Tom's Hirschsprung's Podcast

Mum of four Nicole, joins me to talk about her 6 month old son Holt and his remarkable Hirschsprung's story. Nicole talks in detail about how strong her son is and the multiple red flags missed by the hospital, as well as how her mothers instinct was critical in helping her son to receive the correct diagnosis.Follow Nicole on TikTok - @nicolevoss

Natalie joins me to talk about her 1 year old daughter Esme and her Hirschsprung's journey so far, including how the family copes with hospital visits and surgeries. Within this episode Natalie gives us an insight into juggling hospital and family life.Natalie also talks about how strong and resilient her daughter is and how, even at the age of 1, she knows her own body incredibly well.

In this episode we chat about Katie's sons Hirschsprung's story. We start with Katie, who was diagnosed at birth with PKU which affects 1 in 10,000 people and made her pregnancy high risk.After her son was born, Katie had an unfortunate time with misleading care, which led to confusion and increased anxiety. Later in the episode we talk about how having a community and support around can really help.

Today Zandra and I chat about her son, who as well as having Hirschsprung’s Disease was also diagnosed with Autism, Epilepsy and having a genetic mutation with EEF1A2.A very hectic journey, including multiple different hospitals and procedures, ultimately ending in the colostomy that has significantly maintained Zacari's quality of life.Enjoy the episode

Hirschsprung's Disease UK Trustee, Laura joins me to talk about her daughter's Total Colonic Hirschsprung's.Originally thought to be short segment, until the biopsy found just a few centimetres of colon with living ganglion cells, we talk through the ups and downs of surgery, as well as 2 bouts of enterocolitis.Finally Laura talks about the incredibly important topic of parental mental health, and how the need to be well in yourself is vital for your child.

This week Bekki talks to me about her 2 year old son and his Hirschsprung's diagnosis. In this episode we discuss preparing for surgeries, from both the parental and child point of view as well as how stomas can affect the body ability to retain water.Please enjoy the episode!

Actor, broadcaster and national icon Denise Welch joins me to talk about her son Louis' Hirschsprung's journey in depth for the first time!Listen to Denise's thoughts and feelings from her severe post-natal depression and psychosis, to being one of the most loved and respected personalities in the country.This story is full of incredible highs and lows when it comes to Hirschsprung's, and a huge thank you to Denise and her team for making this episode possible.Enjoy the episode!

Sadie talks about her 5 month old daughter and her experience with Total Colonic Hirschsprung's Disease.Whilst the likelihood of Hirschsprung's was initialised dismissed , although the classic symptoms were present, a hospital in London (Ontorio) confirmed this as TCHD.Later in the episode we talk about the future for Sophia and the funding needed to see Dr Wood for her pull through operation.To contribute to Sadie's go fund me for Sophia's surgery click belowhttps://l.instagram.com/?u=https%3A%2F%2Fgofund.me%2Fb8f9bf96f%3Futm_source%3Dig%26utm_medium%3Dsocial%26utm_content%3Dlink_in_bio%26fbclid%3DPAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGndj_B6xpbT38Rj134NmgWw37M8tYKAHweA-c4KxR8mBr1H6uFW7IWBLfPfr0_aem_kqKRbLlLBDLehYCKPK0Img&e=AT5Rvvkn_Dg2Z9ybEHwc8ACeK1wytrbuYR1RpUnaSLfFdj6stB3dShjgq8Dd33eplU9gXQG55mYlhgXxELqhzSmWkGi4u0ok5T2yPtNtmAFollow Sadie - @sadieray__

World renowned composer and BAFTA award winner Paul joins me to talk about his daughters experience with Hirschsprung's.Later in the episode we talk about Paul's incredible kilt walking exploits over the last 13 years, stay tuned to listen to how Paul achieved 'The Big One' in memory of his friend Aidan.Enjoy the episode!Follow Paul - @paulleonardmorgan

EPISODE 15 - WITH MELISSA JONES - OUT NOW!!!My guest this week is Melissa Jones, Melissa runs the very popular @facebook page 'Hirschsprung's Disease family support UK'Melissa is also the mum of Mia, who has Hirschsprung's disease, and we go through Mia's exceptional story, as well as being the inspiration behind the @facebook group.We also chat about the @facebook page, how and why it was set up, as well as hopes for the group in the future.To join the group search 'Hirschsprung's Disease family support UK' on @facebookFollow @toms_hirschsprungs_podcast on @spotify and @spreaker#hirschsprungsdisease #hirschsprungsdiseaseawareness #hirschsprungs #hdwarrior #hdwarriors #raredisease #rarediseaseawareness #tomshirschsprungspodcast #hirschsprungsjourney #hirschsprungsdiseaseuk #familysupport #familysupportuk