PODCAST · health
AS Info Share
by EB Media
Welcome to AS Info Share, where we provide helpful information, expert insights, and practical tips on managing Ankylosing Spondylitis (AS). Whether you're newly diagnosed or looking for support, our videos are designed to empower you with the knowledge and resources to live better with AS. Subscribe now, and let's learn more about AS together!Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and <a href="https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr" rel="noopener noreferrer" target="_bla
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How the SAA helps patients with Ankylosing Spondylitis / Axial Spondyloarthritis / axSpA with special guest SEAN EWERT
How do you manage the daily realities of life with Ankylosing Spondylitis and Axial Spondyloarthritis?In Part 2 of our series with Sean Ewert from the Spondylitis Association of America (SAA), we look at the support systems available to you. Sean shares his unique perspective on how the SAA is bridging the gap between patients and rheumatologists and offers vital advice for those struggling with the mental health challenges of chronic illness.----------------------------------------------------------------------------Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------The SAA Website:spondylitis.orgOfficial WYASO Event Page: spondylitis.org/walk-your-as-off/Link to join on Zoom for Walk Your AS Off Day May 3rd: https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registrationCreate an account to log steps and join a team: https://spondylitis.org/my-account/?spondylitis-steps=1Donation: https://spondylitis.org/get-involved/donate-to-walk-your-as-off/Fundraise: https://spondylitis.raiselysite.com/Contact Sean for questions: [email protected]📸 JOIN THE CELEBRATIONThis is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using:#WalkYourASOff | #WYASOLink to step converter:💡 PRO TIPS FOR PARTICIPANTSWorld AS Day: Remember, World AS Day falls the day before the walk. Wear your orange, share your story, and help make our community visible!Step Converters: Not walking? No problem. You can use a step converter (search Google for "Activity to Step Converter") to turn yoga, swimming, or even household chores into mileage for your team!----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qrX (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare#WalkYourASOff | #WYASO----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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11
Walk Your A.S. Off
Movement is medicine. For those living with Ankylosing Spondylitis (AS) and Axial Spondyloarthritis (AxSpA), staying active isn't just a goal—it’s a vital part of managing the condition.In part one of this special two-part series on AS Info Share, we sit down with Sean Ewert, the Director of Member Engagement for the Spondylitis Association of America (SAA). We dive deep into the origin of the "Walk Your AS Off" (WYASO) event and discuss why this movement is more than just a walk—it’s a celebration of resilience.In this episode, Sean explains how the event can help you stay active throughout the year, how you can be part of the celebration, and the many ways you can support the movement.LET’S DO THIS!----------------------------------------------------------------------------Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------The SAA Website:spondylitis.orgOfficial WYASO Event Page:spondylitis.org/walk-your-as-off/Link to join on Zoom for Walk Your AS Off Day May 3rd: https://us02web.zoom.us/meeting/register/i5Q-4zz3Reqd0yZEjeZong#/registrationCreate an account to log steps and join a team: https://spondylitis.org/my-account/?spondylitis-steps=1Donation: https://spondylitis.org/get-involved/donate-to-walk-your-as-off/Fundraise: https://spondylitis.raiselysite.com/Contact Sean for questions: [email protected]📸 JOIN THE CELEBRATIONThis is a celebration! Whether you’re walking, stretching, or finding your own unique way to move, we want to see it. Post your photos and videos using:#WalkYourASOff | #WYASOLink to step converter:💡 PRO TIPS FOR PARTICIPANTSWorld AS Day: Remember, World AS Day falls the day before the walk. Wear your orange, share your story, and help make our community visible!Step Converters: Not walking? No problem. You can use a step converter (search Google for "Activity to Step Converter") to turn yoga, swimming, or even household chores into mileage for your team!----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxialSpondyloarthritis #Spondylitis #ChronicIllness #SpondylitisAssociationOfAmerica #ASInfoShare#WalkYourASOff | #WYASO----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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Mental Health and Late Diagnosis for Women
In our final episode with patient advocate Michael Mallinson, we peel back the layers of the "invisible" side of Axial Spondyloarthritis. Living with a chronic condition isn't just a physical battle; it’s a mental one, too. We discuss the critical role of mental health support and why it should be a standard part of every treatment plan.We also dive deep into a major gap in the healthcare system: the diagnostic challenges women face. From being dismissed by doctors to waiting years longer than men for an accurate diagnosis, we explore why the female experience with AxSpA is often misunderstood and what needs to change.----------------------------------------------------------------------------Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------ASIF - Axial Spondyloarthritis International Federation Canadian Spondyloarthritis Association http://www.sparthritis.caNASS - National Axial Spondyloarthritis Societyhttp://www.actonaxialspa.comSpondylitis Association of Americahttp://www.spondylitis.comASAS - Assessment of Spondyloarthritis International Federationhttp://www.asas-group.orgEULAR - European Alliance of Associations for Rheumatologyhttp://www.eular.orgACR - American College of Rheumatologyhttp://www.rheumatology.orgSPARTAN - Spondylarthritis Treatment and Training Networkhttps://spartangroup.org/Axial Spondyloarthritis Resourceshttps://www.facebook.com/profile.php?id=100089425921229PubMedhttps://pubmed.ncbi.nlm.nih.gov/Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023https://amzn.to/3NnXbKW----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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Fear of biologics and opinions on A.S. diet trends.
Biologics: life-changing medicine or something to fear?And can a specific diet really 'cure' an autoimmune condition?On this episode, we’re cutting through the noise.AxSpA patient advocate Michael Mallinson is back with us to tackle the anxiety surrounding medication and the dietary myths that flood our social feeds.You don’t want to miss this.----------------------------------------------------------------------------Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------ASIF - Axial Spondyloarthritis International Federation http://www.asif.infoCanadian Spondyloarthritis Association http://www.sparthritis.caNASS - National Axial Spondyloarthritis Societyhttp://www.actonaxialspa.comSpondylitis Association of Americahttp://www.spondylitis.comASAS - Assessment of Spondyloarthritis International Federationhttp://www.asas-group.orgEULAR - European Alliance of Associations for Rheumatologyhttp://www.eular.orgACR - American College of Rheumatologyhttp://www.rheumatology.orgSPARTAN - Spondylarthritis Treatment and Training Networkhttps://spartangroup.org/Axial Spondyloarthritis Resourceshttps://www.facebook.com/profile.php?id=100089425921229PubMedhttps://pubmed.ncbi.nlm.nih.gov/Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023https://amzn.to/3NnXbKW----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #ASDiets #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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Stop Feeling Dismissed: How to Advocate for Your AS / AxSpA Care
Stop Feeling Dismissed: How to Advocate for Your AxSpA CareHave you ever walked out of a doctor’s office feeling unheard? In this episode of AS Info Share, we continue our deep-dive interview with patient advocate Michael Mallinson. We’re tackling the "doctor-patient" dynamic head-on, discussing how to handle clinical dismissal and providing you with the tools to become a more educated, confident advocate for your own health.In this episode, you’ll learn:What to do when a medical professional minimizes your symptoms.How to bridge the communication gap with your healthcare team.Practical steps to transition from "patient" to "empowered advocate."----------------------------------------------------------------------------Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------WORLD AS DAYhttps://asif.info/worldasday/WALK YOU AS OFFhttps://spondylitis.raiselysite.com/ASIF - Axial Spondyloarthritis International Federation http://www.asif.infoCanadian Spondyloarthritis Association http://www.sparthritis.caNASS - National Axial Spondyloarthritis Societyhttp://www.actonaxialspa.comSpondylitis Association of Americahttp://www.spondylitis.comASAS - Assessment of Spondyloarthritis International Federationhttp://www.asas-group.orgEULAR - European Alliance of Associations for Rheumatologyhttp://www.eular.orgACR - American College of Rheumatologyhttp://www.rheumatology.orgSPARTAN - Spondylarthritis Treatment and Training Networkhttps://spartangroup.org/Axial Spondyloarthritis Resourceshttps://www.facebook.com/profile.php?id=100089425921229PubMedhttps://pubmed.ncbi.nlm.nih.gov/Ankylosing Spondylitis and Axial Spondyloarthritis by Dr. M.A. Khan, Oxford University Press, 2023https://amzn.to/3NnXbKW----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #WorldASDay2026 #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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Celebrate World AS Day and Walk Your AS Off Day with Special Guest Michael Mallinson
In this episode of AS Info Share, we sit down with patient advocate Michael Mallinson to discuss an important event for the Axial Spondyloarthritis (AxSpA) community—World AS Day. Observed each year on the first Saturday in May, this global awareness day brings together patients, advocates, and organizations to raise awareness, promote education, and support those living with Axial Spondyloarthritis, formerly known as Ankylosing Spondylitis. Michael shares insights about the significance of the day, why the name of the condition has evolved, and how events like Walk Your A.S. Off Day help build community and encourage advocacy.Because Michael shared so much valuable information, we’ve decided to split our conversation into multiple episodes, each focusing on different aspects of living with and advocating for those with Axial Spondyloarthritis. In this installment, we focus on awareness and the importance of the global AS community coming together. Be sure to tune in to upcoming episodes as we continue the discussion, covering topics such as patient education, advocating for yourself when dealing with dismissive healthcare providers, mental health support, and the unique challenges women face in getting diagnosed and treated.Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.https://asif.info/worldasday/https://asif.info/https://spondylitis.raiselysite.com/----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #WalkYourASOff #WorldASDay2026 #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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Can Cannabis Help with Ankylosing Spondylitis - Axial Spondyloarthritis?
Curious about cannabis for Axial Spondyloarthritis / Ankylosing Spondylitis? In this episode, we break down what THC and CBD can and can’t do for pain, inflammation, and sleep. We compare them to standard AS treatments and explore the latest research. Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any treatment.----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:☕ Support Our Workhttps://buymeacoffee.com/asinfoshare🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #fatigue #chronicfatigue #tired #sleep #sleepaid #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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Fighting Fatigue: Strategies and tools to help with Axial Spondyloarthritis / Ankylosing Spondylitis
Living with Axial Spondyloarthritis / Ankylosing Spondylitis (AS) often means living with relentless fatigue. In this episode of AS Info Share, we dive into what causes that deep exhaustion from chronic inflammation and pain, to poor sleep and mental health struggles. You'll learn possible strategies to reduce fatigue, improve sleep, and boost your energy. We also explore helpful tools and sleep aids that can make a real difference. Whether you’re newly diagnosed or managing AS for years, this episode offers practical insights and support you can use today.----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV☕ Support Our Workhttps://buymeacoffee.com/asinfoshare💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #fatigue #chronicfatigue #tired #sleep #sleepaid #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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When a treatment doesn't work, you didn't fail.
If a treatment didn’t work, you didn’t fail.In this episode of AS Info Share, we explore why it’s common for people with Axial Spondyloarthritis (AxSpA) / Ankylosing Spondylitis (AS) to feel like they’ve “failed” a medication, and why that mindset needs to change. Whether you’re on your first medication or your fifth, this episode is a reminder that you’re not alone.----------------------------------------------------------------------------📲 Follow & Support AS Info ShareStay connected for more tips, support, and science-backed info about ankylosing spondylitis:🌐 Websitehttps://asinfoshare.com📘 Facebookhttps://www.facebook.com/share/1FsvU3r8du/?mibextid=wwXIfr📷 Instagramhttps://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr🐦 X (formerly Twitter)https://x.com/asinfoshare?s=21&t=1W8OEkJfbunr_bpIeiSSJw▶️ YouTubehttps://youtube.com/@ASInfoShare?si=QhKU8Kk6jCHCOPUV☕ Support Our Workhttps://buymeacoffee.com/asinfoshare💬 Leave a comment 📌 Subscribe for more helpful videos on ankylosing spondylitis, natural therapies, and support for chronic inflammation.🔔 Tap the bell to stay updated!----------------------------------------------------------------------------#AnkylosingSpondylitis #AxSpA #axialSpondyloarthritis #biologics #Inflammation #ArthritisRelief #backpain #rheumatology #inflammatorydisease #autoimmunedisease #ASInfoShare----------------------------------------------------------------------------https://www.youtube.com/playlist?list=PLwXNdEGKZCMt0kJHYfUUwfpHGW1ELEvQ7 Hosted on Acast. See acast.com/privacy for more information.
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The Name of the Disease
Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info ShareConfused by all the different names for Ankylosing Spondylitis? You’re not alone.In this episode, we break down the history and terminology behind Axial Spondyloarthritis (axSpA) — and explain the difference between Ankylosing Spondylitis (AS), Radiographic axSpA (r-axSpA), and Non-radiographic axSpA (nr-axSpA).We’ll explain:Why AS used to be the only name usedHow MRI changed the game in early diagnosisWhat axSpA really means — and why it’s the new umbrella termThe difference between r-axSpA and nr-axSpAWhy the terms are still often used interchangeablyHow to recognize the signs early and get diagnosedWhether you’re newly diagnosed or just trying to understand all the names and acronyms, this episode will help you make sense of it all. Hosted on Acast. See acast.com/privacy for more information.
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An Interview with NASS Board Trustee Gillian Eames
Ankylosing Spondylitis Info Share Podcast - An Interview with NASS Board Trustee Gillian EamesIn this episode of AS Info Share, we’re joined by Gillian Eames, a long-time advocate and trailblazer in the Ankylosing Spondylitis community.Gillian has lived with AS for over 40 years and now serves as a Trustee for the National Axial Spondyloarthritis Society (NASS).She shares her powerful story of being part of one of the early biologic drug trials, the impact it had on her health, and how it led her to advocate for broader access to these life-changing treatments. We also discuss her ongoing work in helping others with AS access the support they need, as well as her involvement in awareness efforts such as the “Walk Your AS Off” campaign.This is an honest and insightful conversation with someone who has been on the front lines of change, both personally and publicly.Learn more about NASS at nass.co.ukWatch and subscribe on YouTube: AS Info Share 💬 Follow us on Facebook, Twitter, and Instagram 🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.
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Targeted Therapies for Ankylosing Spondylitis: Biologics, JAK Inhibitors & How They Work
In this episode, we discuss two powerful treatment options for Ankylosing Spondylitis, biologics and JAK inhibitors. Learn the differences between the treatment options and how they work to help manage Ankylosing Spondylitis.Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.
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THE HLA-B27 GENE AND MISDIAGNOSING ANKYLOSING SPONDYLITIS
In this episode, we explore the truth behind the HLA-B27 gene and its connection to ankylosing spondylitis (AS). We break down common misconceptions, especially those circulating on social media, and explain why a positive or negative test result isn't enough for a diagnosis. You'll learn how misinterpretation of this gene — by both patients and doctors — can lead to misdiagnosis, and why a full clinical picture is essential for understanding AS.Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.
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The Seven Pillars of Managing Ankylosing Spondylitis
In this segment, I share my approach to managing Ankylosing Spondylitis (AS) through a "Seven Pillars" framework.I share insights into each pillar that I used on my journey toward improved well-being with AS. Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.
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From Rome, Italy
A quick update from my vacation in Rome, Italy, with a lot of walking and stair climbing.Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.
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An interview with Kamal Joshi from Ankylosing Spondylitis - Beyond The Pain
Join us as we chat with Kamal Joshi, creator of Ankylosing Spondylitis: Beyond the Pain! Kamal is dedicated to raising awareness and helping others with AS live healthier, symptom-free lives. He shares his personal journey, practical strategies for pain relief, and wellness tips that can make a real difference.💡 Whether you're newly diagnosed or have been battling AS for years, this episode is packed with valuable insights you won’t want to miss!Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.
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An interview with Ivy Asmus from Uniquely Me & Loving It.
We interview AS Warrior, Ivy Asmus, host of the blog Uniquely Me & Loving It: My Journey with Ankylosing Spondylitis.Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.
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The intro Episode
Our first episode will briefly introduce what the show is about and what we hope to achieve. Enjoy, and please stay tuned.Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and Instagram🔗 Visit our website: ASInfoShare.comBuy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.
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ABOUT THIS SHOW
Welcome to AS Info Share, where we provide helpful information, expert insights, and practical tips on managing Ankylosing Spondylitis (AS). Whether you're newly diagnosed or looking for support, our videos are designed to empower you with the knowledge and resources to live better with AS. Subscribe now, and let's learn more about AS together!Watch and subscribe on YouTube: AS Info Share💬 Follow us on Facebook, Twitter, and <a href="https://www.instagram.com/as_info_share?igsh=YjBxdDYxYjAwNXlm&utm_source=qr" rel="noopener noreferrer" target="_bla
HOSTED BY
EB Media
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