PODCAST · health
SPS UNSCRIPTED
by L & M
Welcome to SPS UNSCRIPTED with your hosts L and M. A podcast discussing life whilst facing the challenges of Stiff Person Syndrome, a rare neurological disease. Join us in our informative, open informal podcast as we discuss a disease so deeply immersed in a medical model and it’s language, often resulting in dehumanisation and loss of self for those with SPS. This podcast follows the journey of two friends, both one in a million, learning to heal, breathe and seek daily gratitude. Join us around the kitchen table as we discuss all things life. A gentle reminder: We are not medical professionals, this is a reflective journey of our lives with SPS whilst remaining under the care of medical teams whose advice we seek and follow. We strongly recommend you consultant your health professional with regards to any questions or concerns. ***Some sensitive content, may not appropriate for children.*** All content photographs and graphics are the property of @copyright of SPS UNSCRIPTED. Find
Episodes
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Don’t Forget to Press Pause… Travelling and Out & About
‘The one where Lindsay was developing a nasty strain of covid and M had to monopolise the airwaves’… L&M discuss the reality and practicalities of holidays and day trips with SPS. Discussions of personal experiences, trying to plan with the unpredictable nature and chronic fatigue of SPS whilst...
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Stories…. Jennifer’s Story
Hello, my name is Jennifer… With heartfelt thanks to Jennifer for sharing her beautiful, talented rendition of Warrior, and more so her story, which is an openly raw monologue, recorded in hospital whilst receiving treatment. We advise listeners who are sensitive to sound please reduce your…
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Stories…. Rocco’s Story
“Hi, my name is Rocco” With heartfelt thanks to Rocco for sharing his story so openly, a journey of 25 years to be diagnosed with SPS! (Some mild reference to self-harm) Note: SPS Unscripted Podcast is not responsible for any medical advice, information or pathways discussed in the content of...
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Announcing the new mini-series- Stories…
A short chat with M with regards to the new mini-series - Stories…Find us on: Instagram @spsunscriptedpodcast1 Facebook SPS Unscripted Podcast (Stiff Person Syndrome) Please follow & review on the podcast platforms, it helps the podcast to be more visible to others. Thank you, L&M
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Episode:7 The Ever-Changing Day, Living with SPS
A very raw and open discussion between your hosts L&M. Stiff Person Syndrome being a spectrum disease has many faces. It can be difficult to navigate when it impacts upon daily life where you are unable to plan due to the unpredictability of the disease. As always L&M touch upon the seriousness…
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A Chorus of SPS Voices
Following on from our social media posts (please podcast image or find it on Instagram/ Facebook) M provides further information.Please note due to a backlog of podcast material awaiting release we have extended the deadline for this, possibly closing around the end of April. Be brave and...
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Episode 6: So My Friend….. How are you, Really?
In this episode L&M discuss the waxing and waning of living with SPS, but more so your hosts are raw and open as they share the trying few weeks of health challenges and chronic fatigue which left both feeling rather shaken; physically, emotionally and psychologically. By diving a little more...
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Episode 5: Still Waters
This episode touches upon how it can feel when we are told “You don’t look sick”. It can be difficult to move forward, heal, and detach with love . We may often find ourselves stuck, ruminating and reliving the hurt. There is hope and strength within you to heal and learn to detach.
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Episode 4: Hobbies, Interests & Finding Another Way
Join your hosts L&M as they discuss the importance of engaging in activities and hobbies to enable a fulfilling life particularly when facing health challenges. As always these friends combine laughter, honesty and hope.
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Update with regards to links, resources mentioned in our podcast
Unfortunately podcast platforms do not allow for 3rd party content. M provides an update for listeners who have enquired with regards to the links, mediations etc Thank you
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Episode 3: Sleep, Rest & Relaxation
Join your hosts L&M as they share their own daily self-care routines to help with symptom management, preventing boom and bust cycles of fatigue and the importance of their sleep routines.
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Personal Journey M :03
Join M as she discusses chronic fatigue in her personal journey and a how embarking upon a self-care journey continues to help in fatigue management and prevent booming and busting
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Personal Journey: Lindsay E03
In this episode Lindsay shared her personal experience with chronic fatigue
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Personal Journey M : 2
This episode is at the request of a listener who picked up upon M’s journey with vestibular and balance issues. Embarking upon self-advocacy leading to a road of recovery
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Personal Journey- Lindsay L2
Lindsay continues her personal monologues as she discusses her diagnostic journey and living with SPS in the early years.
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Personal Journey M :1
Personal Journey M: Episode 1 M Episode 1: In this monologue as she recalls some steps along the path to diagnosis, initially being diagnosed with hemiplegic migraine for many years.
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Personal Journey Lindsay : 1 L
Episode 1: Personal Journey Lindsay In this episode we sit with Lindsay by candlelight as she shares some of her journey in a personal monologue.
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Episode 2: The Power of a Happy Heart
The Power of a Happy Heart. Join your hosts L & M as they discuss and suggest self-care routines which have helped them on their healing journey whilst living with SPS. Today’s episode covers self-care and well being practices such as Forest Bathing, Journaling, Smile Therapy, EFT and most...
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Episode 1: A Journey of Friendship
Welcome to our first episode as we discuss how a post on a SPS support forum lead to a wonderful journey of empathy, encouragement and friendship as we navigate our lives with SPS.
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ABOUT THIS SHOW
Welcome to SPS UNSCRIPTED with your hosts L and M. A podcast discussing life whilst facing the challenges of Stiff Person Syndrome, a rare neurological disease. Join us in our informative, open informal podcast as we discuss a disease so deeply immersed in a medical model and it’s language, often resulting in dehumanisation and loss of self for those with SPS. This podcast follows the journey of two friends, both one in a million, learning to heal, breathe and seek daily gratitude. Join us around the kitchen table as we discuss all things life. A gentle reminder: We are not medical professionals, this is a reflective journey of our lives with SPS whilst remaining under the care of medical teams whose advice we seek and follow. We strongly recommend you consultant your health professional with regards to any questions or concerns. ***Some sensitive content, may not appropriate for children.*** All content photographs and graphics are the property of @copyright of SPS UNSCRIPTED. Find
HOSTED BY
L & M
CATEGORIES
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Frequently Asked Questions
How many episodes does SPS UNSCRIPTED have?
SPS UNSCRIPTED currently has 19 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is SPS UNSCRIPTED about?
Welcome to SPS UNSCRIPTED with your hosts L and M. A podcast discussing life whilst facing the challenges of Stiff Person Syndrome, a rare neurological disease. Join us in our informative, open informal podcast as we discuss a disease so deeply immersed in a medical model and it’s language, often...
How often does SPS UNSCRIPTED release new episodes?
SPS UNSCRIPTED has 19 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to SPS UNSCRIPTED?
You can listen to SPS UNSCRIPTED on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts SPS UNSCRIPTED?
SPS UNSCRIPTED is created and hosted by L & M.
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