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238
239: An Interview With Avril Daly, President of Eurordis-Rare Diseases Europe
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Avril Daly, president of Paris-based Eurordis-Rare Diseases Europe, on how the EU is falling behind in clinical trials for rare diseases.
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235: An Interview WIth Dr. Martina Cornel, President of the European Society of Human Genetics
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Martina Cornel, MD, PhD, about the importance of adopting standardized newborn screening for rare diseases throughout Europe.
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236
234: An Interview WIth Diane Zapursky Quale of the Bladder Cancer Advocacy Network
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Diane Zapursky Quale, who founded the Bladder Cancer Advocacy Network 20 years ago with her late husband after he developed bladder cancer.
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235
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234
223: An Interview With Dr. Antón Blatnik on the Molecular Mechanisms Driving Neuromuscular Disease
Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Antón Blatnik, PhD, who recently won a $150,000 grant from Cure SMA to study the molecular mechanisms that drive neuromuscular disease and gene expression.
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Rare Care Podcast currently has 5 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
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