154. Endometriosis and the Knowledge Gap with Rey

Amy speaks with Rey about various topics. We talk about: —the independent research project they spearheaded which is focused on illustrating how improving practitioner education will result in positive patient outcomes. —why they made the decision to leave their country to seek expert treatment elsewhere. —their experience with MHT/HRT. 🎤WHO IS REY?🎤 Rey (they/she) is an independent patient advocate dedicated to raising awareness and driving change in endometriosis care. After a strong suspicion they suffered with endometriosis, they became actively involved in online advocacy, sharing knowledge and supporting others navigating the complexities of the disease. They underwent their first surgery in the UK in 2021 which confirmed disease. In 2022, a second surgery (due to persistent symptoms) happened in Bucharest which confirmed previously missed disease, adenomyosis and fibroids. They have remained symptom-free since. As a stakeholder in the All-Party Parliamentary Group (APPG) for Endometriosis, they work alongside policymakers and experts to push for systemic change. Committed to long-term advocacy, their mission is to empower patients, challenge outdated narratives, and ensure endometriosis is recognized and treated effectively. 🔗Resources🔗 Clickable links at www.insixteenyears.com/episode154 🔗Download Rey’s report here 🔗HRT/MHT in Endometriosis Patients  ☀️CONNECT WITH REY☀️ Instagram @Reythewarrior ☀️CONNECT WITH AMY☀️ Instagram @in16yearsofendo Website: www.insixteenyears.com Like my show? Please rate it or leave a review! Support me by buying me a coffee: https://ko-fi.com/insixteenyears ⚠️DISCLAIMER⚠️ The information on my platforms is educational information only and not medical advice. Always check with your qualified medical professional before making any changes to your treatment plan. Keep in mind that while I strive to share evidenced-based information on endometriosis, this doesn’t always mean that my information is accurate or complete. Read my full disclaimer here: https://insixteenyears.com/disclaimer/