EPISODE · Jul 18, 2025 · 43 MIN
23: Hypermobile Ehlers Danlos and ADHD / ASD: Part 1 - The physical mind-body link that explains why neurodivergents feel like sh!t
from Neurodivergent Report · host Sarah Russell & Hind AlEnezi
What’s the connection between chronic pain, misdiagnosis, and neurodivergent health? This week’s episode takes a deep dive into Hypermobile Ehlers-Danlos Syndrome (hEDS) and what it reveals about our healthcare system.On this episode of The Neurodivergent Report, we explore the complex genetic overlap between the neurodivergence spectrum and chronic health conditions, particularly hypermobile Ehlers-Danlos Syndrome (hEDS). From diagnosis delays to hormonal impacts and gender bias, we unpack what it's like to live in a body that’s often misunderstood.Curious what’s inside:What hypermobility actually is and why it takes so long to diagnoseThe strong genetic link between hEDS, ADHD, and autismHow gender hormones affect symptoms and careListen now for coping strategies, community support, and a vision for better systems of identification and care!Let us know your thoughts @ndreportpod on the socials.However you are able to engage, thanks for being here!Love, Sarah 💜📢 Connect with Us Follow 👉 @ndreportpod Apply to be a guest 🎤 ndreportpod.com📚 Resources for more on this topic:https://www.ehlers-danlos.com/https://www.edsrf.org/https://www.ehlers-danlos.com/heds-diagnostic-checklist/https://www.ehlers-danlos.com/assessing-joint-hypermobility/2021 Prevalence study: https://www.tandfonline.com/doi/full/10.2147/NDT.S290494#d1e1716. Sam's Research References: 1 Brittain, Mackenzie, et al. 2023. https://doi.org/10.1080/09638288.2023.2216028. 2 Buckner, Martin. 2014. Ehlers-Danlos syndrome: the role of acute inpatient rehabilitation. 3 Castori, Marco. 2012. https://doi.org/10.5402/2012/751768. 4 Csecs, J., Dowell, N., et al. 2021. https://doi.org/10.1002/ ajmg.c.31957 5 Csecs, Jenny, and Iodice, Valeria. 2022. https://doi.org/10.3389/fpsyt.2021.786916. 6 Dupuy, Emma G., et al. 2017. https://doi.org/10.3389/fnhum.2017.00283.7 Halverson, Colin M.E., et al. 2023. https://doi.org/10.1016/j.gimo.2023.100812. 8 Higo A, et al. 2023. doi:10.1002/ccr3.6821 9 Hsieh, Ru-Lan, et al. 2019. LWW Journals. journals.lww.com/md-journal/Fulltext/2018/05180/Short_term_effects_of_customized_arch_support.12.aspx. 10 Jensen, Anne, et al. 2020. journals.sagepub.com/doi/full/10.1177/0309364620956866. 11 Lusardi, Michelle, et al. (2012). Orthotics and Prosthetics in Rehabilitation, 3rd Edition. Saunders Publishing. 12 Pandey, Sanjay, et al. (2021). https://doi.org/10.1002/mdc3.13390 13 Russek, Leslie. (2022) https://www.jospt.org/do/10.2519/jospt.blog.20230917 14 Snowdon, Nicky, and Dadla, Sakina. (2023). https://doi.org/10.12968/ijtr.2022.0148
Embed this episode
NOW PLAYING
23: Hypermobile Ehlers Danlos and ADHD / ASD: Part 1 - The physical mind-body link that explains why neurodivergents feel like sh!t
No transcript for this episode yet
Similar Episodes
No similar episodes found.
Similar Podcasts
No similar podcasts found.