Episodes
-
Webinar: protecting your remaining vision: eye health, low vision support and practical advice
Many people with inherited retinal dystrophies (IRDs) ask what they can do to protect their remaining vision and maintain good eye health. In this informative webinar, we'll explore practical steps you can take to support your sight and make the most of the vision you have. Led by Louise Gow…
more -
Podcast: The Blind Stylist: Tilly Dowler on fashion, confidence and living with stargardt disease
In this episode of the Retina UK Podcast, we sit down with Tilly Dowler, known to many on social media as @the_blind_stylist. Living with stargardt disease, Tilly uses her platforms to share honest insights into life with sight loss while challenging common misconceptions about visual impairment....
-
E-Newsletter October 2026
Our monthly e-Newsletter featuring the latest updates from Retina UK.
-
Annual Conference 2026 - Latest developments in stem cell derived therapies
Professor Robin Ali, Director of the Centre for Gene Therapy & Regenerative Medicine, KCL.
-
Annual Conference 2026 - Closing remarks
Tina Garvey, Chief Executive, Retina UK.
-
Annual Conference 2026 - Income to impact: the difference you can make
Stories from some of our fantastic fundraisers. Jess Mortlock, Interim Director of Income Development. Tam Sanford and Lisa Sanford, who have a child living with inherited sight loss.
-
Annual Conference 2026 - From innovation to independence: assistive technology for inherited sight loss
Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator,...
-
Annual Conference 2026 - The participant perspective – reflections on taking part in clinical studies
Tina Garvey, Chief Executive, Retina UK. Professor Martin McKibbin, Consultant Ophthalmologist, University of Leeds. James Moore, who is living with inherited sight loss. Bhavna Tailor, Chief Executive, Stargardts Connected and Ethan Tailor, who is living with inherited sight loss.
-
Annual Conference 2026 - Understanding clinical trials and potential new therapies – what’s in the pipeline?
A panel with representatives from biotechnology companies Sepul Bio, Alkeus and AAVantgarde.
-
Annual Conference 2026 - Welcome from our CEO
Tina Garvey, Chief Executive, Retina UK.
-
Professionals' Conference 2026 - Nothing about us without us – supporting research participation
Dr Henry Stennett, Senior Research Coordinator, Retina UK, Mark Baxter, Information and Support Coordinator, Retina UK. James Moore, who is living with sight loss
-
Professionals' Conference 2026 - Learning from lived experience: in conversation with our community
A panel session with members of our community. Paula McGrath, Deputy Chief Executive, Retina UK
-
Professionals' Conference 2026 - Approaching difficult conversations, a framework
Professor Susan Downes, Consultant Ophthalmologist Oxford Eye Hospital and Honorary Clinical Senior Lecturer at Oxford University. Dr Amanda Salisbury, Consultant Clinical Oncologist at Oxford University Hospitals NHS Trust. Clare Abbott, Senior Eye Clinical Liaison Officer
-
Professionals' Conference 2026 - From innovation to independence: assistive technology for inherited sight loss
Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator,...
-
Professionals' Conference 2026 - Welcome from our CEO
Tina Garvey, Chief Executive Retina UK
-
E-Newsletter September 2026
Our monthly e-Newsletter featuring the latest updates from Retina UK.
-
Programme - Professionals' Conference 2026
More information about our Professionals' Conference 2026 can be found on our website: RetinaUK.org.uk/event/professionals-conference/
-
Programme - Annual Conference 2026
More information about our Annual Conference 2026 can be found on our website: RetinaUK.org.uk/event/annual-conference/
-
Look Forward - Autumn 2026 (issue 191)
This is the audio edition of the Retina UK Newsletter, Look Forward - Autumn 2026 (Issue 191). You can download a copy in PDF and Word format on the Retina UK website: https://retinauk.org.uk/resources. Contents in this edition are as follows: We're counting the days until our conferences…
more -
Webinar: living well with inherited sight loss: a young adults perspective
In this session, our speakers will explore what it means to navigate early adulthood with a visual impairment, offering insights into key areas of life including hobbies, friendships, travel, employment and being involved with Retina UK. This is a opportunity to hear real stories, learn from…
more -
Impact Report 2025
Find out more about the difference we made in 2025. This report is also available in PDF and plain text (Word) formats on the Retina UK website: RetinaUK.org.uk/resource/impact-report-2025/
-
Meet the professionals: Ophthalmologist
In this episode of Meet the Professionals, Eve speaks with Professor Marcela Votruba, Professor of Ophthalmology at Cardiff University and Consultant Ophthalmologist at University Hospital Wales, where she leads a specialist genetic eye clinic. Together, they explore the vital role…
more -
E-Newsletter July 2026
Our monthly e-Newsletter featuring the latest updates from Retina UK.
-
Podcast: Meet the professionals: QTMSI
Our latest Meet the Professionals podcast is here, and this month we’re joined by Danielle Wise, a Qualified Teacher of Multi Sensory Impairment (QTMSI). Danielle supports children and adults with both sight and hearing loss, helping them communicate, learn, and navigate the world with…
more -
E-Newsletter June 2026
The latest E-Newsletter from Retina UK.
-
Look Forward - Summer 2026 (issue 190)
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2026 (Issue 190). You can download a copy in PDF and Word format on the Retina UK website: https://retinauk.org.uk/resources. Contents in this edition are as follows: Conference invitation - Tina Garvey Hats off to our...
-
Podcast: Meet the professionals: Low vision specialist
In the latest episode of our Meet the Professionals podcast, we speak with Louise Gow, a low vision specialist and the Head of Eye Health, Optometry and Low Vision at RNIB. Louise has dedicated her career to helping people make the most of their remaining vision and ensuring that low vision...
-
Podcast: Meet the Professionals: Rehabilitation Specialist
In this episode of Meet the Professionals, Lauren speaks with Richard Bounds, Vision Rehabilitation Specialist and CEO of the Rehabilitation Workers Professional Network (RWPN). Richard shares his journey into the profession, explains the vital role rehabilitation specialists play in supporting...
-
Webinar: Optician appointments explained: what to ask and why it matters
Understanding what happens during an optician appointment can make a real difference for people living with inherited sight loss. In this webinar, taking place on Wednesday 22 April at 7pm on Zoom, we’ll explore the vital role opticians play - from early detection and regular monitoring to...
-
Podcast: Meet the professionals: ECLO
In the latest episode of Meet the Professionals, we sit down with Kate, an d Eye Clinic Liaison Officer (ECLO), to explore the vital role ECLOs play in supporting people through every stage of their sight loss journey. From helping individuals navigate the emotional impact of diagnosis to…
more -
E-newsletter April 2026
The latest e-newsletter from Retina UK.
-
Meet the professionals: Rehabilitation Specialist
In this episode of Meet the Professionals, Lauren speaks with Richard Bounds, Vision Rehabilitation Specialist and CEO of the Rehabilitation Workers Professional Network (RWPN). Richard shares his journey into the profession, explains the vital role rehabilitation specialists play in supporting...
-
E-Newsletter March 2026
The latest e-newsletter from Retina UK.
-
Look Forward - Spring 2026 (issue 189)
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2026 (Issue 189). You can download a copy in PDF and Word format on the Retina UK website: https://retinauk.org.uk/resources.Contents in this edition are as follows: A heartfelt thank you for standing with us (Tina…
more -
Podcast: Meet the Professionals - Genetic Counsellor
In this opening episode of our Meet the Professionals series, Lauren speaks with Sian, a Genetic Counsellor supporting people living with inherited retinal conditions. Together, they unpack what genetic counselling involves, how it can help individuals and families understand their diagnosis, and...
-
Podcast: Steps through the sand: stories from the Retina UK Sahara Trek
In “Steps Through the Sand: stories from the Retina UK Sahara Trek”, you’ll hear firsthand from some of our amazing trekkers who took on this once-in-a-lifetime challenge – trekking across the vast Sahara Desert to raise vital funds and awareness for people affected by inherited sight loss. Our...
-
E-Newsletter January 2026
The latest e-newsletter from Retina UK.
-
Podcast: Eye tests: find out more about what to expect at appointments
In this Retina UK podcast, Research Development Manager Kate Arkell is joined by Laura Taylor, Research Optometrist with the Oxford Eye Research Group, and Randa Li, Ophthalmologist at Moorfields Eye Hospital, to explain the wide range of tests used in the diagnosis and monitoring of inherited...
-
Webinar: Ask the expert with Professor Marcela Votruba
Joining us for an "Ask the Expert" session is Professor Marcela Votruba, Professor of Ophthalmology at Cardiff University and consultant at University Hospital Wales where she runs a genetic eye clinic. During the session, participants had the opportunity to ask questions submitted in advance as...
-
E-Newsletter December 2025
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up,...
-
Podcast: Retina UK BBC Lifeline Appeal with Louisa Lytton
In this special episode of the Retina UK Podcast, Lauren is joined by actress and BBC Lifeline spokesperson Louisa Lytton to talk about the recent BBC Lifeline Appeal in support of Retina UK. Louisa opens up about her personal connection to inherited sight loss, what inspired her to champion the...
-
Look Forward - Winter 2025 (Issue 188)
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2025 (Issue 188). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources. Contents in this edition are as follows: A fantastic start to our Anniversary year (Tina...
-
Retina UK Sight Loss Survey 2025
Findings from our survey of over 600 people living with inherited sight loss. June 2025 Copies of this report in plain text and PDF formats can be found on the Retina UK website: RetinaUK.org.uk/resource/retina-uk-sight-loss-survey/
-
The year ahead in fundraising with Retina UK
In this episode we are joined by two of our fantastic fundraising team members; Joe, our Community and Events Coordinator and James, our Head of Income Generation - to give us a sneak peek at some of the exciting events and appeals we have coming up over the next year. We have lots going on as we...
-
E-Newsletter October 2025
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up,...
-
Webinar: Getting active: sport and sight loss with British Blind Sport
Retina UK is delighted to be hosting a webinar with British Blind Sport. This session will highlight how sport and physical activity can play a powerful role in boosting health, confidence and wellbeing for people living with sight loss. You’ll also hear from British Blind Sport about who they…
more -
Annual Conference 2025 - Ask the expert
Professor Julie Silvestri
-
Annual Conference 2025: Together we thrive: Exploring new possibilities
Community members share their experiences: Employment Sport and leisure Mobility and travel Day-to-day living
-
Annual Conference 2025: Creating change together
James Clarke, Head of Income Generation, Retina UK
-
Annual Conference 2025: Iterative innovation and accessible technology
Christopher Patnoe, Head of EMEA Accessibility and Disability Innovation at Google
About this show
Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
Hosted by
Retina UK
Categories