PODCAST · kids
Inchstones with Sarah | Autism Parenting & Neurodiversity Insights
by Sarah Kernion | Profound Autism Mom and Advocate for Neurodiversity
Autism, neurodiversity, and parenting come together on Inchstones, where we illuminate the real lives of profound autism mothers and caregivers.
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Inclusive Employment with Autism Mom Kelly Castro with Carson’s Cookie Dough
Autism motherhood often carries an unspoken fear about the future: what happens when childhood services end and adulthood begins? In this conversation, Sarah Kernion speaks with Kelly Castro about how that fear became the foundation for something larger than survival—a social enterprise creating meaningful employment and community for young adults with disabilities. Kelly shares her journey as a mother, caregiver, and entrepreneur after realizing her son Carson deserved more than limited options and lowered expectations. What began as worry evolved into Carson’s Cookie Dough, a business rooted in inclusion, dignity, and purpose. This episode centers caregiver stories and the reality many autism parenting families quietly hold: adulthood can feel uncertain, especially for individuals with higher support needs and nonspeaking autism. Through inchstones—small but meaningful steps—Kelly built opportunities not only for her son, but for an entire community of young adults too often excluded from traditional employment spaces. The conversation explores autism motherhood, caregiving, entrepreneurship, and the power of community support in creating sustainable paths toward belonging and independence. At its core, this is a story about refusing to let fear define the future.Kelly Castro is a mom and the founder of Carson’s Cookie Dough and Just a Taste of NJ, mission-driven businesses challenging how the workforce includes individuals with disabilities. Inspired by her 9-year-old son Carson, who is on the autism spectrum, and the reality that nearly 80% of autistic adults are unemployed, she set out to build a business where intellectually and developmentally disabled individuals are essential, not an afterthought. What started as a small bakery has grown into a multi-channel operation. Kelly is now building scalable model to bridge the gap between education and employment, proving inclusion is not charity, but smart business.
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Autism Caregiving and Community with We Are Brave's Jessica Patay
Autism parenting often places caregivers in prolonged states of stress, isolation, and emotional exhaustion. In this conversation, Sarah Kernion speaks with Jessica Patay, founder of We Are Brave Together, about the power of community support, emotional resilience, and advocacy for families raising children with disabilities and complex needs. Jessica shares how parenting her son Ryan, who has Prader-Willi syndrome, transformed her understanding of caregiving and led her to create spaces where mothers and caregivers could feel seen, supported, and connected. The discussion explores the emotional realities of autism parenting, including the importance of vulnerability, shared stories, and acknowledging the invisible labor caregivers carry. The episode also highlights Jessica’s expanding work through retreats, support networks, and her books Becoming Brave Together and the newly released Suddenly Brave Together. While Becoming Brave Together focused on heroic caregiving stories from mothers navigating disability and rare conditions, Suddenly Brave Together expands the conversation through deeply personal letters and reflections that offer validation, hope, and solidarity to caregivers in the thick of altered parenting journeys. At its core, this conversation reframes autism parenting and caregiving as experiences that require more than endurance—they require sustainable community, emotional honesty, and systems designed to support the entire family. Find all of Jessica's work at WE ARE BRAVE TOGETHER. Chapters (00:00:01) - Inch Jones: We Are Brave(00:00:54) - The Special Needs Autism Support Group(00:06:30) - In the Elevator With Amy(00:07:01) - Suddenly Brave: Caregiving with a Cancer Diagnosis(00:12:11) - How to Parent a Special Needs Child(00:14:28) - Bookmark: The Power of Community(00:19:08) - Wonders of the World:(00:24:07) - Wonders of the World: Respite Care
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From Dysregulation to Connection: Autism Parenting and Emotional Support with Laurie Dove
Autism parenting often brings families face-to-face with emotional intensity—both in their children and within themselves. In this conversation, Sarah Kernion speaks with Laurie Dove about regulation, resilience, and the lived reality of raising children with autism, including those with nonspeaking autism. Laurie shares her personal journey navigating early concerns, intervention, and the evolving emotional landscape of motherhood. At the center of the discussion is a core principle: regulation is not optional—it is biological. Both parent and child operate within nervous systems that respond to stress, environment, and connection. The conversation explores practical strategies for managing dysregulation, including naming emotions, building awareness, and creating space for calm responses. It also addresses the often unspoken experiences of resentment, overwhelm, and isolation that can accompany autism parenting—and the importance of community in mitigating those pressures. Through caregiver stories and grounded insight, this episode reframes regulation as a foundational skill in autism parenting. Not perfection, but awareness and practice—what Inchstones calls small, consistent shifts—create lasting change. Find Laurie, the Queen of Autism Mom Regulation, on Instagram: @everyday_autism_essentials_ Chapters (00:00:01) - May 1st: The Mothers of Autism(00:02:16) - What Was the Moment That You Realized Your Child(00:04:22) - The Journey of Early Intervention(00:06:38) - Sarah's Story of Autism and the Season(00:10:50) - Regulation of the Child's Body(00:18:00) - What Made Me Perfect for My Daughter's Autism(00:24:17) - Two tips for coping with a child's grief(00:26:25) - Lori Dove on Autism Essentials
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Beyond Stereotypes: Autism Parenting, Communication, and Community with Chloe Barnes
Autism parenting often begins with uncertainty but evolves through relationship, exposure, and lived experience. In this conversation, Sarah Kernion speaks with Chloe Barnes about her path from caregiver to advocate and how that journey reshaped her understanding of autism, including nonspeaking autism. Chloe’s work emphasizes the difference between transactional support and relational connection. Through direct caregiving experience, she highlights how communication extends beyond speech and how meaningful engagement requires presence, curiosity, and a willingness to challenge assumptions. The conversation explores how societal perceptions of autism are often shaped by distance rather than understanding. For families engaged in autism parenting, especially those supporting nonspeaking individuals, this gap can lead to isolation and misinterpretation. By centering caregiver stories and real-world interaction, this episode reframes autism advocacy as something built through relationship—not just policy or language. It calls for deeper community engagement, more exposure, and a commitment to seeing individuals with autism as whole people within their environments. Chloe Barnes is the host of the Aletheia Project, a podcast designed to educate on the realities of autism, platform parent advocates, and create a more understanding and inclusive world for children and adults living with profound autism. Chloe brings a unique perspective shaped by her experience working as a caregiver. Through thoughtful conversation, she strives to create space for understanding, connection, and meaningful change. The Aletheia Project can be found: Instagram: @the_aletheiaproject Youtube: https://youtube.com/@the_aletheia_project?si=2rxrzPptF4ppkcK7 Chapters (00:00:01) - The Alethea Project(00:04:55) - On the Need for a Community for Autism(00:08:48) - Beyond the Camp: Being Present in the Current(00:16:12) - The Secret to a Good Parenting(00:18:10) - Understanding the world of special needs families(00:22:11) - The Alethea Project(00:25:30) - Topics on Autism and the Discourse(00:26:32) - The Identity of Autism Gen Z(00:28:40) - On Identity Politics and the Autism Community(00:32:36) - What Does profound non-speaking autism Reveal to us?(00:37:58) - Thank You Chloe Barnes for Your Work
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Public Policy & Autism Parenting: The Truth About Support Needs with NCSA Fellow, Cristina Gaudio
Autism parenting often reveals a gap between public narratives and lived reality—especially for families supporting children with higher needs, including nonspeaking autism. In this conversation, Sarah Kernion speaks with Cristina Gaudio, a legal policy and advocacy fellow, about the complexities of autism spectrum disorder and the urgent need for more nuanced public discourse. Cristina explores how current conversations around neurodiversity can sometimes obscure the realities of individuals who require significant, lifelong support. The discussion highlights the importance of stratifying support needs within autism, not to divide, but to ensure that policy solutions match real-world requirements. They also examine how media narratives and social discourse influence policy decisions, often simplifying a spectrum that is inherently complex. For families engaged in autism parenting, these simplifications can lead to gaps in services, misaligned legislation, and a lack of meaningful support. This episode calls for a more honest conversation—one that includes caregivers, acknowledges the full range of autism experiences, and prioritizes targeted, effective policy solutions. Cristina Gaudio is the appointed Legal Policy and Advocacy Fellow at the National Council on Severe Autism (NCSA). She is a JD/MPP candidate at Vanderbilt University and a 2023 graduate of the University of Chicago, where she earned a B.S. in Mathematics and a B.A. in Economics. As an autism sibling, Cristina is deeply committed to advancing evidence-based policies that improve the lives of individuals on the severe end of the autism spectrum. Her policy interests focus on Medicaid reform, housing access, and research aimed at supporting meaningful services and long-term outcomes for profoundly affected autistic individuals. Cristina is passionate about fostering truthful and compassionate autism discourse that includes all members of the spectrum. In addition to her studies, she serves her country as a U.S. Air Force Reserve Officer. Outside of her academic, military, and advocacy commitments, Cristina enjoys baking cookies, hiking, and traveling with her brother, who continues to inspire her dedication to autism advocacy. Reach out via email at [email protected]. Chapters (00:00:01) - Interview(00:01:50) - On the Need for More Support for People with Autism(00:10:29) - Different levels of autism: The discourse(00:18:49) - On the Need for Autism Support(00:21:05) - On the Issues of Autistic People(00:24:59) - On the Autistic Activists(00:34:40) - Jackie Cancer on the Need for Real Support for People with Autism
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From Autism Parenting to Advocacy: Honey Rinnicella on MAPS and A Place To Breathe
Autism parenting often leads families into advocacy, especially when navigating complex healthcare and support systems. In this episode of the Inchstones Podcast, Sarah Kernion speaks with Honey Rinnicella about autism, autism parenting, and her work with MAPS (Medical Academy of Pediatric Special Needs). They discuss caregiver support, root cause medicine, and the need for stronger community systems for families raising children with autism, including those with nonspeaking autism. Honey also shares her vision for A Place to Breathe, a space designed to support healing, connection, and long-term sustainability for autism families. This conversation explores how personal experience can drive meaningful change in autism advocacy and community support. Honey Rinicella is the Executive Director of the Medical Academy of Pediatrics and Special Needs (MAPS), a national nonprofit advancing physician education and clinical capacity to care for individuals with autism and complex medical needs across the lifespan. Under her leadership, MAPS operates the only formal physician fellowship in the United States dedicated to comprehensive, evidence-informed medical care for this underserved population. Previously, Rinicella served as Director of Education for the National Autism Association, where she led national conferences and professional education initiatives, and held leadership roles with The Autism Community in Action (TACA), developing large-scale caregiver and professional training programs. She is also the parent of 25-year-old twins with autism, grounding her work in lived experience. Her focus is on strengthening medical standards of care, improving access to medically necessary treatment, and addressing systemic gaps—particularly for non-speaking individuals and adults transitioning out of pediatric systems. MAPS: https://www.medmaps.org/about-us/ Chapters (00:00:00) - Honey Renicella on Her Work for Autism Families(00:06:53) - How to Live With Autism in the Now(00:08:21) - MAPS: The Special Needs Medical Training(00:12:04) - Understanding Autism with Medmaps(00:18:12) - On Autism and the Care of Parents(00:22:21) - "I see my kids healed"(00:22:54) - How to Survive a Trauma with a Child(00:24:06) - A Place to Breathe for Autism Kids in Vermont(00:29:47) - A Place to Breathe for Autism Community(00:34:29) - Sarah's last Inchtones interview
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Autism Parenting and Travel: Real Strategies, Inclusion, and Caleb’s Courageous Travels
Autism parenting often changes what families believe is possible—especially when it comes to travel. In this episode of the Inchstones Podcast, Sarah Kernion speaks with Jennifer Wallace of Caleb’s Courageous Travels about navigating travel with autism. They discuss autism travel tips, sensory considerations, preparation strategies, and how community support can make travel more accessible. This conversation is grounded in real experience and offers practical guidance for families raising children with autism, including those with nonspeaking autism. Travel may look different, but with the right preparation and mindset, it can still be meaningful. Find Jen & Caleb and their travels on INSTAGRAM: @calebscourageoustravels Chapters (00:00:00) - Caleb's Courageous Travels: On Autism Moms(00:03:08) - How to Prepare for a Trip With a Neurotypical Child(00:05:37) - How Have You Been Affected by Autism Travel?(00:10:17) - How to travel with an Autism Child on an Airplane(00:16:05) - Traveling with autism is a challenge(00:18:35) - Caleb's courageous travels inspire autism moms(00:21:47) - Believing in Your Child(00:25:47) - This Mom's Journey to the World With Autism
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Autism Parenting and the Nervous System: Why Change Starts with Us with Sara Intonato
Autism parenting often challenges not just what parents do—but how they think, regulate, and respond. In this conversation, Sarah Kernion speaks with Sara Intonato about the internal shifts required to support a child with autism, particularly in the context of nonspeaking autism and emerging communication methods like open spelling. At the center of the discussion is self-regulation. The nervous system of the parent becomes part of the environment the child experiences, shaping engagement, connection, and communication. Rather than focusing only on external interventions, this conversation reframes change as something that begins within the caregiver. Sara shares her journey parenting her son Rocco, highlighting the role of community support, the emotional discomfort that often accompanies growth, and the moment parents realize they cannot return to previous assumptions. The dialogue also explores the tension between accepting “that’s just autism” and remaining open to possibility—without losing grounding or discernment. This episode positions autism parenting as both an external and internal process: one where advocacy, communication, and personal growth intersect. Through caregiver stories and lived experience, it emphasizes that parents are not passive participants—they are active change makers in shaping their child’s environment and future. JOIN AUTISM CHANGEMAKERS WITH SARA INTONATO HERE: https://www.skool.com/autismchangemakers/about Chapters (00:00:00) - Sarah Antonato on Autism Change Makers(00:00:43) - Sarah Antonado on Healing for Autism Parents(00:05:47) - Autism Change makers: The Journey(00:11:40) - Nervous System Awareness(00:18:11) - Sarah on Parenting with Autism(00:21:55) - The Surprising Truth of Healing Your(00:25:31) - Open Spellers: The Work of Parents(00:29:43) - Autism Changemakers: Thank You!
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Autism Parenting Isn’t Linear: The OODA Loop, Orientation, and Reality
Autism parenting often forces a complete reorientation of how life is understood, planned, and experienced. In this conversation, Sarah Kernion and Alex Vohr explore the OODA loop—Observe, Orient, Decide, Act—not as a military concept, but as a framework for navigating the complexity of special needs parenting. At the center of the discussion is orientation: the lens through which parents interpret reality. When a child’s development diverges from expected paths, preconceived models of parenting no longer hold. What replaces them is a continuous process of adaptation, where feedback, engagement, and lived experience reshape how decisions are made. The conversation connects complexity theory with motherhood, highlighting how incremental progress—inchstones—becomes the true measure of growth. Radical acceptance emerges not as resignation, but as a strategic shift that allows parents to update their orientation and move forward with clarity. Drawing from military strategy and real-life caregiving, this episode reframes autism parenting as an adaptive system—one that requires constant engagement, flexibility, and the willingness to evolve. SPEED KILLS (Amazon) SPEED KILLS (Digital)Alex Vohr is a retired United States Marine Corps veteran who served 25 years, including multiple combat campaigns and humanitarian relief operations. Since retiring from the Marine Corps, Alex has worked in commercial industry as the Assistant Vice President of Operations at the Florida East Coast Railway, the Vice President of Logistics at New Fortress Energy, Vice President for Government Affairs at Trailer Bridge and is currently the President of OneLNG. In addition to his primary logistics specialty, Alex is a defense acquisition professional, a military planner, and an educator. He served as the Director for the School of Advanced Warfighting, a graduate-level curriculum focused on planning and decision-making in war.Alex holds three advanced degrees, his most recent in strategic studies from the Marine Corps War College. He has authored articles on Leadership, Disaster Relief, and decision-making in the Marine Corps Gazette and in Military Review. Alex resides in Florida with his wife, Susan, and they have three children.
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Severe Autism, Caregiving, and the System That Fails Families with National Council on Severe Autism's, Jackie Kancir.
Autism parenting at the severe and profound end of the spectrum often reveals a reality that systems are not built to support. In this conversation, Autism Mom Sarah Kernion speaks with Jackie Kancir, Executive Director of the National Council on Severe Autism (NCSA), about the growing gap between what families need and what existing structures provide. Drawing from both personal experience and national advocacy work, Jackie outlines how caregiving for children with severe and nonspeaking autism places sustained pressure on families—emotionally, financially, and physically. The conversation explores how current systems frequently respond only in moments of crisis rather than building proactive, comprehensive support. Central to the discussion is the concept of crisis planning: not as a last resort, but as a necessary framework for families navigating autism parenting at high levels of need. They also examine the mental health risks faced by caregivers and the importance of building support systems that extend beyond the individual to include the entire family unit. This conversation calls for a shift in autism advocacy—one that centers the realities of severe autism, listens to caregivers, and prioritizes sustainable, systemic change. J About Jackie: Jackie Kancir is the Executive Director of the National Council on Severe Autism(NCSA) and Patient Advocacy Director for Cure SynGAP1. She writes and speaks at the intersection of disability policy, moral philosophy, and authentic experience — arguing from first principles that a just society is measured by how it treats the people it finds most inconvenient to serve. Her advocacy work occupies contested ground. The severe autism community she represents — nonverbal, intellectually disabled, and dependent on lifelong supports — is frequently sidelined even within mainstream disability spaces. Jackie'ss response to that erasure is to write her way through it: op-eds, testimony, public statements, andpersonal essays that translate policy failure into something a family sitting in a crisis at 2 a.m. can recognize as true. She is a former military spouse and brings to her work the particular clarity that comes from rebuilding a life after the structures you relied on stop holding. She is a brain tumor survivor and the single mother of a 22-year-old with severe autism, profound intellectual disability, and the rare genetic disorder SynGAP1-RD. She brings to her advocacy work the same thing most parents do: no other option. Chapters (00:00:00) - Jackie Cancer on Autism and the Challenges(00:00:51) - Jill's fight for severe autism families(00:12:14) - On Veteran Mothers and their PTSD(00:18:15) - Crisis planning for severe autism parents(00:26:26) - Why False Narratives Are So Inviting(00:27:18) - How to Get Involved in Autism Advocacy
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The Profound Autism Conversation We’re Not Allowed to Have with Tyler Hudson
Parenting profound autism reshapes identity in ways few people outside the experience fully understand. In this conversation, Autism Mom Sarah Kernion and Tyler Hudson, Dad to teenage son Lyric with profound autism, engage in a candid discussion about autism parenting, grief, advocacy, and the tensions within modern autism discourse. The dialogue centers the lived realities of families raising children with profound autism and nonspeaking autism—where caregiving is intensive, victories arrive in inchstones, and advocacy often requires navigating competing narratives of acceptance and prevention. Together, they explore the emotional terrain that accompanies autism parenting: the quiet grief parents carry, the societal discomfort surrounding severe disability, and the political language that can sometimes obscure the needs of those requiring the highest levels of support. The conversation challenges listeners to expand their understanding of autism advocacy by centering caregivers and profoundly autistic individuals whose experiences are often marginalized in public discourse. Through personal reflections and thoughtful debate, they call for a more honest conversation about support, prevention, and the future of autism care. Chapters (00:00:00) - Tyler Hudson on Activism for Autism(00:01:24) - Celebrations of Autism Parenting(00:03:31) - The role of fathers in profound autism parenting(00:10:03) - The Grief Response to Autism(00:16:21) - Grief for a profoundly autistic child(00:21:48) - On The Politics of Autism(00:25:28) - Autism and the Second Voice(00:26:29) - Understanding the OODA loop(00:29:32) - Autism's Identity First(00:34:49) - Separation of the DSM-5(00:35:10) - Autism and the DSM 5(00:42:03) - Blaze on the Autism Spectrum(00:48:07) - profoundly autistic speakers on identity politics(00:53:12) - Tell Him, Not Me(00:58:33) - A father's voice for profound autism(01:03:37) - Headstones: The End
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Autism Parenting and Personal Growth: Jess Daily on Boundaries, Rest, and Community
Autism parenting often requires mothers to live at full capacity—emotionally, physically, and mentally. In this conversation, Sarah Kernion sits down with Jess Daily, coach, podcast host, and mother of a child with profound autism and a rare genetic condition, to explore what it means to build a life that is not just survivable, but sustainable. Jess’s journey into motherhood began unexpectedly through foster care and evolved into advocacy and deep personal transformation. Drawing from both professional experience in consulting and her lived reality as an autism parent, she shares how intentional boundaries, nervous system regulation, and community support can help caregivers move beyond survival mode. Together they discuss the delicate balance between career, caregiving, and self-preservation, as well as the importance of slowing down enough to recognize the small moments that define parenting children with complex needs. At the heart of the conversation is a simple but powerful truth: autism parenting is not a journey meant to be navigated alone. When mothers connect, reflect, and support one another, resilience becomes something shared rather than carried in isolation. Jess Daily is a personal and professional coach, podcast co-host, and special needs parent who knows firsthand what it means to live at full capacity. After 15 years in business consulting and HR tech, she co-founded SBF Studio, where she helps people move from survival mode to sustainable living through her Space. Boundaries. Forward. framework. As a parent to a child with profound autism and a rare genetic condition, she brings lived experience to her work around rest, nervous system regulation, and building a life that actually fits. She coaches, she writes, and she keeps it real. You can find her Substack JXTPSTN here: https://jessicadaily.substack.com/ Chapters (00:00:00) - Inchtones: A Mother's Story With Special Needs(00:00:45) - What is Your Story of Parenthood?(00:04:38) - Why I Slow Down in My Career(00:11:26) - A Special Needs Parent's Need for Space(00:17:24) - Reorienting to Normal after a Child's Cancer Diagnosis(00:24:44) - Jess Daly on Her Special Needs Mom Journey
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Nonspeaking Autism and NeuroFit Connections: A Holistic Approach to Child Development with Dr. Timothy & Jackie Beck
Autism parenting often means navigating systems that focus on behavior before biology, compliance before connection. In this conversation, Sarah Kernion sits down with Dr. Timothy and Jackie Beck of NeuroFit Connections to explore a developmental approach to autism and nonspeaking autism that begins deeper—at the level of primitive reflexes, sensory integration, and foundational neurological patterns. Through the lens of inchstones—the small, cumulative shifts that create meaningful progress—they discuss how developmental delays are often rooted in incomplete neurological integration. Rather than treating symptoms in isolation, NeuroFit Connections examines the interconnected systems of child development, including vestibular and proprioceptive pathways, and designs individualized therapy plans tailored to each child’s profile. The discussion centers autism parenting not as passive observation but as active participation. Parental involvement is not optional in their model—it is essential. By equipping families with understanding and tools, they aim to remove barriers so children can move toward independence and confidence at their own pace. For families navigating autism, especially nonspeaking autism, this episode offers a perspective that reframes progress as neurological bridging rather than behavioral compliance. It highlights the power of belief, the importance of holistic assessment, and the hope found in incremental, observable change.Coach Jackie and Dr. Tim are the founders of NeuroFiT Connections, Eastern North Carolina’s only Melillo Method™ center. They specialize in helping children with learning, behavioral, social, and developmental challenges by addressing the root causes—often underactive areas of the brain—rather than just managing symptoms. Blending neuroscience, holistic health, and targeted brain-based fitness, their program is grounded in leading research and designed to strengthen brain function and improve quality of life. Their mission is simple but powerful: clear the path for every child to thrive, succeed, and become who they were meant to be. www.neurofitconnections.com Chapters (00:00:01) - NeuroFit Connections(00:00:52) - NeuroFit Connections(00:03:11) - Primordial Reflexes(00:07:05) - What is an ASD one-on-one therapy?(00:08:20) - Vestibular and auditory neuropsychology, part 1(00:14:13) - Asperger's and Adhd: The Bridge(00:18:53) - The Importance of the Work of the CoVID Team(00:21:19) - NeuroFit Connections: How to Find a Neurodiversity
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Autism Parenting and AAC: Building Communication Through Collaboration with Rose Griffin of ABA Speech
Communication is not an accessory skill in autism support, it is foundational. In this conversation, Autism Mom Sarah Kernion speaks with Rose Griffin, speech language pathologist and BCBA, about the intersection of speech therapy, ABA, and AAC in supporting students with autism and complex needs. Rose’s work lives at the overlap of two fields that are often siloed: speech therapy and applied behavior analysis. Rather than competing frameworks, she presents them as collaborative tools that, when aligned, can accelerate communication growth for autistic students. The discussion highlights joint attention, engagement, device trust-building, and the slow—but meaningful—progress that defines real communication development. They address a tension many autism parents recognize: practitioners frequently receive limited training in AAC, leaving families to navigate gaps in implementation. Rose shares her mission through the ABA Speech Connection to empower both practitioners and parents with practical tools and shared learning. This conversation centers one core truth: communication changes outcomes. When professionals collaborate and families are equipped, students with autism gain access—not just to language—but to agency. Rose Griffin, MA, CCC-SLP, BCBA, is a certified Speech-Language Pathologist and Board Certified Behavior Analyst with a passion for helping SLPs, BCBAs, and RBTs work together to support all autistic learners. She is the founder of ABA SPEECH, an organization dedicated to professional development that unites your team—and transforms communication through customized consultations, engaging trainings, and the ABA SPEECH Connection CEU Membership. Rosemarie is also the host of the popular ABA SPEECH Podcast, where she shares practical strategies. A highly sought-after speaker, she enjoys connecting with professionals at the local, state, and national levels. Her book "Say It With Me" is scheduled to come out in July of 2026. She can't wait to share easy to use strategies to encourage communication with professionals and parents alike! At the heart of Rosemarie’s work is the mission of ABA SPEECH: Keeping therapy fun and functional and collaborating along the way. All of Rose's work and her ABA Speech Connection Membership can be found here: www.abaspeech.org Chapters (00:00:01) - ABA Speech Guest(00:00:56) - BCBA and Speech Therapist: The Intersect(00:05:28) - Speech Therapy for the Rest of us(00:12:48) - Autistic Students Need Two iPads(00:14:46) - Communication targets for profoundly autistic students(00:19:25) - ABA Speech Connection: Growing Membership(00:23:28) - ABA Speech Connection
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ABA and Autism Parenting: Myths, Realities, and Individualized Support with ABA Service Provider, Susan Marcovsky
Few topics in autism parenting generate as much emotion as ABA. For many families, it represents hope, structure, and support. For others, it carries controversy and concern. In this conversation, Sarah Kernion speaks with Susan Marcovsky, Hand over Hand ABA education center owner and parent of an autistic adult, about the evolution of ABA and what individualized autism education truly requires. Rather than defending or dismissing, this dialogue focuses on nuance. Autism education is not one-size-fits-all. Individualized education plans must reflect the child—not ideology, not fear, not trend. Together, they explore how ABA has changed over time, how collaboration among therapists and educators strengthens outcomes, and how communication and independence develop through structured, loving environments. Susan shares her personal journey parenting her son into adulthood, grounding theory in lived experience. The conversation emphasizes open-mindedness, parent empowerment, and the importance of gathering information rather than reacting from fear. For families navigating autism support decisions, this episode reframes the question from “Is ABA good or bad?” to “What does my child need—and who is collaborating to provide it?” Information on HAND OVER HAND ABA Services can be found here: https://handoverhandllc.com/ Chapters (00:00:01) - ABA for Autism Parents(00:03:53) - The Fear of Choosing the Right Thing for Your Child(00:06:11) - What's ABA and Its Impact on Kids?(00:06:45) - Autism and ABA education(00:11:08) - Having a son on the Autism Spectrum(00:15:40) - What are some of the best questions that you get as a provider(00:23:53) - Autism Moms on Driving School(00:29:21) - ABA and the autism education debate(00:34:46) - Susan on ABA for Autism
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Trauma, Resilience, and Parenting Autism: The Choices That Shape Mothers
Trauma does not disappear simply because love is present. For mothers parenting autism and special needs children, trauma often lives alongside devotion, strength, and responsibility. Autism Mom Sarah Kernion and Kit Perez examine the layered realities of emotional processing, resilience, and the difficult choices caregivers make daily. This conversation refuses simplification. Trauma is not just discomfort—it is the accumulation of moments where expectations collapse, systems fail, and identity must recalibrate. For many navigating profound autism and special needs parenting, resilience is not innate; it is constructed over time through repeated decisions to rise, recalibrate, and remain present. Together, they explore how perception shapes suffering, how recognizing choice restores agency, and how discomfort—when processed rather than avoided—becomes a catalyst for growth. The dialogue centers on caregiver mental health without bypassing the reality of exhaustion. It honors community support while emphasizing that empowerment begins internally. This is not a narrative of toxic positivity. It is a grounded exploration of how autism parenting can fracture old identities—and forge new ones built on self-awareness, perspective, and strength. Chapters (00:00:00) - Kit Perez at Inch Stones(00:00:49) - How to Process a Tough Life Event(00:01:47) - Post-traumatic stress for special needs moms(00:10:25) - The Loss of Choices in Life(00:12:56) - The Need for Comfort in Motherhood(00:17:43) - "I Get to Do This"(00:23:06) - On Choice and Sexual Assault(00:31:13) - Turning On My Own Faucet(00:35:42) - Kit Flannery on The Complicity of Work
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Ky Dickens on Autism, Non-Speakers, and Assuming Competence — Creator of The Telepathy Tapes
The Telepathy Tapes Season 2 is out now! Ky Dickens, creator and producer of The Telepathy Tapes—one of the most talked-about and shared podcasts of 2024 and 2025—joins Autism Mom Sarah Kernion for a conversation that sits at the intersection of autism, non-speaking communication, and caregiver belief. Her work has reignited global discussion about how intelligence, awareness, and connection are understood in the absence of speech. The dialogue centers on non-speaking autistic individuals and the families who live daily with the consequences of being underestimated. It challenges the reflex to equate speech with competence and invites a reexamination of behavior as communication—an insight deeply familiar to autism parents navigating profound autism and neurodiversity. Together, they explore why assuming competence is not naïve optimism but an ethical stance, how caregiver stories often precede scientific recognition, and what responsibilities communities carry when engaging with new frameworks for communication. Woven throughout is a caregiver truth echoed across autism parent spaces: belief changes advocacy, advocacy changes access, and access changes lives. By grounding The Telepathy Tapes within the lived realities of autism parenting, this conversation ensures that curiosity is matched with care—and that non-speakers are centered not as mysteries to solve, but as people to understand. Chapters (00:00:00) - The Telepathy Tapes(00:03:26) - Asha Mossbridge on Assuming Competency(00:11:44) - What is fueling a non-Speaker's Spell?(00:19:05) - telepathy: Science needs to evolve(00:26:15) - The Energy It Takes to Meet the Non-Speakers
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Parenting Autism with Heart: Routine, Connection, and Resilience with Meaghan Murphy
Motherhood—especially when parenting autism—demands presence, flexibility, and a willingness to be honest about what’s hard. In this episode, Sarah Kernion and Meaghan Murphy, editor of Women's Day and a 25+yr vet in the media industry, explore the emotional terrain of motherhood, focusing on vulnerability, routine, and the unexpected ways joy shows up in everyday life. Through shared caregiver stories, they reflect on how structure can create space for joy, why routines support emotional regulation, and how letting go of autopilot allows mothers to reconnect with themselves. The conversation acknowledges the unique challenges caregivers face while affirming that struggle is not a competition—hardship is personal, and all experiences deserve validation. This episode is about resilience without performative positivity. It’s about humor as survival, self-care as necessity, and connection as the thread that helps mothers—especially those parenting autism—keep going with intention and grace. Meaghan is the Editor of Women's Day Magazine and author of Your Fully Charged Life. All her work can be found here: https://meaghanbmurphy.com/ Chapters (00:00:00) - Interviewing Megan Murphy(00:01:09) - Mothers of profoundly autistic children talk(00:03:52) - Your 'Vulnerability' in '(00:07:27) - On Carving Out Your Joy(00:12:41) - Sarah and Megan on Their Personal(00:16:08) - What is the #1 gift your family of origin gave you?(00:21:03) - "This Is What I Was Like As A Parent"(00:22:35) - Meg on Her Cancer Challenge
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81
Autism Mothering in the Wild with the Moms of "Moms Talk Autism Podcast"
Parenting autism can be deeply isolating—even when surrounded by people. Inchstones is the #1 Voice of Moms and Caregivers of Children with Profound Autism. Season 2 of the Inchstones Podcast opens with a powerful roundtable conversation featuring the MOMS TALK AUTISM moms—a reminder that parenting autism doesn’t have to happen in isolation. In this episode, Sarah Kernion explores how caregiver stories create meaning when shared, even when experiences differ. From Facebook groups to text chains, autism moms discuss how community provides grounding, validation, and perspective—without erasing the deeply individual realities each family lives. This conversation centers on disability inclusion at its root: caregivers supporting caregivers. It sets the tone for Season 2 as a space where honesty matters more than perfection, and where being understood can change everything. Moms Talk Autism Podcast can be found here, available on all listening platforms. Moms Talk Autism Instagram: @momstalkautism Chapters (00:00:00) - In the Zone: Moms Talk Autism Podcast(00:00:39) - Moms Talk Autism on Facebook(00:04:39) - How Special Needs Moms Get Together(00:07:25) - Brittney on Support Groups(00:13:12) - The Need for Three-Dimensional Connection(00:14:27) - On Identity and Parenting(00:16:28) - Neurotypians: Diverse Friendships(00:21:23) - The Importance of Talking About Sexual Health(00:22:39) - Inchtones: When Support Groups Are Inviting(00:27:47) - Autism and the Special Needs Parent(00:30:05) - Mom's Autism: A Discussion
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80
Where Autism & Disability Inclusion Meets Belonging: The Story of Wolves Basketball Academy with Founder, Jeff Mayerson
Autism and disability inclusion don’t begin with policy—they begin with people willing to create spaces where families feel welcome. In this episode, Sarah Kernion speaks with Jeff Mayerson, founder of Wolves Basketball Academy, about how an inclusive basketball program became a powerful source of connection for families navigating parenting autism. Jeff shares how his unexpected path into autism advocacy led to building a community where autistic children and children with special needs are valued for who they are—not asked to conform. Through real caregiver stories, shared joy, and intentional inclusion, Wolves Basketball Academy demonstrates how sports can foster empathy, socialization, and belonging for children of all abilities. This conversation highlights the ripple effect of disability inclusion: when autistic children are supported, caregivers feel seen, families connect, and communities grow stronger. It’s a reminder that meaningful change doesn’t require perfection—just the willingness to show up and say, you belong here. You can also find Wolves Basketball on Instagram @wolvesbballacademy Chapters (00:00:00) - The Inch Jones Podcast: profoundly autistic people(00:01:30) - Coaching for Autism(00:06:45) - Clinic for Special Needs Kids in the NBA(00:13:08) - A Special Needs Girl's Basketball(00:21:27) - The Help for Kids program(00:27:28) - The support of parents with a special needs child(00:29:33) - Jeff Towns on Impact of His Special Needs Kids(00:35:10) - Jeff Greene on Autism Basketball(00:35:48) - Jeff's One Inch Zone Clinic
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79
How Autism Moms Become Advocates: Navigating IEPs, Systems & Small Wins
Parenting a child with autism often requires stepping into roles you never expected—advocate, strategist, negotiator, and sometimes the only person in the room who truly understands your child. In this conversation, Sarah Kernion and fellow autism mom Deisare Rogers unpack the emotional labor and the fierce determination behind advocating for autistic children within an education system that often misses their needs. Deisare shares her lived experience navigating the IEP process, managing behavioral challenges, building community, and trusting the sharp instinct that mothers develop when professionals overlook or minimize their child’s struggles. Together, they reveal how knowledge, persistence, and community support empower parents to claim their place at the table—and rewrite what support should actually look like for autistic children. This episode is a validation of every parent who has ever felt dismissed, overwhelmed, or alone. It’s a reminder that advocacy is not optional—it's survival. And every small win counts. You can find Desiree on Instagram @delawaresavealife Chapters (00:00:00) - Autism Mom on Social Media(00:01:42) - Autistic moms on IEPs(00:07:30) - On the IEP Meeting(00:09:09) - Sarah on Restraint for Sensory Kids(00:12:46) - Kate Swenson on Autism Advocates(00:18:24) - Autism moms on the autism issues in PA vs Delaware(00:22:41) - Autism and the IEP(00:27:04) - The Real World of Parenting(00:29:35) - What is a Win for You?(00:30:28) - Inch Jones PODCAST
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78
The Cost of Being Misunderstood: Caregiving in Severe Autism with Autism Mom, Jaime Hrobar
There are parts of profound autism parenting that most people will never witness and many would never believe. In this episode, Autism Mom Sarah Kernion and Jamie Hrobar, a mother navigating one of the most extreme and misunderstood forms of autism, speak openly about her 21-year-old son, whose life is shaped by relentless self-injury, aggression, fragile communication, and complete dependence for every daily living skill. Jamie’s story is one of unimaginable intensity: her son hit himself (once counted at 40,000 times a month), lives with constant neurological distress, and struggles to communicate even the most basic needs. She shares not just the clinical realities, but the emotional ones—what it feels like to love a child whose body is at risk every day, and to parent in a world that does not understand or support families facing profound autism. This episode is not meant to shock; it is meant to validate, humanize, and bear witness. It honors Jamie’s courage and the countless caregivers who live in crisis-level conditions with little acknowledgment or help. For families walking similar paths, this conversation says: You are not imagining how hard this is. You are not alone.For those outside this reality, it offers a rare chance to understand the truth of profound autism—and why meaningful support must begin with seeing these families clearly. This is Jamie’s story. And it is the story of so many others who deserve to be heard. Jaime Hrobar is a writer, autism mom, and advocate who shares hope, humor, and authenticity, through her Facebook page Homebound and Healing—a blog about autism, family, recovery, and spirituality that explores finding peace, joy, and perspective through life’s hardest moments. A mother of two children on the spectrum, including a twenty-one-year-old son with profound non-speaking autism, Jaime draws on over two decades of firsthand experience with IEPs, disability rights, therapies, and complex behavioral challenges. She uses her experience to guide others through education systems, therapeutic supports, and the emotional realities of parenting, making her a trusted advocate and source of encouragement for families navigating similar journeys. You can find all of her work here: https://www.facebook.com/HomeboundandHealing https://www.jaimehrobar.com https://www.instagram.com/jaimehrobar/ Chapters (00:00:00) - One child's extreme self-injury(00:00:53) - Jamie Robar on the Special Needs Mom Community(00:02:02) - Autistic Moms on Motherhood(00:06:35) - Seeking the Autism Experts(00:10:56) - Sarah on the Battle(00:14:35) - Jamie on her Autism Facebook Page(00:19:55) - Hurricane Florence parallels New Jersey family's life(00:21:02) - Jim's autism mom on the current political climate(00:26:34) - Autism mom on the search for a residential placement(00:31:45) - On the Fear of a Caretaker(00:38:04) - A caregiver's message about her husband's illness
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77
The Power of Vulnerability: Autism, Motherhood, and Connection with Autism Mom, Jess Caraway
Motherhood in the autism community is not about perfection, it’s about connection. Autism Moms Sarah Kernion of INCHSTONES and Jess Carrawa of 'If You Know One', open a deeply honest conversation about the courage it takes to be vulnerable, especially in a world that often misunderstands both parenting autism and autism motherhood. Their exchange moves through discomfort and into understanding, showing how sharing raw experiences builds a bridge between isolation and belonging. Together, they unpack how community, authenticity, and empathy can transform the weight of parenting into something lighter—something shared. At its heart, this conversation is a portrait of modern motherhood in the age of social media: imperfect, interconnected, and beautifully real. Jess Caraway is a mom of two, an ever-evolving advocate for her autistic daughter, a passionate supporter of all forms of communication, gestalt language detective, and founder of the If You Know One Project. She dreams of a world that understands autism, and accepts accessibility, inclusion, and presuming competence as beneficial for everyone. Jess strives to connect with her Instagram community by sharing a glimpse into her family’s journey with an autistic daughter/sister in a way that inspires others to embrace the perspective shift that just because your experiences look different does not mean they are not still good. Instagram: @jess_ifyouknowone Etsy shop: ifyouknowone.etsy.com Sarah is the writer and host of INCHSTONES: The #1 voice of autism mothers & caregivers of children with profound nonspeaking autism. Chapters (00:00:00) - Jess Caraway on Her Autism Project(00:03:30) - "It's Okay to Be Unhappy on Social Media"(00:07:52) - Open Minded: The Importance of Diversity(00:17:00) - The Ripple Effect of Parenting(00:25:23) - Melissa on her son's autism(00:30:48) - Insurance Parlance
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76
A Conscious Approach to Autism Parenting & The Myth of "Catching Up" with Kathleen Somers
Autism parenting isn’t a race, it’s a reorientation. Autism Mom Sarah Kernion and fellow Autism Mom and author Kathleen Somers unpack the quiet revolution of slowing down in a world that rewards speed in their autism parenting journeys. Through honest reflection, they question inherited expectations and challenge the myth of “catching up.” Their conversation illuminates what happens when parents stop measuring progress against typical milestones and start witnessing growth on their child’s unique timeline. This dialogue invites autism parents to trade anxiety for awareness, performance for presence, and pressure for patience. It’s about conscious parenting that honors both the child’s nervous system and the parent’s emotional bandwidth. The result is a gentler rhythm—where profound autism, neurodiversity, and deep connection can finally breathe. Kathleen's Book Barely Visible can be purchased here.Kathleen Somers, a debut author, holds a Bachelor of Fine Arts from Temple University’s Tyler School of Art, and works as a freelance graphic designer. She is a passionate observer of humanity who believes in the power of connection that comes from each of us sharing our individual stories. When Kathleen isn’t busy with her career as a creative, she is out on her bike finding new roads to explore, or spending time with her son, opening his eyes to everything the world has to offer. She lives with her family in the suburbs of Philadelphia. Chapters (00:00:00) - Barely Visible: An Autism Mom's Journey(00:00:59) - On Writing My Autism Memoir(00:05:32) - Looking Back: Learning From Our Elders(00:11:58) - How to Love Your Child's Emotions(00:14:35) - Autistic Parents: Their Differences Are Not the Default(00:21:15) - Autistic Mothers Slow Down Their Child's Development(00:26:13) - My Son's Car Caught on Fire(00:29:50) - Kathleen's Story of Mothering an Autism Child(00:32:53) - A Parent's Love of routine
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75
Autism Parent Reset: Reorienting, Healing, and Finding Joy with Writer, Kit Perez
If you’re an autism parent, you already know autism doesn’t come with a tidy instruction manual—it comes with plot twists, hard truths, and surprising joy. In this episode, Autism Mom, Sarah Kernion, and Kit Perez (writer, intelligence analyst, therapist, behavior analyst!) delve into orientation and the beautifully complicated reality of raising autistic kids and how it completely rewires your sense of “normal.” They unpack what happens when you stop chasing the imaginary perfect family and start orienting yourself to the world you actually live in where meltdowns, breakthroughs, and quiet victories all share the same calendar. With equal parts humor and honesty, Sarah and Kit talk about the friction between old expectations and new realities, and why dismantling outdated beliefs isn’t failure—it’s growth. They explore how healing your own past pain changes the way you show up as a parent, why joy is a deliberate choice (not a lucky accident), and how asking, “What is true today?” can keep you grounded when everything feels like too much. Above all, this conversation reminds you that your situation doesn’t define you, your child is not a project to “fix,” and some of the deepest bonding moments are found in the small, weird, wonderfully simple joys of everyday life. Chapters (00:00:01) - Substack: The Hierarchy of Autism and the Autism Spectrum(00:01:23) - Reorienting the System for Autism(00:08:59) - How Having a Child Will Change Your Life(00:12:14) - The Process of Healing From Trauma(00:19:40) - How to Talk About Your Autistic Child(00:24:28) - What do you think creates the fear of doing the work(00:29:35) - Autism and the Power of Running
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74
Autism and Parenting Performance with Avela Health's Dr. Cynthia Anderson on Expectations and Well-Being
Autism and parenting performance are at the heart of this conversation between Profound Autism Mom Sarah Kernion and Dr. Cynthia Anderson, Chief Clinical Officer at Avela Health. Together, we unpack what performance really looks like in everyday parenting, for us and for our kids. Together, we explore how context, expectations, skills, and capacities interact, and what happens when there’s a mismatch between what’s being asked and what’s truly possible in the moment. Dr. Anderson offers a compassionate, autism-informed lens on behavior and performance, reminding us that people do well when they can. We talk about why it’s not only okay—but often essential—to step back, drop certain expectations, and honor real limits so that both caregivers and autistic children can thrive. ✨ Find your stride with strength-based autism care.Visit Avela Health to get started and see how personalized, compassionate support can help your child and your family thrive. Chapters (00:00:00) - In the Know: The Inch Zones Podcast(00:01:00) - An autism parent's personal connection(00:06:40) - On the Fear of Autism(00:10:31) - Autism and the Aviela Health Community(00:16:02) - What does my involvement in my child's care look like?(00:22:21) - What do you think the impact of emotional growth and regulation is on(00:29:18) - Autism and the pause(00:29:56) - One mom's battle for early intervention for her child's autism(00:34:04) - The Least Restrictive School for Kids
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73
Autism, Consciousness, and The Love Revolution with Dr. Julia Mossbridge
Autism parenting and consciousness intersect in this incredible Inchstones episode! Cognitive neuroscientist and consciousness researcher Dr. Julia Mossbridge joins us to explore her new book "have a nice disclosure" which invites you on a journey that unites science, spirit, and wonder into one life-changing exploration of who you truly are. Autism Mom Sarah and Dr. Mossbridge share the deeper currents of love, connection, and ethical education especially for non-speaking people. We talk about unconditional love as a practical healing force, how truth-telling shaped her writing process, and why anomalous cognition deserves careful attention rather than dismissal. Julia highlights the ethical responsibilities researchers and educators hold when working with non-speakers, and she shares concrete steps toward curricula that support meaningful communication. We also discuss advocacy often led by mothers, gendered patterns in emotional expression, and the reminder that trauma does not set a ceiling on growth. Throughout, Julia returns to a simple, radical invitation: participate in a love revolution grounded in empathy, relationship, and respect. Dr. Mossbridge's new book "have a nice disclosure" can be purchased here on Amazon! Click here to find all of Dr. Mossbridge's work. Chapters (00:00:01) - Julia Mossbridge on Her Book(00:01:09) - What it's Like to Work With Non-Speakers(00:05:06) - Book Launch: What Are We Ethically Required to Do(00:08:58) - When I Was in the gifted IQ Program(00:14:10) - Autistic Non-Speakers in the Intelligence Community(00:19:34) - Mixed emotions on the issue of mothers(00:23:40) - What Non-Speakers Have to Offer Us(00:26:18) - On Autism and Daughter's Development(00:33:09) - Right hemisphere gifted: A Parent(00:37:18) - How to Win at Life(00:38:33) - The Work I Plan to Do on Telepathy(00:44:58) - Anxiety and the Right Place for Kids(00:50:04) - Unlimited Love
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72
Building Trust in ABA Therapy with ABA Therapists Brittany Vecero and Jada Watkins
Autism and autism parenting guide this week’s Inchstones Podcast as Autism Mom Sarah Kernion sits down with Brittany Vecero and Jada Watkins, two compassionate therapists in the field of ABA therapy, to discuss the heart of behavioral education, therapy, and care + the importance of trust, and the joy of working with children in special needs education and development. Together, they explore how collaboration and communication between parents and therapists shape meaningful progress for children on the autism spectrum. The conversation dives deep into the emotional realities of therapy—navigating transitions, building consistent teams, and ensuring that every intervention is grounded in empathy and love. Brittany and Jada also share how positive reinforcement, small daily changes, and partnership with parents can strengthen confidence, independence, and growth at home and in therapy sessions. Key Takeaways: Therapeutic AND respite care provide essential relief and support for families. Building trust between parents and therapists enhances outcomes. Effective communication ensures consistency across home and therapy. ABA therapy can be transformative when done ethically and with compassion. Transitions in therapy teams can affect children’s emotional security. Collaboration and feedback loops foster stronger relationships. Positive reinforcement and small steps lead to lasting growth. Parents and therapists thrive when united in purpose and care. Chapters (00:00:00) - ABA Care Workers on Inchtones Podcast(00:01:28) - What Really Makes Me Happy to Work As a BCBA Therapist(00:04:39) - Therapist on Working With Special Needs Families(00:09:08) - How to Talk to an Autistic Parent(00:14:40) - How to Talk to Your Autistic Child About Therapy(00:19:28) - What Good ABA is?(00:26:57) - The Home Effect of Parenting
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71
Autism & EMFs: From Silicon Valley to Health Advocacy with Peter Sullivan
Autism and autism parenting take center stage in this Inchstones Podcast episode, as host Sarah Kernion speaks with Peter Sullivan—a former Silicon Valley innovator turned health advocate—about how environmental factors influence the health and development of children with autism. Peter shares his personal journey from the tech world to health advocacy, uncovering the links between electromagnetic fields (EMFs), chemical exposure, and neurological health. He explains how disruptions in calcium channels may affect brain function and why creating safe home environments can make a meaningful difference for families navigating autism parenting. The conversation blends science, compassion, and hope—showing parents that small, consistent actions can support healing, reduce toxic load, and help their children thrive. Peter is the founder of Clear Light Ventures. Chapters (00:00:01) - Peter Sullivan on Environmental Factors for Autism(00:05:58) - The EMF and autism(00:12:26) - The Healing of Electric Stress(00:14:20) - Ca calcium channels, their role in our body(00:20:45) - The Problem With Our Smartphones(00:21:14) - Autism and Chronic Illness(00:23:39) - The electrical load to reduce(00:27:22) - Toxic chemicals in the United States(00:30:48) - These are the chemicals in the environment(00:33:54) - Autism and the First Aid(00:38:43) - Sleep disruption due to electromagnetic interference(00:46:26) - How to Raise a Brain with a Balanced Environment(00:50:34) - The Good Elements of Nature
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70
How AI & Innovation Are Transforming Autism Parenting & Support with Shahriar Afshar
In this episode of the Inchstones Podcast, host Sarah Kernion sits down with Shahriar Afshar, autism parent and founder of the Autism Innovation Lab, to explore how technology, community, and unconditional love are reshaping the future of autism parenting and neurodiversity support. Together, Sarah and Shahriar discuss the emotional layers of parenting a child with autism—from grief and resilience to acceptance and hope. They unpack the gendered differences in how mothers and fathers process their child’s diagnosis, the growing role of AI in autism care, and how innovation can help families better navigate the daily realities of profound autism and caregiving. This conversation blends empathy with forward-thinking solutions, revealing how collaboration between parents, technologists, and advocates can create a more inclusive autism community rooted in understanding, connection, and love. Key Takeaways: The emotional journey of autism parenting is complex yet deeply human. Fathers and mothers often process challenges and grief differently. Community support is essential for parents and caregivers. Innovation and AI can enhance autism education and caregiving. Technology can improve independence and quality of life for autistic individuals. Unconditional love and acceptance remain the most powerful supports. Collaboration between parents and innovators fosters autism advocacy stories worth sharing. Hope and resilience are at the heart of every special needs family story. Chapters (00:00:00) - How to Manage a 16-Year-Old with Autism(00:06:50) - What Would You Have Done If You Had An Autistic Brother?(00:07:44) - William Shrey's Autism Innovation Lab(00:14:00) - In the Elevator With an Autistic Parent(00:19:19) - Autism and the Real World(00:24:42) - In the Elevator With Autism Parents(00:28:13) - How to Give Back to the Autism Community(00:34:21) - Autistic Caregiver's Challenges(00:41:05) - Autism Caregiver on the World(00:43:31) - Inchtones: If You Could Not Fail
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69
Believing Mothers: The Realities of Profound Autism & Disability Care with Liv Rojo
Profound Autism Mom Sarah Kernion sits down with Olivia Rojo (@praying_though_autism), an fellow autism mom and advocate, to discuss the unfiltered truth of caregiving and the lived experiences of families navigating profound autism. Olivia shares what it means to be both mother and caregiver—to fight for inclusion, navigate systemic challenges, and still find beauty in small moments of connection. Together, she and Sarah explore how believing mothers is a crucial act of respect within the neurodiversity movement and the broader disability conversation. The discussion highlights the importance of community, the necessity of self-care, and the quiet strength found in honesty. This episode is both a love letter to caregivers and a rallying cry for visibility—because every story of autism deserves to be heard and believed. Key Takeaways: Believing mothers and caregivers is inclusion in action. The truth about profound autism must be told, not softened. Community and autism support networks ease the weight of caregiving. Self-care sustains caregivers and strengthens family bonds. Every act of honesty deepens understanding of autism parenting. Hope and beauty coexist with challenge in daily caregiving life. Advocacy rooted in truth leads to justice in disability care Chapters (00:00:00) - Praying Through Autism(00:05:47) - Beyond Autism: The Terms We Use(00:11:28) - Beyond Autism: The neurodiversity movement(00:17:21) - Autism mom on her own journey(00:23:55) - Kat on Autism and Self-Care(00:28:54) - Why I Fight For My Daughter's Autism
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68
How Love Transforms Autism Parenting with Author and Autism Mom, Jenny Briggs
Autism parenting is a journey filled with unique challenges and profound growth. In this episode of Inchstones, host Sarah Kernion talks with Jenny Briggs—author, autism mom, and advocate—about how love, neurodiversity, and inclusion can transform the experience of raising a child with autism. Jenny shares her heartfelt story of parenting her daughter Sarah, whose autism diagnosis inspired her to utilize the Son-Rise program, a home-based, relationship-centered approach that honors curiosity and connection over correction. Through this conversation, listeners will gain insight into autism awareness, the emotional evolution parents undergo, and the importance of community support in the disability and neurodiverse parenting journey. Jenny discusses how siblings thrive when empathy and inclusion are prioritized, and how seeking help opens new paths toward healing. Her book, Watching Sarah Rise, offers a poignant testament to the transformative power of love as a cornerstone of therapy and personal growth. Join us as we explore how flexibility, patience, and human connection redefine autism parenting and advocate for a more inclusive and understanding world. Jennifer Celeste Briggs has a BA in English Literature from Swarthmore college. She lives in Pittsburgh, PA with her husband and two daughters. Her daughter Sarah has a genetic anomaly and autism. When Sarah was four, Jenny decided to run a Son-Rise Program for her, calling it Sarah-Rise, and training at the Autism Treatment Center of America. The Son-Rise Program is a loving child-centered approach to helping those with autism and other challenges connect socially, verbally, and through increased eye contact. Organizing hundreds of hours of therapeutic play time for Sarah, Jenny trained and coordinated multiple volunteers who contributed their love and creativity to the venture. Jenny started a blog to share the experience of Sarah-Rise and has heard multiple times that her words were helpful to others dealing with life struggles. Jenny wants to help parents feel understood and to spread the word about The Son-Rise Program. She hopes that her words bring comfort, joy, and inspiration to readers whatever their challenges and journeys may be. Chapters (00:00:00) - Interview(00:00:44) - How a mom with autism navigated the autism diagnosis and treatment(00:08:21) - The Secret to Helping People With Autism(00:12:55) - Sarah's autism and Amy's typical family(00:19:45) - The Importance of Shared Orientation(00:23:40) - Watching Sarah Rise: An Autism Family's Journey
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67
Conscious Self-Care for Autism Parents: Insights from Kat Riojas
Parenting a child with autism demands deep reserves of energy, empathy, and endurance—and too often, parents forget to include themselves in the circle of care. In this powerful conversation, Sarah Kernion talks with Kat Riojas about what conscious self-care really looks like when you’re raising neurodiverse children. Fellow autism mom and advocate, Kat Riojas, shares how movement, mindful routines, and healthy habits have transformed her ability to stay present and emotionally steady for her family. Together, they explore how modeling wellness teaches children balance, why community matters as much as therapy, and how letting go of comparison opens the door to peace. This is a grounded, hopeful reminder that caring for yourself is caring for your child—and that every act of self-preservation is an act of love. Key Takeaways Conscious self-care sustains long-term autism parenting. Movement and nutrition directly affect emotional regulation. Alcohol and poor habits quietly drain parental capacity. Community is a protective factor against burnout. Modeling health benefits the entire family system. Each parent’s path is unique—comparison steals joy. Growth often comes from hardship and honesty. Find and follow Kat on Instagram here! Chapters (00:00:00) - Kat's Talk About Self-Care on Inshones(00:01:16) - How an autism mom got to the gym(00:04:26) - On Choosing Self-Care(00:10:44) - Autism and Taking Back Your Own Life(00:15:32) - The Secret to Your Hero's Journey(00:16:41) - Autism Moms on the Family(00:20:14) - "One piece of advice for moms with autism..."(00:24:21) - Alcoholics on Their Journey(00:28:40) - The Importance of Vocalization Around 40(00:33:58) - Kat's Entire Episodes
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66
Inclusive Playgrounds, Autism, and Community Change with Erica Witte
Episode 64 of the Inchstones Podcast, host & Autism Mom Sarah Kernion sits down with Erica Witte, mom and founder of Project Playground, to explore how her own advocacy sparked a movement for inclusive play spaces where all children (neurodiverse, disable, neurotypical) can play and connect together. Erica shares how her experience as a special-needs parent inspired her to design accessible playgrounds equipped with communication boards, created in collaboration with local high school students. Together, Sarah and Erica discuss how inclusion is built through community, creativity, and conscious design. This episode is a story of hope, practical innovation, and maternal leadership, showing that when parents model advocacy, they shape a more inclusive world for future generations. Key Takeaways: Project Playground was founded to make play accessible for every child. Inclusive design builds empathy, confidence, and social skills. Community collaboration drives sustainable change. Communication boards improve access for non-speaking children. Advocacy modeled by parents inspires lifelong inclusion values. Empowering youth through design fosters connection and creativity. Awareness of accessibility is growing thanks to grassroots efforts. Emotional purpose often fuels the most impactful local projects. Chapters (00:00:00) - Inchtones: Erica Witte on Project Playground(00:01:13) - What is Project Playground?(00:04:28) - The Imagination Tour of the School(00:09:37) - The Special Needs Mom Network(00:13:52) - Project Playground: Communication Boards for Non-Verbally Speaking(00:21:37) - What would be an inch stone win of yours currently as these projects
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65
Autism & The Gut-Brain Connection: Nutrition Tips for Parents with Dr. Delia McCabe
A must-listen new episode coming to you with host Sarah Kernion, who sits down with Dr. Delia McCabe, neuroscientist and nutrition expert, to explore how food profoundly shapes emotional regulation, sensory processing, and well-being in neurodiverse children—especially those with autism. Together, they unpack the gut-brain connection, the role of healthy fats, and how probiotics influence behavior and mood. Delia shares simple, science-based steps parents can take to create calm, balanced, and nourishing routines—without overwhelm or guilt. This conversation reframes nutrition as an act of connection: by modeling curiosity, patience, and healthy habits, parents can help their children thrive from the inside out—one inchstone at a time. Key Takeaways: The gut-brain axis plays a key role in emotional and sensory regulation.Healthy fats are crucial for brain growth and focus.Probiotics can support mood stability and digestion.Change works best when modeled with patience and curiosity.Small, consistent shifts in nutrition make lasting impact for children with autism.
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64
How Storytelling Transforms Autism Parenting & Advocacy with Documentarian, Chelsea Casabona
Discover the transformative power of storytelling in Autism advocacy with Sarah Kernion as she sits down with documentary filmmaker Chelsea Casabona for a powerful conversation about the role of storytelling in shifting how we see autism and neurodiversity. Chelsea filmed Sarah and her family for a 5-min glimpse into the lives of neurodiverse families for Beacon College's A World of Difference Segment last April for Autism Awareness Month. Together, they explore how real change happens when we tell stories with honesty, presence, and heart. Chelsea shares how vulnerability behind the camera creates deeper human connection—and how curiosity can uncover the truth within every story. This episode challenges the “fix-it” mindset so often applied to disability and celebrates the beauty, strength, and individuality within the autism community. It’s a moving reminder that storytelling can reshape perception, build empathy, and reveal what truly connects us all. Key Takeaways: Vulnerability is the foundation of powerful storytelling. Presence reveals truth and builds authentic connection. Every person’s story adds depth to our understanding of neurodiversity. Filmmakers and advocates share a mission: to humanize, not to fix. Authentic narratives challenge stereotypes and celebrate autism as part of human diversity. Whether you’re an autism parent, creative storyteller, or advocate for inclusion, this episode will inspire you to see every “inchstone” as a moment of connection and growth. Chapters (00:00:00) - Inch Jones: Chelsea Casabona on Neurodiversity(00:01:16) - What Makes Documentary Film So Powerful(00:07:43) - Documentary Filmmaking: The Presence
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63
Magnetosphere and Motherhood: Synesthesia, Autism Parenting, and the Beauty of Neurodiversity with Director, Nicola Rose
Explore Neurodiversity and Synesthesia in this episode on Inchstones, host and autism Mom Sarah Kernion, profound autism mom of two nonspeaking autistic children and advocate, sits down with director Nicola Rose of Magnetosphere to discuss her groundbreaking film exploring neurodiversity and the lived experiences of children with synesthesia which is a fascinating neurological condition where the brain links two or more senses that are usually separate. Through the story of a 13-year-old girl, the film offers a fresh and authentic lens on autism, adolescence, and representation in media. Sarah and Nicola dive deep into the heart of autism parenting, reflecting on the joys and challenges mothers face while raising neurodiverse children. They highlight the importance of witnessing and honoring each child’s unique perspective, recognizing that all behavior is communication, and celebrating humor as a powerful tool for storytelling and connection. For autism moms, this conversation is both validating and uplifting...a reminder that raising a neurodiverse child is not only about challenges but also about deep transformation, empathy, and unconditional love. Key Takeaways The film explores neurodiversity and synesthesia through the perspective of a teen girl. Personal experiences with autism and neurodiverse identities inspire creative projects. Autism parenting means learning to witness children’s unique perspectives. Adolescence is a transformative stage for both parents and children. Autism moms face unique challenges that foster resilience and advocacy. Representation in media is essential for building empathy and understanding. Humor brings lightness to serious conversations. Every behavior communicates something meaningful.lecFAzFUYJLCwLZETxV0 Chapters (00:00:00) - Interviewing Nicola Rose of Magnetosphere(00:05:47) - A Dog Plays With Her House Rocks(00:06:12) - The Importance of Magnetosphere(00:12:20) - Autism and the Caregiving Process(00:15:40) - The film's theme of synesthesia(00:21:31) - Neurotypian on 'The Good Girl'(00:25:08) - "The Dark Knight" Review
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62
Profound Autism, Powerful Love: How One Mother Learned to Let Go and Lead with Marie Watkinson
Motherhood doesn’t come with a manual—but if it did, autism parenting would be filed under “plot twist.”In this candid episode of the Inchstones podcast, host Sarah Kernion welcomes Marie Watkinson, a successful NYC entrepreneur and owner of Spa Chicks on the Go and devoted autism mom, for a raw, unfiltered look at what it means to raise a profoundly autistic child in a world that wasn’t built with him in mind. From the gut instinct that something was different, to the rollercoaster of diagnosis, advocacy, and redefined expectations, Marie’s story captures the emotional landscape of parenting through the lens of neurodiversity. Together, she and Sarah explore how inchstones—not milestones—become the markers of growth, strength, and survival for autism families. This conversation is equal parts real talk, hard truth, and soft place to land—for any parent navigating the beautifully chaotic world of autism. Top Takeaways: Inchstones are the new milestones for autism parents. Mother’s intuition matters—more than any textbook. You will grieve, grow, and get stronger. Support systems make survival possible. Social media can connect isolated autism caregivers. Special needs parenting forces a rewrite of motherhood’s script. There’s no perfect outcome—just powerful love and persistence. About the Guest:Marie Watkinson is the founder of Spa Chicks On The Go, a luxury mobile spa business based in NYC. She’s also the proud mom of Ryan, her 16-year-old son with profound autism. Marie and her husband Chris live in Port Jefferson, NY, where they fiercely advocate for inclusive education, dignity, and a future where every neurodiverse child has a place to thrive. lecFAzFUYJLCwLZETxV0 Chapters (00:00:01) - Marie Watkinson on Special Needs Parenting(00:01:07) - Ryan's Mother's Journey as a Mother(00:05:39) - One mother's experience with autism(00:10:04) - No guidebook for special needs parents(00:12:46) - One Mother's Experience with Special Ed School(00:18:25) - On the Loss of Autism(00:22:51) - Sarah on her autism diagnosis(00:26:45) - One mother's story of her autistic son(00:31:15) - One parent's struggle with her son's autism(00:36:19) - How a Parent's Issues Affect His Business(00:41:46) - Marie O'Brien on Parenting With a Big Man
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61
Beyond the Diagnosis: Autism Parenting, Inchstones, and the Journey to Adulthood with Gena Mann
Parenting autistic kids isn’t a straight line—it’s a zigzag through school meetings, medication trials, sleepless nights, and unexpected joy. In this episode of Inchstones, host Sarah Kernion joins Gena Mann for a no-holds-barred conversation about what it truly feels like to raise neurodivergent kids in a world built around milestones. They cover everything from early intervention to IEPs, puberty panic to post-high school plans—with brutal honesty, well-earned wisdom, and a few laughs along the way. This isn’t just about autism. It’s about parenting in the unknown—and learning to celebrate the inchstones that quietly change everything. Key Takeaways for Parents of Autistic Children: Early intervention helps—but the journey doesn't end with a diagnosis.Adulthood transitions in autism parenting can be emotional and unpredictable.Anticipatory anxiety is common—especially when imagining the future.Curiosity about your child's needs often leads to deeper connection.Community support is not optional—it's essential.Celebrating inchstones can sustain parents through burnout and uncertainty.Communication breakthroughs—verbal or nonverbal—are major emotional wins.There is no one-size-fits-all approach to parenting in the world of neurodiversity.You deserve to feel peace and joy, even in the hard seasons.Autism parenting is a marathon—find joy in the pace that fits your child. Chapters (00:00:00) - Back to the Inch Stones With Jenna Mann(00:00:54) - Autism Mom's Reflections on the Years After Diagnosis(00:07:47) - Stay Curious: The Process of Autism School Choices(00:15:19) - Jenna on Emotionally Processing Her Son's Transition(00:19:39) - Mac and Millie's First Period(00:22:45) - How To Get Out Of the House(00:27:41) - In the Elevation: Victorious Wins for Your Family
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60
Parenting in the Era of Neurodiversity: Inside the World of Profound and Nonspeaking Autism with Rob Gorski
Forget the clichés, this is where autism, neurodiversity, and inchstones collide to challenge every assumption about what parenting a profoundly autistic, nonspeaking child actually means. Sarah Kernion and The OG Autism Dad, Rob Gorski go far beyond surface-level conversations, exposing the unseen emotional labor, systemic failures, and community blind spots families face every day. This discussion reframes profound autism as not just a diagnosis but a catalyst for resilience, courage, and radical community-building. Together, they explore how embracing nonspeaking autism as part of a broader neurodiversity movement transforms stigma into solidarity while underscoring the urgent need for inclusive policies, authentic dialogue, and parent-led support networks that actually work. Takeaways: Raw Truth Drives Change: Rob Gorski underscores that unfiltered storytelling is the engine of real autism advocacy. Hidden Emotional Labor: Parents of profoundly autistic, nonspeaking children shoulder unique emotional and logistical challenges rarely acknowledged by society. Neurodiversity ≠ One Size Fits All: The autism community spans from low to high support needs, demanding nuanced understanding and tailored support. Systemic Barriers Require Disruption: Families face institutional red tape and fragmented systems, calling for parent-led reform and policy influence. Self-Care as Strategic Survival: Caring for yourself is not indulgence—it’s the foundation of sustainable advocacy and family stability. Normalize Asking for Help: Courage in seeking support should be celebrated, not stigmatized, to reduce isolation and burnout. Bridge the Divide: Open dialogue between families, professionals, and policymakers can dismantle harmful stereotypes and improve outcomes. Respect the Inchstones: Progress in profound or nonspeaking autism isn’t always linear—inchstones matter more than milestones. Compassion as a Competitive Advantage: Building a culture of empathy within the autism community strengthens resilience and collective impact. Chapters (00:00:00) - Autism Dad on Inchtones Podcast(00:01:42) - Autism Moms on Medium(00:07:21) - Rosie on the Autism Community(00:13:44) - Rosie on the Autism Community(00:19:51) - On the High Support Need for Autism Parents(00:26:50) - Autism Parents on the Wait List(00:30:54) - On Autism and the Need for Help(00:34:00) - Robyn on the Autistic Community(00:41:41) - On Autism Parenting(00:46:11) - Ask for Support(00:47:29) - A Few Words for Rob
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59
Healthcare Choices for Families Facing Profound Autism with benefitbay®’s Brandy Burch Thompson
Families raising children with profound autism often face overwhelming challenges in navigating healthcare, education, and daily life. On the Inchstones podcast, Sarah Kernion and Brandy Burch Thompson, CEO & Founder of benefitbay® unpack these realities with honesty and clarity, highlighting why individualized care plans matter and how employers can better support neurodiverse families. Their conversation underscores the power of advocacy, the necessity of informed choice in healthcare, and the resilience it takes for parents of autistic children to be heard. This dialogue shines a light on both the systemic barriers and the inchstones of progress that define the autism journey, offering guidance and hope to families walking a similar path. In exploring the importance of individualized care plans, the role of employers in providing healthcare options, and the need for families to advocate for their specific needs, Brandy helps Sarah and other parents in similar situation understand the terrain of the healthcare system. The conversation emphasizes the significance of choice in healthcare and the empowerment of families to make informed decisions about their care. Chapters (00:00:00) - What Real Support Looks Like For Parents of Autistic Children(00:01:01) - Special Needs Healthcare Coverage and Access(00:10:58) - On Autism and Special Needs Coverage(00:15:44) - Choosing the right healthcare plan for your family(00:20:58) - Employers: Taking the Employer Out of Healthcare(00:23:27) - Choosing a healthcare plan for a medically complex family
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58
Resilient Parenting in the World of Autism & Neurodiversity with Kyle Shepard
Kyle Shepard, writer of The Resilient Mental State Substack, joins the Inchstones podcast for a powerful conversation about resilience, caregiving, and communication in the world of autism and neurodiversity. Together, we explore how parenting children with profound autism reshaped my understanding of growth, emotional regulation, and adaptability. Kyle shares deeply personal insights from his own life, highlighting the challenges and breakthroughs of work and parenting, while emphasizing the importance of celebrating inchstones —those small but meaningful steps forward that foster resiliency in all of us, regardless of our journey. This dialogue underscores the strength found in community, the role of curiosity in navigating uncertainty, and the everyday resilience that defines families living with autism. Chapters (00:00:00) - Interview With Kyle Shepherd(00:00:30) - Cognitive Resilience in the Military(00:06:21) - On Autism and the Spectrum(00:12:17) - On the Concept of Typical Parents(00:16:06) - Anger and Control of My Feelings(00:23:16) - How to Manage Your Emotions(00:28:56) - The Importance of Self-Care for Parents(00:36:54) - Your Wife's Mother Intuition(00:42:16) - How Were You Raised?(00:49:05) - The Importance of Interactivity(00:53:00) - How do you become a more flexible person?(00:54:33) - The Power of Consistent Care(00:59:20) - One Autism Child's Speech Breakthrough(01:04:52) - Coming soon: The Byproduct of Writing
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57
Autism, Caregiving, and the Struggle for Inclusive Communities with Kate Lynch
On the Inchstones Podcast, host Sarah Kernion sits down with Kate Lynch to unpack the realities of neurodiversity and the often-overlooked struggles of parents raising profoundly autistic children. Their conversation sheds light on the systemic gaps in caregiving, the urgent need for inclusive education, and the power of community in navigating the challenges of autism. Through honest reflection and lived experience, they highlight how every child’s journey --- measured in inchstones, not milestones --- deserves recognition and respect. Together, Sarah and Kate call for a cultural shift toward acceptance, advocacy, and the celebration of differences, offering hope for a future where neurodivergent voices and families are truly supported. You can find and follow Kate's work on her Substack: Atypical Kids, Mindful Parents. Chapters (00:00:00) - Inch Zones: The Neurodiversity Community(00:06:12) - What Would Be the Level of Support for a profoundly autistic Child?(00:13:33) - One parent's story of autism and advocacy(00:18:13) - "They Won't Pay Taxes"(00:19:56) - Steve Ford on His Autism Comments(00:24:31) - Sarah on Being a Parent With a Different Child(00:29:17) - On Autism and the Teacher(00:34:15) - Autism and the support it needs(00:35:03) - Autism and the Struggle
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56
Neurodiversity and Endurance: What Profound Autism Motherhood and A Navy SEAL Share in Common
Navy SEAL veteran Sam Alaimo joins Inchstones host Sarah Kernion for a conversation that bridges two worlds: combat and caregiving. Together, they explore how the endurance, intuition, and community forged in military life parallel the realities of raising children with profound autism. Their dialogue dives into the power of choice in the face of adversity, the way grief reshapes identity, and the resilience required in motherhood. With honesty and depth, Sam shares how lessons from the battlefield illuminate the daily challenges of profound nonspeaking autism and neurodiversity, offering a perspective that redefines what strength and meaning look like when measured in inchstones. Chapters (00:00:01) - Sam Alaimo on What Then?(00:02:10) - How Do You Get Back From the SEAL(00:04:26) - In the Elevator With a Marine(00:07:32) - In the Elevator With Motherhood(00:11:51) - The Need for a Team(00:16:55) - On the Importance of Freedom(00:21:49) - The Science of Knowing Your Child(00:23:48) - In the Elevator With Autism on(00:26:28) - How I Learned To Love My SEAL Experience(00:30:36) - What is something now that you can, you know, even the(00:32:52) - In the Land of Loss(00:35:43) - The Caregiver Mother
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55
The Power of Self-Advocacy & Neurodiversity with Mother-Son Duo Valerie and Philip
Autism Mom Sarah Kernion sits down with mother-son duo Valerie Buccino and her son Philip for a conversation within the broader neurodiversity spectrum (while also addressing autism, apraxia, and the journey of profound autism.) Together, they explore the power of self-advocacy for individuals with learning differences, the importance of building true collaboration with educators, and the everyday strategies that have helped Philip thrive. Valerie, both an attorney and a mother, shares her perspective on why respect and understanding are essential in educational settings. Their story underscores the role of self-perception, the cultural barriers around asking for help, and the resilience required to pursue goals despite challenges—reminding us that every child’s progress deserves to be celebrated, one inchstone at a time. Chapters (00:00:00) - A Mother and Her Special Needs Advocate(00:01:12) - Phil's Self-Advocacy at School(00:09:53) - One mother's experience with working memory impairment(00:16:28) - Taking notes in the workplace(00:21:57) - Why We Have Such Anxiety About Asking for Help(00:28:16) - Philip's battle to become an engineer(00:34:50) - A Mother's Advice For Her Child
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54
Dental Care and Profound Autism: Inchstones with Dr. Sydnee Chavis
What if your child’s first dental visit was about more than teeth? In this episode of Inchstones, Sarah Kernion sits down with Special Needs Dentist, Dr. Sydnee Chavis, for a raw and real conversation about raising children with profound autism and apraxia. Together, they explore how personal experience with neurodiversity has shaped their work—one through dentistry, the other through financial strategy—and how every inchstone, from brushing teeth to building a care team, is a major milestone. They unpack what it means to advocate for children who are non-speaking, the emotional labor of showing up daily for kids with complex needs, and why accessible care—especially dental care—is often out of reach for families like ours. This episode also dives into the power of choice for disabled patients, the overlooked value of trauma-informed dentistry, and how to approach long-term financial planning without getting overwhelmed. Whether you're deep in the world of profound autism or just beginning to understand what apraxia looks like day-to-day, this conversation holds space for the mess, the magic, and the meaning behind the inchstones that define our families. Chapters (00:00:00) - Dental Care for Special Needs People(00:07:19) - How to keep a healthy mouth after a dental surgery?(00:10:35) - What would be the best directive as a parent to share with an(00:17:47) - Autistic Dentist: Counting in the Mouth(00:22:32) - Dental Care for Special Needs Families
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53
Navigating Nonspeaking Autism: Support for Families with Jordan Arogeti
When parenting meets profound autism, support needs to evolve—fast. On this episode of Inchstones, Sarah Kernion sits down with Jordan Arogeti, founder of Support Now, for a raw and honest conversation about what modern families actually need. From the realities of raising neurodivergent children—including those with apraxia or profound autism—to the deep loneliness many parents face, this discussion breaks through surface-level solutions and gets into the truth of caregiving in today’s world. They talk about how asking for help isn’t weakness—it’s survival. And how platforms like Support Now are reshaping how we view community support, especially in the autism and neurodiversity spaces. Whether you're raising a child with complex needs or trying to show up for someone who is, this episode offers a new framework for what real, meaningful support can look like—inch by inch. Chapters (00:00:00) - Coming Soon: Jordan Arighetti on Inch Stones(00:00:54) - How SupportNow Is Changing the Way Families Get Support(00:03:35) - Moms Are More Burnout Than Ever(00:09:45) - How to Support Yourself After Having a Child(00:14:23) - What Moms Need Most Postpartum(00:17:26) - A Special Needs Child's Joy List(00:23:01) - Millie Chipped Her Tooth at Camp(00:24:18) - On The Creation of a Support Now(00:27:09) - "Lend a Hand" to the World(00:28:32) - Lend a Hand: A Community of Support(00:30:29) - The End of Community Support
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52
How to Support Children with Autism & Neurodiversity in Medical Settings: Insights from a Pediatric Anesthesiologist, Dr. Chelsea Willie
When your child is autistic—especially when they have profound autism or neurodiversity, routine medical visits can feel anything but routine. On this episode of Inchstones, Dr. Chelsea Willie, a pediatric anesthesiologist and mom to a neurodivergent child, joins Sarah to break down how hospitals and clinics can better serve kids with autism. From sensory overwhelm to communication challenges, Dr. Willie shares what truly helps when it comes to medical care for neurodivergent kids—and how parents can advocate for what their child needs without burning out. Together, they talk about the small wins (INCHSTONES) that make a huge difference, the importance of trust between families and providers, and why it’s time to shift how medicine shows up for the autism community. Whether you're parenting a child with profound autism, navigating apraxia, or just starting your neurodiversity journey, this episode is packed with wisdom, validation, and practical strategies you can use today. Dr. Chelsea Willie is a Pediatric Anesthesiologist and Pediatric Intensivist at the Medical College of Wisconsin. Chapters (00:00:00) - Pediatric Anesthesiologist on Neurodivergent Procedures(00:05:44) - Dental Surgeon on Neurodivergent Surgery(00:11:09) - Pediatrics: The Care of Neurodivergers(00:13:44) - Autistic Dr. Phil on Safety and Care
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51
Mothering Through Loss: Resilience, Healing and Mental Health with Traci Kovacic
A reminder that even in our hardest seasons, we still have the power to choose how we show up, Sarah Kernion sits down with Traci Kovacic for a conversation about what happens when life throws you into the unimaginable—and how you keep going anyway. Traci opens up about the back-to-back tragedies that changed everything for her: losing her husband and nearly losing her daughter. She talks honestly about the messy, painful, and ultimately transformative process of grief, and how those experiences pushed her toward becoming not just a financial advisor, but an advocate for families navigating life after loss. Together, Sarah and Traci explore the intersection of motherhood, mental health, and the way we rebuild ourselves when the life we imagined disappears. This isn’t just a story of loss—it’s a story about finding love, purpose, and strength in the wreckage. And it’s a reminder that even in our hardest seasons, we still have the power to choose how we show up.
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50
Redefining Allyship: Autism Awareness and Neurodiversity in the Workplace with Julie Kratz
In this inspiring conversation, Sarah Kernion is joined by Julie Kratz—an acclaimed inclusive leadership trainer, TEDx speaker, and author of The Allyship Advantage: A Guide to Championing Inclusion in the Workplace. Together, they unpack what true allyship looks like, especially in the context of autism, neurodiversity, and workplace inclusion. Julie brings both professional expertise and personal insight to the table as she and Sarah discuss the myth of meritocracy, the real challenges marginalized communities face in traditional work environments, and how generational shifts are reshaping our understanding of diversity. She shares practical steps leaders can take right now to foster more inclusive cultures—beyond just policies or performative gestures. This episode is for anyone who wants to do better, be better, and make space for everyone—whether at work, at home, or in the world at large. It’s a powerful reminder that inclusion begins with curiosity, empathy, and the courage to lead differently. Her new book We Want You: An Allyship Guide for People with Power is out this Friday, Aug 8th: Order Here! Julie's work can all be found online on her website Next Pivot Point
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ABOUT THIS SHOW
Autism, neurodiversity, and parenting come together on Inchstones, where we illuminate the real lives of profound autism mothers and caregivers.
HOSTED BY
Sarah Kernion | Profound Autism Mom and Advocate for Neurodiversity
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