PODCAST · health
Tourette's Podcast
by Geeks Rising
Authentic conversations about Tourette Syndrome, produced by an insider who isn't interested in the ol' one-dimensional take on what it's like to have TS. On each episode, host Ben Brown talks with a fellow Touretter about his or her history, tics, social interactions and daily management of Tourette's -- whether by masking it, owning it, medicating it, or something altogether different. It's engaging, funny, heavy, real. Get ready to meet people who blow away the standard portrayal.
Episodes
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Season 10: Episode 4 - Naming It: Tourette's, OCD, and 'Bob'
In this episode, we sit down with Simon, a 31-year-old from the Toronto area, to talk about his personal journey living with Tourette Syndrome and OCD. Simon shares what it was like growing up without knowing anyone else with Tourette's, navigating early symptoms that were often dismissed, and…
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Season 10: Episode 3 - My Way to Take My Control Back
This week we speak to Jessisca who talks to us about how she was diagnosed with Tourette Syndrome later in life and her life as a full-time author! Jessica has published five books over the last decade, two of which are directly related to Tourette Syndrome. Her latest book is titled Madamn and…
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Season 10: Episode 2- Creative Problem Solvers
This week, we are joined by Felix and his parents! Felix is an amazing young man who has been diagnosed with Tourette Syndrome and has become quite the advocate with a list of accomplishments, including being a Key Note Speaker at just 12 years old! Tune in to learn more about Felix, where we get...
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Season 10: Episode 1 - Screaming Out of Joy
After a small(ish) break, we're back with the first episode of Season 10! And what better guests than Amanda and Ellie! They graciously came on the podcast to discuss how Amanda and Ellie navigate school with Tourette Syndrome, how the school has supported them, and what has been included in…
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Season 9: Episode 12 - It's Not Who I Am as a Person
In this episode Jhonelle and Britney speak to Shadayne, an incredible woman from Jamaica who shares her story of diagnosis, daily life, and the ups and downs of living with Tourette Syndrome. Shadayne brings a light to being diagnosed as an adult, what it's like to live with Coprolalia as a…
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Season 9: Episode 11 - I Could Conquer the World Because He Always Has My Back
This week, Jhonelle and Britney welcome Britney's husband Scott, to talk about how they navigate Tourette Syndrome in their marriage, how Scott helps Britney through the hard moments, and everything in between - including some heated debate about Kitkat Ice Cream flavors? This is the last episode...
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Season 9 - Episode 10: What If You Deserve to be Happy?
This week we had the pleasure of sitting down with Max and Jasmine and talking about what it's like for them to be in a relationship where both people have Tourette Syndrome and other co-occurring conditions. We discuss what it's like for them in their relationship, what kind of accommodations do...
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You're an Open Book That Can't Be Closed
**TRIGGER WARNING**: In this episode, there is some discussion about ab*se both mentally and physically. Please be aware that if this is something that might trigger or harm anyone's mental health, this begins being discussed at the 26-minute mark. This week Jhonelle and Britney sit down with…
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I Felt Like I Owed it to People with Tourette Syndrome
This week, Jhonelle and Britney sit down with Anthony to talk about his upcoming bike ride across the United States for Tourette Syndrome Awareness. Anthony will be biking across the United States to raise awareness for Tourette Syndrome and funds for the Tourette Association of America. Anthony...
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Season 9 - Episode 7 - Bullying, No Way! (with Jaylen Arnold)
In this episode, Jhonelle sits down and speaks with our guest, Jaylen Arnold. Arnold is the founder of Jaylen's Challenge, a non-profit that spreads awareness on anti-bullying. Jhonelle and Jaylen speak about their years of friendship, Jaylen's story of how he started Jaylen's Challenge when he…
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Season 9 - Episode 6 - I Have Tourette Syndrome, Is That a Problem?
This week, Britney and Jhonelle sit down and speak with our guest, Kel Hannum. In this episode, we talk about his experience serving in the U.S. Airforce for 23 years as a civil engineer officer, others' responses to learning he had TS while serving, his experience with PTSD, parallels between…
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Season 9 - Episode 5 - Behind Closed Doors, I've Got This
This week, Britney and Jhonelle have a special guest: Colleen! In this episode, we talk about OCD, how it's stigmatized just like Tourette Syndrome is, and the real debilitating toll it can take on a person. If you want to learn more, head over to the Tourette Association's YouTube channel to…
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Season 9 - Episode 4 - Same Tic, Different Font
In this episode, Jhonelle and Britney take a lighthearted approach and talks about weird and humorous things their tics have made them do. They also talk about the importance of being able to laugh them off from time to time and how laughing with a person who tics instead of at them are two...
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Season 9 - Episode 3 - The Great Advocacy Journey
In this episode, Britney and Jhonelle share their stories on how they began advocating about Tourette Syndrome, the ups and downs that come with advocacy, the Tourette Association's National Conference in June, and advice and tips for what to be prepared for if you're interested in advocating.…
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Season 9 - Episode 2 - Weird Things With Tics
In this episode, Britney Wolf and Jhonelle Bean talk about how tics affect them, some features of tic disorders, like echopraxia, tics versus stimming, imposer syndrome, and much more. For more information and resources regarding Tourette Syndrome and other tic disorders, visit the Tourette...
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Season 9 - Episode 1 - Change of Command (Britney and Jhonelle!)
It's a whole new season of Tourette's Podcast! Ben is back at the interview mic with two very special guests who bring us a path-altering twist. On this episode, we pass the torch to your amazing new hosts from the Tourette advocacy world: Britney Wolf and Jhonelle Bean. After a bit of hello and...
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S8 - Episode 16 (Finale) - The Immediate People
It's a moving season finale episode talking with guest Allen Shoaff (a Tourette Association Rising Leader and Youth Ambassador) after highlighting the upcoming Tic Con and a dedication to a Touretter the community recently lost. A subsequent project seeks to build a top-class treatment facility…
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S8 - Episode 15 - Night Workouts
Back after Ben's laryngitis outage, it's a new episode, and our guest is Shelby Ally, a model and actor from Orange County, Calif., who manages a tic disorder and insomnia but has found power in self-acceptance and advocacy. Shelby, doing professionally what she loves, emphasizes the pursuit of...
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S8 - Episode 14 - Breathing Weird
We're back from our holiday and personal-biz break with a solid conversation Ben recorded recently with guest Sophie. This wasn't their first time talking; Sophie had involved Ben in a project she was working on regarding Tourette portrayals and the media experience. They examine that a bit…
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S8 - Episode 13 - Harder to Not Talk About It
Talking with professional writer Tara Lerman about a great many things, including the vitality we can find in highlighting Tourette stories and ongoing issues the community faces. Plus: a heap of answers to the question about good/constructive activities for a young person with Tourette....
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S8 - Episode 12 - The First Syllable Has to Happen
On this episode, a thoroughly good-vibe conversation with Raven, aka @poecrastinator on the socials. The conversation covers stigma, ticcing openly without disclosure, developing coprolalia and much more. Plus: A parent wants some ideas for activities his son can take up that might help him live...
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S8 - Episode 11 - Give It a Good, Red-Hot Crack
A very special episode today with guest Bianca Saez and guest host Kass @ticsntatts, two adult women with Tourette sharing raw experiences. Both from Australia, the voices you hear today are well-known in the community -- Kass for her many angles on neurodiversity awareness on social media, and...
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S8 - Episode 10 - Creative Surge
Stephen DiJoseph of Pennsylvania is a lifelong musician whose work connects art and Tourette Syndrome and came to the podcast's attention by way of a short film he made expressing just that -- in a really effective way. It's an art film, but comes off relatable to people with Tourettic brains…
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S8 - Episode 9 - The Next 50 Years
We welcome back to the podcast Amanda Talty, president and CEO of the Tourette Association of America. We talk about what TAA has been up to, the upcoming TAA gala (Nov. 10 in NYC), science and research, and more. Don't miss this one! Plus: A question from a parent about a situation at school....
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S8 - Episode 8 - Rocks and Minerals
Dan was diagnosed in the 90s, when he was in first grade, forcing him to navigate Tourette when there wasn't much easy access to community. How could he explain it? Did he need to? Could he just get by with masking? Familiar questions-to-self for many with tic disorders like Tourette. Plus: A dad...
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S8 - Episode 7 - In Search of that Validation
Our guest is Erick, a trans man and lifelong Touretter who, in navigating outsider judgments, became his own boss, found success with it, and realized that you "can't waste your energy anymore worrying about the people who try and deny who you are or what you have," as he put it. The discussion...
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S8 - Episode 6 - From Zero to One
We talk with the eloquent Tom White, who works in the space of startups, in a great conversation covering pursuit of intellectual curiosities and how to keep momentum through often serious challenges. Plus, listener questions: 1) How do Touretters get used to ticcing in public?; and 2) When is...
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S8 - Episode 5 - Claiming Who We Really Are
We start this week with some breaking news from the Tourette Association of America: a Tourette Syndrome research study from the CDC has just landed, and it concludes that the prevalence numbers for Tourette Syndrome and persistent tic disorders are double what we previously thought. One in 50...
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S8 - Episode 4 - Three Phones
Peter Zhao -- you might know him as the great Fabulously Tourette -- takes the hosting helm for this episode featuring high school-aged guest Slayton, who has been managing Tourette in his life for about four years so far. Ben kicks us off with some quick Q&A about adults with Tourette before...
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S8 - Episode 3 - The Dunedin Sound (feat. Mads Harrop)
Let's head to New Zealand, specifically Dunedin, home to a legendary music scene whose latest name, Mads Harrop, is our fantastic guest this week. Mads' experience with Tourette Syndrome, autism and anxiety directly informs and shapes her music, which has a great early-90s quality and lyrics…
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S8 - Episode 2 - Name Three Songs
Season 8, Episode 2 follows last week's guest-host format with our friend Kass taking the reins in conversation with Lilly. They find quick connections in their respective Tourette experiences. Great discussions here about self evaluation and self care, imposter syndrome and dealing with...
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S8 - Episode 1 - Just Existing
Season 8 is here. Following our usual Episode 0, we're here with Episode 1, in which Ben steps back and Britney and Aiya take the reins. Britney (author Britney Wolf, that is) leads the conversation with Aiya, who was diagnosed last year at age 16. She knows she's always experienced Tourette, but...
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S8 - Episode 0 - Catching Up
Season 8 is here! Via our traditional Episode 0, we kick it off with updated thoughts on popular listener questions.
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Special Episode - The Old Guard - Talking with the Late Steve Bachner
The Tourette community lost a hero Dec. 15, someone I named on the very first episode (Season 1, Episode 0) of Tourette's Podcast. Steve Bachner was my first frame of reference for TS. Seeing him on an episode of 20/20 in the late 1980s was my first time seeing someone else with the disorder, and...
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S7 - Episode 16 - A Much Needed Nexus
The Season 7 finale episode. Our guest is Tourette scientist Dr. Flint Espil, who talks with us about the latest Tourette treatments and questions before saying something we weren't expecting. In a great way. Thanks so much to Gogo, Maddie, Johnelle, Tamara, Davide, Dan, Amelie, Winter, Jack…
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S7 - Episode 15 - When We Connect the Most (with Harper Starling)
Taking risks is ... risky. Might fail, right? You don't just suddenly decide to move from, say, the midwest to Los Angeles to try and turn your talents into a rewarding career. And, lord have mercy, having something like Tourette Syndrome and comorbids like anxiety doesn't help, does it? For pop...
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Reviewing S7 Episode 14 - Women and Tourette
Keeping last week's episode - our analysis with tourette scientist Dr. Christine Conelea on some of the recent talk about young women and their symptoms -- in focus, this week is a referral to a response video from Tics n Tatts on YouTube. Kass, who runs the channel, adds great points. Tons left…
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S7 - Episode 14 - Science Episode: Revisiting the TikTok Thing, Sex Differences
Recall our episode a while back with the authors of scientific report examining why doctors were seeing reported swells of young women over the course of the pandemic with Tourette-looking symptoms, and how social media like TikTok -- by way of the tic-heavy videos posted by influential Tourette...
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S7 - Episode 13 - X-Rays
Saddiq is a radiography student and fitness Instagrammer/TikTok-er whose energy-spending workouts serve a role for his Tourette, discussed here in addition to late diagnosis, coprolalia, creativity and the stress of travel. https://www.instagram.com/saddiqhead/ Support the show...
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S7 - Episode 12 - Listener Mail
A different kind of episode this week -- all listener questions, including some day-of zingers. Should we make this an occasional thing? An all-listener-questions episode? Contact. TAA's YouTube page Ask the Expert: Tourette and COVID-19 Vaccine Support the show...
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S7 - Episode 11 - Hit a Seven
Seamus Evans, an ambassador for the Tourette Syndrome Association of Australia, is a standup comedian, television and radio personality, and keynote speaker working in his experience with Tourette and the boundaries it seemed to set for him -- which he essentially laughed right past. Not that it...
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Production Catastrophe - S7E11 Preview
A small preview of the good times awaiting you on Episode 11 of Season 7, out this weekend. It'll be a good one; we're checking back in with Australia. Eyes peeled!
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S7 - Replay - Exorcism (and Other Bogus Solutions)
This is a replay of an episode from 2019 that speaks pretty well to the emails we get asking for discussion of alternative "remedies" -- and why the podcast doesn't (or does so with heavy heaps of caution). Here's the writeup that accompanied the original airing: For Episode 10 of Season 3, we've...
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S7 - Episode 10 - Tourrhetoric
Tourette. Rhetoric. Tourrhetoric. We're talking on this episode with Sophia Maier, a Touretter who takes extra care and study when it comes to the shapes and tones and incisions we create with our words. This isn't just a "words matter" dialogue -- it's about really caring for the language people...
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S7 - Episode 9 - Exoplanets
Astrophysicist Mark Giovinazzi is on the show -- a guest we're meeting almost at random. Mark, an exoplanet-hunter, sees the chaos of Tourette and the universe working nicely together. Plus: that vocal-tic feeling; and Ben has an wonderful panic attack at work. https://exoplanets.nasa.gov/...
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S7 - Episode 8 - There Is Another
Fourteen-year-old Jack Kearney, an active Touretter whose name you might've heard around the community, brings an important point -- when it comes to community, don't forget yourself. When Tourette became a focus at his school, with visiting ambassadors spreading peer education, Jack made sure to...
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S7 - Episode 7 - Two Cards
What an episode. Winter Tashlin is a name you might know from the Twittersphere and acceptance messaging. But hearing him speak is something else. From his accent, you'll quite understandably assume he's British. Many of his fellow Americans do. This -- along with his creativity, queerness,...
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S7 - Episode 6 - You Can't Overdose on Music
Getting it done in a rural area with little to no support for Tourette Syndrome is just one of the vitals we hit with our guest this week, Amelie, a 15-year-old who lives in a small village in Ireland and depends on herself to not only live with her TS but educate peers as well -- something she's...
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S7 - Episode 5 - Ticbait (With Comedian Dan Zerin)
Dan Zerin is here! The Iceland-based comedian and podcast host welcomes room for lighter-side talk about Tourette et al. He in fact was part of an award-winning comedy stage show about Tourette Syndrome, "My Voices Have Tourettes," which ran weekly to sold out rooms -- for years. Since the…
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BONUS: The Real Life of Oliver Sacks
Bonus episode! If you're new to Tourette Syndrome, it's fair if you haven't heard the name Oliver Sacks before. But he's one of the most acclaimed figures in all of neuroscience -- arguably in all of medicine, and his humanization of disorders including Tourette had incalculable benefit. In May,...
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ABOUT THIS SHOW
Authentic conversations about Tourette Syndrome, produced by an insider who isn't interested in the ol' one-dimensional take on what it's like to have TS. On each episode, host Ben Brown talks with a fellow Touretter about his or her history, tics, social interactions and daily management of Tourette's -- whether by masking it, owning it, medicating it, or something altogether different. It's engaging, funny, heavy, real. Get ready to meet people who blow away the standard portrayal.
HOSTED BY
Geeks Rising
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