PODCAST · education
The Sickle Cell Podcast
by Sickle Cell 101
Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education.
Episodes
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Sickle Cell Pain | Tough Conversations about Sickle Cell Disease - Episode 6
What makes sickle cell pain so different from anything else? In the sixth episode of our Tough Conversations about Sickle Cell Disease series, our panelists open up about what sickle cell pain really feels like and why it is so hard to understand from the outside. Dr. Halimat Olaniyan compares...
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Racism vs.Complexity | Tough Conversations about Sickle Cell Disease - Episode 5
Are sickle cell’s biggest challenges rooted in systemic racism, or in the complexity of the disease itself? In the fifth episode of our Tough Conversations about Sickle Cell Disease series, our panelists agree the answer is both. Jimi Olaghere reflects on how systemic racism is a problem no…
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Research Barriers | Tough Conversations about Sickle Cell Disease - Episode 4
Why has sickle cell research moved so much slower than research for other diseases? In the fourth episode of our Tough Conversations about Sickle Cell Disease series, our panelists agree on one answer: money. Dr. Amy Cox explains how historic barriers like redlining and discrimination have…
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Historical Progress | Tough Conversations about Sickle Cell Disease - Episode 3
Has anything in sickle cell care actually been fixed? In the third episode of our Tough Conversations about Sickle Cell Disease series, our panelists look back at the historical problems in sickle cell and ask what has truly changed. Kyle Smith reflects on his time working at a children’s…
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The Sickle Cell Care Landscape in 2026 | Tough Conversations about Sickle Cell Disease - Episode 2
Where does sickle cell care and treatment really stand in 2026? In the second episode of our Tough Conversations about Sickle Cell Disease series, our panelists take an honest look at today’s care and treatment landscape. Dr. Halimat Olaniyan explains how the conversation is shifting from pain to...
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Why Sickle Cell? | Tough Conversations about Sickle Cell Disease - Episode 1
What brings someone to sickle cell disease, and what keeps them fighting for change? In the first episode of our Tough Conversations about Sickle Cell Disease series, four thought leaders driving progress in the sickle cell space share their “why.” Dr. Amy Cox talks about finding the community...
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What Good Care Looks Like for Children w/Sickle Cell: Puberty, Mental Health and Growing Up
When should conversations about puberty and mental health start, and what should your child know before leaving pediatric care? In this episode of our What Good Care Looks Like for Kids with Sickle Cell series, pediatric hematologist Dr. Jacob talks about growing up with sickle cell disease, from...
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What Good Care Looks Like for Children w/Sickle Cell: Milestones, Shared Decision-Making and the ER
What should parents watch for at home, and when is it time to go straight to the ER? In this episode of our What Good Care Looks Like for Kids with Sickle Cell series, pediatric hematologist Dr. Jacob walks through what good care looks like for children with sickle cell disease, from shared...
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What Good Care Looks Like for Children w/Sickle Cell: Screenings, Labs, and What to Track
What does good care actually look like for kids with sickle cell disease? Part 2: Screenings, Labs, and What to Track In this episode of our What Good Care Looks Like for Kids with Sickle Cell series, pediatric hematologist Dr. Jacob dives into the screenings and labs every family should know.…
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What Good Care Looks Like for Children w/Sickle Cell: First Steps and Medical Home
What does good care actually look like for kids with sickle cell disease? In this episode of our What Good Care Looks Like for Kids with Sickle Cell series, pediatric hematologist Dr. Jacob breaks it down. She covers what to do the moment you get the diagnosis, building your child's medical home,...
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Sickle Cell + Blue Therapy
This episode features Damika “Dami” Jones from Netflix’s Blue Therapy. Dami and her husband, Jermaine, faced a deeply personal decision involving sickle cell disease. She shares the story behind their decision and reflects on how her sister’s experience living with sickle cell has inspired and...
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Part 4: What Good Care Looks Like for Adults With Sickle Cell Disease – Sickle Cell Research
What does good care actually look like for adults living with sickle cell disease? In this episode of our What Good Care Looks Like for Adults with Sickle Cell series, lifespan sickle cell expert Dr. Julie Kanter focuses on the evolving landscape of sickle cell research and data collection. Dr....
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Part 3: What Good Care Looks Like for Adults With Sickle Cell Disease – Treatment Options
What does good care actually look like for adults living with sickle cell disease? In this episode of our What Good Care Looks Like for Adults with Sickle Cell series, lifespan sickle cell expert Dr. Julie Kanter focuses on navigating treatment options and disease modifiers. Dr. Kanter breaks…
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Part 2: What Good Care Looks Like for Adults With Sickle Cell Disease – Sickle Cell Care: Specialists and Labs
What does good care actually look like for adults living with sickle cell disease? In this episode of our What Good Care Looks Like for Adults with Sickle Cell series, lifespan sickle cell expert Dr. Julie Kanter focuses on two pillars of quality sickle cell care: working with the right…
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What Good Care Looks Like for Adults With Sickle Cell Disease Part 1: Medical Home, Sickle Cell Specialist, Emergency Department + Individualized Care Plan
What does good care actually look like for adults living with sickle cell disease? In this episode of our What Good Care Looks Like for Adults with Sickle Cell series, lifespan sickle cell expert Dr. Julie Kanter breaks it down. She covers establishing a medical home, working with a sickle cell...
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Sickle Cell + Harvard Student (Feat. Hanif Mouehla)
In this episode, we dive into the inspiring story of Hanif Mouehla, a Harvard student and former sickle cell warrior. Hanif shares his journey of growing up with sickle cell disease, from the challenges he faced in his youth to the curative treatment that changed his life. Support this podcast:...
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Sickle Cell + Aging (Feat. Ms. Pat McGill & Linda Wade)
In this episode, we explore the journey of aging with sickle cell disease through the inspiring stories of 80-year-old Ms. Pat McGill and Linda Wade. Ms. Pat shares her decades-long experience living with sickle cell, providing invaluable insight into the challenges and triumphs of aging with the...
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2023 SCAY Award Winners: Advocate of the Year + Digital Advocate of the Year (Feat. La'Shardae and Faith Adejei-Sarpong) - Pt. 2
Join host Maia Garrison as she speaks with passionate advocates shining a light on sickle cell disease. La'Shardae Scott, the 2022 SCAY Advocate of the Year, discusses her non-profit organization that bridges the gap by transitioning pediatric patients to adult sickle cell care. Faith...
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2023 SCAY Award Winners: Community Partner + Youth Advocates of the Year (Feat. Holly John and Ayana Johnson) - Pt. 1
Join hosts Cassandra Trimnell and Maia Garrison as they hear from Holly John, Senior Director of Patient Advocacy at Agios Pharmaceuticals, recognized as the SCAY Community Partner of the Year for her groundbreaking work integrating patient voices into drug development and advocacy. Also, meet...
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Sickle Cell + Bone Marrow Transplant
Featuring Christina Augustine and Dr. Alexander I. Ngwube, MD, this episode provides an comprehensive exploration on bone marrow transplant (BMT) for sickle cell disease, blending personal experiences with professional expertise. A huge thank you to Be the Match for Sponsoring this episode. For...
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Love + Sickle Cell Trait (Feat. Abisola and Seyi Shof)
For the month of July, we are bringing awareness to sickle cell trait. Abibat Oshiobugie Suleiman is the host for today's episode. Abi talks with special guests Abisola and Seyi Shof, also known as “the Shofs” on social media, about their involvement in the sickle cell community, their love story...
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Hot Topic 🔥 Family Planning + "Genetic Incompatibility"
The first of our Hot Topic 🔥 series. Hosts Stephen and Cass have THAT conversation about two individuals wanting to have children but are faced with a chance of having a child with sickle cell disease. Do you believe people who are "genetically incompatible" (like AS and AS) should have…
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2021 SCAY Award Winners + Their Stories, Their Work (Feat. Biba Tinga, Siliana Coelho, and Sarah Masamba)
Cass chats with the 2021 Sickle Cell Advocates of the Year (SCAY) Award recipients about how they got involved and what they’ve achieved. This episode features: Biba Tinga - Sickle Cell Advocate of the Year Siliana Coelho - Digital Sickle Cell Community Advocate of the Year Sarah Masamba - Sickle...
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Sickle Cell + Caregiver
Caregiving for sickle cell is underrated... Celebrating National Family Caregiver's Month, it's just Stephen and Cass this episode talking about what caregiving for sickle cell looks like – even caregiving from abroad. There is mild humor sprinkled in too. 😬 A HUGE THANK YOU TO OUR SPONSOR…
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Sickle Cell + The Workplace (Feat. Tayo Rockson, MBA)
Hosts Dr. Stephen Boateng and Cass Trimnell talk to workplace diversity and inclusion expert Tayo Rockson, MBA about discuss tips, accommodations, and how to navigate the workplace when living with sickle cell disease. Find Tayo Rockson on Instagram: https://www.instagram.com/tayorockson Website:...
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Sickle Cell + A Mental Health Discussion (Feat. Dr. Jonathan Lassiter, PhD)
Dr. Jonathan Lassiter is a clinical psychologist living with sickle cell disease. Listen to his and guest host Naim Rasul’s gems on managing mental health issues for sickle cell disease. Personal Website Talks at the Schomburg Book: Black LGBT Health in the United States Twitter: @matjl…
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Sickle Cell Trait + RMC - A Kidney Cancer (Feat. Dr. Pavlos Msaouel, MD, PhD)
Did you think Renal Medullary Carcinoma (RMC – a kidney cancer) was a sickle cell trait complication? Listen and learn more about this rare, but aggressive kidney cancer and what signs, symptoms, and precautions to take to stay on top of this issue and your kidney health. Featuring RMC expert Dr....
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Why Sickle Cell? (Feat. Teonna Woolford)
Girls chat! In honor of Women's History Month, we're talking about women's reproductive health and advocacy with sickle cell advocate Teonna Woolford, founder of SC-RED.
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Sickle Cell + Racial Injustice (Feat. Dr. Ahmar Zaidi, MD)
An important discussion on the racial disparities individuals living with sickle cell disease face within the U.S. healthcare system. This episode features hematologist-oncologist physician and activist Dr. Ahmar Zaidi.
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Getting to Know the Hosts (Why Sickle Cell?)
Happy holidays! Stephen and Cass have a list of questions to ask each other. Tune in to learn more about their personal lives, philosophies on sickle cell, and their deep dark secrets (haha).
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Why Sickle Cell? (Feat. London Knight)
Girl chat! Fashion model and sickle cell warrior London Knight shares how she juggles being a model, advocate and inspiration to others. 💋💃🏽 You can follow London Knight on Instagram at @LondonKnight_
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Why Sickle Cell? (Feat. The B Strong Group)
Sponsored by bluebird bio– A mother's perspective on raising her son diagnosed with sickle cell SC disease. This episode addresses the blessings and the hardships Brenda Greene has experienced as a caregiver. We also discuss discovering their genotypes, tips for newly diagnosed families, and...
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Sickle Cell + Gene Therapy (Feat. Dr. Isaac Odame, MD & Aeon Chintersingh)
Sickle Cell + Gene Therapy: An Honest and Open Discussion About Gene Therapy This episode features Aeon Chintersingh, an adult who underwent gene therapy to cure sickle cell disease and Dr. Isaac Odame, a specialist and medical director of Hematology/Oncology at SickKids in Toronto. We discuss...
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Why Sickle Cell? (Feat. Halimat Olaniyan)
Dedicated to all the people living with sickle cell disease (SCD) who wanted to grow up to be a doctor to treat others living with SCD. Halimat Olaniyan is living out this dream. We're chatting about her journey as a second-year med student and as an individual living with sickle cell disease.
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Sickle Cell + Taught Me (Sickle Cell Awareness Month 2020)
We're sharing stories, responses and discussing the theme of this year's Sickle Cell Awareness Month, "Sickle Cell Taught Me..." Current event links: Black Blood Matters: https://www.wavy.com/news/health/red-cross-black-blood-matters-for-some-with-sickle-cell-anemia/ Sickle Cell Patients Should...
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Curing My Sickle Cell Disease and Lupus (Feat. Rhiannon and Scherika Perry)
A 'Why Sickle Cell' episode featuring Rhiannon and her mother Scherika's inspiring journey to cure Rhiannon's sickle cell disease and lupus. An honest look into what it takes to undergo a bone marrow transplant. A huge thank you to Be the Match for sponsoring this episode. For more information...
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Sickle Cell + Managing Pain From Home (Feat. Dr. Julie Kanter, MD)
Adult hematologist Dr. Julie Kanters talks about managing sickle cell pain at home, especially during the COVID-19 pandemic.
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Sickle Cell + COVID-19 + Mental Health (Feat. Dr. Marsha Treadwell, PhD)
Featuring sickle cell clinical psychologist, Marsha Treadwell, PhD, we're talking about mental health, COVID-19 and tips and tricks to stay level headed and positive during these challenging times.
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Sickle Cell + Physicals
Let's get physicals!! We're back with our first episode of 2020, celebrating Black History Month, testing for sickle cell trait and getting physicals... with a side of cheese. 🧀
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Why Sickle Cell? (Feat. Ade Adeyokunnu, MBA)
Sickle cell disease doesn't stop him. He received his MBA and traveled throughout Asia while doing it. This 'Why Sickle Cell?' series episode features Ade Adeyokunnu and how he navigates advocacy, higher education and travel.
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Sickle Cell + World Sickle Cell Day
This one's for the 10th anniversary of World Sickle Cell Day. 🎉 Learn facts that you can share with your family and friends for World Sickle Cell Day!
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Sickle Cell + Mental Health (Feat. Dr. Charles Jonassaint, PhD, MHS)
May is Mental Health Awareness Month. This episode features psychologist and epidemiologist Dr. Charles Jonassaint, PhD, MHS and delves into mental health in sickle cell disease.
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Why Sickle Cell? (Feat. Dr. Oladipo Cole, MD)
What do you get when you're an individual living with sickle cell disease and a physician? You get Dr. Oladipo Cole. This 'Why Sickle Cell?' series episode features Dr. Cole and how he navigates living with sickle cell disease and being a physician.
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Introducing the 'Why Sickle Cell' series
They say sickle cell chooses you, so we ask experts, patients and everyone in between why they're invested in sickle cell, while learning about their experience with sickle cell.
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Sickle Cell + Blood Transfusion (Feat. Dr. Keith Quirolo, MD)
Talking with guest Dr. Q all about blood transfusions - types, benefits and risks, hydroxyurea, alternatives and more. Definitely for the nerds! 🤓
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Sickle Cell + Mistreatment
Talking about the mistreatment we endure in healthcare settings. Articles: • ‘Every time it’s a battle’: In excruciating pain, sickle cell patients are shunted aside - https://www.statnews.com/2017/09/18/sickle-cell-pain-treatment/ • Sickle cell patients face a ‘fight for everything’ — even...
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Sickle Cell + Trait
Happy Sickle Cell Awareness Month! Stephen nerds out on everything sickle cell trait, hence the length of the episode. This episode delivers our usual cheese, so enjoy! :)
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Sickle Cell + History
Celebrating sickle cell greats like King Tut, Walter Clement Noel and more.
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Sickle Cell Today
A sickle cell warrior and a pharmacist with sickle cell trait chatting about the current state of sickle cell and looking to the future. Also featuring a Warrior Story about overcoming priapism. Bear with our cheesiness, it our first episode! Stephen's WSCD piece: https://bit.ly/2I0eie3 Friends?...
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The Sickle Cell Podcast Promo
Sickle Cell 101's educational podcast with sickle cell related topics. If you have any sickle cell related questions for the show, please send them in to [email protected]
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ABOUT THIS SHOW
Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education.
HOSTED BY
Sickle Cell 101
CATEGORIES
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Frequently Asked Questions
How many episodes does The Sickle Cell Podcast have?
The Sickle Cell Podcast currently has 50 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is The Sickle Cell Podcast about?
Talking about all things sickle cell related, sharing warrior experiences and providing sickle cell related education.
How often does The Sickle Cell Podcast release new episodes?
The Sickle Cell Podcast has 50 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to The Sickle Cell Podcast?
You can listen to The Sickle Cell Podcast on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts The Sickle Cell Podcast?
The Sickle Cell Podcast is created and hosted by Sickle Cell 101.
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