PODCAST · society
The CF Together Podcast
by CF Together
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.Throughout each episode you will hear from members of the CF community, researchers, and clinicians. This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more.On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.
Episodes
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Re-Release - Transition | Bradley Dryburgh | Mental Health living with cystic fibrosis (CF)
This podcast is a re-release and first published on the 05/02/2024 as part of the CF Strong initiative. Host and fellow CF community member Brad Dryburgh explores the relationship between cystic fibrosis and mental health. Joining Brad are six people in their 20s living with CF, who share honest,...
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Re-Release -TRANSITION | Bradley Dryburgh | How to juggle friends, a social life and cystic fibrosis (CF)
This podcast is a re-release and first published on 31/01/2024 for the CF Strong Project. Have you ever wondered how to balance a social life while living with cystic fibrosis (CF)? You are not alone. Hosted by Bradley Dryburgh, who lives with CF, delves into the perspectives of six young adults...
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Mother and son: A raw conversation about living with cystic fibrosis (CF)- Melissa and Corey's Story
Corey, a young actor living with CF, shares his story together with his mother, Melissa. This beautifully raw conversation explores how one family has navigated cystic fibrosis and the profound impact of living with and loving someone with CF. Their story is one of resilience, hope and the...
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Stronger Together Series (EP 3) - A conversation on living a meaningful life with cystic fibrosis (CF)
In this episode of Stronger Together, Kelly Exner, Clinical Services Manager, is joined by Adam Holmes from Community and Professor Keith Ooi for an insightful conversation about what it means to live a meaningful and fulfilling life while living with cystic fibrosis (CF). Together, they explore...
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Re Release - CF Strong - Peter Oxford's Story
This episode of the CF Together podcast is a special re-release, originally published on 13 February 2021 as part of the CF Strong iniatitive. Host Keegan Bakker, former radio presenter and now CEO of Audata sits down with Peter Oxford, producer of Showcase (the Australian Dance Championships)…
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Stronger Together Series (Ep 2) - A conversation with Tamarah Katz, MSc (Nutr and Diet) on how nutrition in CF care is evolving.
In this episode of the Stronger Together series, Dr Keith and Adam are joined by Tamarah Katz, Senior Respiratory Dietitian at Sydney Children’s Hospital and researcher at the University of New South Wales. With over 15 years’ experience working alongside families of children living with cystic...
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Meet our new CEO Kate Johnson
Kate joins us at an exciting time for the organisation, bringing fresh energy, strong leadership, and a clear vision for the future of CF Together. In this conversation, we take a moment to get to know Kate, her background, what drives her, and why she’s so passionate about advancing progress for...
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Stronger Together Series (Ep 1)- A Conversation with Dr Bernadette Prentice on CFRD and Treatment Burden
In the first episode of our Stronger Together series, Dr Keith Ooi and Adam Holmes are joined by Dr Bernadette Prentice for an open and informative conversation about Cystic Fibrosis Related Diabetes (CFRD) They also discuss the realities of treatment burden when living with CF, in particular the...
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Living Longer with CF - Reflections from Kelly Exner (Final Series Episode)
In this FINAL episode of the Living Longer series, Kelly Exner, Clinical Services Manager, looks back and shares valuable insights on navigating this next stage of life with cystic fibrosis (CF). Drawing on her clinical experience and deep connection to the CF community, Kelly explores the...
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Living Longer with CF - a conversation about Careers
In this episode of the Living Longer with CF, Nardia, Jade and Louisa share their lived experiences of navigating careers while living with cystic fibrosis. They speak openly about balancing work with health needs, managing energy and treatment schedules, and how career goals can shift over time....
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Living Longer with CF - a conversation about Nutrition and Exercise
In this episode in the Living Longer series, Nardia, Jade and Louisa come together to share their lived experiences of living longer with cystic fibrosis(CF), with a focus on nutrition and exercise. They speak honestly about what has changed over time, what’s helped (and what hasn’t), and how…
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Living Longer with CF - a conversation about Diabetes
In this honest and informative episode of the CF Together Podcast, Jade and Louisa share their lived experiences of CF-related diabetes (CFRD). They speak openly about diagnosis, daily management, and the challenges of balancing blood sugars alongside the already complex realities of living with...
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Living Longer with CF - a conversation about Cancer
In this moving episode of the CF Together Podcast, Nardia shares her experience of cancer with honesty, courage, and deep reflection. She speaks openly about diagnosis, treatment, and the emotional toll cancer can take especially when navigating it alongside other health challenges. Through her...
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Living Longer with CF - A conversation about Menopause
Living longer with cystic fibrosis (CF) means navigating life stages that weren’t always part of the conversation including menopause. In this episode of Living Longer with CF, Nardia, Louisa and Jade share their lived experiences of menopause, speaking openly about the symptoms they faced, the...
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Living Longer with CF - A conversation about Transplant
In this insightful episode, Nardia, Jade and Louisa sit down to unpack the complex, emotional, and deeply personal journey of transplant while living with cystic fibrosis. They discuss what it’s really like to navigate the decision-making process, the hope and uncertainty that come with waiting,...
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Living Longer with CF - A conversation on Dying Well.
⚠️ Trigger Warning: This episode discusses themes of death, dying well, and end-of-life planning within the context of cystic fibrosis. These conversations can be deeply emotional and may be difficult for some listeners. Please take care while listening and pause or step away if you need to. In...
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Living Longer with CF - A Conversation on Chronic Pain
In this episode of the CF Together Podcast, we speak with Nardia, Jade, and Louisa about living with chronic pain while managing cystic fibrosis. They share honest insights into the physical and emotional challenges of daily life, as well as the strategies they use to maintain their wellbeing…
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Living Longer with CF - Special Series Introduction
Welcome to the CF Together Podcast and our special eight-part series, Living Longer with CF, a deep exploration into what it truly means to live a longer life with cystic fibrosis. In this series, we dive into the important and often under-discussed parts of life with CF, including diabetes,...
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Balancing Motherhood, Forensics, and CF: Kaitlyn’s Story
In this episode, we meet Kaitlyn, a forensic professional, devoted mum to 20-month-old Cooper, and someone living with cystic fibrosis. Kaitlyn opens up about the realities of juggling a demanding career, motherhood, and her health sharing honest reflections on “mum guilt,” resilience, and...
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Body Image and Cystic fibrosis (CF)
Lyndall Grace, our host for this episode of the CF Together Podcast, interviews Taylah about Body Image. Take a listen as they talk about their body image battles through the years - from school kids through to adulthood, now on modulators. Following Lyndall and Taylah, Raphael catches up with...
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Newly Diagnosed: What I Know 4 Years on | Mandy – Mother of 4-year-old Rory, diagnosed with cystic fibrosis at birth
In this heartfelt episode, host Lyndall Grace speaks with Mandy, early childhood educator, CF Together team member, and mum to four-year-old Rory, who lives with cystic fibrosis (CF). Mandy shares the emotional experience of Rory’s diagnosis through newborn screening, describing how she felt…
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"Savannahs Story: From IVF to Natural Birth and the latest research on Chronic Pain living with cystic fibrosis
In this episode of the CF Together podcast, you will hear two heartfelt and powerful conversations from within the cystic fibrosis community. First, Lyndall Grace, who lives with cystic fibrosis, speaks with Savannah May about her incredible journey to motherhood. Savannah shares her experiences...
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The Awkward Moments living with cystic fibrosis: Quickfire QnA
In this episode, we tackle the tough, personal, and often uncomfortable questions that don’t always get talked about when we visit our cystic fibrosis (CF) team—those questions that many are thinking but may not know how to bring up. Should I wear protection during sex? Why do I keep getting...
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Self-Advocacy Living with cystic fibrosis
Finding your voice to self-advocate can feel overwhelming at times. Gen, Gloria, and Kelly share valuable insights to help navigate the first steps in confidently asking for what you need.
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Carrier testing, carrier screening and cystic fibrosis (CF)
In this episode Stephanie Quattromani, Executive Manager, Services, Care and Research at CF Together catches up with Alison Archibald from Victorian Clinical Genetics Services, and Belinda McClaren from the Murdoch Children's Research Institute (MCRI) to talk about carrier testing and carrier...
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Cystic Fibrosis, Male Fertility and becoming a DAD
In our first episode of The CF Together Podcast, Raphael catches up with James and Davie to talk about their path to fatherhood and living with cystic fibrosis (CF). This episode will make you laugh, squirm and maybe even cry. It's a candid and raw discussion about the IVF journey that led to the...
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Launching The CF Together Podcast
Welcome to Season 1 of the CF Together Podcast. CF Together is a national organisation dedicated to improving the lives of people living with cystic fibrosis (CF), advancing CF care and ultimately finding a cure. We know the importance of sharing stories and creating community for people living...
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ABOUT THIS SHOW
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.Throughout each episode you will hear from members of the CF community, researchers, and clinicians. This season we will cover topics such as fertility, parenting, ageing, menopause, chronic pain, life after transplant and a lot more.On the CF Together Podcast we want to keep you updated with the latest research as well as share stories of lived experience from our community, to help you feel more connected and supported, whether you are living with CF or loving someone with CF.
HOSTED BY
CF Together
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Frequently Asked Questions
How many episodes does The CF Together Podcast have?
The CF Together Podcast currently has 27 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is The CF Together Podcast about?
We know the importance of sharing stories and creating community for people living with CF, so we are excited to welcome you to our first season of The CF Together podcast.Throughout each episode you will hear from members of the CF community, researchers, and clinicians. This season we will cover...
How often does The CF Together Podcast release new episodes?
The CF Together Podcast has 27 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to The CF Together Podcast?
You can listen to The CF Together Podcast on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts The CF Together Podcast?
The CF Together Podcast is created and hosted by CF Together.
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