064 Living a life beyond complicated medical diagnoses and advocating for your health needs

Lots of medical terminology gets thrown around in this great conversation with Dana Benson. We’ll do our best to provide more information where we can.Hysterectomy is surgery to remove the uterus[www.nhs.uk]Renal Cell Carcinoma (RCC), also known as renal cell cancer, is the most common type of kidney cancer. About 9 out of 10 kidney cancers are renal cell carcinomas. If you’re told you have kidney cancer, it’s most likely to be a renal cell carcinoma. [American Cancer Society]Nephrectomy (nuh-FREK-tuh-me) is a surgery to remove all or part of a kidney. Most often, it's done to treat kidney cancer or to remove a tumor that isn't cancerous. [Mayo Clinic]Von Hippel-Lindau (VHL) https://healthcare.utah.edu/huntsmancancerinstitute/screening-prevention/von-hippel-lindau-clinic#vhl [University of Utah Huntsman Cancer Institute]Pheochromocytoma is a type of neuroendocrine tumor that grows from cells called chromaffin cells. These cells produce hormones needed for the body and are found in the adrenal glands. The adrenal glands are small organs located in the upper region of the abdomen on top of the kidneys. [National Cancer Institute]The BRCA gene test looks for DNA changes that increase the risk of breast cancer and ovarian cancer. It uses a sample of blood or saliva to look for the changes. DNA is the genetic material inside cells. It holds the instructions, called genes, that tell cells what to do. [Mayo Clinic]A Lipoma is a slow-growing, fatty lump that's most often situated between your skin and the underlying muscle layer.Paraganglioma is an abnormal growth of cells that forms from a specific type of nerve cell that's found throughout the body. These specific nerve cells (chromaffin cells) perform important functions in the body, including regulating blood pressure. [Mayo Clinic]Hemangioma also known as an infantile hemangioma or hemangioma of infancy, is a bright red birthmark. It looks like a rubbery bump or flat red patch and is made up of extra blood vessels in the skin. [Mayo Clinic]Colectomy is a surgical procedure to remove all or part of your colon. Your colon, part of your large intestine, is a long tubelike organ at the end of your digestive tract. Colectomy may be necessary to treat or prevent diseases and conditions that affect your colon. [Mayo Clinic]Hereditary leiomyomatosis and renal cell cancer (HLRCC) [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4574691/]Article refenced: “How a cheap, generic drug became a darling or longevity enthusiasts” Washington Post https://www.washingtonpost.com/business/2024/03/15/rapamycin-longevity-drug/#Huntsman Cancer Institute https://healthcare.utah.edu/huntsmancancerinstitute/VHL Alliance https://vhl.org/Mindful Mavens is produced in partnership with MadeLife (our amazing recording space) and Facilitated Wellness (where Steph & Anja both treat clients), both located in Boulder, Colorado.For more information, check them out athttp://madelife.comhttp://facwellness.comFind Mindful Mavens on Facebook and Instagram @‌mindful.mavens, email us at [email protected] or leave us a voice message at http://speakpipe.com/mindfulmavens , we’d LOVE to hear your voice!Music: “Into The Forest” by LesFM