EPISODE · Feb 26, 2025 · 20 MIN
#27 - MEN1 & The Fraudulent Feeling – What No One Talks About (Patient Advocate & NCUK Ambassador)
from The MEN1 Mosaic · host Lizzie Dunn
Ever felt like a fraud when it comes to your health? Like you’re not “sick enough” to ask for help, or that others have it worse? In this episode, I sit down with Simon, a MEN1 patient advocate and NCUK ambassador, to unpack "the fraudulent feeling"—the struggle of living with an invisible illness while looking "fine" on the outside. We discuss: - How Simon went from a **diagnosis with no symptoms** to facing major health challenges - Navigating work, medical retirement, and the importance of self-advocacy - The **emotional toll** of MEN1 and why patients often feel like impostors - How to balance resilience with asking for help - Practical advice for creating a support network and working with your medical team Join the conversation and know that you’re not alone. Join my close MEN1 community for support & discussions hereABOUT OUR GUESTSimon is a NCUK ambassador and MEN1 patient advocate. He writes fantastic blog articles from time to time. Click the links below:Finding a New Role in Life After CancerThat Fraudulent FeelingAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.
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Ever felt like a fraud when it comes to your health? Like you’re not “sick enough” to ask for help, or that others have it worse? In this episode, I sit down with Simon, a MEN1 patient advocate and NCUK ambassador, to unpack "the fraudulent feeling"—the struggle of living with an invisible illness while looking "fine" on the outside. We discuss: - How Simon went from a **diagnosis with no symptoms** to facing major health challenges - Navigating work, medical retiremen...
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#27 - MEN1 & The Fraudulent Feeling – What No One Talks About (Patient Advocate & NCUK Ambassador)
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