All Episodes
WeHaveAVoice — 129 episodes
Could Huntington's families be forced into institutions? The truth behind the new DOJ memo!
Positive Eugenics - Should we worry?
AMT-130 Update: Breaking through the hype
AMT-130 and the 75% Slowdown: What Just Changed for Huntington’s Disease—and What Hasn’t
The Blue Within
Chair By The Window: A Huntington's Disease Story
Huntington's Isn't Rare...It's Ignored
The Endless Scroll – Huntington’s Disease in the Age of Doomscrolling
Nicotine Patches & Huntington’s Disease: Is There Hope?
The House That Doesn't Sleep
The Kids Who Carry Too Much
44% of Men Die Prematurely
HD Research: What's in store for 2025 and beyond according to AI
Rare Disease Day
New Guidelines to Revolutionize Care for Huntington's Disease Patients
Bunny Clark and the 10th Annual Huntington's Heroes Walk
Erin Paterson - Huntington's Disease Heroes
WeHaveAFace! What's next?
Worthlessness
Coffee Talk with Kevin and Jen (Chat #7)
Coffee Talk with Kevin and Jen (Chat #6)
Coffee Talk with Jen and Kevin (Chat #5)
Kevin speaks about memories and nurturing relationships
Coffee Talk with Jen and Kevin (Chat 4)
Coffee Talk with Jen and Kevin (Chat #3)
Coffee Talk with Jen and Kevin (Chat #2)
Coffee Talk with Jen and Kevin (Chat 1)
James Valvano and what's next for WeHaveAFace
Dr. Herwig Lange and James Valvano discuss why it is necessary to change the diagnostic criteria for Huntington's Disease
Louise Vetter concerning support for changes to the current diagnostic criteria for Huntington's Disease
Erin Paterson speaks about having Huntington's Disease and starting a family
Kevin Jess speaks candidly about the recent death of his wife Sheila
WeHaveAVoice: HDSA - HD Parity Act with Jennifer Simpson!
WeHaveAVoice Radio - HD Warrior, John Howard Poetry!
WeHaveAFace PSA - HDSA: HD Parity Act with Jennifer Simpson!
Jimmy Pollard - Finding Nana's Smile
James Valvano: Season 1 of WeHaveAFace TV
Dr. Finn of the Mayo Clinic: How and when to talk to children about Huntington's disease.
Dr. Bird of the University of Washington speaks about the HDSA Centers of Excellence
Grandma has HD and it's okay with Dr. Kelsey Finn
HD/JHD Facebook Wish List. What's that about?
Coping with separation anxiety during Covid-19 pandemic
#WeHaveAFace #WeHaveAVoice - Carol Kennedy (President of WHAF England and Wales) HD3 Training Program and COVID-19 Discussion
A trip down memory lane with Mary Etta Robertson
German Dr. Ansgar Klimke: New approach for hydroxychloroquine in aerosol form for COVID-19
WeHaveAVoice: Discussing the Coronavirus (COVID-19)
Cherry Chism: When you leave the Roche clinical trial
Louise Vetter, President and CEO of HDSA: HD Trial Finder
Dr. Peg Nopoulos: KidsHD/ChANGE-HD
Jonathan Monkemeyer Rare Disease Day
James Valvano: New Horizons After 2020
Jimmy Pollard of CHDI: HD Education on a Global Scale
Gene Veritas: CHDI Therapeutics Conference
Karen Marais: HD in South Africa
Advocating in suicide prevention and other topics with Sarah Warehime and Dr. Herwig Lange
A caregivers experience with behaviorial issues with Huntington's Disease
Diamonds on the Water
One woman's experience with testing for Huntington's Disease
2019 Convention and Event update
James Valvano talks with Kevin about his climb in Scotland
Juvenile Huntington's Disease: A Story of Friendship
Walk for a Cure
Episode 104 - Milestones
WeHaveAFace with special guest James Valvano
The case for repurposing existing drugs for the fight against Huntington's Disease
Huntington's Disease Awareness Month (The Port Pub and Bistro)
WeHaveAVoice Radio Show Updates
WeHaveAFace News and Events (TEVA Update!)
Difficulties with HD testing
James Valvano: Climbing Mountains for Huntington's Disease
How And When To Talk To Your Children About Huntington’s Disease
Baby Shaming in the Huntington's Disease Community
Moving Beyond Body Limits. And The Quickest Way to Wellness
James Valvano Addresses HD/JHD Community about 2019
A New Host for 2019: Kevin Jess (VP of WHAF Canada)
WeHaveAFace International Events Update!
#WeHaveAVoice: Suicide in Huntington's Disease
#WeHaveAVoice with Leaha Mattinson!
#WeHaveAVoice Radio: Poetry Project!
#WeHaveAFace 🔈#WeHaveAVoice: Event Updates / 🎥 #FilmFestival #Documentary
#WeHaveAVoice - Join the new poetry project!
#WeHaveAVoice: WeHaveAFace Canada! LIVE
#WeHaveAFace Canada! Introducing Dr. Susan Potter!
#WeHaveAVoice LIVE Update: Ionis-HTTRx - Hope for Huntington's disease?
Introducing WeHaveAFace Mexico!
#WeHaveAVoice - Cindy Moore: Listen to Erin Wade's Story
WeHaveAVoice with Carol Kennedy - HD3 Training Program!
#WeHaveAVoice Update! Help4HD.org 2017 Symposium
Huntington's Disease Assistance Fund - Hurricane Irma
LIVE - WeHaveAVoice
#WeHaveAFace in the UK and Germany! #ThePurpleRoad
LIVE: Help4HD - President Katie Jackson Talks About "KEY" Webinar!
LIVE Show: @KatieJackson Help4HD - 7/5/17
#WeHaveAVoice - Michael Greene from Greene's Quality Construction of Jacksonville
#WeHaveAVoice Radio #News #Updates
WeHaveAFace - Upcoming Events! #HuntingtonsDisease
#WeHaveAFace 2nd Annual Convention - June 10th @CPOrlandoUniv
#WeHaveAVoice LIVE UPDATE! #HuntingtonsDisease Awareness Month!
#WeHaveAVoice - "Blue and Purple" Poetry Publication!
#WeHaveAVoice LIVE Update - @HuntingtonSG
#WeHaveAVoice! LIVE with Heather Hare: Huntington Study Group!
May is HD/JHD Awareness Month! #WeHaveAFace LIVE Update!
HD Care Improvement Project - #HuntingtonsDisease Survey! @HuntingtonSG
Dr. Herwig Lange wendet sich an unsere Patienten and Familien
WeHaveAFace Canada! Meet the Team!
LIVE Update! WeHaveAFace Canada & Publications!
HSG: Dr. Frank Discusses TEVA's New Drug AUSTEDO - Treatment of Chorea in Huntington's Disease
LIVE UPDATE! TEVA Pharmaceuticals released HD Drug!
LIVE Show - Dr. Lange talks about HD Webinar!
LIVE update from Costa Mesa California
Update from Sacramento
WeHaveAVoice - LIVE "Dental Care and HD/JHD"
Cannabis Oils? Can they help patients with Huntington's and Juvenile Huntington's disease?
Let’s Talk About Cannabis Oils – Cindy Moore and Traci Pratt!
Listen to Dr. Herwig Lange: Discussion About CAG!
WeHaveAVoice: "Behavior with Huntington's and Juvenile Huntington's Disease" with Dr. Herwig Lange from Germany
LIVE Update - Brockville, Ontario Canada JHD Bowling Tournament on November 11, 2016
Hurricane Matthew LIVE Update - Saint Cloud, Florida
LIVE Update! "HD/JHD Community Events!
"Families torn apart by Huntington's and Juvenile Huntingtn's disease" - LIVE Radio Broadcast!
"All About CAG" - LIVE with Dr. Herwig Lange from The George Huntington Institute of Germany!
Brockville, Ontario Canadian JHD Walk! LIVE with Dr. Kyle Fink and Dr. Jan Nolta of UC Davis California!
HD/JHD Awareness Events! LIVE Update!
Community Address for John Valvano
Home Healthcare - Nursing Home Care, and Sexuality in Huntington's Disease.
Home Healthcare / Nursing Homes, Sexuality and Huntington's Disease
No Time To Spare! 1st Community Bowling Tournament for Huntington's and Juvenile Huntington's disease!
Mary Robertson speaks from the heart. Caring for her husband Paul who had Huntington's disease.
Special Show with Mary Etta Robertson - Love and Care for Huntington's Disease