All Episodes
MyFSHD — 116 episodes · page 1 of 2
FSHD Biopharma --Please include us in your clinical trials (or at least allow expanded access!)
Understanding the Satellos drug going to clinic for FSHD
FSHD Phase I/II clinical trial previews for Scholar Rock, Soufflé and Dyne.
Cleaning the lipstick off a pig
World FSHD Day 2026
Evaluating gene expression data in FSHD and presenting at ASGCT
Reddit Q&A (part 2). No "A", a little "I". Peter and Brad finish up the line of Reddit questions.
Some clinical trial news of the day (March 27, 2026 - **updated March 29th**)
Reddit Q&A 3/17/2026 pt 1 (no song); Peter sits down with Brad our Angry Dad
Our takes on recent (~Jan 2026) FSHD clinical trial updates
More questions and comments with Brad, our Angry Dad
All-in-one version of our evaluation of EPI-321 data and trial
Our evaluation and opinions of the EPI-321 clinical trial design and potential based on the pre-clinical data
Our scientific evaluation of and opinions on the EPI-321 publicly available preclinical data
Prequel for the Epicrispr Bio data and clinical trial discussion
The nuts and bolts of gene therapy for FSHD (Part 2 of 2)
The nuts and bolts of gene therapy for FSHD (Part 1 of 2)
Part 2 of our discussion with our teen FSHD advocates
Teens promoting their "Cure FSHD for All" initiative, podcast part 1
MyFSHD is worldwide on FSHD Day
Our take on Avidity's FORTITUDE phase 1/2 trial data
Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 2)
Options for nutrition, supplements, and exercise for FSHDers with Tamara Gottlieb (Part 1)
FaceToned® Exercises for the Face with Carme Farré
Brad, our angry Dad with your questions (pt 2)
Brad, our angry Dad is back with your questions (Pt 1)
The science and the foundational funding leading to the current technologies in FSHD clinical trials.
Friends and funding.
For FSHD gene therapy you need to "Have-a-Little-Heart"
Fulcrum follow-up with our Angry Dad
Our take on the REACH losmapimod clinical trial results
A FORTITIDE follow-up with our (not so) Angry Dad.
A(+) is still for Avidity: give me the good stuff!
Pigs and p38
The three little (FSHD) piggies.
CRISPR in the clinic
Allow me to reintroduce Jaegerthekidd
Assessing the case, so far, for apabetalone as a new drug candidate being investigated for FSHD.
Catching up on clinical trials
Live from Australia
A gene therapy approval for Duchenne muscular dystrophy and understanding Therapeutic Misconception.
More questions, more answers, and some explaining to do.
Your questions, our answers.
Live from the Biologic Scaffolds for Regenerative Medicine Symposium in Napa California
We are back with updates on our worldwide efforts for FSHD diagnostics.
Roundup of the FSHD news of the day with our CRISPR Goddess.
The return of Brad (the angry dad).
Rare Disease Day and Accountability
Reintroducing the MyFSHD podcast
"A" is for Avidity
We have a lot in common with pigs. "Don't flatter yourselves", reply the pigs :).
Our "State of the Field" address.
Happy 2023 from MyFSHD!
Merry Christmas, Happy Hanukkah, and Happy Holidays from MyFSHD
Antisense, gene therapy, and stem cell news, and the Blues Brothers
The best humanized FSHD muscle xenograft mouse model with Dr. Bob Bloch.
We have a lot to be thankful for!
More on FSHD research testing, CRISPR, and minipigs
Catch up on some news of the week then sit down with FSHD researcher Maryam Farooqi
News of the week on Fulcrum and CRISPR gene therapy.
Happy Nevada Day! Today we talk about early onset FSHD and getting adolescents into clinical trials.
Monopoly money in science and to test, or not to test, (your kids) for FSHD
Keeping up with even more investment and more technology coming into the FSHD space.
More clinical trial discussion with our FSHD Mom and Dad.
Update on clinical trials for FSHD
Catching up on FSHD, Saturday Sept 24th, 2022
Live from Sydney, Australia, it's MyFSHD!
Brunch with Maryam (and Takako and Peter). Our 50th episode!
FSHD catch-up, September 7, 2022
More CRISPR questions from the audience.
Kari Cilliers, a medical student from South Africa found her way to Nevada to learn about FSHD
Our FSHD Dad is back with more questions, comments and concerns on biomarkers, clinical trials, MRI, and supplements
Fixing FSHD down under (and everywhere) with FSHD Global Research Foundation
More on nutrition, supplements, and lifestyle/exercise.
Saturday catchup and a little bit more on FSHD-like minipigs, Aug 6, 2022
Bringing home the bacon with Jenny, Ben, Peter, and FSHD-like minipigs.
Weekend catchup, July 31, 2022; hanging out in the high Sierra Nevada for summer Sunday brunch with Brad and Peter discussing all things FSHD.
We ain't dead yet, so we can get better. Welcome to the 40th podcast episode!
Saturday FSHD catch-up, July 16th 2022
MyFSHD welcomes Chris Carrino
FSHD in the UK with Kate and Dr. Channa Hewamadduma
A little bit deeper into DNA methylation.
Back in Reno, Dr. Peter Jones fields some questions from all of you.
Saturday catchup with questions and comments around FSHD, June 25, 2022
World FSHD Day 2022 with Ms Nguyen Cam Thi and Dr. Jones
A student in FSHD research
Saturday catch up with questions and comments around FSHD, June 11, 2022
FSHD Biomarkers and IL-6 targeted therapy
Saturday catch up with questions and comments around FSHD, June 4th, 2022
Fire Inspector Brad, our FSHD Dad, brings more questions on the drug development pathway for FSHD
Saturday catch up with questions and comments around FSHD, May 28, 2022
Briefly on diagnostics and stem cells for FSHD
Saturday catch up with questions and comments around FSHD, May 21, 2022
Small molecule drug discovery for FSHD
Saturday catch up with questions and comments around FSHD, May 14, 2022
Making sense of antisense oligonucleotide technology for FSHD
What's going on in FSHD, week ending May 7, 2022
Gene therapy prospects for FSHD
What's going on in FSHD, week ending April 30, 2022
We investigate and help you understand the science behind myostatin inhibition (ACE-083 trial) and berberine supplementation for FSHD; effective in the lab, not so much in you.