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All Episodes

SRNA Soundwaves — 227 episodes

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1

Community Meets Clinic 305. Dr. Elena Grebenciucova

2

Ask the Expert 1410. Understanding Optic Neuritis | Causes, Treatments, and Repair

3

Ask the Expert 1409. Community Spotlight | Cindy Ranii

4

Community Meets Clinic 304. Dr. Ayşe Altıntaş

5

ABCs of NMOSD 702. CAR-T in NMOSD

6

Ask the Expert 1408. Open Q&A on Transverse Myelitis (TM)

7

Community Meets Clinic 303. Dr. Benjamin Greenberg

8

Ask the Expert 1407. Open Q&A on Acute Disseminated Encephalomyelitis (ADEM)

9

Ask the Expert | Research Edition 1406. Q Study Updates | Expanded Inclusion Criteria & What’s Next

10

Pregúntele al Experto 1405. Rehabilitación y Recuperación en Trastornos Neuroinmunes Poco Frecuentes

11

ABCs of NMOSD 701. University of Rochester NMO-Health Index Study

12

Community Meets Clinic 302. Drs. Grace Gombolay and Varun Kannan

13

Ask the Expert 1404. MOGcast | The State of MOGAD Science

14

Ask the Expert 1403. Open Q&A on MOG Antibody Disease (MOGAD)

15

Community Meets Clinic 301. Dr. Elizabeth Wilson

16

Ask the Expert 1402. Paraneoplastic Diseases and Rare Neuroimmune Disorders

17

Ask the Expert 1401. Open Q&A on Neuromyelitis Optica Spectrum Disorder (NMOSD)

18

ABCs of MOGAD 301. Significance of Brain Lesions in Pediatric MOGAD

19

ABCs of MOGAD 0201. Steroid Dependence

20

Jan. 5, 2026, the "Ask the Expert" podcast channel will be renamed “SRNA Soundwaves”

21

Community Meets Clinic 205. Dr. Alexandra Kornbluh

22

ABCs of NMOSD 602. NMOSD and Romantic Relationships

23

Ask the Expert 1312. Parenting is Hard | Part 6

24

Community Meets Clinic 204. Dr. Shuvro Roy and Dr. Catherine Otten

25

Ask the Expert 1311. Understanding Myelitis: Efforts to Update Diagnostic Criteria

26

Ask the Expert 1310. Prevention and Treatment of Skin Breakdown

27

Ask the Expert 1309. Parenting is Hard | Part 5

28

Ask the Expert 1308. Parenting is Hard | Part 4

29

Ask the Expert 1307. Parenting is Hard | Part 3

30

Ask the Expert 1306. Community Spotlight | Roopa Ramamoorthi, PhD and Marie Abrego

31

Ask the Expert 1305. FES 101

32

Ask the Expert 1304. Parenting is Hard | Part 2

33

Ask the Expert 1303. Parenting is Hard | Part 1

34

Community Meets Clinic 203. Dr. Monica Diaz

35

Ask the Expert 1302. Pelvic Floor Therapy for Bladder and Bowel Management

36

Community Meets Clinic 202. Dr. Michael Levy

37

Community Meets Clinic 201. Dr. Cristina Sadowsky

38

Ask the Expert 1301. Vaccines and Immunosuppression

39

ABCs of NMOSD 601. Body Dysmorphia

40

Ask the Expert 1216. Transcutaneous Spinal Stimulation

41

Ask the Expert 1215. Women's Health within Neuroimmunology

42

Ask the Expert 1214. Self Identity and Finding Meaning Following Diagnosis

43

Community Meets Clinic 103. Dr. Jennifer Graves

44

ABCs of NMOSD 504. Managing the Dread of Relapse

45

ABCs of NMOSD 503. Social Reintegration Following an NMOSD Diagnosis

46

ABCs of MOGAD 102. Meteoroid and cosMOG Clinical Trials for MOGAD Treatments

47

ABCs of MOGAD 101. I Have MOGAD. Now What?

48

Ask the Expert 1213. Operant Conditioning Rehabilitation Studies

49

Ask the Expert 1212. The Role of Physicians and Patients in Legislative Advocacy

50

ABCs of NMOSD 502. Men and NMOSD

51

Ask the Expert 1211. Community Spotlight - Kim Harrison

52

Ask the Expert 1210. Community Spotlight - Paula Jones

53

Ask the Expert 1209. What is ULTOMIRIS?

54

Ask the Expert 1208. MOGcast | Understanding Cortical Encephalitis

55

Ask the Expert 1207. MOGcast - The Latest in Treatments from an Adult and Pediatric Perspective

56

Ask the Expert 1206. Community Spotlight - Voices of SRNA Volunteers | Part 2

57

Ask the Expert 1205. Community Spotlight - Voices of SRNA Volunteers | Part 1

58

Ask the Expert 1204. Community Spotlight | Ilona Williams

59

Community Meets Clinic 102. Dr. Paula Barreras

60

Ask the Expert 1203. Community Spotlight | Rick Telander

61

ABCs of NMOSD 501. Transitioning from Pediatric to Adult Care with NMOSD

62

Ask the Expert 1202. Increased Intracranial Pressure in Pediatric MOG Antibody Disease

63

Ask the Expert 1115. A Conversation about Grief and Loss with Chris Lopardi

64

Ask the Expert 1114. Neurosarcoidosis and Rare Neuroimmune Disorders

65

Ask the Expert 1113. Acute Treatments and Rare Neuroimmune Disorders

66

Ask the Expert 1112. Social Determinants of Health in Rare Neuroimmune Disorders

67

ABCs of NMOSD 405. Neuro-Ophthalmology and NMOSD

68

ABCs of NMOSD 404. All Things Relapses

69

Ask the Expert 1111. Dr. Anderson's Fellowship Research

70

Ask the Expert 1110. Can Do MS | Take Charge and Coaching Series

71

ABCs of NMOSD 403. I-CAN, A Study of Inebilizumab in Children with AQP4+ NMOSD

72

Community Meets Clinic 101. Drs. Kelsey Poisson and Camille Wilson

73

Ask the Expert 1109. Disability and Rare Neuroimmune Disorders Part 2 | Accessibility and Disability Pride

74

ABCs of NMOSD 402. Sexual Dysfunction and NMOSD

75

ADEM Academy 103. Building Your Healthcare Team for Successful Symptom Management for Those with ADEM

76

ADEM Academy 102. Adult ADEM

77

Ask the Expert 1108. Disability and Rare Neuroimmune Disorders | Part 1

78

Ask the Expert 1107. Update: Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells into Patients with Transverse Myelitis

79

Ask the Expert 1106. CosMOG | Clinical Trial for MOGAD Treatment

80

Ask the Expert 1105. What to Expect Living with NMOSD and MOGAD Long-Term

81

Ask the Expert 1104. Community Spotlight | Paul Turner

82

Ask the Expert 1103. Community Spotlight | Melanie Flood

83

Ask the Expert 1102. COVID-19 and the Risk of CNS Demyelinating Diseases

84

Ask the Expert 1101. What do we know about holistic therapies to manage symptoms of rare neuroimmune disorders?

85

ADEM Academy 101. Pediatric and Adolescent ADEM

86

ABCs of NMOSD 401. Mental Health and NMOSD

87

Ask the Expert 1011. Health Disparities and Rare Neuroimmune Disorders

88

ABCs of NMOSD 304. What is Tolerization?

89

Ask the Expert 1010. Immunology of Rare Neuroimmune Disorders | Part 3

90

Ask the Expert 1009. Air Travel with a Disability | Blind and Guide Dog Travel

91

Ask the Expert Bonus Track | COVID-19 Vaccines Part VII with Dr. Greenberg

92

Ask the Expert 1008. An Update on Poliomyelitis

93

Ask the Expert 1007. Immunology of Rare Neuroimmune Disorders | Part 2

94

ABCs of NMOSD 303. Long-Term Therapies in NMOSD

95

Ask the Expert 1006. Immunology of Rare Neuroimmune Disorders | Part 1

96

Ask the Expert 1005. Community Spotlight | Ben Harris

97

Ask the Expert 1004. Community Spotlight | Paul Garrett

98

ABCs of NMOSD 302. NMOSD and Pregnancy/Family Planning

99

Ask the Expert 1003. Managing Spasticity with a Baclofen Pump

100

ABCs of NMOSD 301. Pediatric NMOSD | Part 2, Treatment & Symptom Management

101

Ask the Expert 1002. The Future of Diagnosing Transverse Myelitis

102

Ask the Expert 1001. Study of Transverse Myelitis in Veterans Health Administration Records

103

Ask the Expert 913. Avoiding a Misdiagnosis | Understanding the Differences Between MOGAD, MS, and NMOSD

104

ABCs of NMOSD 210. Insurance and Access to Care in the US

105

ABCs of NMOSD 209. COVID-19 and NMOSD Updates

106

Ask the Expert 912. MOG Antibody Disease | Diagnosis and Treatment Guidelines

107

Ask the Expert 911. Temperature Sensitivity and Rare Neuroimmune Disorders

108

Ask the Expert 910. Acute Disseminated Encephalomyelitis | Diagnosis and Treatment Guidelines

109

ABCs of NMOSD 208. Navigating Treatment Options

110

ABCs of NMOSD 207. Pediatric NMOSD | Part 1

111

Ask the Expert Bonus Track | COVID-19 Vaccines Part VI with Dr. Greenberg

112

Ask the Expert Bonus Track | COVID-19 Vaccines Part V with Dr. Greenberg

113

Ask the Expert Bonus Track | COVID-19 Vaccines Part IV with Dr. Greenberg

114

Ask the Expert Bonus Track | COVID-19 Vaccines Part III with Dr. Greenberg

115

Ask the Expert Bonus Track | COVID-19 Vaccines Part II with Dr. Greenberg

116

Ask the Expert Bonus Track | COVID-19 Vaccines Part I with Dr. Greenberg

117

Ask the Expert 909. Transverse Myelitis | Symptom Management

118

Ask the Expert 908. Talking With Your Child About a Difficult Diagnosis

119

ABCs of NMOSD 206. History, Diagnosis, and Management of NMOSD

120

Ask the Expert 907. Transverse Myelitis | Diagnosis and Treatment Guidelines

121

ABCs of NMOSD 205. MOGAD and NMOSD: Is MOGAD Part of NMOSD or a Distinct Diagnosis?

122

Ask the Expert 906. The Role of CDC and Public Health in AFM Surveillance | Part II

123

Ask the Expert 905. The Role of CDC and Public Health Agencies in AFM Surveillance | Part I

124

ABCs of NMOSD 204. COVID-19 and NMOSD

125

Ask the Expert 904. Behavioral and Psychological Changes in Demyelinating Conditions | Part 2

126

Ask the Expert 903. My child has just been diagnosed with AFM. What do I need to know?

127

ABCs of NMOSD 203. NMOSD Stories: Ireland

128

Ask the Expert 902. Study on Pediatric Teleneuropsychology

129

Ask the Expert 901. Dr. Michael Levy’s Research at The NMO Clinic and Research Laboratory at Mass General

130

ABCs of NMOSD 202. NMOSD Stories: Kristen

131

ABCs of NMOSD 201. Complementary_Therapies

132

Ask the Expert 809. Managing Visual Issues

133

ABCs of NMOSD 110. Psychosocial Aspects of NMOSD: Anxiety, Depression, and How to Cope

134

Ask the Expert 808. MOG Antibody Disease: Adult and Pediatric Presentations

135

ABCs of NMOSD 109. Symptom Management Mini-Series | Managing Spasticity in NMOSD

136

ABCs of NMOSD 108. Symptom Management Mini-Series | Managing Bladder Dysfunction in NMOSD

137

ABCs of NMOSD 107. Symptom Management Mini-Series | Managing Bowel Dysfunction in NMOSD

138

ABCs of NMOSD 106. Symptom Management Mini-Series | Managing Pain in NMOSD

139

ABCs of NMOSD 105. Explaining NMOSD to Others

140

ABCs of NMOSD 104. Understanding Clinical Trial Results for NMO Therapies

141

Ask the Expert 807. Behavioral and Psychological Changes in Demyelinating Conditions

142

ABCs of NMOSD 103. Am I Having a Relapse?

143

Ask the Expert 806. Latest Updates on COVID-19 and Rare Neuroimmune Disorders

144

Ask the Expert 805. Helping Children and Families Manage and Cope with Stress During COVID-19

145

ABCs of NMOSD 102. Choosing a Long-Term Treatment Option

146

Ask the Expert 804. Neuroimmune System 101 / A primer on how the nervous and immune systems work together

147

ABCs of NMOSD 101. I Have NMOSD. Now What?

148

Ask the Expert 803. What is neurosarcoidosis?

149

Ask the Expert 802. Newly Diagnosed with a Rare Neuroimmune Disorder: What You Need to Know

150

Ask the Expert 801. Everything You Need to Know About Spasticity and How It's Treated

151

Ask the Expert 718. Optic Neuritis — When is it just ON and when does it mean more?

152

Ask the Expert 717. Fatigue and Rare Neuroimmune Disorders

153

Ask the Expert 716. Genetic Study of AFM

154

Ask the Expert 715. Nerve Transfers and AFM: Part Two

155

Ask the Expert 714. Nerve Transfers and AFM: Part One

156

Ask the Expert 713. Imaging Patterns in Myelopathies and Myelitis

157

Ask the Expert 712. Understanding Spinal Cord Strokes and Other Vascular Myelopathies

158

Ask the Expert 711. The Role of CDC in AFM Surveillance

159

Ask the Expert 710. Managing Neuropathic Pain and Paresthesia

160

Ask the Expert 709. The Q Study — Q&A

161

Ask the Expert 708. Quality of Life: Adaptive Driving

162

Ask the Expert 707. Managing Pediatric Urological Issues

163

Ask the Expert 706. Parent's Perspective on AFM

164

Ask the Expert 705. Quality of Life: Mindset and Healthy Habits

165

Ask the Expert 704. Managing Adult Urological Issues

166

Ask the Expert 703. Relapsing vs Monophasic Rare Neuroimmune Disorders

167

Ask the Expert 702. Pediatric MOG Antibody Associated Disease and ADEM

168

Ask the Expert 701. Autoimmune Encephalitis and Rare Neuroimmune Disorders

169

Ask the Expert 611. Pregnancy and Rare Neuroimmune Disorders

170

Ask the Expert 610. What You Need to Know about Caregiving

171

Ask the Expert 609. 2018 Podcast on Acute Flaccid Myelitis

172

Ask the Expert 608. Air Travel with a Disability: Your Rights, Best Practices, and Suggestions

173

Ask the Expert 607. Research 101: Finding, Reading, and Understanding Research

174

Ask the Expert 606. Navigating Life After A Rare Neuroimmune Disorder: Social Security, Benefits, Assistive Technology, and More

175

Ask the Expert 605. What is MOG Antibody-Associated Disease?

176

Ask the Expert 604. Aging with rare neuroimmune disorders

177

Ask the Expert 603. Understanding and Managing Spasticity

178

Ask the Expert 602. Alternative therapies for the treatment of rare neuroimmune disorders

179

Ask the Expert 601. Stem Cells as a Treatment for Rare Neuroimmune Disorders

180

Ask the Expert 511. Rheumatological conditions and ADEM, NMOSD, TM and ON

181

Ask the Expert 510. How to Manage and Cope with Grief

182

Ask the Expert 509. How to get the most out of your appointments: Physician and patient perspectives

183

Ask the Expert 508. Gaining Functional Recovery through Occupational Therapy

184

Ask the Expert 507. Open Forum on Acute Disseminated Encephalomyelitis

185

Ask the Expert 506. Open Forum on Neuromyelitis Optica Spectrum Disorder

186

Ask the Expert 505. Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis

187

Ask the Expert 504. The Role of Nutrition in Managing Your Health

188

Ask the Expert 503. Managing your health after a rare neuroimmune diagnosis

189

Ask the Expert 502. Vaccinations and rare neuroimmune disorders

190

Ask the Expert 501. Building a multidisciplinary team for complex care after a diagnosis of ADEM, NMOSD, ON, and TM (including AFM)

191

411. Quality of Life in a Wheelchair

192

410. Contraception, pregnancy, delivery and child care after a diagnosis of ADEM, NMOSD and TM

193

409. Special Podcast — Understanding Acute Flaccid Myelitis

194

408. Sexual function and quality of life after a diagnosis of ADEM, NMOSD and TM

195

407. Understanding Types of Research in ADEM, NMOSD, and TM, including AFM

196

406. Back-to-School Preparation for Students with Demyelinating Diseases: Legal and Neuropsychological Perspectives

197

405. Open Forum on TM including AFM, NMOSD, ON and ADEM

198

404. Learning About Acute Disseminated Encephalomyelitis

199

403. The Power of Sharing Stories

200

402. Comprehensive Management of Neuropathic Pain

201

401. Diagnosing TM, NMO and ADEM

202

313. Our Lives: Our Stories

203

312. Bowel, Bladder, and Sexual Dysfunction in TM, NMOSD, and ADEM

204

311. Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD

205

310. CAPTURE - Town Hall Meeting

206

309. Developing a Cardio and Strength Training Program at Home after a Non-Traumatic Spinal Cord Injury

207

308. Living with Myelitis (TM/AFM, NMO, ON, ADEM): Navigating Life, School, College, Work and Beyond

208

307. Living with a diagnosis of TM including AFM, NMO, or ADEM as an adolescent and young adult

209

306. NMO Studies and Clinical Trials: What Should I Know?

210

305. Depresión y Disfunción Cognitiva después de un Diagnóstico de Mielitis Transversa, Neuromielitis Óptica y Encefalomielitis Aguda Diseminada

211

304. Understanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM

212

303. Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101

213

302. Hablemos de Mielitis Transversa y Neuromielitis Óptica

214

301. Understanding Vaccinations and Autoimmune Diseases

215

210. Understanding Transverse Myelitis: TM 101

216

209. Support for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM?

217

208. Update on Outbreak of Paralysis in US: Acute Flaccid Myelitis

218

207. The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases

219

206. Alternative Therapies and Lifestyle Management after TM, NMO and ADEM

220

205. Understanding Clinical Trials in NMO and TM

221

204. Understanding Pediatric NMO, ADEM and TM

222

203. The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury

223

202. Understanding & Managing Neuropathic Pain

224

201. Understanding Autoimmunity & Rare Neuroimmune Disorders

225

103. Children with rare neuroimmune disorders: understanding medical, educational and social considerations

226

102. Understanding Repair and Recovery After non-traumatic Spinal Cord Injury

227

101. Ask the Expert Podcast in Collaboration with RGI