2.2 Year in Review 2023 - Hypermobility Edition

The Bendy Mommas continue the second season with a review of Zebra news from 2023.  Luna and Shelli’s wrap-up has all the news you missed pertinent to Hypermobility and the Ehlers-Danlos Syndromes. If you have any questions, comments, or suggestions for future episode topics, please send us a message (voice, audio, or video) to [email protected] or [email protected] Be sure to give us permission to use your likeness and if you want us to use your name, photo, or voice. References Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes - ScienceDirect Multiple Sustainable Benefits of a Rehabilitation Program in Therapeutic Management of Hypermobile Ehlers-Danlos Syndrome: A Prospective and Controlled Study at Short- and Medium-Term - ScienceDirect  Full article: Pilot study of an online-delivered mindfulness meditation in Ehlers-Danlos syndrome (hEDS): effect on quality-of-life and participant lived experience Research article Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis A novel mutation in collagen transport protein, MIA3 gene, detected in a patient with clinical symptoms of Ehlers–Danlos hypermobile syndrome Ehlers-Danlos Syndrome is Associated with Increased Rates of Adjacent Segment Disease Following TLIF: A Propensity Matched Study - ScienceDirect Sacroiliac joint fusion in patients with Ehlers Danlos Syndrome: A case series - ScienceDirect Outcomes Following Anterior Cervical Discectomy and Fusion in Patients With Ehlers-Danlos Syndrome - Jialun Chi, Jon Raso, Vaibhav Tadepalli, Lawal Labaran, Eunha Oh, Jesse Wang, Francis H. Shen, Xudong Li, 2023 Mike and Sofia Segal Family Foundation pledge $6.7 million to advance research - The Ehlers Danlos Society $2.375 million pledge from InVitro Cell Research, LLC (ICR) for research in hypermobile Ehlers-Danlos syndrome (hEDS) EDS Maternity Co-created Tools | hEDS Together 2023 Diagnostic Framework for Pediatric Joint Hypermobility - The Ehlers Danlos Society