SARC Talk

Dr. Robin Jones, MD joins SARC Talk. He shares his journey in sarcoma care, from UK training to US practice and back, along with lessons from working across healthcare systems. He highlights his team’s role in major sarcoma and GIST trials, the importance of collaboration, and mentoring future leaders. The conversation also explores the future of sarcoma research, including emerging therapies and growing clinical trial opportunities in chondrosarcoma, and how global partnerships can advance care and research.

In this episode, we welcome Dr. Michael Wagner, MD, SeniorPhysician and Clinical Research Director at Dana-Farber Cancer Institute. Dr. Wagner shares his journey into the field of sarcoma and his leadership as Principal Investigator of SARC046, a pivotal study of nab-sirolimus in epithelioid hemangioendothelioma (EHE). We explore how multi-institutional collaboration throughSARC and federal partnerships helped bring this study from concept to activation, the critical role of patient advocacy—particularly the EHE Foundation—and what it takes to build successful sarcoma programs across institutions.

In this episode of SARC Talk, we welcome Dr. Sandra D’Angelo, MD and Dr. Andrea Napolitano, MD, to discuss Clear Cell Sarcoma (CCS) and the international collaboration behind SARC045, a Phase II study of tebentafusp in HLA-A2 patients with advanced CCS. The conversation explores their career paths into sarcoma, what makes Clear Cell Sarcoma biologically unique, how patient advocacy helped shape the trial, and why partnering with SARC was key to launching this study across the US and UK.

This episode of SARC Talk, features Wendy Vanderbilt—a three-year myxofibrosarcoma survivor whose life story is as remarkable as her cancer journey. Born in a county jail, Wendy’s life began with adversity and grew into a powerful story of resilience. Wendy walks us through her sarcoma diagnosis, the challenges of delayed recognition, and the importance of self-advocacy in rare cancers. She offers heartfelt advice for newly diagnosed patients and caregivers, and leaves listeners with a message about sarcoma—and life—that stays with you. https://sarctrials.org/patient-resources/

In Episode 33, Dr. Scott Okuno chats with Dr. Elsa Nisswandt Keeler — retired pediatrician, chondrosarcoma survivor, and dedicated advocate. They discuss her sarcoma journey, work with Rein in Sarcoma, new role on SARC’s Research Advocacy Committee, and how she's turning experience into impact.

This episode of SARC Talk speaks with Jeff Kramer, Founder of the Chondrosarcoma Foundation, and Jamie Elliott, sarcoma survivor and advocate. Both share their personal journeys with Chondrosarcoma, a rare bone cancer, and discuss advocacy, treatment challenges, and raising awareness through efforts like Smashing Sarcoma. An inspiring conversation about strength, community, and driving progress for rare sarcomas.https://csfshayna.org/https://smashingsarcoma.org/https://usapickleball.org/

In this special episode, we sit down with Lachelle Semanko, a passionate advocate and leader at RIS (Rein In Sarcoma), a Minnesota-based nonprofit dedicated to increasing awareness, advocacy, and collaboration in the fight against sarcoma. Lachelle shares her personal journey to RIS and dives into the organization’s origin story and national growth. You'll learn how RIS is uniquely structured around three core pillars that extend beyond sarcoma subtypes, focusing instead on uniting patients, families, medical professionals, and researchers through community, education, and support. We explore the challenges of raising awareness for this rare and often overlooked cancer, and how RIS uses innovative programs and partnerships to spread the word—especially during Sarcoma Awareness Month in July. From educational outreach to community events, Lachelle walks us through the impact RIS is making, one connection at a time. We also talk fundraising, medical center collaboration, and how RIS is investing in the future of sarcoma care and research.

This episode of SARC Talk is diving into the SARC SarcomaDirectory - powerful new resource for patients and families navigating sarcoma. We are joined by Dr. “Chappie” Conrad, Annie Achee, and Dr. Mitch Achee to discuss this new vital tool. Together, they share the origins and vision behind the Directory, how it was developed, why it matters, and what’snext.

In this episode of SARC Talk, we feature EricaFischer-Cartlidge, DNP, RN, AOCNS, EBP-C, Chief Clinical Officer of the Oncology Nursing Society (ONS), about the critical role nurses play in cancer care—especially in rare cancers like sarcoma. She discusses how nurse navigators, clinical innovation, and national collaboration can improve patient outcomes and experience. She also speaks on the impact of innovative nursing-led initiatives on cancer care delivery, and how ONS is shaping education and training for oncology nurses nationwide.  

In this episode of SARCTalk, we’re joined by Dr. John Gross,Director of Bone and Soft Tissue Pathology at Johns Hopkins. Dr. Gross shares his journey into pathology, the critical role pathologists play in sarcoma diagnosis and care, and how accurate classification drives treatment decisions. We also discuss his work with the Chondrosarcoma Foundation, the SARC Tumor Board, and ongoing efforts to improve diagnostic accuracy through research and collaboration.

This episode of SARC Talk features Dr. Danh Truong, PhD., an Instructor in Sarcoma Medical Oncology at the University of Texas MD Anderson Cancer Center. Dr. Truong shares his journey from biology student to pioneering researcher in sarcoma. He discusses his work in sarcoma research, the importance of collaboration at MD Anderson, and his involvement in key initiatives like the SARC Career Development Award. Tune in as we explore the strategic advances in sarcoma science, mentorship for young investigators, and the role of androgen receptors in sarcoma. Plus, Dr. Truong gives insight into what the future holds in this critical field of oncology.

In this episode of SARC Talk, we’re joined by Dr. Elise Nassif Haddad from MD Anderson Cancer Center. Dr. Haddad shares her unique perspective on medical training outside of the U.S. and how it shapes her approach to cancer care. She also discusses the importance of building connections and collaborations within the sarcoma community. Tune in for valuable insights, especially her work on leiomyosarcoma, and learn how these advancements are making a difference in the field.

In this episode of SARC Talk, we’re joined by Dr. Margaret von Mehren, MD, Fox Chase Cancer Center. Dr. von Mehren shares her journey in the field of oncology, providing insight into her career path and the expertise she’s developed in treating Gastrointestinal Stromal Tumors (GIST). She also discusses her work with various committees focused on advancing sarcoma research and improving patient outcomes. Tune in to hear about Dr. von Mehren’s contributions to the world of sarcoma, her clinical and research experiences, and her vision for the future of cancer treatment.

This episode of SARC Talk features Dr. Breelyn Wilky, MD from the University of Colorado Anschutz Medical Campus. Dr. Wilky shares how she first became interested in sarcoma, and exciting plans for building a comprehensive sarcoma program at Colorado. We explore her unique research focus on the immunologic aspects of sarcoma, discuss the progress of immunotherapy in treating these cancers, and reflect on where the field stands today.

In this episode of SARC Talk, we are joined by Dr. Sandra D'Angelo, from Memorial Sloan Kettering Cancer Center. Dr. D'Angelo shares her expertise on a variety of topics; including the vital role of SARC in advancing sarcoma research and the ASCO Leadership Development Program and how it’s shaping the future of cancer care. Dr. D'Angelo also sheds light on the transformative role immunotherapy is playing in the treatment of sarcoma and discusses exciting next steps in this evolving field.

In this episode of SARC Talk, we are joined by Dr. Seth Pollack from Northwestern University. Dr. Pollack discusses his journey into the field of sarcoma, shares insights on clinical trials and research, and offers valuable advice for young investigators.

This episode of SARC Talk showcases Dr. Aerang Kim, MD, from Children's National Hospital. Dr. Kim offers her valuable insights on clinical trial research, collaboration, Department of Defense funding, and the importance of mentoring.

This episode of SARC Talk features Dr. Candace Haddox from Dana Farber Cancer Institute. Dr. Haddox discusses developing a career in sarcoma and the importance of mentors. She also discusses her newest clinical trial, SARC044 for patients with gastrointestinal stromal tumor (GIST). 

In this SARC episode, Dr. Angela Hong, MD, a radiation oncologist at Sydney Medical School, University of Sydney, discusses international clinical trials, the structure of Australia's cooperative groups in sarcoma, and her participation in the SARC032 clinical trial.

This SARC Talk highlights Dr. Brian Crompton from the Dana Farber Cancer Institute. Dr. Crompton speaks about using proteomic and genomic methods to enhance the comprehension of cancer biology. His research lab also works on creating innovative treatment strategies for pediatric tumors and rare sarcomas. For more information about the research Dr. Crompton does, his research team, and more, please visit his laboratory website here: https://www.cromptonlab.org/

July marks Sarcoma Awareness Month, and we are delighted to showcase Carolyn Dewalt and Val Stevenson from the SARC Research Advocacy Group in this episode. Both are committed and enthusiastic about raising awareness for sarcoma. They discuss their journey into sarcoma advocacy, their involvement with SARC, other groups they are affiliated with, and their efforts in spreading awareness about sarcoma.

In this episode, we have the pleasure of hosting the Sarcoma Sisters Podcast. Featuring Dr. Wendy Allen-Rhoades and Dr. Lisa Kopp, they delve into the podcast's origins, their career paths, and the impact on the sarcoma community. Through their podcast, the Sarcoma Sisters are not only informing and educating their audience but also fostering a sense of community and support for individuals facing similar challenges. Their dedication to raising awareness and providing valuable insights is truly making a positive impact in the fight against sarcoma.

This episode showcases Dr. Albiruni Razak from the University of Toronto, Princess Margaret Cancer Center, and Dr. Neeta Somaiah from MD Anderson Cancer Center. Both experts bring a wealth of sarcoma knowledge, particularly focusing on well-differentiated and dedifferentiated liposarcoma. Dr. Razak and Dr. Somaiah delve into the complexities of diagnosing and treating liposarcoma, shedding light on the nuances of managing this rare type of cancer. Their discussion highlights the importance of multidisciplinary collaboration in providing the best care for patients. The conversation also touches on the promising advancements in research, such as targeted therapies and immunotherapies. By sharing their expertise and insights, they aim to improve outcomes and quality of life for individuals facing this challenging disease.

This episode features SARC's CEO and President Steven Young. Steven speaks all about SARC, past, present, and future. In this episode, he shares insights into the challenges faced, the milestones achieved, and the values that have guided SARC through the years. Looking ahead, Steven paints a vivid picture of the exciting future that lies ahead for SARC. He discusses innovative projects, upcoming initiatives, and the organization's commitment to making a positive impact on the sarcoma community. 

This episode of SARC Talk features Dr. David Kirsch, MD, PhD, a Radiation Oncologist from the University of Toronto. In this episode, Dr. Kirsch sheds light on the vital role of radiation oncology in sarcoma, including clinical trial opportunities and the future of the field. Tune in for an insightful conversation that will deepen your understanding of the intersection between sarcoma and radiation oncology.

In this episode of SARC Talk, we are joined by Dr. Damon Reed from Memorial Sloan Cancer Center. Dr. Reed shares his insights on the current state of pediatric sarcoma research and the challenges that researchers face in the field. He also discusses the importance of tumor boards and how they can help to drive progress in sarcoma research. One of the highlights of our discussion is the development of the Evolutionary Tumor Board model. Dr. Reed explains how this model works and how it could help to accelerate the pace of discovery in the field.

This episode of SARC Talk features Dr. Jonathan Trent, MD, PhD. from the University of Miami Sylvester Comprehensive Cancer Center. Dr. Trent shares is knowledge on PEComas (perivascular epithelioid cell tumor), a rare soft tissue tumor. Take a listen and learn more about PEComas.

This episode of SARC Talk features Dr. Roberta Sanfilippo, MD from Instituto Nazionale Tumori in Milan, Italy. Dr. Sanfilippo shares her insights on mentorship, collaboration, and clinical trials in Europe. With her extensive research experience in liposarcoma, leiomyosarcoma, and uterine sarcoma, Dr. Sanfilippo brings a wealth of knowledge to the table.

SARC and MIB Agents join forces yet again discussing how both organizations work together to drive collaboration in the sarcoma community and support sarcoma research. Find out more about MIB Agents here.

This episode of SARC Talk features Dr. Mark Dickson, MD sharing valuable insight on liposarcoma. Dr. Dickson will delve into the various kinds of liposarcoma, providing a comprehensive overview of the disease and the latest advancements in research and clinical trials. Liposarcoma, a malignant tumor that arises from fat tissue, presents unique challenges due to its diverse subtypes and complex nature. Dr. Dickson brings a wealth of experience and expertise that will undoubtedly shed light on this complex disease and offer hope to patients and their families.

This episode of SARC Talk features Eric Lien from Rein In Sarcoma. Eric discusses the role this organization has in the education of sarcoma, the support to patients and care givers, and research towards treatments for sarcoma. Find out more about Rein In Sarcoma here: https://www.reininsarcoma.org/

This episode of SARC Talk features Dr. James Chen, MD, Tempus Labs and The Ohio State University. Dr. Chen introduces us to the world of bioinformatics. He speaks on the current role of bioinformatics and the future it will have in medical research. 

This episode of SARC Talk is the last segment of the three-part SARC’s research advocacy council meeting series. This episode features Annie Achee (National Leiomyosarcoma Foundation), Lennie Woods (Clear Cell Sarcoma Foundation), and Peter Fantozzi (Northwest Sarcoma Foundation). They talk about the importance of bringing sarcoma advocacy groups together.

This episode of SARC Talk is part two of three of SARC’s research advocacy council meeting series. This episode features Dr. Yvette Ho, MD, Dr. Erica Giles, MD, and Dr. Jessica Jones, MD from the UT Houston Sarcoma Team. They discussed multidisciplinary care teams, community outreach, and patient care.

This episode of SARC Talk is part one of three of SARC’s research advocacy council meeting series. This episode features Dr. Mitch Achee, MD from the National Leiomyosarcoma Foundation; Caralynn Hampson from SARC; and Allison Sole from the Alan B. Slifka Foundation. They discuss what they learned from this in-person research advocacy meeting, the impact of advocacy groups on sarcoma research, care teams, and patient support. National Leiomyosarcoma Foundation: https://nlmsf.org/ Alan B. Slifka Foundation: https://slifkafoundation.org/

This episode of SARC Talk features Denise Robinson from the EHE Foundation. Denise joins Dr. Scott Okuno to talk about EHE, research, and patient advocacy. Find more about the EHE Foundation here: https://fightehe.org/.

This episode features Dr. Angela Hirbe from Washington University in St. Louis and Dr. Lara Davis from Oregon Health and Science University. Dr. Hirbe' s laboratory website can be found here. Dr. Davis's laboratory website can be found here. 

This SARC Talk episode features Dr. Shreyaskumar Patel from MD Anderson Cancer Center. Dr. Patel discusses the beginning of SARC, sarcoma trials, career paths, and more.  The book mentioned in the podcast is Simone's Maxims by Dr. Joseph Simone - found here.

On our second episode of SARC Talk, we are please to have Dr. Inga-Marie Schaefer from Brigham and Women's Hospital.  Dr. Schaefer's laboratory website can be found here: https://schaeferlab.bwh.harvard.edu/

This is the inaugural SARC Talk podcast. Our guests are Dr. William Tap from Memorial Sloan Kettering Cancer Center and Dr. Brian Van Tine from Washington University in St. Louis.