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All Episodes

CoRDS Cast — 53 episodes

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Title
1

Episode 51 - Maple Syrup Urine Disease (MSUD)

2

Episode 50 - NUS1 Foundation

3

Episode 49 - BFLS Inc.

4

Episode 48 - KBG Syndrome Association

5

Episode 47 - Coffin Lowry Syndrome Foundation

6

Episode 46 - LEMS Family Association

7

Episode 45 - HODA

8

Episode 44 - CoRDS Recap and Updates

9

Episode 43 - Recruiting to Patient Registries

10

Episode 42- Kennedy's Disease Association

11

Episode 41 - Cure Mito Foundation

12

Episode 40 - CLN3 Batten Disease

13

Episode 39 - Scheuermann’s Disease Fund

14

Episode 38 - Myhre Syndrome Foundation

15

Episode 37 - The Global DARE Foundation

16

Episode 36 - Cystinosis Research Foundation

17

Episode 35 - Gene DDX3x

18

Episode 34 - RERE Syndrome

19

Episode 33 - SETBP1 Society

20

Episode 32 - NEDAMSS

21

Episode 31 - Maple Syrup Urine Disease Family Support Group (MSUD FSG)

22

Episode 30 - Tango2 Research Foundation

23

Episode 29 - Endosalpingiosis Foundation, Inc.

24

Episode 28 - The Smith-Kingsmore Syndrome Foundation

25

Episode 27 - Chloe Barnes Advisory Council on Rare Diseases

26

Episode 26 - Soft Bones, Inc.

27

Episode 25 - Richard Holl & Transient Global Amnesia

28

Episode 24 - Remember the Girls

29

Episode 23 - Biotech spotlight: Aldevron

30

Episode 22 - The White Sutton Syndrome Foundation

31

Episode 21 - The PBCers Organization

32

Episode 20 - IamGSD

33

Episode 19 - The Malan Syndrome Foundation

34

Episode 18 - Cure VCP Disease, Inc.

35

Episode 17 - The National Alliance on Mental Illness (NAMI)

36

Episode 16 - Our Odyssey

37

Episode 15 - Cure CMD and Two Rare Mama Bears

38

Episode 14, Part 2 - The patient & family perspective: KCNMA1 gene mutations

39

Episode 14, Part 1 - KCNMA1 Research and Dr. Sotirios Keros

40

Episode 13 - Managing complicated medical records

41

Episode 12 - The Alagille Syndrome Alliance

42

Episode 11 - NIH/NCATS RaDaR Toolkit

43

Episode 10 - The Cornelia de Lange Syndrome Foundation

44

Episode 9 - All Things Kabuki - Rene King & Dr. Olaf Bodamer

45

Episode 8 - Klippel-Feil Syndrome Freedom & Philip Giampietro, MD, PhD

46

Episode 7 - The Hypersomnia Foundation

47

Episode 6 - The National Ataxia Foundation and Ataxia Research

48

Episode 5 - The International WAGR Syndrome Association & Dr. Kevin Francis

49

Episode 4 - The Finish Line Fund and Dr. Peter Vitiello

50

Episode 3 - Noah's Hope & Research Involving Animals

51

Episode 2 - Part 2

52

Episode 2 - Part 1

53

Episode 1