PODCAST · education
The CDKL5 Connection
by International Foundation for CDKL5 Research
The CDKL5 Connection is the official podcast of the International Foundation for CDKL5 Research (IFCR)—a welcoming space where science, care, and community come together. Hosted primarily by Dr. Raj Rajaraman, a clinician, researcher, and long-time partner of the CDKL5 community, the podcast brings together the voices, questions, and experiences that matter most to individuals and families affected by CDKL5 Deficiency Disorder. From conversations with families and caregivers to insights from clinicians, researchers, advocates, and community leaders, each episode is designed to inform, encourage, and help our community feel more connected. Through the recurring Ask Dr. Raj segment, listeners are invited to submit questions and hear thoughtful, accessible perspectives on topics that matter in daily life with CDKL5. You’ll also hear from special guest hosts, expert contributors, and IFCR leadership as they share updates
Episodes
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Episode 1: Welcome to The CDKL5 Connection
Welcome to The CDKL5 Connection! In this first episode, host Raj Rajaraman, MD ("Dr. Raj"), Director of the UCLA CDKL5 Center of Excellence, explains why he started the podcast and what's coming next for the CDKL5 community. Future episodes will cover clinical trials, new therapies, natural…
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ABOUT THIS SHOW
The CDKL5 Connection is the official podcast of the International Foundation for CDKL5 Research (IFCR)—a welcoming space where science, care, and community come together.
Hosted primarily by Dr. Raj Rajaraman, a clinician, researcher, and long-time partner of the CDKL5 community, the podcast brings together the voices, questions, and experiences that matter most to individuals and families affected by CDKL5 Deficiency Disorder.
From conversations with families and caregivers to insights from clinicians, researchers, advocates, and community leaders, each episode is designed to inform, encourage, and help our community feel more connected. Through the recurring Ask Dr. Raj segment, listeners are invited to submit questions and hear thoughtful, accessible perspectives on topics that matter in daily life with CDKL5.
You’ll also hear from special guest hosts, expert contributors, and IFCR leadership as they share updates
HOSTED BY
International Foundation for CDKL5 Research
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Frequently Asked Questions
How many episodes does The CDKL5 Connection have?
The CDKL5 Connection currently has 1 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is The CDKL5 Connection about?
The CDKL5 Connection is the official podcast of the International Foundation for CDKL5 Research (IFCR)—a welcoming space where science, care, and community come together. Hosted primarily by Dr. Raj Rajaraman, a clinician, researcher, and long-time partner of the CDKL5 community, the podcast brings...
How often does The CDKL5 Connection release new episodes?
The CDKL5 Connection has 1 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to The CDKL5 Connection?
You can listen to The CDKL5 Connection on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts The CDKL5 Connection?
The CDKL5 Connection is created and hosted by International Foundation for CDKL5 Research.
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