PODCAST · business
The Raw Nerve
by MS Australia
Welcome to The Raw Nerve – the official Podcast of MS Australia – a conversation space for all things multiple sclerosis.Join us for news and views on the latest research, treatments, and advocacy efforts, as well as candid and informative interviews with our community; those living with MS and their families and carers, together with leading clinicians, researchers, and advocates.www.MSAustralia.org.au/podcast
Episodes
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Ep90 Movement, Independence and Physiotherapy in MS
Today we're focusing on movement, function and independence, and the specialist physiotherapy support that can help people living with multiple sclerosis continue doing what matters to them. Host Jeremy Henderson and Associate Professor James McLoughlin trace James' path into MS care, explain…
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Ep89 Cassidy Krygger: Storytelling, Cinema and MS
Cassidy Krygger is a film historian, cultural commentator, filmmaker and founder of Hollywoodland Photos, who first featured on The Raw Nerve Podcast in 2024. Living with multiple sclerosis (MS) since 2018, she draws on classic cinema and lived experience to explore identity, resilience and...
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Ep88 Women, Wellbeing and MS: Finding What Works for You
Women are around three times more likely than men to develop multiple sclerosis (MS), but why remains an enduring question in MS research. In this episode of The Raw Nerve, Head of Research Dr Tennille Luker marks Women’s Health Week 2026 with Deborah Cuddihy and Teisha Rose, whose different…
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Ep87 Neurological Care in Australia: What the Survey Reveals
Australia’s first national survey of people affected by neurological conditions has revealed a clear and urgent message: too many Australians are navigating complex, fragmented systems without the timely, coordinated and affordable care they need. In this episode of The Raw Nerve, we explore...
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Ep86 Funding the Future: The Next Generation of MS Research
Announced on 29 July, MS Australia's 2026 Mid-Year Research Grants support bold new ideas with the potential to transform the future of multiple sclerosis (MS) research and treatment. Every breakthrough in MS research begins with researchers asking questions yet to be answered. MS Australia is...
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Ep85 Celebrating MS Changemakers: The 2026 MS Australia Awards
In this episode of The Raw Nerve, Host Jeremy Henderson, Head of Advocacy for MS Australia, and Co-Host Sharlene Brown, Chair of the MS Australia Awards Committee, spotlight the 2026 MS Australia Awards and remarkable people driving change, compassion and progress across the Australian multiple...
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Ep84 Friendship, MS and a Dog Called Bounty
In this extended episode of The Raw Nerve, Host Jeremy Henderson is joined by guest Co-Host Lisa Montague, Raw Nerve Producer and Public Relations Manager for MS Australia, for a warm and wide-ranging conversation with acclaimed Sydney author Elizabeth Lancaster. Elizabeth’s new memoir, 'Bounty…
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Ep83 Frosty and Holty on Life, Mateship and MS
In this special episode of The Raw Nerve marking International Men’s Health Week 2026 (known in Australia as Men’s Health Week), host Jeremy Henderson speaks with Bruce Frost and Andrew Holt from Narooma and Pambula respectively, on the stunning far south coast of New South Wales, about…
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Ep82 Back on Track: New resource to support People Living with MS
Join us for a special episode of the Raw Nerve Podcast as we celebrate the launch of an innovative MS Nurse-led resource designed to support Australians living with multiple sclerosis (MS) amid MS specialist nurse care shortages. MS Specialist Nurses or MS Nurses are an integral part of the...
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Ep81 On top of the world: Jen Willis, MS and summitting Mount Everest
In this special episode of The Raw Nerve, we speak with Jen Willis after her historic Mount Everest summit. As the first Australian living with MS to reach the top of the world, Jen speaks candidly about the mental and physical demands of the climb, the support network that helped make it…
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Ep80 Faster, Earlier, More Accurate: The Future of MS Diagnosis
MS Australia Deputy CEO Dr Julia Morahan speaks with leading clinician researchers and MS experts Professor Helmut Butzkueven and Associate Professor Anneke van der Walt about the updated 2025 McDonald Diagnostic Criteria for multiple sclerosis (MS). The revised guidelines aim to diagnose MS...
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Ep79 Continence: Facts, Myths, and Support Strategies
The episode transcript is unavailable at this time. Today’s episode spotlights the essential topic of continence, examining its effect on quality of life, including for people living with multiple sclerosis (MS). We feature an engaging conversation with Continence Health Australia and a powerful...
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Ep78 The May 50K: Community, Fitness and Fundraising for MS Research
The May 50K is fast approaching and today we explore its impact on MS (multiple sclerosis) research, and how participants support important research advancements. Since launching in 2019, this fun and flexible fitness challenge for individuals and workplace teams has raised more than $25.5…
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Ep77 Stephen Crawford Chapter 2: Life with MS and the Power of Art
On today’s Raw Nerve, we present part two of an interview with Stephen Crawford, a Canberra-based artist and musician who lives with multiple sclerosis (MS). In part one, Stephen shared with us his uniquely individual story – starting with his childhood in Scotland and moving to Australia in the...
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Ep76 Stephen Crawford Chapter 1: Life with MS and Moving Forward
On today’s Raw Nerve, we present part one of an interview with Stephen Crawford, a Canberra-based artist and musician who lives with multiple sclerosis (MS). Stephen shares with us his uniquely individual story – starting with his childhood in Scotland and moving to Australia in the 1980s – and...
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Ep75 Advancing MS Research in Australia: Innovation, impact and the case for greater investment
Join us for a special episode of the Raw Nerve Podcast as we celebrate excellence in MS Australia research, showcase exciting projects from our most recent MS Research Grant Round, and discuss the need for greater government investment in neurological research. MS Australia has invested millions...
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Ep74 MS Prevalence and Health Economic Impact in Australia 2025
Today’s Raw Nerve episode explores the major new report: Multiple Sclerosis Prevalence and Health Economic Impact in Australia 2025. Released at MS Australia’s 2025 Progress in MS Research Conference, the report reveals that a record 37,756 Australians are now living with multiple sclerosis (MS)…
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Ep73 Brain Health and Self-Care in MS
Recorded live at MS Australia’s 2025 Progress in MS Research Conference in Brisbane, Queensland, MS Neurosciences Nurse practitioner Jodi Haartsen’s brain health and self-care focused talk left audience members deeply moved and inspired. Moving into a new year and marking the first Raw Nerve...
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Ep72 Spotlighting MS Symptom Management and Mental Health
A special episode of the Raw Nerve recorded live at MS Australia’s 2025 Progress in MS Research Conference in Brisbane, Queensland. Tune in to watch and listen to a wonderful panel of experts variously working in the multiple sclerosis (MS) space and living with MS, discuss symptom management and...
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Ep71 First Australia-New Zealand clinical guidance for MS
Today, we explore the new consensus recommendations to guide best practice management of multiple sclerosis (MS) in Australia and New Zealand, helping health professionals in these countries navigate a vastly changed and expanded MS treatment landscape. As reported earlier this year, this new...
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Ep70 Changing Track: Finding Hope and Resilience Through Paracycling
In this powerful episode, we delve into the new Australian documentary, ‘Changing Track’, a non-fiction drama that follows three unique athletes on their journey to chase a Paralympic dream after trauma and disability forced their lives onto a new course. We are joined by the film's creators:...
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Ep69 ECTRIMS 2025: Shaping the next frontier of MS research
In today’s episode, MS Australia Deputy CEO, Dr Julia Morahan and Head of Research, Dr Tennille Luker report on and unpack ECTRIMS 2025 – the world’s largest MS treatment and research congress. The recent event attracted over 9000 international delegates and serves as a crucial platform for...
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Ep68 Celebrating our MS Carers: Marking National Carers Week 2025
On The Raw Nerve today, we spotlight MS carers and the important issues they face, as we mark National Carers Week 2025. Host Jeremy Henderson is joined by Lived Experience Expert Panel (LEEP) members, Rebecca Small and Chloe Colles, who represent the important cohort of people caring for family...
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Ep67 Ageing and MS: Marking International Day of Older Persons 2025
Today’s episode spotlights older people living with MS and the important issues they face, as we mark International Day of Older Persons 2025 which is celebrated annually on the first of October. We hear from MS Australia Lived Experience Expert Panel (LEEP) members, Vanessa Fanning and Gavin...
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Ep66 It’s time: A National Action Plan for Neurological Conditions
Today on The Raw Nerve we're taking you to Parliament House in Canberra for the Neurological Alliance Australia (NAA) Day of Action held on 4 September 2025 with over 100 members of the neurological community and Parliamentarians in attendance. NAA Chair and CEO of MS Australia, Rohan Greenland...
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Ep65 Women’s Health and MS: Marking Women’s Health Week 2025
Join us for a special episode on women’s health and MS, hosted by Dr Tennille Luker, MS Australia’s Head of Research, exploring diagnosis and lived experience, mental health, work and chronic illness, pregnancy, midlife, menopause and MS research. MS is the most common acquired neurological...
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Ep64 Global Voices, Local Impact: Dr Lydia Makaroff on leading the MSIF
MS Australia CEO Rohan Greenland sits down with Dr Lydia Makaroff, Chief Executive of the MS International Federation (MSIF), during her visit to Australia. Lydia shares insights from her first six months leading the MSIF. They explore the global challenges and opportunities in MS advocacy,...
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Ep63 Celebrating our MS Champions: The 2025 MS Australia Awards
The MS community is brimming with extraordinary people whose remarkable efforts inspire us all. Today on The Raw Nerve, we celebrate some of these outstanding individuals and discuss why and how to nominate someone special for the 2025 MS Australia Awards. We talk with the recipients of our 2024...
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Ep62 2025 Incubator Grants: Novel research helping solve the MS puzzle
Today on The Raw Nerve we spotlight our newly launched 2025 Incubator Grant round, which supports out-of-the-box ideas aimed at opening new directions in multiple sclerosis (MS) research. MS Australia has funded four exciting projects targeting MS research priorities – including causes and...
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Ep61 World Brain Day: A focus on brain health and MS
On this episode of The Raw Nerve we mark World Brain Day, an annual event observed on July 22, which aims to foster quality neurology and brain health worldwide. What is brain health for people living with MS? How can you keep your brain healthy? Our brain is the most complex organ in our body,...
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Ep60 Connecting through Reading: The MS Readathon Story
A reading revolution, the MS Readathon has been empowering kids and bonding families since 1978 and has made a huge impact on awareness raising of and fundraising for multiple sclerosis (MS) and literacy. What is the MS Readathon? How does it work and make a difference? What do kids, their…
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Ep59 NDIS Pricing Review: The price is NOT right!
Together with the broader sector, MS Australia is extremely disappointed with the recently released 2024-2025 NDIS Pricing Review. What is the Annual NDIS Pricing Review? What were we expecting or hoping for? What has been announced and why are we so concerned? What are the potential implications...
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Ep58 Reflecting on World Continence Week: MS, continence, and handy resources
Reflecting on the recent World Continence Week 2025 which spotlighted bladder, bowel, incontinence, mental health and other issues, MS Australia explores this important subject area which is common for many people including those living with MS. What is incontinence? What are some of the typical...
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Ep57 Men and MS: A candid chat to mark International Men’s Health Week
Marking International Men’s Health Week 2025, MS Australia explores the important issue of men’s health - physical, mental, also emotional wellbeing - particularly as it pertains to the male lived experience of MS. How do men experience MS? What is it like living with MS and being male? What is...
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Ep56 Living well with MS: the new resource empowering Australians to make informed lifestyle choices
In this special World MS Day episode of The Raw Nerve, MS Australia's Head of Research Dr Julia Morahan, MS Australia research coordinator Dr Jo Gamble, and Lived Experience Expert panel member and artist Deanna Renee join Raw Nerve host Jeremy Henderson to discuss the new MS Australia…
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Ep55 The value of MS Nurses and MS Nurse Practitioners
On International Nurses Day 2025, MS Australia’s focus is the important role of MS nursing as outlined in our new Report: Our Nurses. Our Future. Caring for MS Nurses. What are MS Nurses and MS Nurse Practitioners and how do they work together with neurologists? How can we better support and...
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Ep54 Empathy in Practice: An Occupational Therapist's own MS journey
In this episode of The Raw Nerve, host Jeremy Henderson sits down with Evie Boven, an Occupational Therapist at Grafton Base Hospital in New South Wales, who was diagnosed with Multiple Sclerosis (MS) in May 2024. Evie shares her compelling journey from experiencing initial symptoms to finally...
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Ep53: Why health must be a top priority in the 2025 election
Do Australians care enough about healthcare at election time? What are the biggest public health challenges we face? What would it take to put the election spotlight on neurological health? And why is the Australian government continuing to underspend on health and medical research? In this…
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Ep52 The May 50K: Health, hope and the future of MS Research
The May 50K is fast approaching, ready to inspire people once again to move with purpose and support MS research. Since launching in 2019, this fun and flexible fitness challenge has raised more than 23.4 million dollars to support world-class research into the prevention, treatment and cure of...
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Ep51 Riding for MS: wheels and tales with Cate, Clare and Kobe
Victorians Cate Green and Clare Reilly both live with MS and are setting out on epic – but very different – journeys on wheels to raise awareness and funds for MS. Cate is preparing to ride 20,000 kilometres around Australia on a traditional road bike, accompanied by her dog Kobe, to shine a...
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Ep50 The MS Puzzle: Innovative research promises to reveal new clues
MS Australia has funded a record number of projects targeting MS research priorities - including causes and prevention, better treatments and cures via repair and regeneration of cells. Join us on the Raw Nerve, on this, our 50th episode, as we delve into four exciting new research projects and...
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Ep49 A cut above: MS, horses and the Yellowstone effect
On the latest episode of the Raw Nerve we're joined by Lynda MacCallum, a professional cutting horse trainer, accredited health and wellness, coach wife and mother of two. A former high school teacher. Lynda has a passion for teaching and an interest in nutrition, fitness and health. Lynda…
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Ep48 Unseen Strength: Chronic Illness, Resilience, and the Power of Storytelling
In this episode of the Raw Nerve, host Jeremy Henderson sits down with journalist, producer and Mum of two, Brooke Campbell Bayes. Brooke was recently diagnosed with MS. On the podcast Brooke delves into her recent Sydney Morning Herald series that highlights chronic disease and disability, and...
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Ep 47 See, believe, dream, achieve
In this episode, we chat with Chris Henderson, a former Richmond wheelchair football champion who recently took on the role of Player Coach at Essendon. Chris shares his inspiring MS diagnosis story and of finding renewed purpose through wheelchair football. We delve into the exciting world of…
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Ep46 Shaping the future of MS: Research and trials in prevention and care
In this episode of The Raw Nerve, we dive into a compelling panel discussion from the Frontiers in MS Research Symposium on how emerging research and clinical trials are transforming the landscape of MS prevention, care and treatment. Our expert panel, featuring researchers, clinicians, and...
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Ep45 From the Bush to the Boardroom: Reflecting on a decade of leadership and service to the MS community
In this episode of The Raw Nerve, host Jeremy Henderson sits down with Associate Professor Des Graham, the outgoing President of MS Australia. As Des prepares to step down from his role on 28 November 2024, he reflects on a rich career trajectory that has culminated in over a decade of...
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Ep44 Crisis Toolkit unpacked: Empowering preparedness
In this episode of The Raw Nerve, the panel discusses the new Crisis Toolkit to help people living with MS with crisis planning. With summer fast approaching, it’s more important than ever to talk about crisis planning. Whether it’s preparing for heatwaves, bushfires, or any other emergencies,...
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Ep43 A conversation about MS and AHSCT: Autologous Haematopoietic Stem Cell Transplant
On this episode of The Raw Nerve, host Dr Julia Morahan, Head of Research at MS Australia is joined by retired police officer, Michael Butler who lives with multiple sclerosis (MS), and his neurologist, Dr Jennifer Massey from St Vincent’s Hospital, New South Wales, for an in-depth conversation...
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Ep42 No limits: a Ballarat boy shares his running high
In this episode of The Raw Nerve, we meet James Riley a young father from Ballarat, Victoria who works in the telecommunications industry and like the guest on our previous episode, is a passionate runner. James’s story is a little different, however. His running routine, his marathons and ultra...
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Ep41 Run for your life: Meet the man with MS who has run marathons on all 7 continents
Derek Stefureac was diagnosed with MS at age 39 after experiencing a sudden attack of numbness and paralysis. Though initially frightened and uncertain about his future, he became determined to take control of his health embracing positive lifestyle changes; quitting smoking and taking up…
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ABOUT THIS SHOW
Welcome to The Raw Nerve – the official Podcast of MS Australia – a conversation space for all things multiple sclerosis.Join us for news and views on the latest research, treatments, and advocacy efforts, as well as candid and informative interviews with our community; those living with MS and their families and carers, together with leading clinicians, researchers, and advocates.www.MSAustralia.org.au/podcast
HOSTED BY
MS Australia
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Frequently Asked Questions
How many episodes does The Raw Nerve have?
The Raw Nerve currently has 90 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is The Raw Nerve about?
Welcome to The Raw Nerve – the official Podcast of MS Australia – a conversation space for all things multiple sclerosis.Join us for news and views on the latest research, treatments, and advocacy efforts, as well as candid and informative interviews with our community; those living with MS and...
How often does The Raw Nerve release new episodes?
The Raw Nerve has 90 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to The Raw Nerve?
You can listen to The Raw Nerve on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts The Raw Nerve?
The Raw Nerve is created and hosted by MS Australia.
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