Parkinson’s Looks Like Me Podcast
by YOPN
Real, in-depth conversations about living with Young Onset Parkinson’s Disease (YOPD). Join cohosts Esther, Mel, and Chris as they talk with care partners, healthcare experts, and treatment developers to better understand this neurodegenerative disease and those living with it. Brought to you by the Young Onset Parkinson’s Network of PMD Alliance
Episodes
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Advanced Therapies & Tough Choices
Join co-hosts Esther, Chris, and Mel as they discuss available advanced therapies, what they've tried, what their doctors have said, and how they chose to move forward with their care. ~~~ HOSTS ~~~ Melissa Livingston | @missmliv Esther Labib-Kiyarash | @shakinginmyboots1 Chris Sutphin |…
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New Connections on the Cause of Parkinson's with Matthew Farrer, PhD
Could Parkinson's be the result of an evolutionary adaptation that provides short-term protection from environmental triggers, but results in long-term consequences? Researcher Matthew Farrer, PhD introduced a compelling model for understanding the mechanism behind Parkinson's in his recent…
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After Deep Brain Stimulation (DBS): Was It Worth It?
Sit down with co-hosts Mel and Chris to learn what their Deep Brain Stimulation (DBS) procedures were like, the realities of recovering from brain surgery, and how they feel now, 2 years after. This episode does not shy away from the visceral parts of their experiences, including Chris' unique...
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Before Deep Brain Stimulation (DBS): Preparation & Mindset
Jump in the time machine with cohosts Mel, Esther, and Chris to revisit a past conversation from 2024 when Chris and Mel were both preparing for Deep Brain Stimulation (DBS) surgery. Learn about their mindsets and quality-of-life going into the procedure, then next month, come back to hear their...
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Coping with the Financial Cost to Your Family
Tune in for a frank discussion on the financial and bureaucratic hurdles you may have to overcome while living with Young Onset Parkinson's. Co-hosts Esther, Mel, and Chris open up about the juggling they've done, the hard choices they've had to make, and the guilt that they manage. ~~~ HOSTS ~~~...
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Hope We See You at the 2026 World Parkinson's Congress!
In this special mini-episode, Mel and Chris talk Parkinson's travel and the importance of gathering with community members in anticipation of the upcoming World Parkinson's Congress in Phoenix, AZ. ~~~ HOSTS ~~~ Melissa Livingston | @missmliv Chris Sutphin | @cesutphin with support from hosting...
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The Truth About Finding a Cure with Alberto Espay, MD
"We need to start moving away from the idea that there will be 'a cure.' There will be many cures, and all cures are not going to come in an equal way..." In this deep-diving episode, we sit down with Alberto Espay, MD to dig into what's really stalling the research community, how bad actors take...
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"Random OFF Is My Failure": Hot Takes with Rodolfo Savica, MD, PhD
"If somebody has random OFF time, it's my failure. I'm failing as a physician..." In this validation-packed episode, we sit down with movement disorder specialist and researcher Rodolfo Savica, MD, PhD to get his perspectives on YOPD and the problems with the current care approach many were…
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Sex, Intimacy, and Parkinson’s
With Valentine's Day coming up, we get into sex, intimacy, connection, and what it all looks like when you're living with PD. This episode is raw and deeply real, and it's packed with context that actually helps. If you've been wondering whether you're alone in this, you're not.
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Alternative Therapies for Parkinson's disease
Join us as we explore alternative therapies for Parkinson's disease and share our experiences researching and trying various approaches and also fads. It's time to debunk the junk and separate fact from fiction.
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Ray Dorsey and Michael S. Okun on "A New Path to Prevention and Treatment"
Ray Dorsey and Michael S. Okun join the podcast for an in-depth conversation about their new book, "The Parkinson's Plan: A New Path to Prevention and Treatment." They share groundbreaking new research on Parkinson's disease and outline steps individuals and policymakers can make in advancing...
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Parkinson’s Clinical Trials, Wearables, and Advocacy: A Conversation with Simon Allard (Audio Only)
In this episode, Simon Allard from Amneal Pharmaceuticals joins the YOPN podcast team to share his journey from neuroscience research to his role as a medical science liaison—and to give listeners a rare, behind-the-scenes look at how Parkinson’s drugs are developed, tested, and refined in real...
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Parkinson’s Clinical Trials, Wearables, and Advocacy: A Conversation with Simon Allard
In this episode, Simon Allard from Amneal Pharmaceuticals joins the YOPN podcast team to share his journey from neuroscience research to his role as a medical science liaison—and to give listeners a rare, behind-the-scenes look at how Parkinson’s drugs are developed, tested, and refined in real...
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Travel and Adventure with Young Onset Parkinson's: Journey Tips and Tales (Audio Only)
Explore the challenges and triumphs of traveling with Parkinson's disease in this episode of the Living Well Starts Here podcast by the Young Onset Parkinson's Network. Hosts Chris, Mel, and Esther share personal stories and practical tips for both local and international travel. They discuss the...
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Travel and Adventure with Young Onset Parkinson's: Journey Tips and Tales
Explore the challenges and triumphs of traveling with Parkinson's disease in this episode of the Living Well Starts Here podcast by the Young Onset Parkinson's Network. Hosts Chris, Mel, and Esther share personal stories and practical tips for both local and international travel. They discuss the...
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Facing Mental Health Challenges: Personal Stories and Advocacy (Audio Only)
In this discussion, Mel, Esther and Chris delve into the topic of mental wellness, sharing their personal experiences and challenges with mental health, particularly in relation to Parkinson's disease. They explore their histories with bipolar disorder and depression, the importance of mental...
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Facing Mental Health Challenges: Personal Stories and Advocacy
In this discussion, Mel, Esther and Chris delve into the topic of mental wellness, sharing their personal experiences and challenges with mental health, particularly in relation to Parkinson's disease. They explore their histories with bipolar disorder and depression, the importance of mental...
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Things I Wish I Knew About Parkinson's (Audio Only)
Audio Only Explore the realities of living with Young Onset Parkinson's through candid discussions as our YOPN podcasters share the things they wish they knew at the time of diagnosis. This episode delves into the personal experiences of managing symptoms, the unexpected challenges such as…
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Things I Wish I Knew About Parkinson's
Explore the realities of living with Young Onset Parkinson's through candid discussions as our YOPN podcasters share the things they wish they knew at the time of diagnosis. This episode delves into the personal experiences of managing symptoms, the unexpected challenges such as anxiety, and the...
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Unlocking the Advocate Within: Our Journey with Young Onset Parkinson's (Audio Only)
(Audio Only) In this episode of the Living Well Starts Here podcast, hosts Melissa Livingston, Chris Sutphin, and Esther Labib-Kiyarash come together to discuss Parkinson's Awareness Month and advocacy. The conversation delves into their personal journeys, approaches to advocacy, and the…
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Unlocking the Advocate Within: Our Journey with Young Onset Parkinson's
In this episode of the Living Well Starts Here podcast, hosts Melissa Livingston, Chris Sutphin, and Esther Labib-Kiyarash come together to discuss Parkinson's Awareness Month and advocacy. The conversation delves into their personal journeys, approaches to advocacy, and the different ways they...
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Navigating Love and Intimacy with Parkinson's: A Valentine's Edition Special (Audio Only)
(Audio Only) Join hosts Mel and Esther in this Valentine's Edition of the YOPN podcast as they discuss the intersecting themes of romance, love, intimacy, and Parkinson's disease. With humor and authenticity, they delve into the complexities of maintaining intimacy in relationships affected by...
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Navigating Love and Intimacy with Parkinson's: A Valentine's Edition Special
Join hosts Mel and Esther in this Valentine's edition of the YOPN podcast as they discuss the intersecting themes of romance, love, intimacy, and Parkinson's disease. With humor and authenticity, they delve into the complexities of maintaining intimacy in relationships affected by Parkinson's,...
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Perspective of a carepartner - George Ackerman
The YOPN Podcast is thrilled to welcome George Ackerman to our community. George a PhD, is a dedicated advocate for the Parkinson's Disease (PD) community. Following the passing of his mother, Sharon Riff Ackerman, on January 1, 2020, due to complications from Parkinson's Disease, George has...
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Rhythms of Resilience: Navigating Life’s Challenges with Carl Beech
The Young Onset Parkinson's Network is delighted to introduce Carl Beech, a prominent figure on TikTok and the Chief Executive Officer of Spotlight YOPD, a non-profit organization in the UK. In addition to his role as CEO at Edge Ministries, Carl wears many hats – he's an author, keynote speaker,...
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Unveiling Resilience: Journeys Beyond Challenges
The Young Onset Parkinson's Network is privileged to present a touching interview with Gavin Mogan. Imagine the shift from being the one in need of care to becoming the caregiver, all the while maintaining a unwavering focus on the positive aspects of life. Just a couple of months ago, Gavin…
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About this show
Real, in-depth conversations about living with Young Onset Parkinson’s Disease (YOPD). Join cohosts Esther, Mel, and Chris as they talk with care partners, healthcare experts, and treatment developers to better understand this neurodegenerative disease and those living with it. Brought to you by the Young Onset Parkinson’s Network of PMD Alliance
Hosted by
YOPN