WeHaveAVoice
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WeHaveAVoice is a education podcast hosted by WeHaveAVoice. It has 128 episodes, with the latest published February 2026.
WeHaveAFace.org Inc. has created "WeHaveAVoice" Radio for the Huntington's and Juvenile Huntington's disease community. It is time for the community to speak out...speak up! We must openly share what all of us in the Huntington's community experience on a daily basis! Removing the stigmas and broadening social awareness and acceptance is paramount! Visit: www.WeHaveAFace.org/Radio for more information.
education ·en ·128 episodes
Positive Eugenics - Should we worry?
AMT-130 Update: Breaking through the hype
AMT-130 and the 75% Slowdown: What Just Changed for Huntington’s Disease—and What Hasn’t
The Blue Within
Chair By The Window: A Huntington's Disease Story
Huntington's Isn't Rare...It's Ignored
The Endless Scroll – Huntington’s Disease in the Age of Doomscrolling
Nicotine Patches & Huntington’s Disease: Is There Hope?
The House That Doesn't Sleep
The Kids Who Carry Too Much
44% of Men Die Prematurely
HD Research: What's in store for 2025 and beyond according to AI
Rare Disease Day
New Guidelines to Revolutionize Care for Huntington's Disease Patients
Bunny Clark and the 10th Annual Huntington's Heroes Walk
Erin Paterson - Huntington's Disease Heroes
WeHaveAFace! What's next?
Worthlessness
Coffee Talk with Kevin and Jen (Chat #7)
Coffee Talk with Kevin and Jen (Chat #6)
Coffee Talk with Jen and Kevin (Chat #5)
Kevin speaks about memories and nurturing relationships
Coffee Talk with Jen and Kevin (Chat 4)
Coffee Talk with Jen and Kevin (Chat #3)
Coffee Talk with Jen and Kevin (Chat #2)
Coffee Talk with Jen and Kevin (Chat 1)
James Valvano and what's next for WeHaveAFace
Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease
Louise Vetter concerning support for changes to the current diagnostic criteria for Huntington's Disease
Erin Paterson speaks about having Huntington's Disease and starting a family
Kevin Jess speaks candidly about the recent death of his wife Sheila
WeHaveAVoice: HDSA - HD Parity Act with Jennifer Simpson!
WeHaveAVoice Radio - HD Warrior, John Howard Poetry!
WeHaveAFace PSA - HDSA: HD Parity Act with Jennifer Simpson!
Jimmy Pollard - Finding Nana's Smile
James Valvano: Season 1 of WeHaveAFace TV
Dr. Finn of the Mayo Clinic: How and when to talk to children about Huntington's disease.
Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence
Grandma has HD and it's okay with Dr. Kelsey Finn
HD/JHD Facebook Wish List. What's that about?
Coping with separation anxiety during Covid-19 pandemic
#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion
A trip down memory lane with Mary Etta Robertson
German Dr. Ansgar Klimke: New approach for hydroxychloroquine in aerosol form for COVID-19
WeHaveAVoice: Discussing the Coronavirus (COVID-19)
Cherry Chism: When you leave the Roche clinical trial
Louise Vetter, President and CEO of HDSA: HD Trial Finder
Dr. Peg Nopoulos: KidsHD/ChANGE-HD
Jonathan Monkemeyer Rare Disease Day
James Valvano: New Horizons After 2020
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