PODCAST · health
The Encephalitis Podcast
by Encephalitis International
A podcast from Encephalitis International which looks at all things related to encephalitis (inflammation of the brain).For further information about encephalitis, visit www.encephalitis.info
Episodes
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Rebuilding Life After Encephalitis: Complex Rehabilitation with Dr Bonnie-Kate Dewar
In this episode of the Encephalitis Podcast, Prav talks to clinical neuropsychologist Dr Bonnie-Kate Dewar who explores rehabilitation after encephalitis, including support for complex cognitive, emotional and behavioural needs. Dr Dewar discusses personalised goal-setting, memory strategies,...
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Ep 77 Songbirds Keep Singing: Lisa Lauter's Journey Through Autoimmune Encephalitis
In this episode, Prav speaks with Lisa Lauter, a retired nurse, public health advocate, support group leader, author, and survivor of LGi1 autoimmune encephalitis. Lisa shares her long and complex journey to diagnosis, from early symptoms and seizures to hospital treatment, rehabilitation, and...
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Ep 76 - PTSD After Encephalitis: Symptoms, Support and Recovery with Dr Andrea Pickering
In this episode of the Encephalitis Podcast, Prav speaks with Dr Andrea Pickering, consultant clinical psychologist specialising in paediatric clinical neuropsychology, about post-traumatic stress disorder (PTSD) after encephalitis. Dr Pickering explains what PTSD is, why it can be…
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Ep 73 - Rasmussen's Encephalitis - diagnosis, treatment and long-term impact
Episode 73 In this episode of the Encephalitis Podcast, Prav speaks with Eva, a paediatric trainee and PhD student at the UCL Great Ormond Street Institute of Child Health, about Rasmussen’s encephalitis - a form of brain inflammation that mainly affects one side of the brain. Eva explains the...
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Ep 75 - Mother and Daughter: Life, Recovery and Advice After Encephalitis
In this episode of The Encephalitis Podcast, Prav is joined by Yvonne and Zoe. Yvonne and her daughter Zoe as they reflect on the impact encephalitis has had on their family, from Yvonne’s sudden illness and long recovery to Zoe’s experience growing up alongside its lasting effects. Together…
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Ep 74 - Paediatric Autoimmune Encephalitis with Dr Melissa Wright
In this episode of The Encephalitis Podcast, Prav Prathapan speaks with Dr Melissa Wright, a paediatric autoimmune neurologist at the University of Utah and Director of the Paediatric Autoimmune Neurology and Neuroimmunology Program at Primary Children’s Hospital, about clinical trials in...
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Ep 72 - What Encephalitis Took and What Recovery Gave Back - Evie's Encephalitis Story
As part of Volunteer Week, we’re sharing the powerful story of Evie, who developed autoimmune anti-NMDAR encephalitis at just 19 years old. What began with flu-like symptoms quickly became seizures, hallucinations, psychosis, memory loss, and months in hospital. In this deeply honest…
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Ep 71 - Returning to School After Encephalitis - A Parent’s Journey with Hina & Dian
In this episode, Prav speaks with Hina about her son Dian’s journey with autoimmune encephalitis and the challenges of returning to school after a life-changing diagnosis. After Dian began experiencing seizures at just seven years old, Hina and her family faced a long and emotional journey…
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Ep 70 - Inside 'Unconquered' A Powerful West Nile Survivor Story
The Encephalitis Podcast Ep 70 In this special episode of the Encephalitis Podcast for World Immunization Week, we spotlight West Nile encephalitis through the powerful short film Unconquered: Battling Back After West Nile Virus. Host Prav is joined by Tom, a West Nile encephalitis survivor, and...
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Ep 69 - Surviving Tick-Borne Encephalitis: Bill’s Story & Why Vaccination Matters
The Encephalitis Podcast Ep 69 In this episode of the Encephalitis Podcast, Prav speaks with Bill, an endurance athlete who shares his powerful journey through tick-borne encephalitis (TBE). From competing in swimrun events across Nordic countries to facing severe neurological symptoms and a long...
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Ep 68 - Complete Your Vaccination Course: A Key Step in Preventing Encephalitis - with Prof Lance Turtle
The Encephalitis Podcast Ep 68 In this episode, we explore why completing your full vaccination schedule is essential for protecting against encephalitis. Prav is joined by Professor Lance Turtle, an expert in infectious diseases, who explains how vaccines work, why multiple doses matter, and the...
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Ep 67 - Could dexamethasone improve HSV encephalitis outcomes - with Professor Tom Solomon CBE
Ep 67 - In this episode of the Encephalitis Podcast, Prav speaks with Professor Tom Solomon CBE, a leading neurologist and infectious disease expert, about the groundbreaking DexEnceph study - two decades in the making. Discover how this UK-wide clinical trial explored whether dexamethasone (a...
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Ep 66 - Global Encephalitis Training: Saving lives in low-resource settings with Dr. Aline Matos
In this episode of the Encephalitis Podcast, Prav speaks with neurologist Dr. Aline Matos about the development of global training modules designed to help clinicians diagnose and treat encephalitis -especially in low-resource settings. They explore why encephalitis is often missed or…
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Ep 65 - Understanding MOG Antibody-Associated Encephalitis with Dr. Matteo Gastaldi
What is MOG antibody-associated encephalitis, and how does it differ from other types of autoimmune brain inflammation? In this episode of The Encephalitis Podcast, Prav speaks with Dr. Matteo Gastaldi, neurologist and Head of the Neuroimmunology Research Unit in Pavia, Italy. Together, they...
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Ep 64 - Parenting after encephalitis with Dr Freddie Byrne
The Encephalitis Podcast Ep 63 In this episode, Prav is joined by Dr. Freddie Byrne, clinical psychologist and Clinical Director of Living with ABI Limited. Together they explore the realities of parenting after encephalitis and acquired brain injury (ABI), including changes in family roles, the...
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Ep 63 - F.L.A.M.E.S. - The Life-Saving Encephalitis Acronym with Dr Nicholas Davies
Encephalitis Podcast Ep 63 In this episode of The Encephalitis Podcast, Prav is joined by leading neurologist Dr Nicholas Davies to introduce F.L.A.M.E.S., a new life-saving acronym designed to help the public and healthcare professionals recognise the urgent symptoms of encephalitis....
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Ep 62 - Contagion on Screen: Science, Storytelling, and Encephalitis with Scott Z. Burns
Encephalitis Podcast Ep 62 In this episode of the Encephalitis Podcast, Prav is joined by award-winning screenwriter and director Scott Z. Burns to discuss the depiction of encephalitis in films and explore the science, humanity, and lasting impact of the 2011 film Contagion. Inspired by…
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Ep 61 - Emotions, pain and unspoken dreams - Denis' Encephalitis Story
In this powerful and emotive podcast episode Denis shares his journey of living with viral encephalitis from his life as an aeronautical engineer through the sudden onset of illness, hospitalisation, and a long, complex recovery. He discusses memory loss, intense emotions, vivid and distressing...
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Ep 60 - Sleep and Encephalitis with Dr David Lee
The Encephalitis Podcast Ep 60 This podcast episode is about sleep and encephalitis. Sleep difficulties can be a symptom of encephalitis as well as a potentially long-term after-effect. Prav is joined by Dr. David Lee. Dr Lee is a chartered psychologist and chartered scientist who has been...
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Ep 59 - Wady's Story of Music and Autoimmune Encephalitis
In this episode, Prav talks to Wady a patient advocate, music educator, singer-songwriter and survivor of anti-NMDA receptor encephalitis. Here is a link to Wady's music https://youtu.be/btoaGoXLi1k...
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Ep 58 - Neurological physiotherapy and encephalitis with Kenny Thoms
Encephalitis Podcast Episode 58 In this episode, Prav talks to Kenny Thoms the Co-Founder, Director & Specialist at NeuroPhysio in Glasgow. Kenny works with individuals recovering from neurological events or those managing long-term neurological conditions. They discuss neurological physiotherapy...
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Ep 57 - Milkshakes for Marleigh - Kate Fisher
In this episode, Prav is joined by a mother who is changing the world! Not just for her own child, but for so many others. Kate Fisher, the founder of Milkshakes for Marleigh - a blood donation initiative in Australia - talks about her daughter's experience of encephalitis and how she now commits...
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Ep 56 - Genetics in Autoimmune Encephalitis with Dr Sophie Binks
In this episode, Prav talks to Dr Sophie Binks about genetics and DNA in relation to autoimmune encephalitis. Asking the question 'can genetics play a part in the prevalence of encephalitis?' Sophie is a Clinical Lecturer and Honorary Neurology SpR at Nuffield Department of Clinical…
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Ep 55 - Relationships after encephalitis with Dr Giles Yeats
The Encephalitis Podcast Ep 55 - Relationships after encephalitis with Dr Giles Yeats In this episode, Prav talks about relationships after encephalitis with Doctor Giles Yeates. Relationships sit at the intersection of our personal and professional lives, shaping our identity, providing support...
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Ep 54 - LGi1 Autoimmune Encephalitis Pauline's Story
In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International. Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups. If you have been affected by...
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Ep 53 - Discussing autoimmune encephalitis with Professor Sarosh Irani
It this episode of The Encephalitis Podcast, Prav is asking Professor Sarosh Irani the question 'What's new in autoimmune encephalitis?' Professor Irani is Professor of Neurology and Neurosciences at the Mayo Clinic, Florida, former professor of Autoimmune Neurology at the University of Oxford…
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Ep 52 - Trevor: Lived Experience of HSV encephalitis
In this episode, Prav talks to Trevor and his mum, Lois from Sydney. Trevor shares his lived experience of herpes simplex virus encephalitis. If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up…
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Ep 51 - Travel Health and Encephalitis with Katy Peters
In this episode, Prav talks to Katy Peters about travel health and encephalitis. Katy is an immunisation and travel health specialist nurse who founded 360 Health Limited, a London vaccination clinic in 2013. A member of the Faculty of Travel Medicine at the Royal College of Physicians and…
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Ep 50 - Sue Ann: Lived Experience West Nile Virus Encephalitis
In this episode, Prav talks to Sue Ann who was diagnosed with West Nile Virus encephalitis in 2023. She shares her lived experience story. If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to...
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Ep 49 - Leaving a Legacy: Wunmi's support for Encephalitis International
In this special Legacy episode of the Encephalitis Podcast, Prav talks to our lived experience and community member Wunmi. Wunmi had encephalitis in 2017. Here, she shares her story and talks about legacies and leaving a gift in her will. To learn more about wills or leaving a legacy gift to...
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Ep 48 - Clinical Trials with Stacey Clardy
In this episode, Prav - Senior Medical Writer for Encephalitis International - talks to Dr Stacy Clardy about clinical trials to to find out more about this important aspect of developing treatments for encephalitis. Doctor Clardy is both clinical and research faculty in the Division of...
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Ep 47 - Brain Infectious Global (BIG) Outcomes with Dr Bhagteshwar Singh
In this episode Dr Ava Easton is joined by Dr Bhagteshwar Singh talking about improving the diagnosis and treatment of encephalitis in low to middle income countries. Dr Bhagteshwar Singh is back in the UK, having been based at Christian Medical College in Vallor, India, and Queen Elizabeth…
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Ep 46 - Patient and Public Involvement in low to middle income countries
In this episode, Emma Collins, Patient and Public Involvement Manager at Encephalitis International, talks to Dr Ava Easton, CEO at Encephalitis International and Chair of the PPI panel, about improving the work of patient and public involvement (PPI) driven by Encephalitis International in a…
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Ep 45 - Diane: Lived Experience of Autoimmune Encephalitis
In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane. Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social...
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Ep 44 - Dr Lipunga: Challenges in low and middle income countries
In this podcast, Prav Prathapan from Encephalitis International is joined by Dr Gareth Lipunga, from Malawi. They will be talking about the challenges that low to middle income countries (LMIC) face when it comes to encephalitis. Dr Lipunga is a medical doctor trained at the University of…
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Ep 43 - WHO technical brief and 'Why Encephalitis Matters' - Dr Tarun Dua
In this World Encephalitis Day special, Dr Ava Easton is joined by Doctor Tarun Dua, head of the Brain Health Unit at the World Health Organization (WHO). In exciting news for World Encephalitis Day 2025, the World Health Organization are releasing a technical brief on encephalitis. Dr Dua is…
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Ep 42 - Updates on COVID- CNS study: Bethany Facer and Dr. Brenden Sargent
We are delighted to welcome Bethany Facer and Dr Brendan Sargent to The Encephalitis Podcast. Beth and Brendan talk to host Prav Prathapan about recent research on the neurological effects of Covid-19, including cognitive deficits and long-term effects, and the potential implications for other...
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Ep 41 - Climate change and encephalitis with Dr Jim Sejvar
Please note that this episode was recorded in November 2023. In this episode of The Encephalitis Podcast, Dr Ava Easton is joined by Dr James Sejvar for a discussion around climate change, and how it's affecting our risk for deadly infectious diseases, such as West Nile encephalitis or Japanese...
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Ep 40 - Anti DPPX encephalitis lived experience
One of our Team Encephalitis volunteers, Nicole, talks to Senior Medical Writer, Praveen, about her lived experience of encephalitis. Nicole was diagnosed with Anti-DPPX receptor encephalitis when she was 20 years old while she was at University. This lead to her needing to abandon her studies to...
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Ep 39 - Prof Jon Evans - Memory and its relationship with encephalitis
In this episode, Dr Ava Easton (CEO of Encephalitis International) is joined by Professor Jonathan Evans - a distinguished expert in clinical neuropsychology at the university of Glasgow. Professor Jon Evans discusses the world of memory and its intersection with encephalitis including the...
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Ep 38 - Scott Hamilton Kennedy: Shot in the Arm
Dr Ava Easton, CEO of Encephalitis International interviews the director of the documentary Shot in the Arm, Scott Hamilton Kennedy . Talking about vaccine hesitancy and misinformation. Find more about the film here www.shotinthearm.com and for more information about vaccine preventable forms of...
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Ep 37 - Professor Michael Wilson: Metagenomics and encephalitis
Dr Ava Easton was joined by Professor Michael Wilson from the Centre of Encephalitis and Meningitis at UCSF to talk about metagenomics and encephalitis. For more information about Professor Wilson's work please visit https://encephalitis.ucsf.edu/ If you have been affected by encephalitis and are...
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Ep 36 - Prof Arun Venkatesan: Death from encephalitis
TRIGGER WARNING: In this podcast episode, Dr Ava Easton CEO Encephalitis International, talks with Prof Arun Venkatesan about the difficult topic of death from encephalitis. This is something which will be sadly and unfortunately familiar to many families and friends who's loved ones have fallen...
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Ep 35 - Encephalitis International: Our new global vision 2024
In our final episode of 2023, Dr Ava Easton, host of the Encephalitis Podcast, talks to Phillippa Chapman, Deputy Chief Executive of Encephalitis international, and Bella Bardswell, co-founder of Stellafai. The trio talk about the monumental decision to change the name of the Encephalitis Society...
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Ep 33- Dr Lance Turtle: Japanese encephalitis in Australia
Dr Lance Turtle joins The Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia over the past 12 months. Lance is a Reader and Honorary Consultant Physician in Infectious Diseases at the University of Liverpool. As always, the questions are asked by our...
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Ep 32 - Mental Health and Encephalitis
Welcome to a special World Encephalitis Day edition of the Encephalitis Podcast. Dr Ava Easton, Chief Executive of the Encephalitis Society, is joined by Dr Thomas Pollak, from Kings College London, and Dr Jesus Ramirez-Bermudez, of the National Institute of Neurology and Neurosurgery of Mexico…
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Ep 31- Brain on Fire: A 10th anniversary interview with Susannah Cahalan
Best-selling author Susannah Cahalan joins host Dr Ava Easton for a special World Encephalitis Day edition of The Encephalitis Podcast. Ten years ago, Susannah published Brain on Fire: My Month of Madness, the award-winning memoir and New York Times bestseller, which quickly become a Bible for...
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Ep 30 - Jackie Stebbins: Sharing my encephalitis journey
In this episode, Dr Ava Easton talks to author and motivational speaker Jackie Stebbins. In 2017, the former trial lawyer from Bismarck, North Dakota, became ill with encephalitis and experienced a host of difficulties, such as insomnia, paranoia, hallucinations and memory loss. In the summer of...
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Ep 29 - Dr Greta Wood: Seizures and encephalitis
In this edition of The Encephalitis Podcast, Dr Ava Easton is joined by Dr Greta Wood for a discussion around seizures and encephalitis. In this wide-ranging conversation, they discuss an important new research paper before answering some questions around seizures and encephalitis. Greta is an...
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Ep 28 - The COVID-19 Clinical Neuroscience Study
We are delighted to welcome back Professor Benedict Michael to The Encephalitis Podcast. Ben talks to host Dr Ava Easton about the COVID-19 Clinical Neuroscience Study – a £2.3 million research study looking in the acute neurological and neuropsychiatric complications of COVID-19. He also shares...
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Frequently Asked Questions
How many episodes does The Encephalitis Podcast have?
The Encephalitis Podcast currently has 76 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is The Encephalitis Podcast about?
A podcast from Encephalitis International which looks at all things related to encephalitis (inflammation of the brain).For further information about encephalitis, visit www.encephalitis.info
How often does The Encephalitis Podcast release new episodes?
The Encephalitis Podcast has 76 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to The Encephalitis Podcast?
You can listen to The Encephalitis Podcast on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts The Encephalitis Podcast?
The Encephalitis Podcast is created and hosted by Encephalitis International.
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