All Episodes
FSHD Straight Talk with Tim Hollenback — 194 episodes · page 1 of 2
180: Being Funny When You Don't Feel Funny with Jim Shaughnessy
179: Expand Your Life: Beginning, Again & Again, with Christine Hoene
178: Why We Roll, 2026 Walk & Roll Special Episode
177: Every Day is a Gift with Stephen Pollock
176: Beating FSHD with Positivity with Rami Jokinen
175: Rethinking Fashion Through FSHD
174: Loving Through Live with FSHD - A Conversation with Kathy Chase
173: Strive to Inspire with Chris Carrino
172: World FSHD Day 2026 Special Episode
168: Against the Current: a Conversation with Lexi and Kate
170: The Calm in the Storm: Veronika Hahn
171: Tiny Desk Concert with Gracie Caggiano
169: Set Your Face Like Flint, but Keep Your Masculinity Soft, Reflections with Ryan Olson
167: Introducing the High 5 Challenge with Jack Gerblick and Nick & Martha Logan
166: A Lifetime on the Course: Maintaining His Passion Through Adaptive Golf with Justin Vanlanduit
165: Blazing a Trail: an Artful Vision for the Future of FSHD Community Support
164: Keep Rolling: The Red Scooter Diaries Remastered
163: We Aren't Less Than, We're Doing It Different with Jessica Ryley Hammond
162: AMA: Answering Your Questions About FSHD
161: Pilates for FSHD, Rehab & Muscle Health: an Interview with Carme Farré, CEO/Founder of FaceToned
160: Adapting the Best We Can with Quinn Wilton
159: Do Hard Things: Movement is Medicine & Riding to Raise Awareness about Early Onset FSHD with George Pollock & Ally Roets
158: Always a Work in Progress: Growth through Movement, Connection, and Adapation with Elissa
157: Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion
156: Lived Experience Matters: The Impact of Storytelling in Rare Disease Communities & Advocacy with Michael King
155: 2025 Walk & Roll Special
154: Don’t Let It Get to You: Living & Growing with FSHD with Kendra Vaalemon
153: More Laughter, More Love: Reflections on an Inter-Abled Relationship with Leah & Joe Lee
152: A Career Retrospective: Over a Decade of Care, Advocacy & Writing with June Kinoshita
151: A Parent’s Perspective: FSHD History, Advancements & What We Can Do Now
150: The Power of Vulnerability with Aidan Mace, FSHD Straight Talk with Tim Hollenback
149: World FSHD Day Special - Supercut
148: Rolling Around Fundraising: The Story & Perseverance of the Ahlers Family
147: Hopeful Science: an Interview with the Myoterra Team
146: Fiercely an Advocate: Living with Early-onset FSHD
145: Powering the Path Forward with Erin Saxon
144: Growth Through Coaching, a Solo Episode of FSHD Straight Talk with Tim Hollenback
143: Pushing Through, Gaining Ground: Athletics & Life with FSHD
142: Caregiving & Advocacy: Stories of the Then & the Now
141: Finding Synergy, Innovation & Commitment in Our Care Networks with Gregg Lichtenstein, FSHD Straight Talk
140: A Passion for Education & Independence with Nia Stivers, FSHD Straight Talk
139: “We don’t grow in the good times. We grow during challenges.” FSHD Straight Talk with Dr. Jennifer Egert
138: Progress & Hope in FSHD Research with Dr. Lucienne Ronco, FSHD Straight Talk
137: BetterLife FSHD Can Help You Back, FSHD Straight Talk with Amy Bekier and Kayliegh Worek
136: Notes of Gratitude with Gracie Caggiano and Ben Livingston
135: FSHD Cannot Stop an Adventurous Spirit with Don Burke, FSHD Straight Talk
134: Minutes Matter: Early Onset Advocacy with Ally, Debbie & Kristin
133: Life Re-Written: Jumping in After Diagnosis with Michael King
132: 2024 Walk & Roll Celebration!
131: Find Your Person and Your Passion: FSHD Straight Talk with Brittany Lauro
130: Home Safety & Respiratory Wellness with Dan Wilson
129: I Never Thought to Say No with Mary Beth McCabe
128: Find Catharsis Through Writing and Art: FSHD Straight Talk with Rob Stemple
127: Movement is Medicine: The Story Behind FSHD Cycling
126: FSHD Straight Talk: Behind the Mic with Chris Carrino
125: World FSHD Day Special
124: Using Storytelling and Activism to Build Awareness of FSHD in China with Wang Wen
123: FSHD Straight Talk: Commitment & Consistency, the Keys to Building Strength and Maintaining Bodily Autonomy
122: Willpower and Determination in the Face of FSHD Progression with Callum Arras
121: On Stage with Actress Madison Ferris: A Look at "All of Me"
120: A Candid Conversation About Life During and After Diagnosis
119: FSHD Radio: David Rubin on The Power and Passion of Chapter Program Leadership
118: Lonwabo Nene on Fitness and Positivity while Living with FSHD
117: Transforming Disability Representation in the Film Industry: The Making of Good Bad Things
116: FSHD Radio: Jane Nemke, Founder of Designs to Thrive
115: FSHD Radio with Marisa Spain
114: FSHD Radio: Community Profiles with Chelsea Moeller
113: Project Mercury, A Global Effort in FSHD Treatment Delivery
112: Community Profiles: Michael Osborne - An FSHD Connection on the Baseball Field
111: My Cause My Cleats with Emma Weatherley
110: Thanksgiving Special
109: FSHD Radio Show Community Profiles: Donna Russo - Actress, Dancer, Choreographer
108: FSHD Radio Hot off the Press: Mel Hayes of Fulcrum with a REACH Trial Update
107: FSHD Radio Show Community Profiles: Jenny and Tony Teel, Thriving in an Interabled Marriage
106: FSHD Radio Hot off the Press: Max Adler on the LA Walk & Roll
105: FSHD Radio Show Community Profiles: Ryan Levinson, Sailor & FSHD Voyager
104: FSHD Radio Hot off the Press: the 2023 Walk & Roll to Cure FSHD with Beth Johnston
103: FSHD Radio Show Community Profiles: with Beverly Weurding of the Wheelchair Dancers Organization
102: FSHD Radio Hot off the Press: IRC 2023 Recap
101: World FSHD Day: Mel Hayes, Fulcrum Therapeutics
101: World FSHD Day: Dr. Nizar Saad, Nationwide Children's Hospital
101: World FSHD Day: Raj Badiani, FSHD UK
101: World FSHD Day: Emma Weatherley, FSHD Global
101: World FSHD Day: Dr. Corrie Erasmus, Pediatric Neurologist
101: World FSHD Day: Jack Gerblick, Board Member & Atlanta Chapter Leader
101: World FSHD Day: Neil Camarta, FSHD Canada Foundation
100: FSHD Radio Show Community Profiles: Lauren "Lolo" Spencer - Actress & Disability Advocate
99: Hot off the Press: Plans for World FSHD Day 2023
98: FSHD Radio Show Community Profiles: All About Adoption with Deb Calhoun and Jim & Mary Albert
97: FSHD Radio Hot off the Press: Amanda Hill on the New Era of Clinical Trials
96: Community Profiles with Hip-Hop Artist Apex Frazier
95: FSHD Radio Hot off the Press: Dr. Amy Halseth Answers Your Questions about Avidity’s FORTITUDE Trial
94: Community Profiles: Chip Wilson
93: FSHD Radio Hot off the Press with Jamshid Arjomand, PhD
92: Community Profiles: Paul Ronson
91: FSHD Radio Hot off the Press with Jared Jacobsen
90: FSHD Radio Show: Community Profiles with Tim Hollenback
89: FSHD Radio: End of Year Episode with Mark Stone
88: FSHD Radio Hot off the Press with Leigh Reynolds
87: Community Profiles: Kristin Duquette