PODCAST · society
Spontaneous Mutation Podcast
by Halley Elwell
The Spontaneous Mutation podcast aims to reclaim the narratives around facial difference. In science, a spontaneous mutation is a genetic change with no known cause. This was the explanation songwriter and host Halley Elwell was given by doctors when she was diagnosed with Neurofibromatosis at age 11. No one else in her family has the condition, which causes tumors to grow on nerves and has affected the appearance of her jaw, chin, and neck. For this project, Elwell decided to use the term as an artistic lens. She knew what happened when a gene mutated and how it made her appearance change, but what happens when a spontaneous mutation occurs in art, conversation, or your life?Over the course of 7 episodes, Elwell and 5 guests explore the complex and profound insights that come from exploring the lived experiences of disability and facial difference.
Episodes
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Episode 7: "The Raven and the Ponderosa Pine"
This is the final episode of the Spontaneous Mutation podcast, where the story wraps…for now! Halley shares that throughout the podcast she was searching for a story she could relate to about a dysfunctional family to discuss the extra layers of grief that get mixed into self-perception. So she...
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Episode 6: "Love Is...Everywhere" with David Roche
In the 6th episode of Spontaneous Mutation podcast, Halley recalls a turning point in her healing when she began to remember the good memories in her life, and specifically the love she experienced from her community, friendships, and family. Her guest, author and humorist, David Roche shares...
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Episode 5: "Temporary" with Rasheera Dopson
Temporary: The Only Constant is Change In episode 5 of the Spontaneous Mutation podcast, we welcome researcher and disability advocate Rasheera Dopson. Halley opens the episode describing a particularly hard day she had after a check up at the hospital while she was taking what was being called…
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Episode 4: "Dear Lucy" with Sora Kasuga
In this episode, titled “Dear Lucy,” Halley invites activist and Faceout Project founder Sora Kasuga to the Spontaneous Mutation podcast to discuss the legacy of Lucy Grealy’s memoir, Autobiography of a Face, published in 1994. Sora discusses her many spontaneous mutations in life and posits that...
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Episode 3: "Daphne" and the Stories We Tell with Amanda Leduc
In episode 3, Halley welcomes author Amanda Leduc to the Spontaneous Mutation podcast where they discuss her book, Disfigured: On Fairy Tales, Disability, and Making Spaces. Halley opens the episode sharing her life-long fascination with the Greek myth of Daphne, a water nymph who was turned into…
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Episode 2: "Anomaly" with Dr Kathleen Bogart
In episode 2 of Spontaneous Mutation, Halley welcomes Social Psychologist Dr. Kathleen Bogart. Halley opens the episode sharing her experiences leading up to her neurofibromatosis diagnosis, and what is felt like to be called a “medical anomaly” by doctors. This, as well as an increasingly...
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Episode 1: How Do I Do This?
Here begins the journey of the Spontaneous Mutation podcast with Halley Elwell. Who is Halley? What’s going on with her face and why is she singing about it? The podcast opens with Halley sharing her experience living with neurofibromatosis and how the pandemic and a lesson in civil inattention...
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ABOUT THIS SHOW
The Spontaneous Mutation podcast aims to reclaim the narratives around facial difference. In science, a spontaneous mutation is a genetic change with no known cause. This was the explanation songwriter and host Halley Elwell was given by doctors when she was diagnosed with Neurofibromatosis at age 11. No one else in her family has the condition, which causes tumors to grow on nerves and has affected the appearance of her jaw, chin, and neck. For this project, Elwell decided to use the term as an artistic lens. She knew what happened when a gene mutated and how it made her appearance change, but what happens when a spontaneous mutation occurs in art, conversation, or your life?Over the course of 7 episodes, Elwell and 5 guests explore the complex and profound insights that come from exploring the lived experiences of disability and facial difference.
HOSTED BY
Halley Elwell
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Frequently Asked Questions
How many episodes does Spontaneous Mutation Podcast have?
Spontaneous Mutation Podcast currently has 7 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Spontaneous Mutation Podcast about?
The Spontaneous Mutation podcast aims to reclaim the narratives around facial difference. In science, a spontaneous mutation is a genetic change with no known cause. This was the explanation songwriter and host Halley Elwell was given by doctors when she was diagnosed with Neurofibromatosis at age...
How often does Spontaneous Mutation Podcast release new episodes?
Spontaneous Mutation Podcast has 7 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Spontaneous Mutation Podcast?
You can listen to Spontaneous Mutation Podcast on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Spontaneous Mutation Podcast?
Spontaneous Mutation Podcast is created and hosted by Halley Elwell.
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