When Words Don't Come Easy

When Words Don't Come Easy welcomes Nicholas Kelly, a registered dietitian and cystic fibrosis advocate, for a conversation about the role nutrition plays in stroke and aphasia recovery.Nick shares practical tips for making mealtimes easier, managing dietary challenges after a stroke, and reducing frustration around eating and communication. Together, Justin and Roger discuss how food is about more than nutrition. It's about connection, routine, and maintaining quality of life during recovery.Whether you're a stroke survivor, caregiver, or healthcare professional, this episode offers valuable insight into the intersection of nutrition, aphasia, and recovery.https://nicholaskellyrd.com/https://www.youtube.com/channel/UCeJptaU9148mJT0ugk2Azeghttps://www.instagram.com/NicholasKellyRD

Registered dietitian Nicholas Kelly shares an easy nutrition tip: smoothies and meal replacement drinks can be a simple way to get healthy calories and nutrients when meals feel challenging.What simple nutrition tips have helped you or a loved one?#Aphasia #StrokeRecovery #StrokeSurvivor #NutritionTips #Dysphagia #AphasiaAwareness #BrainInjuryRecovery #SpeechTherapy #CaregiverSupport #WhenWordsDontComeEasy

Our guest this week, Nicholas Kelly, Registered Dietitian and Cystic Fibrosis Advocate, shares stroke and aphasia diet tips, including why small meals, patience, and adapting to your new normal can play an important role in recovery.#Aphasia #StrokeRecovery #StrokeSurvivor #AphasiaAwareness #Dietitian #Nutrition #BrainInjuryRecovery #SpeechTherapy #WhenWordsDontComeEasy #StrokeAwareness

Don't miss this thoughtful discussion on the important role food and mealtimes can play in recovery and quality of life.

In this inspiring episode of When Words Don't Come Easy, Justin and Roger sit down with Kent and Leah, the founders of Aphasia ReLearned, a nonprofit dedicated to helping stroke survivors and people with aphasia access life changing intensive therapy programs.Kent shares his remarkable recovery journey, from struggling to say his children's names after his stroke to continuing to improve through intensive aphasia programs. Leah discusses how their experience inspired them to create Aphasia ReLearned and advocate for greater access to treatment.Together, they explore why intensive comprehensive aphasia programs can be so effective, the financial barriers many families face, and their mission to help more people receive the therapy they need. The conversation highlights hope, neuroplasticity, perseverance, and the belief that recovery can continue long after a stroke. Intensive aphasia programs are designed to provide concentrated, evidence based therapy that helps people improve communication skills and participation in everyday life.Whether you're a stroke survivor, caregiver, clinician, or someone looking for hope on the recovery journey, this episode offers powerful insight into what's possible when people refuse to give up.https://www.aphasiarelearned.org/https://www.instagram.com/aphasiarelearnedorg/https://www.aphasiarelearned.org/giving-page-2-1#Aphasia #AphasiaAwareness #Stroke #StrokeRecovery #StrokeSurvivor #StrokeAwareness #SpeechTherapy #Neuroplasticity #BrainInjury #CommunicationRecovery #AphasiaReLearned #AphasiaAdvocate #StrokeSupport #CaregiverSupport #HopeAfterStroke #RecoveryJourney #DisabilityAwareness #BrainHealth #WhenWordsDontComeEasy #Podcast #HealthPodcast #Inspiration #Rehabilitation #SpeechLanguagePathology #SLP

Leah from Aphasia Relearned is passionate about making intensive aphasia therapy accessible to everyone. She wants more programs built across the country and hope to eventually bring the conversation to Congress.Because recovery shouldn't depend on your zip code.#Aphasia #StrokeRecovery #AphasiaAwareness #AphasiaReLearned #Neuroplasticity #SpeechTherapy #StrokeSurvivor #RecoveryJourney

Kent has attended the Michigan Intensive Aphasia Program 7 times and continues to improve.At first, he just wanted to say his kids’ names again.Now he’s relearning reading, writing, and math.Please check out Aphasia ReLearned to find resources on intensive, comprehensive aphasia programs.#Aphasia #StrokeRecovery #AphasiaRecovery #Neuroplasticity #SpeechTherapy #BrainInjuryRecovery #StrokeSurvivor #AphasiaAwareness #RecoveryJourney #AphasiaReLearned

Meet Kent & Leah, founders of Aphasia Relearned.They created the program to help people with aphasia access intensive, specialized therapy that is often too expensive and rarely covered by insurance. Because everyone deserves a chance at recovery.#Aphasia #StrokeRecovery #AphasiaAwareness #BrainHealth #Neuroplasticity #SpeechTherapy #WhenWordsDontComeEasy

This week on When Words Don’t Come Easy, we’re honored to welcome — one of the world’s leading researchers in aphasia and stroke recovery.Professor Julius Fridriksson serves as Vice President for Research at the University Of South Carolina and is the founder of the Aphasia Lab and the Center for the Study of Aphasia Recovery (C-STAR), one of the largest collaborative aphasia research initiatives in the world.Over the course of his career, he has helped secure more than $50 million in research funding dedicated to understanding stroke recovery, neuroplasticity, and new approaches to aphasia rehabilitation. His work has helped challenge the long-held belief that recovery plateaus early, showing instead that many stroke survivors can continue improving years after their stroke.In this episode, we talk about:• How the brain creates “back roads” after injury• Why brain health plays a massive role in recovery• The science behind long-term aphasia improvement• Audio-visual speech therapy and rehabilitation• Why the way recovery is measured matters so much• Hope for stroke survivors and families navigating aphasiaThis conversation hit home for us because so much of Roger’s recovery journey connects directly to the kind of work Professor Fridriksson has dedicated his life to.If you or someone you love is living with aphasia, this is an episode worth hearing.https://newsinhealth.nih.gov/2026/05/boosting-stroke-recovery.https://www.sc.edu/study/colleges_schools/public_health/index.phphttps://cstar.sc.edu/https://sc.edu/about/offices_and_divisions/research/#WhenWordsDontComeEasy #Aphasia #StrokeRecovery #StrokeSurvivor #BrainHealth #SpeechTherapy #Neuroplasticity #JuliusFridriksson #CSTAR #AphasiaRecovery #RecoveryJourney #Podcast

Professor Julius Fridriksson explains aphasia recovery in a way that instantly makes sense.Sometimes the main highway is gone.Recovery means finding new roads.It may take longer.It may look different.But progress is still possible.One of our favorite moments from this conversation on “When Words Don’t Come Easy.”Episode Out Sunday 5.24.26#Aphasia #StrokeRecovery #BrainHealth #Neuroplasticity #AphasiaRecovery #StrokeSurvivor #SpeechTherapy #BrainRecovery #RecoveryJourney #WhenWordsDontComeEasy #AphasiaAwareness #StrokeAwareness #Neurology #Rehabilitation #PodcastClip

Julius Fridriksson explains why brain health may be one of the most important factors in stroke and aphasia recovery.New research is changing how we understand recovery and challenging the idea that the brain and body should be treated separately.New Episode Sunday 5.24.26#Aphasia #StrokeRecovery #BrainHealth #Neuroplasticity #StrokeAwareness #AphasiaAwareness #BrainRecovery #SpeechTherapy #Neuroscience #Rehabilitation #RecoveryJourney #WhenWordsDontComeEasy #BrainInjuryRecovery #CognitiveHealth #HopeAfterStroke

This week’s guest is Professor Julius Fridriksson, Vice President for Research at the University of South Carolina.For years, people believed aphasia therapy stopped working.But the issue wasn’t the therapy.It was how recovery was being measured.Aphasia recovery is rehabilitation.Long term.And new studies show people can continue improving years after stroke.https://x.com/USCResearchlinkedin.com/company/usc-vp-research#Aphasia #StrokeRecovery #AphasiaRecovery #StrokeAwareness #SpeechTherapy #BrainRecovery #Neuroplasticity #AphasiaAwareness #StrokeSurvivor #WhenWordsDontComeEasy #PodcastClip #RecoveryJourney

In this episode of When Words Don’t Come Easy, Justin and Roger sit down with Jonathan Hirons to talk about his life-changing stroke, the long road through aphasia recovery, and how he turned one of the hardest experiences of his life into a mission to help others feel understood. Jonathan shares the emotional reality of losing confidence, struggling to find the right words, and learning how to communicate again while still knowing exactly what he wanted to say inside his mind.The conversation also dives into Jonathan’s powerful documentary, On the Tip of My Tongue, which gives an honest and deeply personal look at life after stroke and the invisible challenges people with aphasia face every day. Together, they discuss speech therapy, family support, anxiety in social situations, the mental exhaustion of communication struggles, and why greater awareness around aphasia is so badly needed. It’s a raw, relatable, and inspiring conversation about resilience, identity, and finding your voice again even when the words don’t come easy.https://tipofmytonguefilm.com/https://www.youtube.com/watch?v=48yXAog6S5U#WhenWordsDontComeEasy #Aphasia #StrokeRecovery #StrokeAwareness #AphasiaAwareness #OnTheTipOfMyTongue #JonathanHirons #SpeechTherapy #BrainInjuryRecovery #StrokeSurvivor #CommunicationDisorders #RecoveryJourney #InvisibleDisability #Podcast #AphasiaRecovery #HopeAfterStroke #CaregiverSupport #NeuroRecovery #StrokePodcast #LifeAfterStroke

In this episode of When Words Don’t Come Easy, Julie shares her honest and emotional journey through stroke recovery and living with aphasia. Joined by her husband, she opens up about the day everything changed, the challenges of communication, and the reality of rebuilding confidence after stroke.Julie reflects on the good days and bad days, the frustration of phone conversations, and how humor and support from loved ones have helped her keep moving forward. She also shares a huge milestone in her recovery journey: earning her certificate and continuing to prove to herself that progress is possible, even when recovery feels overwhelming.Alongside Roger and Justin, this episode is a powerful conversation about resilience, patience, and finding hope one step at a time.#Aphasia #StrokeRecovery #StrokeSurvivor #AphasiaRecovery #BrainInjuryRecovery #StrokeAwareness #RecoveryJourney #HopeAfterStroke #SpeechTherapy #AphasiaAwareness #StrokePodcast #HealingJourney #CaregiverSupport #InvisibleDisability #WhenWordsDontComeEasy #RecoveryIsPossible #LifeAfterStroke #NeurologicalRecovery #PodcastClip #Inspiration

In Episode 17, we sit down with Nicole Salzano, a young stroke survivor and passionate advocate for aphasia awareness. Her story is especially powerful because her stroke happened while she was in college, completely changing the course of her life at a time when everything was just getting started.Nicole shares how her stroke was caused by an undiagnosed blood clotting condition combined with birth control, something she—and many others—had no idea could be a risk. It’s a part of her story that highlights how important it is to ask questions and advocate for your health.She opens up about what it’s really like to navigate life after a stroke at such a young age, from the frustration of communication challenges to the mental toughness it takes to keep moving forward. Nicole talks about learning to do hard things, embracing discomfort, and how becoming comfortable being uncomfortable has shaped her recovery and mindset.She also dives into the importance of self advocacy, why speaking up in medical situations matters, and how it can directly impact your outcome.

Here’s a clean, strong synopsis that actually sounds like a real episode, not a resume dump:We’re joined by Anna Swindle, a speech-language pathologist, board-certified swallowing specialist, and expert in neuroplasticity and aphasia recovery.Anna breaks down what aphasia really is, what it isn’t, and why it has nothing to do with intelligence. She explains how the brain heals, why repetition and reinforcement are critical, and how the right kind of therapy can rebuild communication pathways over time.We also get into the realities of speech therapy, what works, what doesn’t, and how treatment can be tailored to each person, especially when traditional approaches fall flat.This episode is a grounded, practical look at recovery, progress, and how to actually help someone when words don’t come easy.#Aphasia #StrokeRecovery #SpeechTherapy #Neuroplasticity #BrainHealth #CommunicationRecovery #SpeechLanguagePathologist #SLP #CaregiverSupport #StrokeSurvivor #Rehabilitation #CognitiveRecovery #AphasiaAwareness #SwallowingDisorders #Dysphagia #BrainInjury #HopeAfterStroke #RecoveryJourney #WhenWordsDontComeEasy #Podcast

Genevieve Richardson of Life Beyond Aphasia joins us to share a powerful, honest look at what life is really like for caregivers navigating aphasia. Drawing from her experience as a speech-language pathologist, she breaks down the emotional weight, identity shifts, and day-to-day challenges that often go unseen.Genevieve introduces her “ACE Filter,” a practical tool that helps caregivers better understand communication breakdowns by asking: is it aphasia, cognition, or the environment? She also shares her 9-step roadmap for caregivers facing sudden life changes and grief, offering guidance on how to adapt, cope, and keep moving forward.This episode highlights the invisible work caregivers do, the reality of burnout, and why recognizing progress, even when it’s hard to see, matters more than ever.#aphasia #strokerecovery #caregiversupport #caregiverlife #braininjuryrecovery #speechtherapy #slp #lifeafterstroke #caregiverburnout #invisibleprogress #healingjourney #caregiverawareness #aphasiarecovery #supportcaregivers #communicationmatters #strokeawareness #recoveryjourney #mentalhealthmatters #caregivercommunity #whenwordsdontcomeeasy

Rich and Lizzie’s story is still very recent. Just five months ago, in October 2025, Rich had a stroke and was diagnosed with aphasia, instantly turning their world upside down. Even in that short time, he’s already made real progress through hard work and consistency.Lizzie has been all-in on his recovery from the start, and their 8-year-old son Richie has been a huge source of motivation. It’s clear this is something they’re taking on together as a family.By sharing their journey, they’ve started gaining traction on social media, even catching the attention of Dunkin’ Donuts along with other media and print outlets.This is a really special episode for us, because Roger was once where Rich is now, and it’s a reminder of how far recovery can go and the hope that comes with it.

Tristan Gibson, also known as “Captain Orangutan,” is a stroke survivor, mindset leader, and coach who has completely redefined what recovery can look like. After experiencing a life-altering stroke at a young age, Tristan refused to accept limits. Instead of staying stuck in the question of “why me,” he shifted his perspective to “why not me” — choosing to become the person who could take this challenge head-on and use it to help others.Through relentless work, belief in neuroplasticity, and a commitment to growth, Tristan has rebuilt his life in a way that most people wouldn’t think possible. If you spoke to him today, you might not even realize everything he’s overcome — and that’s exactly the point. His recovery is a testament to what’s possible with the right mindset, consistency, and support.Now, as a coach, Tristan works directly with stroke survivors and individuals facing neurological challenges, helping them navigate recovery with structure, purpose, and belief. His philosophy is rooted in ownership, positivity, and pushing beyond perceived limits — not ignoring the struggle, but refusing to be defined by it.“Cap Orangutan” isn’t just a nickname — it represents resilience, individuality, and embracing the journey, no matter how unconventional it looks.We’re honored to share his story and his message, as he continues to inspire and guide others through one of the hardest battles a person can face.Check him out_Instagram: https://www.instagram.com/captain_orangutan?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw==Coaching: https://www.skool.com/the-orangutan-way-8853/about?ref=9520f8641f924a0ab8e2aa1f072115ec

In this episode, Justin and Roger are joined by Susan Hakimi, the head speech pathologist at Northridge Hospital Medical Center and the speech therapist who first worked with Roger during the earliest days of his recovery in the hospital. Susan shares how she got into speech pathology and explains the critical role speech therapists play in the immediate aftermath of a stroke.Together, they discuss what happens during inpatient speech therapy, how clinicians evaluate communication after a stroke, and why conditions like aphasia affect speech and language the way they do. Susan also offers insight into the early milestones therapists look for, the challenges patients face in those first days, and how families can support a loved one navigating stroke recovery. Through both professional expertise and personal perspective, this conversation sheds light on where the recovery journey truly begins for many stroke survivors.

In this episode we introduce Tina Orkin and learn about the life she built both before and after her stroke. Tina shares her journey into healthcare, becoming a nurse and working in OB-GYN, and talks about the work she was passionate about and the patients she cared for. She also opens up about her stroke and the recovery that followed. By exploring both her career and her stroke journey, we get a fuller picture of Tina’s strength, resilience, and the experiences that have shaped her life.#StrokeRecovery #StrokeAwareness #AphasiaRecovery #StrokeSurvivor #LifeAfterStroke #RecoveryJourney #MentalHealth #Wellness #HealthStories #HealthcareHeroes #Resilience #Inspiration #PodcastLife #PodcastClips #WhenWordsDontComeEasy #Motivation #SelfCare #Mindset #LifeStories #HumanExperience

In this episode, we talk with Francis Muldowney, an Irish stroke survivor who rebuilt his life after aphasia took his speech but not his mind.At a time when little was understood about communication disorders, Francis was often underestimated. He began using impressions and character voices to express himself, slowly carving a path back to connection and identity. At one of his lowest moments in the hospital, he considered ending his life. A quiet realization changed that decision and shaped everything that followed.He later walked 4,000 miles across Australia, proving to himself and the world that he was far from finished. This is a story about voice, survival, and choosing to stay.

Fourteen years ago, Eric Jackson survived a stroke that changed the way he communicates and sees the world. When his insurance ran out early in his recovery, formal therapy stopped, but Eric didn’t. He built his own routine, practicing speech and physical exercises every day, reading anything he could out loud, even the back of a mustard bottle, determined not to lose ground. For more than a decade, no one officially diagnosed him with aphasia, and he didn’t even know the word until two years ago. In this episode, Eric shares what it was like to live with something he couldn’t name, how fatigue still affects his speech, and the resilience it takes to rebuild your voice when the system runs out but you refuse to.

Ralph Cortese, host of Stroke Warrior Radio, joins us to share his story. From the shock of his stroke to the early hospital days where information felt incomplete and overwhelming, Ralph opens up about what he wishes someone had told him from the start.He talks candidly about the frustration and the mental health battle that followed.This episode is deeply personal. It is about rebuilding confidence, reclaiming your voice, and facing the emotional side of recovery that often gets ignored. Ralph’s honesty makes this conversation one that every survivor, caregiver, and family member needs to hear.

In this episode, we talk with Aithal, a stroke survivor and author of A Stroke of Luck. He shares what it was like to lose language, and still feel a deep need to tell his story. We talk about recovery, family across continents, and what it means to keep communicating when the words don’t always come.#aphasia #stroke #strokerecovery #strokesurvivor #strokeawareness #aphasiaawareness #speechtherapy #braininjury #slp #strokewarrior #speechtherapist #speechpathology #apraxia #aphasiatherapy #autism #strokerehab #invisibleillness #hopeafterstroke #thestrokestoryteller #mysayforstroke #strokeresearch #strokerehabilation #pictureaphasia #notalone #braininjuries #strokewarriors #believeagain #smallsteps #strokefighter #mindset

In this episode, we sit down with Aphasia Phil (Phil Oxendine), an aphasia advocate who turned a lack of representation into action.After his stroke, Phil noticed something missing. There were very few real, relatable aphasia voices on YouTube. So instead of waiting for someone else to tell those stories, he started telling his own.Phil shares his personal journey with aphasia, what recovery has really looked like, and the moment he realized how critical support groups and community are for people living with communication challenges. We talk about isolation, finding people who truly understand, and why being seen and heard matters just as much as therapy.

In this episode, Bonnie shares her story as Roger’s wife and primary caregiver, beginning with the moment she discovered him during his stroke and the call to 911. She walks us through the shock and uncertainty of those early hospital days, learning on the fly, staying present, and making decisions when nothing felt clear.Bonnie talks candidly about what came next. The long hours in therapy, the repetition, and the progress that feels invisible from the outside. She opens up about the emotional whiplash of caregiving, the quiet victories, the frustration, the exhaustion, and the joy that still finds its way in.

In this episode, we sit down with Annie Humling, who had a stroke at just 20 years old—making her story unique and incredibly inspiring. Since then, she’s faced the daily challenge of finding her words, rebuilding her voice, and navigating life with aphasia. Annie shares the long, frustrating, and sometimes hilarious journey of speaking again, giving a rare perspective on persistence, patience, and the effort it takes to make every word count.

Rick Partlow lives with aphasia. His friend Bruce Fairbairn shows up. He goes to speech therapy with Rick, helps with the homework, and stays in it with him.Both come from the entertainment industry, where communication is everything. This episode is about what real support looks like and why showing up matters when words don’t come easy.

Join us as we explore the personal experiences of Roger, a stroke survivor, and his dedicated speech therapist, Carol Graiwer. Discover the challenges and triumphs of regaining communication skills, the importance of family support, and the relentless pursuit of progress. This episode sheds light on the emotional and practical aspects of speech therapy, offering hope and insights for anyone touched by aphasia. Tune in for an inspiring story of resilience and recovery.

In the debut episode of "When Words Don't Come Easy," Justin Chlowitz and Roger Chlowitz share the poignant journey of living with aphasia following a stroke. This episode delves into the challenges and triumphs of Roger's recovery, offering insights into the impact of aphasia on communication and daily life. Listeners will hear about the initial shock, the ongoing therapy, and the unwavering support from family. Join us as we explore the resilience of the human spirit and the power of storytelling in overcoming adversity.