Episodes
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Sickle cell disease: Romel and Nicole’s story
Romel and Nicole discuss their experience with the Caribbean medical care system compared to the United States. They agree that the team at Children’s Minnesota has delivered outstanding care for their daughter, Daniella.
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Sickle cell disease: Trevon and Rae’s story
Rae recounts her experiences in caring for her son with sickle cell. In the beginning, she remembers not knowing what questions to ask. Trevon sees himself as an advocate for those who do not have a voice in the sickle cell community.
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Sickle cell disease: Precious and Joanna’s story
Mother and daughter highlight the normalcy of childhood despite a sickle cell diagnosis. Both mother and daughter receive support from family members.
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Sickle cell disease: Oliver and Charlie’s story
Oliver discusses his experience with sickle cell, including triumphs and challenges. His mother, Charlie, discusses the support she has received through her family and Children’s Minnesota.
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Sickle cell disease: Mary and Okuny’s story
Patients Mary and Okuny discuss their individual experiences with sickle cell and how it has impacted their outlook on life. They both believe that sickle cell can not be used as an excuse, but rather, a source of resilience.
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Sickle cell disease: Ed Jenkins III and Ed Jenkins, Jr.’s story
Father and son discuss how sickle cell has impacted understanding of their family and childhood experience.
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Sickle cell disease: Tamara and Candice’s story
Candice and her daughter, Tamara, discuss the challenges sickle cell disease has presented, however they both stay rooted in their faith and also in their personal resilience values.
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Sickle cell disease: Jalen, Anthony and Lenora’s story
Lenora interviews her sons Jalen and Anthony (TJ). Both are diagnosed with sickle cell. Although the brothers share a diagnosis, their experiences differ broadly.
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Sickle cell disease: Patricia and Bjork’s story
Mother, Patricia, and daughter, Bjork, discuss the resilience rooted in sickle cell disease. Although sickle cell pain crises can be challenging, support from Children’s Minnesota has allowed for a strong bond to form between mother and daughter.
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Sickle cell disease: Blandine and Jalen’s stories
Teenage friends Blandine and Jalen discuss their individual and shared experiences with sickle cell. The two friends met at Children’s Minnesota and have shared a unique bond ever since.
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Sickle cell disease: Matthew’s story
A friend, Ephriam, interviews sickle cell patient, Matthew, about his experience growing up with sickle cell disease. Matthew reflects that he appreciates life despite his diagnosis, and that his faith gives him strength. Matthew does not let his diagnosis define him.
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Sickle cell disease: Justin, Hawa and JJ’s story
Husband and wife Justin and Hawa work together to care for their son who was diagnosed with sickle cell and undergoes a bone marrow transplant. Throughout their journey, they place faith in their religion and maintain hope.
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