112: Why Representation Matters within the Endo Community, with Julia Mandeville of Barbados

Amy speaks with Julia Mandeville about: —her research —how a lack of representation affects Black endometriosis patients —her hopes for the future of endometriosis care in the Caribbean. 🎤WHO IS JULIA MANDEVILLE?🎤 Julia is the co-founder of the Barbados Association of Endometriosis & P.C.O.S. She is currently a doctoral student and as part of her role as a graduate researcher, she is the project coordinator of several research studies investigating barriers to diagnosis for Black people with endometriosis and PCOS. She has focused much of her research and public health intervention efforts on investigating endometriosis in underserved populations, Black women in particular because the disease is not well studied in this population. In 2023, Julia was among the first group of recipients of the Mentoring for Anti-Racism and Inclusive Excellence (MARIE) program. With her MARIE grant, she seeks to further understand the specific barriers Black women with endometriosis encounter in terms of structural racism, systemic discrimination, and internalization of the Strong Black Woman schema. ☀️CONNECT WITH JULIA☀️ Instagram @endoandpcosbb ☀️CONNECT WITH AMY☀️ Instagram @in16yearsofendo Website: www.insixteenyears.com Like my show? Please rate it or leave a review! Support me by buying me a coffee: https://ko-fi.com/insixteenyears ⚠️DISCLAIMER⚠️ The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/