EPISODE · Mar 28, 2026 · 10 MIN
15 Tumours, One Diagnosis | Austen’s NF2 Story
from Aunty M Brain Tumours Talk Show · host Claire Bullimore
Austen was diagnosed with Neurofibromatosis Type 2 (NF2) in February 2025.After years of worsening balance and hearing issues, he was repeatedly told nothing was wrong — until an MRI revealed multiple tumours.At first, he was told there were four.Then eight.Then seven in his spine.A total of 15 tumours.In this honest and down-to-earth interview, Austen shares:• Being dismissed for years before finally getting answers• The shock of being diagnosed with a rare genetic condition• Finding out the full extent of his tumours in an unexpected moment• Living with hearing loss and balance issues• Starting lifelong treatment with Avastin• Making the decision not to have high-risk surgery• The uncertainty of symptoms — not knowing what is tumour-related• Fatigue and the reality of daily life with NF2• Leaving work to prioritise his health• The mental challenge of not knowing what the future holdsAusten speaks openly about how isolating rare conditions can feel — and why connecting with others who truly understand makes such a difference.He also shares how something as simple as getting a dog completely changed his life, giving him purpose, routine, and a reason to keep going.His message is simple:You can’t let it run your life. Just take it day by day.This episode is part of a 31-day series sharing real brain tumour stories for Brain Tumour Awareness Month 2026.If this episode resonates with you, please share it. Every story helps raise awareness.⚠️ Content note: This episode discusses brain tumour diagnosis, chronic illness, lifelong treatment, hearing loss, fatigue, and mental health challenges.
What this episode covers
Austen was diagnosed with Neurofibromatosis Type 2 (NF2) in February 2025.After years of worsening balance and hearing issues, he was repeatedly told nothing was wrong — until an MRI revealed multiple tumours.At first, he was told there were four.Then eight.Then seven in his spine.A total of 15 tumours.In this honest and down-to-earth interview, Austen shares:• Being dismissed for years before finally getting answers• The shock of being diagnosed with a rare genetic condition• Finding out the full extent of his tumours in an unexpected moment• Living with hearing loss and balance issues• Starting lifelong treatment with Avastin• Making the decision not to have high-risk surgery• The uncertainty of symptoms — not knowing what is tumour-related• Fatigue and the reality of daily life with NF2• Leaving work to prioritise his health• The mental challenge of not knowing what the future holdsAusten speaks openly about how isolating rare conditions can feel — and why connecting with others who truly understand makes such a difference.He also shares how something as simple as getting a dog completely changed his life, giving him purpose, routine, and a reason to keep going.His message is simple:You can’t let it run your life. Just take it day by day.This episode is part of a 31-day series sharing real brain tumour stories for Brain Tumour Awareness Month 2026.If this episode resonates with you, please share it. Every story helps raise awareness.⚠️ Content note: This episode discusses brain tumour diagnosis, chronic illness, lifelong treatment, hearing loss, fatigue, and mental health challenges.
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15 Tumours, One Diagnosis | Austen’s NF2 Story
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