connect: Community Impact and Mental Health with Headspace's Rupert Saunders
In the latest episode of the Radio Rare podcast, we chat to Rupert Saunders from headspace for an insight into what many young people are feeling in the wake of 18 months of constant changes and challenges. He also provides some tips and strategies for people of all ages who may be struggling to...
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COVID Connect: COVID-19 Vaccine Research with Prof Rhonda Stuart
We are living in extraordinary times, and uncertainty drives us to seek answers. It's easy to get swept away in a sea of conflicting information. In the latest episode of Radio Rare in our COVID Connect mini-series, we go back to basics with Professor Rhonda Stuart from Monash Health. Drawing on...
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COVID Connect: Impact of COVID-19 on our healthcare system, with Dr Nick Pavlakis and Geraldine McDonald
The impact of COVID-19 on our healthcare system has and continues to be significant. In our latest episode of Radio Rare in our COVID Connect mini-series, we take you into the hospital world and explore the NSW and Victorian experiences through the lens of two experts - Oncologist at Royal North...
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COVID Connect: Adjusting to a new normal with Maddie
It was just before Melbourne's second lockdown (lasting 111 days) that Maddie was diagnosed with thymoma. In our first Radio Rare episode in our COVID Connect mini-series, she shares how she adjusted to her new normal - facing not just a cancer diagnosis, but the added uncertainty of a rare…
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Tamlin Hall: I'm not a failure - a teenage perspective on childhood cancers
When many people think of childhood cancers, images of babies and toddlers often appear. But what about teenagers living with a rare cancer? This is a very different picture, and one that is often overlooked as Tamlin explains in our latest episode of Radio Rare.
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The Isham family and Dr Rachel Conyers on Childhood Cancers
Even when you are a doctor, finding out your son has a rare cancer can be difficult to understand. In this special #RareCancersAwarenessDay edition of Radio Rare, our very own Dr Emily shares a very personal experience with her husband and oncologist by her side.
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Dr Amanda Ruth, on the Future of Cancer Care in Australia
It's an exciting time in cancer care with advances in medicine allowing us to look more closely at each person's cancer, and to identify more effective treatments for each patient's case. In the latest episode of Radio Rare we explore this and what this means for patients with our very own Dr...
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Dr Jay Perry, taking treatments bench top to bedside
Benchtop to bedside is a commonly used term when it comes to research. But what does it mean in the reality of cancer treatments, and what does it look like when it comes to developing new medicines for cancer patients? We explore this in our latest episode of Radio Rare featuring Dr Jay Perry,...
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Cindy Bakos & Cassandra Howcroft, making fitness fun for kids
In this weeks episode, we sit down and talk with Cindy Bakos and Cassandra Howcroft and explore why it's so important for children living with a cancer diagnosis to stay active, and how parents can make it fun, together. Cindy and Cass are two mums at the front of the exercise as medicine…
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Tracey Duggan, turning cancer fatigue into cancer fitness
Appearing this week on Episode 3 of Radio Rare: Exercise Physiologist, Tracey Duggan, who specialises in working with cancer patients on their treatment journey. Join us alongside Dr Emily as we explore how fitness helps lower your cancer fatigue, and how you can find the right place to get…
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Dr. Damien Kee, researching rare cancers
In episode one, we heard from Kate Vines on what life has been like living with a rare cancer. In episode two, we want to follow that with Dr. Damien Kee from the Austin Hospital and talk about what specifically makes rare and less common cancers so different from common types of cancer. So join...
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Kate Vines, life with a rare cancer
Season two of Radio Rare is here and for episode one, we chat to Kate Vines, one of the founders of Rare Cancers Australia, talking about her life with a rare cancer and how technology has opened new treatment options. We also have a special guest, Dr Damien Kee, a medical oncologist based at the...
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Christmas Special: Mike George, an Australian Larykin
Our guest this week, making his debut appearance, is Mike George. One of a small number of Australias, who has undergone a laryngectomy. Mike talks us through the journey of his diagnosis, and advocacy work. As you'll hear not having a voice box hasn't slowed Mike down, hear him tell his own story.
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Rare Bite: Navigating Palliative Care
Palliative Care. Two words that often cause so much discomfort and fear, but what do we really know about it? Join Dr. Emily and Sidekick James, as they dive into the world of Palliative Care.
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Rare Bite: CAR-T Therapy, what is it?
CAR-T: Easy to spell but hard to explain. So, we took a shot at breaking it down. This week's Rare Bites reaches out to explore the world of CAR-T Therapy, how it works and what it does. We even find out how it feels. Tune in each week to Rare Bites for more bite-size info in the cancer space.
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Rare Bite: Medicines and the PBS
There are so many things that go into getting Medicines to the public, and so much of it is confusing. So we thought we'd break it down. #RareBites
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Rare Bite: Cancer and what to say to someone diagnosed
There are so many things we wish we could un-say and take back, but sadly, it doesn't work that way. So here's the next best thing, 3 Golden Rules to help you say the right thing to someone going on a cancer journey. We've also included a few things we've heard or have been said to us at RCA, so...
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Rare Bite: Sex, Intimacy, and Cancer
Rare Bites is our new short-form podcast series where we take a look at complicated topics and questions in the cancer space and bring you some bite-sized answers. In episode one, we look at Sex, Intimacy, and where they fit into the cancer experience. Do people with cancer have sex? How can you…
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Richard Vines, the why behind Rare Cancers Australia
For our final episode of Radio Rare, we chat to Rare Cancers Australia (RCA), CEO, Richard Vines as he pulls back the curtain and talks about how RCA came to be and why the need is so great. All clips in this episode can be found in Season One of Radio Rare.
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Ben McGuire, the things no-one sees coming
Ben shares the heartfelt cancer journey of his family when his wife Donna was first diagnosed with a rare cancer. He recounts from the time of the first biopsy, through the ups and downs that no-one sees coming. Motor Events 2020 Motor Events has Australia's most diverse competitive grassroots...
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Hosam Ehdeyhed, the strange experience of being diagnosed with cancer
Hosam is a father of 3 and a dentist by career. In 2009, he was diagnosed with a rare type of brain cancer and in this episode of Radio Rare, he shares the strange experience that he had when he was first diagnosed and describes the highs and lows of his rare cancer journey. Today's episode is...
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Professor Sean Grimmond, new hope with precision medicine
As precision medicine looks to provide new hope to cancer patients, we speak to Professor Sean Grimmond from the Melbourne University Centre of Cancer Research. Professor Grimmond discusses how far Genomic sequencing has come and how much further it will go. Today's episode is sponsored by Care...
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Julijana Todorovic, the crossroads of a cancer experience
To round out Sarcoma Awareness Month we speak to Ewing Sarcoma survivor and member of the ANZSA consumer advisory panel, Julijana Todorovic. Julijana was diagnosed at the age of 22 and dives into how a cancer experience can feel as though you are at a crossroads.
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Luke Bourne, having a life-changing CT scan
From working in the mines in Queensland to having a life-changing CT scan which revealed a lump on the brain. Luke Bourne shares his 5-year experience of living with an incredibly rare cancer known as Alveolar Soft Part Sarcoma. Lifeline: https://www.lifeline.org.au/ Beyond Blue:...
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Dr Denise Caruso, educating without inducing paranoia
Dr Denise Caruso, CEO of the Australia and New Zealand Sarcoma Association, ANZSA, chats with Dr Emily Isham about sarcomas, clinical trials for rare cancers, and how to educate without inducing paranoia.
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Tania Rice-Brading, continuing Cooper's legacy
20% of childhood cancers in Australia are Sarcoma. Tania Rice-Brading, co-founder of the Cooper Rice-Brading foundation shares why she is passionately striving for more sarcoma research and we also hear the emotional story of who the Cooper behind the Cooper Rice-Brading Foundation is. A note…
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Judi Meloni, living with a rare cancer
Dr Emily Isham talks with Judi as she shares her remarkable cancer experience from the beginning of her diagnosis, what it's like to live with a rare cancer, her close encounter with mercury poisoning, and how she has picked up the slack when it comes to finding support.
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Jessica Bean, advocating for Australian patients
Patient advocate and founder of the Patient Voice Initiative, Jessica Bean, discusses some topics that are central to many rare diseases, not just rare cancers, clinical trials, compassionate access, and patient advocacy.
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Professor Bogda Koczwara, the true meaning of cancer survivorship
It is common to think that a cancer journey ends once a person goes into remission and it can feel as though the parade has passed by. Professor Bogda Koczwara from Flinders University talks about the true meaning of Cancer Survivorship and how Australia's healthcare system is dealing with this...
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Professor David Thomas, the future of cancer research
Professor David Thomas from the Garvan Institute of Medical Research provides a glimpse of what the future of cancer research could look like. Professor Thomas gives us an insight into the man behind the white coat, how patient experiences shape his daily work and how molecular medicine is…
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Dr Richard Tothill, the power of genomics
Dr Richard Tothill from the University of Melbourne gives us a glimpse into the future of cancer treatments, particularly in CUP and NETS. His research in genomics is bringing cutting edge concepts to reality and we are on the cusp of a seismic shift. For this Genomics Group leader, it's just...
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Christine Cockburn, the rollercoaster experience of cancer
Christine Cockburn, Head of Support and Operations here at Rare Cancers Australia shares the emotional story of caring for her mum during her cancer journey along with the roller coaster that was her own cancer journey. Christine provides insight from not only a carers perspective but a patient...
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Adam Lynch, the story behind BEAT Bladder Cancer Australia
Adam Lynch, father of two children and founder of BEAT Bladder Cancer Australia shares the journey of his late wife Anna as she tried to overcome Bladder Cancer. Adam dives into the inspiration of founding BEAT Bladder Cancer Australia.
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Dr Rebecca Kelly, dealing with childhood cancer
Scientist, advocate, mum and caregiver Dr Rebecca Kelly sits down with us to talk about the highs and lows of caring for her to 8-year-old son Ryan who was diagnosed with leukemia. Dr Kelly dives into the hurdles of a new diagnosis and being able to advocate for a sick child and keep everything...
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Dr. Bruce Schubert, when life doesn't go to plan
Clinical psychologist of more then 30 years Bruce Schubert shares his observations and thoughts around the current state of physical distancing and how some are more suited to it than others. Bruce and Emily chat about what cancer patients have known for some time, that life doesn't always go the...
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Simone Cloake, dealing with cancer recurrence
Often the glue that holds it all together when someone is diagnosed, is the carer. They don't sign up for the role and like the loved ones they care for - they don't expect it. Simone Cloake tells her story of caring for her Dad after being cancer free for 21 years and diagnosed with a rare…
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Mohab Kamel, the role of a cancer carer
Carers play a crucial role in a cancer patients journey often being the anchor to everyday life. In episode 3 of Radio Rare Mohab Kamel very kindly and honestly shares the experience of his and his wife's cancer journey. Mohab also shares how he coped through the financial and emotional struggles.
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ABOUT THIS SHOW
Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy.Addressing the feeling of isolation experienced by so many, we look to create a close community of those affected by rare and less common cancers.Produced by Rare Cancers Australia
HOSTED BY
Rare Cancers Australia
CATEGORIES
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Frequently Asked Questions
How many episodes does Radio Rare have?
Radio Rare currently has 53 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Radio Rare about?
Radio Rare is a podcast where we share the stories of those in and around the rare and less common cancer community. Being diagnosed with a rare cancer doesn’t mean you’re alone. Radio Rare will dive into the human stories of the rare cancer experience, the innovation and the advocacy.Addressing...
How often does Radio Rare release new episodes?
Radio Rare has 53 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Radio Rare?
You can listen to Radio Rare on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Radio Rare?
Radio Rare is created and hosted by Rare Cancers Australia.
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