PODCAST · society
Turtle Talk
by Turtle Talk
Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care. “Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review
Episodes
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June 6, 2022 Nutritional Tips for PCD
Season 2, Episode 5; Nutritional Tips for PCD On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of eating in PCD, food & drink safety especially when traveling with PCD, making foods that are more appealing & easier to eat when breathless, strategies...
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January 24, 2022 PCD Airway Clearance
On today’s episode about life with primary ciliary dyskinesia; we will talk about the importance of airway clearance in PCD, the alarming trends to ditch airway clearance for PCD patients, mixing up airway clearance techniques to aid in better treatment compliance, we will explore another PCD…
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January 17, 2022 Chronic Illness in a Post 2020 World
On today’s episode about life with primary ciliary dyskinesia; we will talk about the realities of time, exhausted providers, appearance of infection control policies verses the realities, we will explore another PCD myth, and finally on this week’s editorial we will discuss off label usages and...
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January 9, 2022 Navigating New or Worsening Symptoms
On today’s episode about life with primary ciliary dyskinesia; we will talk about navigating new or worsening symptoms, riding them out at home or heading to the emergency room, we will explore another PCD myth, and finally on this week’s editorial we will discuss PCD exacerbations in a Covid world.
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January 1, 2022 Ringing in 2022
On today’s episode about life with primary ciliary dyskinesia; we will talk about ringing in the New Year, pacing yourself, winter survival tips, we will explore another PCD myth, and finally on this week’s editorial we will discuss new year, new chances, and new changes to life with PCD
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December 24, 2021 Christmas with PCD
On today’s episode about life with primary ciliary dyskinesia; we will talk about surviving the Christmas holiday, holiday gathering considerations, strategic planning, we will explore another PCD myth, and finally on this week’s editorial we will discuss managing family holiday gatherings.
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December 13, 2021 Intimacy with PCD
On today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about sexual health, intimacy with PCD, intimacy without sex, she will explore another PCD myth, and finally on this week’s editorial she will discuss inclusiveness.
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December 6, 2021 Social Support Groups
On today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about social media support groups, group etiquette , sharing experiences over giving directions, she will explore another PCD myth, and finally on this week’s editorial she will discuss...
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November 29, 2020
On today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; She will talk more in-depth about PCD care, tune-ups, home tune-ups, she will explore another PCD myth, and finally on this week’s editorial she will discuss how to survive with PCD against others...
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November 22, 2021
On today’s episode, join our Host Reneéas she talks about life with primary ciliary dyskinesia; she will talk about the importance of managing nausea, homeopathic treatments, sleep, she will explore another PCD myth, and finally on this week’s editorial she will discuss ACT devices.
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November 15, 2021
On today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; she will talk about the importance of maintaining your strength, nutrition, energy preservation, she will explore another PCD myth, and finally on this week’s editorial she will discuss the episodic...
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November 8, 2021
join our host Reneé on today’s episode about life with primary ciliary dyskinesia; she will talk about the importance of knowing your medications, seeking additional opinions, being your best advocate, she will explore another PCD myth, and finally on this week’s editorial she will discuss Dr....
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November 1, 2021
On today’s episode join our host Reneé as she talks about life with primary ciliary dyskinesia; we will talk about sinuses, dogs, school exclusions, we will explore another PCD myth, and finally on this week’s editorial we will discuss comparing PCD journeys.
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October 25, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she wraps up PCD Awareness month, talk about the next steps in awareness, she will cover some personal experiences in advocacy, explore another PCD myth, and on this week’s editorial we will discuss the notion that "PCD isn’t a big deal"
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October 18, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses independence, caregivers, PCD life post pandemic, we will explore another PCD myth, and finally on this week’s editorial we will discuss PCD awareness month.
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October 11, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses fatigue, tissues, nausea, another PCD myth, and finally on this week’s editorial she will discuss frog soup; as they relate to the primary ciliary dyskinesia patient.
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October 4, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses PCD is it a disorder or a disease, airway medication does the order matter, do PCD children do know when they are in trouble medically, she will explore another PCD myth, and finally on this week’s editorial she will discuss…
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September 27, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses PCD awareness month, pitfalls of PCD awareness month, lung exerciser or airway clearance device, she will explore a PCD myth, and finally on this week’s editorial she will discuss ableism; all as they relate to the primary...
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September 20,2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses PCD Smiles, how to rock that hospitalization, truancy issues, she will explore a PCD myth, and finally on this week’s editorial she will discuss unsolicited advice; as they relate to the primary ciliary dyskinesia patient.
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September 13 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses the question of the PCD Artist Project, pulmonary rehabilitation, transplants in PCD, she will explore a PCD myth, and finally on this week’s editorial she will discuss treatment burden; as they relate to the primary ciliary...
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September 6, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses the mucociliary escalator, postoperative pneumonia in PCD, inversion as an airway clearance technique, we will explore a PCD myth, and her personal editorial as they relate to the primary ciliary dyskinesia patient.
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August 30, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses the question of PCD hearing, answer your question antibiotics without cultures, talk about the direct link of bladder leakage to PCD, she will explore a PCD myth, and finally on this week’s editorial she will discuss bacteria…
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August 23, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses the questions of PCD related, CF connection, answer your question of prophylactic or inflammation control, talk about the reporting of better health in PCD during the pandemic, we will explore a PCD myth, and her editorial as...
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Turtle Talk - August 16, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses the question of PCD related, palliative care and PCD, the evolution of social distancing through the years, PCD exacerbations, and my personal editorial as they relate to the primary ciliary dyskinesia patient.
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Turtle Talk - August 9, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses the NEW Turtle On 100 Day Challenge, exhaustion, sinuses, holistic approaches, and her personal editorial as they relate to the primary ciliary dyskinesia patient.
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Turtle Talk - August 2, 2021
Join our Host Reneé, on this episode of Turtle Talk, as she discusses PCD basics, turtles, myths, nutrition, and her personal editorial as they relate to the primary ciliary dyskinesia patient.
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Welcome to Turtle Talk
Grab your favorite drink and settle in with us weekly, beginning in August as we discuss all the happenings in the PCD world. Join us as we discuss topics including the tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your...
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ABOUT THIS SHOW
Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety of having a chronic illness, how to become a better advocate for yourself or your loved one with PCD, and we will even touch on the controversial issues surrounding PCD and PCD Care.
“Primary ciliary dyskinesia (PCD) is a genetically heterogeneous, rare lung disease causing chronic oto- sino-pulmonary disease and irreversible lung damage that may progress to respiratory failure.” ~ Diagnosis, Monitoring, and Treatment of Primary Ciliary Dyskinesia: PCD Foundation Consensus Recommendations Based on State of the Art Review
HOSTED BY
Turtle Talk
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Frequently Asked Questions
How many episodes does Turtle Talk have?
Turtle Talk currently has 27 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Turtle Talk about?
Grab your favorite drink and settle in with us weekly, as we discuss all the happenings in the PCD world. Our topics will include tips and tricks of living with PCD in your everyday lives, the latest on treatment options and how to fit them into your lifestyle, how to manage your stress and anxiety...
How often does Turtle Talk release new episodes?
Turtle Talk has 27 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Turtle Talk?
You can listen to Turtle Talk on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Turtle Talk?
Turtle Talk is created and hosted by Turtle Talk.
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