wtflerosis: monologues from the neuromuscular carousel

Act 3, Episode 5: Medieval Times Part One: THE TRIAL A marathon play by play of a medieval and futuristic and harrowing medical procedure. Yes, it's absurdly long. But you try to boil down 24 hours of non-stop go and see how short you can make it! Nothing is unimportant, the stakes are astronomical from minute one, you actually have to do something exactly right or it could permanently kill you or paralyze you, oh and by the way, you will be compromised by unplanned epic fasting. Will that be your last supper? So, yes, it IS long. So was Angels in America. That was great, wasn't it? This isn't that good, but maybe as good as some playoff games you've seen? And the whole time you listen, you CAN eat or drink or pee--whatever you want. And you can wear clothes and be in or outside in whatever space you choose. You do have that going for you :-) For the three of you who make it through, some followup: --Nurse Libby was the hero. Our parting was so anticlimactic. An unexpected hour together through mazes of hallways and elevators, a trip to a room and through a procedure new to both of us, she was positive and curious and awesome, friendly and professional. Back in the room, a few folks helped her slide me back on to the bed, and she said "alright, you're in great hands. Bye!" and she was off to help the next patient who needed her. --I didn't get to pee until the two hour neuro check post procedure, after 5pm. wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. My first symptom was Feb 2022. Glad I tried it, really wish I could return it.

Act 3, Episode 4: g=9.8 m/s2. The author shares three recent unplanned demonstrations of gravity 😅 wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. It's a podcast, too! Search wtflerosis wherever you listen. My first symptom was Feb 2022. Glad I tried it, really wish I could return it.

Act 3, Episode 3: Meds, Glorious Meds! "Exit the ride to your left, thanks for visiting the PLS Amusement Park today. Y'all get home safe. Wish we could leave with you." The demented rides of meds that worked and meds that didn't. wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. My first symptom was Feb 2022. Glad I tried it, really wish I could return it. 

Act 3, Episode 2: Milestones. Ones I loved. Ones I didn't. What are yours passed? What are yours yet to come? wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. It's a podcast, too! Search wtflerosis wherever you listen. My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis#wtflerosis#dreambrotherkevin #milestones

Act 3, Episode 1: Dysa-what, now? What the experience of my newly sloth-slow speech is like. Dysarthria sounds like the name of a possibly malevolent magician in a fantasy novel.   Also, dys-nofunia. wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #doyouhearwhatihear  

Act 2, Episode 8: Breakup Song (Winter, please. Part 3). The practical and brutal and heart-wrenching and gentle sides of adaptation... Hey, it's been a long time since my last new monologue. Special times that came with a new (failed) drug trial, but more on that soon. Good to be back! Gregor Quindell on the cellos, everyone! wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. It's a podcast, too! Search wtflerosis wherever you listen. My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #dreambrotherkevin #sineadoconnor #troy #breakupsongs #carolinerose #miamsong  

Act 2, Episode 7: Disability (outake). Watch me smile as I recap lowlights of the nine month Odyssey to "get on" Disability in the US. Once on it, genuinely helpful, life-changing assistance. Getting on it? Different story. wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. It's a podcast, too! Search wtflerosis wherever you listen. My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #dreambrotherkevin

Act 2, Episode 6: Sip 'n Dip. Get ready for six Great Falls that I sure didn't see coming. These are all real. Clever as I like to think I am, I couldn't possibly make this stuff up. If I share them with you and we can all laugh/cringe a little together, it's a huge win over me crying by myself about it! wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. Video versions of all monologues are posted @wtflerosis on Instagram and YouTube. It's a podcast, too! Search wtflerosis wherever you listen. My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #dreambrotherkevin #drinkingandunemployment #beautifulforce #plsworldwide #ghost #loss #grief #theatre #disability #disabilityawareness #disabledartist #disabledparent #disabledpeoplearehot #disabledwriters #mentalhealth

wtflerosis Act 2, Episode 5: "Mind if I make a call?" (Winter, Please! Part 2) Adventures in high stakes disappointment and mid Physical Therapy. wtflerosis: monologues from the neuromuscular carousel. My first symptom was Feb 2022. Glad I tried it, really wish I could return it. Cringe! Laugh! Share! You never know who might need this show. Video versions of all monologues are posted @wtflerosis on Instagram and YouTube.  #pls #primarylateralsclerosis #uppermotorneuron#wtflerosis #dreambrotherkevin #drinkingandunemployment#beautifulforce #plsworldwide #ghost #loss #grief #theatre  #askdonttell #disability #disabilityawareness #disabledartist #disabledparent #disabledpeoplearehot #disabledwriters#mentalhealth

Act 2, Episode 4: Niagra... One last unplanned monologue inspired by, sadly, another fall. Two instant classics. An oldy, but a goody, and a new one you really should not try at home. wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. Video versions of all monologues are posted @wtflerosis on Instagram and YouTube.  My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #dreambrotherkevin #drinkingandunemployment #beautifulforce #plsworldwide #ghost #loss #grief #theatre  #askdonttell #disability #disabilityawareness #disabledartist #disabledparent #disabledpeoplearehot #disabledwriters #mentalhealth 

Act 2, Episode 3: PSA. Another unplanned monologue to help you help me, or...a trip inside the mind of a disabled person trying to get through a fucking door :-) wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. Video versions of all monologues are posted @wtflerosis on Instagram and YouTube.  My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #dreambrotherkevin #drinkingandunemployment #beautifulforce #plsworldwide #ghost #loss #grief #theatre  #askdonttell #disability #disabilityawareness #disabledartist #disabledparent #disabledpeoplearehot #disabledwriters #mentalhealth 

Act 2, Episode 2–Alchemy. An unplanned monologue about an unplanned and cartoonish spill followed by a spill and more spilling. Can we please transform this weight into something useful? wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. Video versions of all monologues are posted @wtflerosis on Instagram and YouTube.  My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron#wtflerosis #dreambrotherkevin#drinkingandunemployment#beautifulforce #plsworldwide #ghost #loss #grief #theatre  #workingartist #disability #disabilityawareness #disabledartist #disabledparent #disabledpeoplearehot #disabledwriters #mentalhealth     

A piece I wrote for Rare Disease Awareness Day. What's the ask? What's at stake? 

Bonus Episode! Different from the usual monologue, this is a recitation of something I've written about a topic near and dear to my heart: the startle reflex. Sweet Lord, it can be so intense sometimes. But this one was also kinda funny. Enjoy. 

Act 2, Episode 1–Winter, please! Absurd falls, a shrinking world, more music references and...what's that on the horizon? It almost looks like... wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. Video versions of all monologues are posted @wtflerosis on Instagram and YouTube.  My first symptom was Feb 2022. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron#wtflerosis #dreambrotherkevin #drinkingandunemployment#beautifulforce #plsworldwide #ghost #loss #grief #theatre  #workingartist #disability #disabilityawareness#disabledartist #disabledparent #disabledpeoplearehot#disabledwriters #mentalhealth #eyeofthehurricane

Episode 17–Coda: Re-entry. Final monologue of this act, about moving start lines and ghosts. These three final monologues done in one day (Ep 15, 16 & 17) are going up to conclude this...act? (season?) I know you think I've been holding back on the vulnerability...so, to build to intermission, these last few were deliberately done when I wasn't feeling remotely "on" or "well" or certainly "ready". Because...who is feeling like that right now? wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show.All are posted @wtflerosis on Instagram and YouTube. My first symptom was Feb 22. Glad I tried it, really wish I could return it.  #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #dreambrotherkevin #drinkingandunemployment #beautifulforce #plsworldwide #ghost #loss #grief #theatre #sdcc #actorslife #workingartist #disability #disabilityawareness #disabledartist #disabledparent #disabledpeoplearehot #disabledwriters #mentalhealth #frontlineheros

Episode 16–Impatient Rehab (Beautiful Force, part 4). New @wtflerosis monologue about inpatient rehab and the nightmare turkey trot. These three final monologues done today (Ep 15, 16 & 17) are going up to conclude this...act? (season?) I know you think I've been holding back on the vulnerability...so, to build to intermission, these last few were deliberately done when I wasn't feeling remotely "on" or "well" or certainly "ready". Because...who is feeling like that right now?   wtflerosis: monologues from the neuromuscular carousel.   Cringe! Laugh! Share! You never know who might need this show.All are posted @wtflerosis on Instagram and YouTube; **wtflerosis the podcast** is available wherever you listen. It's audio versions of the monologues plus yammering and music bumps!   My first symptom was Feb 22. Glad I tried it, really wish I could return it.   Written, performed, produced by me, Kevin Fox-boom! All rights totally reserved, man.  #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #dreambrotherkevin #drinkingandunemployment #beautifulforce #plsworldwide #physicaltherapy #OccupationalTherapy #TurkeyTrotFail #worstturkeytrot #wtfturkeytrot #turkeytrotfromhell #turkeytrot #loss #grief #theatre #sdcc #actorslife #workingartist #disability #disabilityawareness #disabledartist #disabledparent #disabledpeoplearehot #disabledwriters #mentalhealth #frontlineheros

New @wtflerosis monologue about the hospital stay and the Ketamine dream. Three final monologues done on one day are going up to conclude this...act? (season?) I know you think I've been holding back on the vulnerability...so, to build to intermission, these last few were deliberately done when I wasn't feeling remotely "on" or "well" or certainly "ready". Because...who is feeling like that right now? wtflerosis: monologues from the neuromuscular carousel. Cringe! Laugh! Share! You never know who might need this show. All are posted @wtflerosis on Instagram and YouTube.   My first symptom was Feb 22. Glad I tried it, really wish I could return it. #pls #primarylateralsclerosis #uppermotorneuron #wtflerosis #dreambrotherkevin #drinkingandunemployment #beautifulforce #plsworldwide #loss #grief #theatre #sdcc #actorslife #workingartist #disability #disabilityawareness #disabledartist #disabledparent #disabledpeoplearehot #disabledwriters #mentalhealth #frontlineheros  

Hallway Marathon (Beautiful Force, part 2)  *this is FOURTEEN in a series of monologues from the neuromuscular carousel* An absolutely batshit crazy 8.5 hours in an ER hallway, except there were easily 25 people in a salad spinner of their own suffering, watching the same batshit crazy show I was. Yet again, I was not in control, I calmly observed as the mostly-audio channels flipped between the scenes of life around me. Visit wtflerosis on Instagram or youtube to watch the amazingness of a man applying sticky notes to himself to impact your emotions. It's shameless. Cut him some slack though; sadly, it's accurate.  See Running Start and Four Symptoms I Could Do Without for further context. My first symptom was Feb 22. Glad I tried it, really wish I could return it. #pls #uppermotorneuron#wtflerosis#dreambrotherkevin#drinkingandunemployment#plsworldwide#theatre #sdcc #actorslife#workingartist #disability #disabilityawareness #disabledartist#disabledparent#disabledpeoplearehot#disabledwriters#truestory

Beautiful Force  *this is THIRTEEN in a series of monologues from the neuromuscular carousel* How did I not completely lose my shit? I'd been afraid of this happening for months, but the actual happening was slow and calm and was stage-managed by a force outside of me; it held me. Visit wtflerosis on Instagram or youtube to watch the amazingness of a man applying sticky notes to himself to impact your emotions. It's shameless. Cut him some slack though; sadly, it's accurate.  See Running Start and Four Symptoms I Could Do Without for further context. My first symptom was Feb 22. Glad I tried it, really wish I could return it. #pls #uppermotorneuron#wtflerosis#dreambrotherkevin#drinkingandunemployment#plsworldwide#theatre #sdcc #actorslife#workingartist #disability #disabilityawareness #disabledartist#disabledparent#disabledpeoplearehot#disabledwriters#truestory

Present Tense *this is TWELVE in a series of monologues from the neuromuscular carousel* Naming the obstacles of inner life related to my disability that challenge being present with others and the world. There are visuals I introduce and use throughout. Sticky notes with the words LOSS, FLAMES! and 1-2-3 on them. Visit wtflerosis on Instagram or youtube to watch the amazingness of a man applying sticky notes to himself to impact your emotions. It's shameless. Cut him some slack though; sadly, it's accurate.  See Running Start and Four Symptoms I Could Do Without for further context. My first symptom was Feb 22. Glad I tried it, really wish I could return it. #pls #uppermotorneuron#wtflerosis#dreambrotherkevin#drinkingandunemployment#plsworldwide #theatre #sdcc #actorslife#workingartist #disability #disabilityawareness #disabledartist#disabledparent#disabledpeoplearehot#disabledwriters#truestory

The Curious Doctor *this is ELEVEN in a series of monologues from the neuromuscular carousel* The confluence between an unusual job and an extraordinary doctor, and how both are making my life better.  See Running Start and Four Symptoms I Could Do Without for further context. My first symptom was Feb 22. Glad I tried it, really wish I could return it. #pls #uppermotorneuron#wtflerosis #dreambrotherkevin#drinkingandunemployment#plsworldwide #theatre #sdcc #actorslife #workingartist #disability #disabilityawareness #disabledartist#disabledparent #disabledpeoplearehot#disabledwriters#truestory

Disabled Guy Thriller! *this is TENTH in a series of monologues from the neuromuscular carousel. These are three true and absolutely absurd stories that happened in my life, courtesy of PLS. I invite you to check out Episode 1, Running Start, for things referenced here. My first symptom was Feb 22. Glad I tried it, really wish I could return it. #pls #uppermotorneuron#wtflerosis #dreambrotherkevin #drinkingandunemployment#plsworldwide #theatre #sdcc #actorslife #workingartist#disability #disabilityawareness #disabledartist#disabledparent #disabledpeoplearehot #disabledwriters#truestory

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 9: Drive Thru FAQ: Return of the Slowguy. Third in a trilogy of episodes answering your questions. Topics here include Telling Daughter? and Dreams? Below: photos of the post-it notes and the main entertainment you can't see: me taking long slow water-sipping breaks. wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together. Original video posts available @wtflerosis on Instagram and Youtube.  Credits: This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox.  Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say.     

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 8: Drive Thru FAQ: The Inquire Strikes Back. Second in a trilogy of episodes answering your questions. Topics here include Eating and Prognosis? wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together. Original video posts available @wtflerosis on Instagram and Youtube.  Credits: This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox.  Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say.   

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 7: Drive Thru FAQ: A New Trope. First in a trilogy of episodes answering your questions. Topics here include Mental Health, Is this MS?, and What Symptom Scares Me Most?  wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together. Original video posts available @wtflerosis on Instagram and Youtube.  Credits: This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox.  Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say.     

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 6: Let's talk about the taboo of seeing/meeting someone with a disability, shall we? Do you...say something? Are you the only one who's feeling awkward? Was that a leading series of questions? It was. Seriously, feels great to start by at least point at this phenomenon with you. Thanks for listening and sitting in this with me.  wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together.  Credits: This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox.  Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say. 

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 5: This episode is part tmi and part imagined scene that makes me giggle. Honestly, being able to laugh at some of this stuff is the best survival tool I have. That and making YOU deal with it too! Seriously, it shifts knowing this stuff from lonely and awful to   wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together.  Credits: This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox.  Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say. 

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 4: Now Is The Winter Of Our Shoulder Bent. See what I did there? I deliver on this title throughout. I wish it was just referencing the broken shoulder-I wish! Shakespeare? Yes. 80's music references? Yes-throughout! Seriously, it was a terrible winter, let's try to have some fun with it, okay? wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together.  Credits: This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox.  Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say.  

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 3: Four Symptoms I Could Do Without. These all suck, these new passengers in the car of my body. If I could let three of them out, PBA would be the one still in the car.  wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together.  Credits: This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox.  Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say. 

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 2: Everyone has lists-their top albums, vacation desinations, this or that, right? Well, here are my top 3 places NOT TO FALL. Now, I don't know what your thing is. If you find yourself having fallen in one of these spots, and you're all "Kevin, I LOVED falling there-what are you even TALKING about?!" I would love to hear from you! Hey, I won't judge, it takes all kinds.  wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together.  Credits: This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox.  Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say. 

I'm Kevin. I'm a career theatre artist now enjoying a genuinely crazy neuromuscular adventure. Episode 1, Running Start: Running is the entry point of inspiration and illumination and...well, devastation, as I share about the early stages of realizing something was wrong and catch you up to now.  wtflerosis: This show has been carefully crafted to remove your heart and break it and reinstall it, while making you laugh. Sadly, this shit is all true, but happily, I'm not giving up, and neither are you, and we're getting through it together.  Credits:  This episode was written, performed, recorded, thrown down, mixed and in all other ways created and captured by Kevin Fox. Original Cello Arpeggios by Gregor Quendel, mixed and produced by Kevin Fox. All rights reserved, as the kids say.