From Headaches to Brain Surgery | A Childhood Craniopharyngioma Story

Julia is the mum of Scarlett, who was diagnosed with a craniopharyngioma just two weeks after her 5th birthday.What began as headaches and persistent vomiting was initially dismissed as a stomach bug, food intolerance, and even a urine infection. But Julia knew something wasn’t right.After multiple visits to A&E and continued symptoms, a CT scan finally revealed the cause: a brain tumour.In this powerful and emotional account, Julia shares:The red flags that were missedThe frustration of not being heardThe moment doctors said “brain tumour”Emergency transfer for specialist neurosurgerySurgery and the placement of a reservoirProton beam therapyLong-term hormonal impact and adrenal insufficiencyManaging daily medication and emergency injectionsThe incredible resilience of a five-year-oldThe charities that supported their family through treatmentScarlett’s tumour was confirmed as a craniopharyngioma — a benign but complex tumour located near the pituitary gland and optic nerves. While not cancerous, its position has lifelong implications.Now over a year post-treatment, Scarlett is stable and thriving.This episode is a powerful reminder of the importance of listening to parental instinct and understanding that “benign” does not mean simple.⚠️ This episode discusses childhood brain tumours and surgery.If this story resonates with you, please share to help raise awareness during Brain Tumour Awareness Month.