Through MYeloma Eyes

Pain is often part of living with multiple myeloma, but it doesn’t always appear in the ways people expect. It’s not always dramatic or urgent. Sometimes it’s the quiet, persistent discomforts that become part of everyday life.   In this episode of Through MYeloma Eyes, Solomon Alexis shares his lived experience of the different forms pain can take while navigating life with multiple myeloma. From peripheral neuropathy and stomach discomfort to knee pain and ongoing back issues, he reflects honestly on how these sensations affect daily life, movement, and mindset.   Solomon also discusses the practical and emotional sides of managing chronic pain — learning to adapt, recognising when pain needs medical attention, and finding ways to keep moving forward even on uncomfortable days.   This episode offers a personal and thoughtful perspective for patients, caregivers, and anyone wanting to better understand the everyday realities of living with myeloma.

Hosted by Solomon Alexis, this episode blends honesty, humour, vulnerability, and insight as he shares the emotional, logistical, and psychological labour that often goes unseen. From the mental spreadsheets of everyday decisions, to the art of emotional regulation, to the constant process of adapting to new challenges, This is not an episide about illness. It’s an episode about being human while living with illness.  

  In this powerful special episode of Through Myeloma Eyes, Solomon Alexis shares one of the most personal chapters of his journey — the sudden loss of his mother, a woman deeply woven into every step of his cancer story. What was meant to be a simple birthday visit to Saint Lucia became a moment that changed everything. Solomon reflects on his mother’s quiet strength, her unwavering presence across time zones, the prayers before chemotherapy, the hospital visits, and the way she held his fears alongside her own. When she passed unexpectedly, the world shifted — not just in grief, but in identity, protection, and the meaning of support. This episode explores the intersection of cancer, loss, love, and the invisible ways parents remain our anchors, even in adulthood.   #myeloma #cancerJourney #livedExperience #ChronicIllness #resilience #patientVoice      

  In this deeply reflective episode of Through Myeloma Eyes, Solomon Alexis opens up about one of the most complex emotional landscapes of living with cancer: survivor’s guilt. Through powerful personal stories — from losing his younger brother at 21, to the heartbreaking loss of his niece during the pandemic, to the passing of friends and others walking the same myeloma road — Solomon explores the quiet question many survivors carry: “Why am I still here… when they aren’t?”   #myeloma #cancerJourney #livedExperience #ChronicIllness #resilience #patientVoice      

In this episode of Through Myeloma Eyes, Solomon explores what patient voice really means — beyond slogans, beyond tick‑box exercises, and beyond the margins of clinical documents. Drawing on years of involvement in research design, clinical trial reviews, and patient advisory groups, Solomon highlights a simple truth: Data shows what is happening… but lived experience explains what it means. From the hidden realities behind quality‑of‑life scores to the honesty found in patient forums, this episode uncovers why patient insight isn’t a “nice to have” — it’s essential. Solomon shares how patients bring context, clarity, and credibility to science, ensuring research answers the questions that truly matter. This is an episode for clinicians, researchers, patients, and anyone navigating both worlds. A reminder that patient voice isn’t noise in the system — it’s wisdom at the table.  

In this episode, the host shares his experience starting daratumumab (D) as the next step in long-term multiple myeloma care. He describe the decision-making conversation with his medical team, the treatment day with pre-medications and monitoring, and the emotional rhythm of living with an incurable cancer. Rather than dramatic moments, the episode emphasises continuity: diagnosis, treatment, stability, and adjustment. Solomon encourages listeners to ask questions, take time with decisions, and adapt as the journey evolves.

Solomon Alexis reflects on how myeloma reshapes relationships — who fades away, who quietly stays, and the awkward moments in between. He explores the cost of protecting loved ones, the value of steady presence over grand gestures, and invites listeners to notice a relationship that surprised them since illness entered their life.

Host Solomon Alexis shares a personal account of receiving a second cancer diagnosis — treatable thyroid cancer — while already living with an incurable cancer. He describes the creeping fear, the clinical realities of surgery and recovery, concerns about his voice, and the visible and invisible scars that follow. This episode emphasizes that relief and anxiety can coexist, survivorship is not a straight line, and it’s okay to feel scared. Solomon encourages listeners to take time, accept support, and hold onto hope as they navigate unexpected chapters.

Episode 15 of Through MYeloma Eyes explores how to search for trustworthy information after a cancer diagnosis without becoming overwhelmed. Solomon guides listeners to prioritise their health team, reputable organisations, and supportive communities while avoiding late-night panic, miracle-cure claims, and harmful comparisons. This episode offers practical advice on setting limits, asking questions of your care team, and choosing information that helps you stay present and sane through uncertainty.

In this episode Solomon Alexis shares an honest, unfiltered look at life after a multiple myeloma diagnosis, covering pain, sleep, mobility, emotions, finances, friendships, and daily routines. He gives personal ratings for symptoms like pain, neuropathy, fatigue, and mobility, explains social and financial impacts, and describes what improves his quality of life — concluding his current overall quality of life is 7 out of 10. Through Myeloma Eyes offers lived experience, resilience, and practical perspective for anyone navigating cancer.

Host Solomon Alexis shares a personal account of getting shingles while living with multiple myeloma, explaining how a weakened immune system and cancer treatment can allow the virus to reactivate and cause severe nerve pain and a one-sided rash. He urges listeners not to ignore sudden rashes, to seek medical attention early (including antivirals), and to pay attention to bodily warning signs, as minor symptoms can reveal larger health issues.

Host Solomon Alexis explains why he began podcasting about his multiple myeloma — not to be brave or to set an example, but as a personal pressure valve and a way to breathe. He contrasts public sharing with private coping and stresses that neither is morally superior. The episode mixes honesty and quiet humour, reminding listeners that laughter and vulnerability can both help, but staying private is equally valid. The central message: cope however you need to—your journey is real whether you speak about it or not.

In this episode the host answers common questions about living with multiple myeloma — covering the current lack of a cure, treatment progress, and the reality of maintenance therapy after a successful stem cell transplant. He discusses practical lifestyle topics like diet, vaccinations (including repeat shots after transplant), ongoing medications, main side effects such as fatigue and neuropathy, and how the disease has affected travel, work, and relationships. The episode also shares personal coping strategies, the role of family support, the cautious view on alternative therapies, and a message of hope, connection, and continued conversation.

In this episode of Through Myeloma Eyes, Solomon explores the confusing question "Why me?" as he examines known risk factors for multiple myeloma—age, race, gender, workplace exposures, obesity, family history, and past infections like H. pylori—while sharing his personal experience and reflections. Honest, personal, and a bit light-hearted, he admits that despite deep research, the exact cause remains unclear, but life and resilience continue.

Solomon shares his post-stem cell transplant results — a complete metabolic response confirmed by scans, biopsies, MRD testing and blood work — and explains the next medical steps, including consolidation therapy. He also recounts his first trip home to Saint Lucia 143 days after transplant: the careful preparations, travel anxiety, a heat wave and a persistent cough, and the quiet courage of choosing to live fully while staying cautious.

In this episode Solomon Alexis takes listeners inside his stem cell transplant: the lead-up, high‑dose chemotherapy, reinfusion of frozen stem cells, hospital recovery, and the long road home. He shares honest moments — the fevers, fatigue, family support, tests and small victories — and how patience, rest and resilience carried him through.

Episode 7 recounts a rollercoaster week during the stem cell harvest before transplant: long hours hooked up to the collection machine, blood tests, injections, and the emotional highs and lows as the cell counts came in. The host shares the close-call results — an initial shortfall followed by a successful collection of enough cells, episodes of low potassium and extra IVs, and the small victories of returning to work and pausing to listen to the body. Through simple analogies about rebuilding and reseeding, the episode emphasizes recovery as fragile and patient work, celebrates resilience and gratitude, and looks ahead to transplant planning.

In Episode 6 of Through Myeloma Eyes — Solomon Alexis shares the transition into his autologous stem cell transplant (ASCT). He reflects on the dramatic drop in his light chains, the emotional and physical challenges he faced, and the preparations ahead: high-dose chemotherapy, GCSF injections, stem cell harvest, and transplant. This episode is about endurance, faith, and realistic hope — outlining the timeline, risks, and recovery milestones while inviting listeners to continue the journey with him.

Host Solomon Alexis shares his personal journey with multiple myeloma and how food became part of his care — from embracing fruits, vegetables, fish and whole foods to adding kitchen allies like turmeric, garlic, ginger, manuka honey, soursop and green tea. The episode emphasizes balance over strict rules, practical tips on what to favour and what to limit, and how nutrition can support treatment, bone health and emotional wellbeing — feeding both body and soul.

In this episode Solomon Alexis shares what a 7-day break from chemotherapy really feels like — a pause where heavy drugs stop but protective medications continue, and ordinary life slowly returns. He recounts days of clearer thinking, returning to work, friends, small comforts, and the emotional relief of feeling human again. Through candid moments and cautious optimism with upcoming treatment decisions, Solomon reflects on how these pauses restore energy and hope as he prepares for the next major step: a possible stem cell transplant.

Welcome to Through Myeloma Eyes. I am Solomon Alexis, and in this episode I share my journey living with multiple myeloma, focusing on the real side effects of treatment and the day-to-day reality they create. I describe intense itching, weakness, balance issues, peripheral neuropathy, digestive problems, chemo brain, changes in blood levels, neutropenic fever, breathlessness, and cancer-related fatigue, and how I managed each with medication, diet, pacing, and support. My message is simple: speak up about how you feel, celebrate small improvements, build coping strategies, and keep looking forward. If my story helps you feel less alone, please share it and follow for future episodes.

Host Solomon Alexis shares his personal journey living with multiple myeloma, focusing on the weekly blood tests and lab numbers that track treatment, organ health, and progress. This episode explores how those markers become part of daily life, offering small signs of hope and guidance. Through candid reflection, Solomon describes the routines, vulnerabilities, and quiet resilience that come with monitoring kappa levels, kidney function, and immune status, and hints at future episodes about side effects and ongoing care.

Welcome to Through Myeloma Eyes with Solomon Alexis. In this episode he shares how a routine check led to a multiple myeloma diagnosis, the shock of hearing “you have cancer,” and the early treatments and side effects he faced. He explains the treatment plan—induction chemotherapy, a possible stem cell transplant, and ongoing maintenance—and how daily life shifted to medication, routines, and finding gratitude. This personal, non-medical episode offers hope and perspective for anyone living with myeloma, caring for someone who is, or seeking a story of resilience.