167. Allison Rosen (12 Year Early Age Onset Colorectal Cancer Survivor and Patient Advocate)

On today’s episode, I am speaking with Allison Rosen, a 12-year early-age onset colorectal cancer survivor who shares her story from diagnosis to advocacy. Allison talks about her symptoms, her diagnosis, treatment and survivorship. She opens up about the complex, often taboo, aspects of cancer treatment, including issues related to fertility, sexual health, and living with a permanent ostomy. Allison talks about the power of connection and advocacy. By sharing her story publicly, she has become a vocal advocate for colorectal cancer awareness, focusing on breaking stigmas and educating others through social media. Her posts, often infused with humor, aim to make difficult conversations about symptoms and screenings more approachable, encouraging younger people to advocate for their health. Allison shares incredible advice for those looking to step into advocacy, emphasizing authenticity and vulnerability as core to effective storytelling. Whether through social media or involvement in organizations, Allison illustrates how sharing one’s story can save lives and truly highlights the significant role of patient advocacy in improving survivorship, quality of life and cancer outcomes.