PODCAST · health
Where Are My Pillows
by Encephalitis Survivor
About living with a wonky illness for the past 7 years
Episodes
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S1E22 Conclusion: There’s hope out there. | Anddd that’s a wrap on World Encephalitis Day 2021!
It’s been a slice. Thank you to everyone who’s tuned in! For those of you in the midst of a challenging journey right now: know that you’re not alone. Keep going, don’t give up, and don’t lose hope ❤️ ----- This segment concludes the World Encephalitis Day series, which culminates on February 22,...
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S1E21 My approach to self-advocacy
For some encephalitis patients, finding good medical care is half the battle (or more) towards getting on the road to healing. Many doctors simply lack adequate knowledge or expertise to effectively diagnose and manage this condition. In today’s episode, we cover some of my thoughts on learning…
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S1E20 2021 World Encephalitis Day Conference Highlights | Get ready for LIGHTS, CAMERA, ACTION on Feb 22!
From cutting-edge research shared by encephalitis experts, to inspiring stories from patients and caregivers, #WEDConf2021 was a day to remember! Shoutout to the Encephalitis Society, the AE Alliance, the Anti-NMDA Receptor Encephalitis Foundation, Encephalitis 411, and the Hashimoto’s...
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S1E19 Be kind to yourself in recovery
Most likely, recovery will NOT be linear, pretty, or fast. From one encephalitis survivor to another: don't disregard your mental health, and allow yourself time and patience to recover physically AND psychologically from surviving encephalitis. ----- This segment is part of the World…
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S1E18 Neuropsychological (and sometimes IQ) testing—it’s important!
If neurological or psychological issues are impairing your cognition, it’s tremendously helpful to get professional testing done to characterize your level of functioning on a granular level. Why? You can get help from speech/cognitive therapists! Why else? Because doctors are more inclined to...
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S1E17 Meeting another encephalitis survivor, in PERSON?! | Get the deets on the World Encephalitis Day Conference!
World Encephalitis Day: what’s it about? In today’s episode we reminisce about last year’s conference and discuss what’s going down this year for 2021. ------ This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021! You can find more insight into...
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S1E16 What IS encephalitis, anyway? | How it's impacted my life
Schooling, career trajectory, social life, family ties—encephalitis can radically throw all of these things upside down. Despite the disruptive impact it's had on my life, I'm also incredibly thankful to have overcome the worst of it and to have a renewed sense of optimism for what's to come!...
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S1E15 My doctor stood me up | on medical trauma and anxiety
What does medical trauma and medical system-induced anxiety feel like? Let me tell you a story… ------ This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021! You can find more insight into my story on my blog, http://wherearemypillows.com/…
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S2E14 In appreciation of two neurologists, countless nurses, and… hospital blankets.
Striking gold… with neurologists?!! Yup! In today's holiday podcast edition, we explore some of the wonderful healthcare providers I've encountered during my encephalitis journey. ------ This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021!…
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S1E13 My FIVE year diagnostic journey
The unfortunate reality is that the majority of doctors have inadequate skill and expertise in diagnosing autoimmune encephalitis. Making things worse, few providers will readily admit to this. If there’s one thing to take away from this episode, advocate for proper testing and imaging...
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S1E12 Differentiating being lazy vs. being sick
Anyone with an invisible, chronic illness will relate with the struggle of not being able to do the same things they were once capable of. For me, I would wonder: how much of my limits were due to being lazy vs. being sick? Now that I’m in recovery, the answer is clear. ------ This segment is…
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S1E11 It's infusion day!
Autoimmune encephalitis therapy: what does that look like? Listen in on what it's like to receive an IVIG infusion, a common ongoing medication used to treat this rare illness. ------ This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021! You…
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S1E10 A year in the life of an autoimmune encephalitis survivor
In this birthday podcast, we talk about my career, autoimmune encephalitis relapse, and gratitude for the best gift of all: healing. ------ This segment is part of the World Encephalitis Day countdown series, which culminates on February 22, 2021! You can find more insight into my story on my…
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S1E9 Encephalitis recovery details *juicy*
Fresh out of a hospital stay, I discuss the treatments I was given for my autoimmune encephalitis relapse and how the course of recovery is going. If you’re still searching around for the right medical care or are very early into recovery, please don’t lose hope. More and more docs are steadily...
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S1E8 Caregivers, you the real MVPs
Caregivers play such a critical role for us patients. They also go through more than they should have to endure, sometimes without proper appreciation or thanks. In this episode I share some of what my mom and I went through when I recovered from autoimmune encephalitis the first time.…
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S1E7 Primary depression? Anxiety? Or an autoimmune illness?
Listen to your gut. If your doctor is using the label of "depression" or "anxiety" as a catch-all diagnosis to explain away various other symptoms, keep advocating for further investigations (or find a better doc, if the option is available to you). Too many people with complex illnesses are...
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S1E6 Embarrassing brain fog, and seeking comfort
Sometimes your mind gets stuck, but it revs back up again moments later. Other times, your entire existence becomes a trudge through a haze of utter confusion, and all you want is a piece of comfort to hold on to. ------ This segment is part of the World Encephalitis Day countdown series, which...
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S1E5 My glowing review of neurologists (NOT)
As an encephalitis patient, neurologists can be your best friend or your worst enemy—it’s a mixed bag. Most, unfortunately, do not understand this illness well enough to appropriately address the needs of this unique patient population, and there are plenty of stories out there of medical trauma...
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S1E4 Quality of life illnesses: an overlooked issue in medical care
Hear me strugglebus to explain how my quality of life has been impacted by autoimmune encephalitis. Note – this episode (as well as several others) was recorded prior to my recent treatments and subsequent healing. I’m pleased to say there have been radical changes in my health since then! Still…
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S1E3 Brain dysfunction, verbal fluency issues, and social situations
Your brain is not left the same post-encephalitis, unfortunately. Today we talk about some cognitive struggles, and how they impact the way you interact with the world while in recovery. ------ This segment is part of the World Encephalitis Day countdown series, which culminates on February 22,...
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S1E2 You don't need to go through this alone | on integrating into the encephalitis community
Don't let this rare illness isolate you from others. Becoming part of some autoimmune encephalitis support groups has not only done wonders for my mental health—it's equipped me with the info I've needed to advocate against dismissive doctors for diagnosis and treatment. ------ This segment is…
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S1E1 Major updates + countdown to World Encephalitis Day February 22, 2021
Get ready for daily, bite-size podcast episodes delivered straight to you by an autoimmune encephalitis survivor. World Encephalitis Day is February 22, 2021 - let the countdown begin! You can find more insight into my story on my blog, http://wherearemypillows.com/ Social links: Facebook:...
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S0E0 One year after hospitalization from autoimmune encephalitis
Wondering what life might look like 1 year after autoimmune encephalitis? Have a listen to the thoughts that come to my mind on the anniversary of my discharge last summer 🏥 . Please note that I made this impromptu recording—in 1 take, with no cuts, "umms" and "ahhs" left in—on purpose. Verbal...
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Frequently Asked Questions
How many episodes does Where Are My Pillows have?
Where Are My Pillows currently has 23 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Where Are My Pillows about?
About living with a wonky illness for the past 7 years
How often does Where Are My Pillows release new episodes?
Where Are My Pillows has 23 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Where Are My Pillows?
You can listen to Where Are My Pillows on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Where Are My Pillows?
Where Are My Pillows is created and hosted by Encephalitis Survivor.
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