PODCAST · health
This is PNH
by BloodStream Media
Your podcast for understanding Paroxysmal Nocturnal Hemoglobinuria.This is PNH explores life with Paroxysmal Nocturnal Hemoglobinuria, a rare and often underrecognized blood disorder. Through conversations with patients, caregivers, and clinicians, each episode reveals what it takes to navigate this condition, often difficult to diagnose and unrecognized for years.The podcast pairs personal stories with expert perspectives on diagnosis and disease management to clarify the challenges and decisions shaping life with PNH, aiming to inform, connect, and empower those living with it, caring for someone who does, or seeking to understand it.This podcast is intended for informational and educational purposes only and is not intended as medical advice. Always talk to your healthcare provider about questions you may have about the disease, its symptoms, and treatment.
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The Road to Diagnosis
In this debut episode of This is PNH, hosts Amy and Keith are joined by patient Jessi Hackney and Dr. Daniel Winokur to break down Paroxysmal Nocturnal Hemoglobinuria (PNH), a rare blood disease where the immune system mistakenly attacks its own red blood cells. Using a hotel analogy, they explore the science behind hemolysis, the frustrating road to diagnosis, and why rare diseases are so often missed. Jessi shares her personal journey from unexplained symptoms to a life-changing diagnosis, while Dr. Winokur explains the science behind the diagnosis and the outlook for patients diagnosed today. For more information, visit thisispnh.com Transparency Statement: The This is PNH Podcast is produced by Believe Limited and made possible by Apellis Pharmaceuticals. The following Apellis Pharmaceuticals-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
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ABOUT THIS SHOW
Your podcast for understanding Paroxysmal Nocturnal Hemoglobinuria.This is PNH explores life with Paroxysmal Nocturnal Hemoglobinuria, a rare and often underrecognized blood disorder. Through conversations with patients, caregivers, and clinicians, each episode reveals what it takes to navigate this condition, often difficult to diagnose and unrecognized for years.The podcast pairs personal stories with expert perspectives on diagnosis and disease management to clarify the challenges and decisions shaping life with PNH, aiming to inform, connect, and empower those living with it, caring for someone who does, or seeking to understand it.This podcast is intended for informational and educational purposes only and is not intended as medical advice. Always talk to your healthcare provider about questions you may have about the disease, its symptoms, and treatment.
HOSTED BY
BloodStream Media
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Frequently Asked Questions
How many episodes does This is PNH have?
This is PNH currently has 1 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is This is PNH about?
Your podcast for understanding Paroxysmal Nocturnal Hemoglobinuria.This is PNH explores life with Paroxysmal Nocturnal Hemoglobinuria, a rare and often underrecognized blood disorder. Through conversations with patients, caregivers, and clinicians, each episode reveals what it takes to navigate...
How often does This is PNH release new episodes?
This is PNH has 1 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to This is PNH?
You can listen to This is PNH on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts This is PNH?
This is PNH is created and hosted by BloodStream Media.
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