The MEN1 Mosaic

PODCAST · health

The MEN1 Mosaic

Welcome!This podcast's mission is to raise the quality of conversation in MEN1, opening the floor to diverse, unique and much needed perspectives, each a valuable piece in this 'mosaic.'With guest speakers encompassing patients & practitioners from all over the health-sphere, join a curious, open-minded & engaging discussion amongst a different kind of rare-disease community.Click this link and receive the next episode straight to your inbox: https://lizziedunn.kit.com/men1mosaicpodcast *This page and any affiliated content is designed to educate and inform, not to provide medical or health advice. Always consult a qualified, medical professional, especially before making any changes to your diet, exercise or lifestyle.*

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    #59 - MEN1, Medicine & Mistrust: Why Patients & Doctors Misunderstand Each Other (Top Consultant)

    Ever left an MEN1 appointment feeling more anxious than when you went in? – Season 2, Episode 9Professor Maralyn Druce, leading London Consultant Endocrinologist, joins me for an honest conversation about where tension, mistrust, and misunderstanding can quietly grow between patients and clinicians — particularly in rare disease care.We explore:• Why MEN1 so often exists in a grey zone of uncertainty rather than clear answers • How “watch and wait” can feel profoundly different for patients versus doctors • The anxiety many patients carry between appointments, tests, and scans • Why feeling unheard doesn’t always mean someone isn’t listening • How better outcomes depend on partnership, trust, and shared responsibilityAbout our guest: Professor Maralyn Druce is a Consultant Endocrinologist specialising in both general and complex endocrine conditions, including thyroid, adrenal and pituitary disorders, neuroendocrine tumours, and inherited syndromes such as MEN1. She is known for her holistic, patient-centred approach and her commitment to ensuring patients fully understand their management options. Professor Druce is also a senior medical educator, serving as Deputy Dean for Education and Head of Governance for undergraduate MBBS and dental programmes at Barts and the London, Associate Dean for Undergraduates at St Bartholomew’s Hospital, and Founder and Director of the Postgraduate Diploma and MSc programmes in Endocrinology at Queen Mary University of London. She trained at the University of Cambridge and University College London, completed specialist training at Hammersmith and Barts Hospitals, held a Wellcome Trust Clinical Research Fellowship, and was awarded a PhD in physiology at Imperial College London focusing on gut hormones and energy regulation. Find out more about Professor Druce here.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #58 - Your Mind Is Running Your Disease – Here's How To Rewire It (Master Neuroplastician & Author)

    If I subconsciously created my dis-ease, does that mean I could consciously un-create it? – Season 2, Episode 8Matt Rowe, Master Neuroplastician & Author, went from paralysis and doctors warning a wheelchair for life to walking, thriving and completing an Ironman. Today he shares how rewiring your brain and reclaiming your power can change not just your mindset, but your biology.In this episode:• The “no-cebo effect” hiding in every diagnosis• Why your subconscious is running the show (and how to reprogram it)• How to feed possibility into your cells, not limitation• A practical 1% path to rewiring your nervous system & your dis-ease• The reason some patients follow their prognosis but others manage to defy itAbout Out Guest:Matt Rowe is a Master Neuro-Plastician, author of Belief to Heal, and dedicated guide in the field of mind-body transformation. After overcoming paralysis to complete an Ironman, Matt now teaches others how to harness the brain’s power to heal and thrive. Blending science and spirituality, he empowers individuals to rewire limiting beliefs and step into their highest potential. As a meditation and Reiki practitioner, Matt helps people reconnect with inner peace and natural healing energy. His mission is to inspire hope, resilience, and the belief that healing is not only possible—it’s a daily practice and choice. Receive a free 30-minute healing session with Matt hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #57 - Before You Go For Genetic Testing, Listen To This (UK Consultant Clinical Geneticist)

    What if your genetic test revealed something you weren't prepared for? – Season 2, Episode 7Dr Fiona Lalloo is one of the UK’s leading Consultant Clinical Geneticists—and the first genetics expert to join me on the podcast. In this episode, Fiona explains why testing isn’t always as straightforward as we think, where private patients fall into nasty traps, and how the NHS approach to MEN1 can offer crucial long-term support.Tune in to find out:• The potential dangers of rushing into private genetic testing• Why genetic counselling is NOT therapy (but many get confused)• How gene inheritance works—and what it means for your family• Why MEN1 is an unpredictable disease unlike many others• How to take advantage of the NHS support you may not know existsABOUT OUR GUEST:Dr Fiona Lalloo is a consultant in Cancer Genetics. She qualified from Newcastle University in 1990 and trained in adult medicine before moving into Genetics in 1994. Her MD was undertaken on the genetics of breast and ovarian cancer. She was appointed consultant in 2001. She has been involved at a national level with the recruitment of trainees into clinical genetics and is currently Chair of the Cancer Genetics Group. Dr Lalloo is involved with teaching of both undergraduates and postgraduate medicine devising, instigating and running the first national course on cancer genetics. She has maintained her research interest in breast and ovarian cancer and is the author of “Genetics for Oncologists”. Her clinical interests include breast, ovarian and bowel cancer and endocrine malignancies. She is currently Clinical Lead for Genetic Medicine.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #56 - No Boundaries, No Health – How Relationships Dictate Disease (Psychotherapist & Trauma Expert)

    What if MEN1 weren't just a physical disease? - Season 2 Episode 6In this conversation, I sit down with psychotherapist and trauma expert, Benjamin Fry, to explore how unresolved emotional patterns, co-dependent relationships, and a lack of boundaries might be the missing piece in your healing journey.In this episode:• Why boundaries are about you and never the other person• Who's responsible for my health – the doctor or me?• Why your inner child shows up in adult situations• How trauma and triggers keep your nervous system stuck• Why the history of medical practice should worry usHealing starts when you stop waiting to be rescued and start to rescue yourself.ABOUT OUR GUESTBenjamin Fry is a psychotherapist, author, and founder of Khiron Clinics. He specialises in trauma recovery and relationships, combining personal experience, clinical training, and thought leadership. He is the author of The Invisible Lion and the founder of Televagal, a mental health tech platform for therapists. To be notified about the release of Benjamin's new book, Re-pair, click here and register for email updates.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #55 - Inherited Disease or Inherited Trauma? Genes Won't Explain THIS (Trauma Expert & Medical Doctor)

    Could your disease be trauma, passed down through generations? - Season 2, Episode 5Today, Dr Aimie Apigian completely reshapes how I understand MEN1 and genetic disease in general. We explore the science of inherited trauma, the role of the nervous system in healing, and why traditional approaches to physical illness often fall short.Listen to find out:• Why your genetic diagnosis might be missing the real root cause• The single system controlling all your symptoms (and how to regulate it)• How stored trauma can literally trigger disease in the body• What healing looks like (when the body leads, not the mind)• Why praise for 'resilience' could be dangerous for your healthIf you've ever wondered why your body lets you down, even when your mind is doing everything right,  this one is for you.About Our Guest: A Preventive and Addiction Medicine physician with Master’s degrees in both biochemistry and public health, Dr. Aimie Apigian is the national bestselling author of The Biology of Trauma. She hosts her podcast, leads online nervous system healing courses and a practitioner certificate training program. Bridging the worlds of functional medicine, attachment and trauma, she is a leading expert on how the body holds fear and overwhelm from the past to make one sick today.Find Dr Aimie's #1 Besterseller on Amazon: Click hereConnect with Dr Aimie here:Instagram: Click hereLinkedIn: Click hereYouTube: Click hereWebsite: Click herePodcast: Click hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #54 - Exhaustion in MEN1? Bloods Won't Flag THIS (Senior CBT Therapist & VHL Patient)

    If you’ve ever spiralled after a scan, Googled symptoms until 2am, or felt like no one gets how exhausting it is to be so proactive all the time, this episode is for you. (Season 2, Episode 4)Today I speak with Ed, a senior CBT therapist and VHL patient, about the subtle ways that chronic conditions like MEN1 can hijack our peace of mind. We talk about the pressure to do everything perfectly, how control becomes a coping mechanism, and why anxiety might be presenting as physical fatigue.In this episode: • When concern for your health becomes unhealthy obsession • Why exhaustion might not be your disease but your need to control it • How your disease can become your identity and limit your life • Why purpose brings you back the power your diagnosis took away • How to overcome perfectionism (a leading cause of stress)About Our Guest: Edward started his career in mental health first as a Psychiatric Nurse and then as a Cognitive Behavioural Psychotherapist, specialising in the treatment of severe psychological disorders. He has worked as a senior therapist in specialist National Services for Obsessive Compulsive Disorder, Health Anxiety, Body Dysmorphic Disorder and related conditions and has supervised many colleagues and trainee therapists. For the last five years, he has worked privately after setting up his own practice. Throughout this time, he has also been treated himself for a severe health condition called VHL, kept alive after various surgical procedures and medical treatments. This dual experience has led to a deep interest in how therapy principles can best apply to the challenge of living with chronic physical illness.You can contact Edward here: [email protected] you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #53 - “Why You Still Don’t Feel Heard—And How to Fix It” (Private Patient Advocate & Medical Doctor)

    Ever left a medical appointment feeling dismissed, judged, or totally unheard? - Season 2, Episode #53I speak with Dr Elena Borelli, a former Doctor of Medical Science turned Private Patient Advocate. She explains what’s really happening behind the scenes when patients feel ignored, how medical records can perpetuate harmful bias, and what to say (and not say) in high-stakes appointments.We also explore second opinions, how to prepare for consultations, and what to do if you’ve been told your condition is just too rare for care. Elena brings compassion, clarity, and an empowering middle path—especially for those caught between wanting answers and losing faith in the system.What we cover: – Why rare disease patients often feel unheard – How to prepare for appointments that actually go somewhere – The truth about second opinions and mislabelled records – What to do if you’re feeling dismissed by a provider – How private patient advocates can help (and when to get one)For anyone navigating rare, chronic, or complex illness—this one’s for you.About Our GuestDr. Elena Borrelli DMSC, MS, PAC is the founder of Pathway Patient Advocates. She has over 20 years of experience in the medical field in both clinical and administrative settings. Apart from her experience in professional practices, Dr. Borrelli has encountered frustration and discrepancies while personally navigating the health care system. Her passion is to help patients better understand the overwhelmingly confusing medical system. Dr. Borrelli has experience in a variety of healthcare settings. Her main focus is to assist clients who are dealing with rare disorders, cancer, or undiagnosed symptoms. It is her compassion, experience, and determination that set Pathway Patient Advocates apart from the rest.Social Media Links:Instagram: @pathwaypadvocatesFacebook: Pathway Patient AdvocatesYoutube: Pathway Patient AdvocatesTiktok: Pathway Patient AdvocatesLinkedIn: Pathway Patient Advocateswww.pathwaypa.comAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #52 - “Patients Are Getting Worse, Not Better” – But Why? (UK Nurse & Carnivore Lifestyle Advocate)

    "The realm of nutrition science is probably the last place you should look." Season 2, Episode 2Lucy Fabbri—UK nurse and carnivore health advocate—shares how witnessing the realities of modern healthcare pushed her to rethink everything she knew about nutrition. From chasing blood sugars with insulin to being told patients with type 2 diabetes should eat more carbs, she began asking: what if everything we've been told is wrong?In this episode:• Why so-called 'healthy' porridge could be the worst way to start the day• How humans evolved eating animal protein, making plant-diets non-sensical• How a Carnivore diet provides all essential nutrients• The biased and flawed evidence behind our food pyramid & Eat Well Plate• How hospitals are making patients more unwell without realising itAbout Our GuestLucy Fabbri is a UK-based registered nurse and carnivore health advocate. After personal struggles with fatigue and conventional dietary advice, she turned to a meat-based diet—and saw her health transform. She now helps others do the same through her Fuelled For Life programme, empowering people to reclaim their health through a species-appropriate, nutrient-dense way of eating.Download Lucy’s free e-book hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #51 - Why Are We Treating Wellness Like A Luxury? (Reiki Master & Holistic Therapist)

    "By the time you need it, it's too late. Be ahead of burnout." - Season 2, Episode 1At just 12 years old, Anna’s life was changed by acupuncture. Now a Reiki Master and holistic therapist, she shares how complementary therapies helped her recover from chronic illness and reconnect with her intuition. Together, we explore the healing power of energy work, scent, body awareness—and why Western medicine still doesn’t tell the whole story.In this episode: • How acupuncture helped put Anna's chronic symptoms into remission• What Western medicine still doesn’t fully understand• How to choose the right complimentary therapies for you (and not waste time or money)• Which traps to avoid (that social media marketing doesn't want you to see)• How to 'justify' spending money on things that feel like a luxury, not a necessityAbout Our Guest Anna is a Reiki Master and holistic therapist based in London. She offers Reiki, massage, and Aromatherapy sessions—both in person and online—blending various holistic modalities to create fully tailored wellbeing journeys. She often works with women, particularly around long-standing conditions and mental health.Website: www.freeflowholistic.co.ukEmail: [email protected]: 07591 410 658Instagram: @freeflowholisticAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #50 - What The Food Industry Isn't Telling You (Vegan Chef & Food Company Co-Founder)

    What if the food you trust most is the thing making you feel worse?In this honest and inspiring conversation, Sarah and I talk about healing chronic symptoms through food, what’s really in the products on our shelves, and why reconnecting with nature might be one of the most powerful shifts we can make.In this episode: • From processed to plant-based: how Sarah’s health transformed • Behind the scenes of the food industry • Why “vegan” doesn’t always mean healthy • The anxiety–altruism connection (and how to find purpose) • Tips for navigating food choices without fear or dogmaAbout our guest: Sarah Wright is an international yoga teacher, plant-based chef, and founder of Nuve Foods, where she helps people heal through whole-food nutrition and mindful movement. Her own journey began with yoga to support her anxiety, eventually leading to a deeper connection between food, body awareness, and emotional wellbeing.Sarah also hosted Modern Wellbeing, a podcast exploring sustainable living, holistic health, and conversations with forward-thinking entrepreneurs and nutritionists. She now blends intuition with nourishment—advocating for clean, minimally processed ingredients and empowering others to listen to what their bodies truly need.Connect with Sarah hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #49 - Rebuilding Who You Are When Illness Takes Everything (Self-Love Expert, Purpose Coach & Kundalini Yoga Teacher)

    What happens when your life no longer feels like home?In this soft, soul-level conversation, Diwa and I explore the identity shifts that happen when illness, change, or pressure pull you away from your authentic self. We talk about how to come back to your body—gently, compassionately, and without judgment.In this episode: • Illness, identity loss, and the grief of change • What to do when your body doesn’t feel safe • Kundalini yoga and the release of stuck emotions • Boundaries, self-permission, and everyday self-love • Why community and vulnerability are key to healingDiwa’s work supports women—especially travelling partners—who are navigating emotional transitions, inner disconnection, or simply yearning for more joy. Connect with her here.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #48 - This Is How Dogs Mirror Dis-ease (Animal Communicator & Energy Practitioner)

    Could your dog’s behaviour—or even their health—be reflecting what’s going on inside you?In this eye-opening episode, animal communicator and energy practitioner Viviana reveals how our dogs often mirror our emotional wounds, energetic imbalances, and stress. Whether it’s anxiety, illness, or “bad behaviour,” what if your dog is actually showing you something about you?In this conversation, we explore:How your dog may be absorbing your stress or traumaThe energetic connection between humans and animalsWhy gut health is key to your pet’s emotional and physical well-beingHow to support your dog’s true nature in a human worldAbout Our Guest: Viviana is an animal communicator, energy healer, and founder of Skool of Drool. Her work helps dogs and their guardians reconnect through intuitive communication, bodywork, and energetic healing—so both can live in alignment, authenticity, and health. Connect with Viviana here.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #47 - Pancreas Problems? How to Eat Without Fear (Yasmin Chotai de Lima, Clinical Dietician)

    How do you eat well when your pancreas isn’t playing ball?Clinical dietitian, Yasmin Chotai de Lima, joins me on the MEN1 Mosaic Podcast to unpack some of the most misunderstood issues around food, digestion and low blood sugar in MEN1 and neuroendocrine cancer.We cover:The truth about 'carcinoid trigger foods'What to do if you've had pancreatic surgery (or haven't—but still have gut issues)What PERT is, why it matters, and how to navigate UK shortagesHow to manage insulinomas or blood sugar crashes while protecting long-term healthWhy trusting your gut matters when faced with confusing or conflicting adviceYasmin Chotai de Lima is a registered clinical dietitian based at the Royal Free Hospital, London, where she specialises in supporting people with neuroendocrine cancer. Her expert knowledge and calm, compassionate approach have helped many patients navigate some of the most complex dietary challenges that come with these rare conditions.Learn more about Yasmin’s work here.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #46 - Early Signs in the Mouth: Listen Up, MEN1 Parents (Dr Steffan Decker, Specialist Orthodontist)

    What if the first signs of a child’s health issues weren’t in the blood—but in their breathing, jaw, or even sleep? I didn’t realise just how much oral health and orthodontics had clashed with my own MEN1 journey until I met Dr Steffan Decker. In this episode, he explains why mouth breathing, tongue position, and under-treated dental issues may be doing more than just affecting our smile—and why UK families might be missing crucial opportunities to intervene early. • Why mouth breathing matters far more than we’ve been told • How misdiagnosed orthodontic problems may mask deeper health issues • What MEN1 parents should know about sleep, growth, and jaw development • Why functional screening is worth doing—even if treatment comes later • How other cultures (and healthcare systems) approach this very differentlyDr Steffan Decker is a specialist orthodontist and airway-focused practitioner with clinics in London and Amersham. He combines orthodontics with cranial osteopathy, breathing therapy, and myofunctional approaches—treating patients not just for aesthetics, but for long-term stability and health.Visit Dr Decker’s website hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #45 - The Truth About Carbs, Cravings & Control (Christina Lile: Diabetic Health Consultant, Registered Nurse & Diabetes Patient)

    What if blood sugar swings aren’t just about what you eat—but how and why you eat it? Christina Lile is a diabetic health consultant, registered nurse, and type 1 diabetic with over 40 years of lived experience. In this episode, we talk honestly about food, freedom, blood sugar, and how to stop letting health advice make you feel small.We cover:Why eating carbs isn’t the enemyWhat binging and guilt really meanHow exercise, hormones, stress and weather affect blood sugarWhy personalised care must include mindset and curiosityHow Christina built a life and business around what the system didn’t teach herChristina’s approach is refreshingly real, radically empowering, and rooted in community. Whether you’re navigating MEN1, diabetes, or just sick of cookie-cutter solutions, this episode will give you the permission you didn’t know you needed.Learn more about Christina’s work:https://mynurseadvocatecoaching.comAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #44 - This Will Change How You See Chronic Disease Forever (Dr Erin Hayford: Naturopathic Doctor, Somatic Practitioner & Former Crohn's Disease Patient)

    What if your chronic disease symptoms aren't just physical—but the result of a nervous system stuck in survival mode? In this deeply personal and thought-shifting conversation, I speak with Dr Erin Hayford, a naturopathic doctor and somatic practitioner who has lived on both sides of the healing journey. From being bedbound with Crohn’s disease to exploring what it really means to feel safe in your body, this episode dives into why trauma, people-pleasing, and misalignment with self can all play a role in how chronic illness expresses—and what can actually help.Key takeaways:How nervous system dysregulation affects chronic illnessThe emotional root of symptoms (even in genetic conditions)Why food fear and over-restriction might be doing more harm than goodA simple technique to reconnect with your body and calm your systemLearn more about Dr Erin Hayford and her work at:https://www.drerinhayford.comAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #43 - Getting MEN1 Parathyroid Surgery Right First Time (Professor Fausto Palazzo, Leading UK Endocrine Surgeon)

    What does good parathyroid surgery look like for someone with MEN1? In this rare interview, leading UK endocrine surgeon Professor Fausto Palazzo shares what really matters — from timing and surgical options to what you should know before and after the operation.Whether you’re newly diagnosed or weighing up next steps, this episode will help you feel informed, empowered, and ready to ask better questions.You’ll learn:Why MEN1 surgery isn’t the same as non-MEN1What “success” means for MEN1 parathyroid surgeryThe biggest pitfalls to avoidRecovery tips most patients don’t hearWhen surgery during pregnancy might be necessaryABOUT OUR GUEST - Professor Fausto Palazzo is a leading UK endocrine surgeon specialising in parathyroid, thyroid, and adrenal surgery. Based in London, he is known internationally for his expertise in complex endocrine conditions and syndromes like MEN1. Professor Palazzo leads the endocrine surgery service at Hammersmith Hospital and regularly contributes to research, education, and multidisciplinary care.Website - click here.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #42 Why Fixing the Gut Changes EVERYTHING! (Dr Pinelopi Chrysikou, Functional Medicine Doctor & Lifestyle Medicine Specialist)

    Could your gut be the missing piece in your MEN1 health journey? Dr. Pinelopi Chrysikou, a Functional Medicine and Lifestyle Medicine Specialist, shares groundbreaking insights into the gut’s role in immunity, inflammation, hormone balance, and overall health. We dive into why gut health is crucial for chronic conditions, the real impact of food intolerances, and practical steps to start healing from within.00:00 Introduction and Guest Welcome00:42 Understanding Functional Medicine03:37 The Importance of Gut Health04:19 Identifying Deficiencies and Their Causes05:44 The Role of Stress and Nutrition10:20 Autoimmunity and Gut Health15:18 Functional Medicine in Practice15:30 Consultation and Costs18:31 Patient Experiences and Success Stories27:21 Conclusion and Contact InformationABOUT OUR GUEST:Dr Pinelopi Chrysikou is a highly regarded lifestyle medicine specialist with a focus on integrating holistic, science-based approaches to optimise health and well-being. Her main areas of expertise include sleep disorders, anxiety management, lifestyle medicine, functional medicine, nutrition, as well as homeopathy. With extensive training and experience in both conventional medicine and lifestyle medicine, she takes a comprehensive approach to healthcare, emphasising prevention, disease management, and overall wellness through lifestyle interventions. Dr Chrysikou is deeply committed to the belief that the root causes of many chronic diseases, such as heart disease, diabetes, and obesity, can be addressed and even reversed by adopting healthier lifestyle habits.Her practice revolves around educating and empowering patients to make meaningful changes in areas such as nutrition, physical activity, stress management, sleep quality, and emotional well-being. By combining medical expertise with practical, sustainable lifestyle strategies, Dr Chrysikou offers patients a personalized pathway to improved health. Her expertise in nutrition is one of the cornerstones of her practice.Dr Chrysikou provides tailored dietary plans that focus on whole, nutrient-dense foods, helping patients improve their metabolic health, manage weight, and reduce the risk of lifestyle-related diseases. She is an advocate for plant-based nutrition, recognizing its potential in reducing inflammation, improving cardiovascular health, and supporting overall vitality.https://www.holistichealthplus.gr/cv/Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #41 - Why Your Gut Microbiome NEEDS Fermented Foods (Janice Clyn - Food Scientist & Health Educator)

    Gut health expert and food scientist Janice shares her passion for fermented foods and explains how they transform our microbiome, health, and even our food cravings. She reveals how our gut bacteria influence everything from inflammation to immune function and mood.• Just one tablespoon of fermented food daily can dramatically impact gut health• Our gut houses trillions of microbes that fight inflammation, heal gut lining and produce 90% of serotonin• 70% of our immune system is in the gut with microbes instructing immune cells what to do• Modern processed foods, emulsifiers and additives damage the gut microbiome• Aim for 30 different plant foods weekly rather than eating the same limited selection• Food cravings originate from gut bacteria - unhealthy microbes demand sugar while beneficial ones crave nutritious foods• Restrictive diets and stress about food choices can damage gut health• Listen to your body's intuition rather than following rigid dietary rules• Even beginners can make fermented foods as "the microbes do the cooking for you"Find Janice on Instagram @benourishedbynature, on Facebook at Nourished by Nature UK, or join her wellness hub for £12/month at nourishedbynatureuk.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #40 - Is Stress Making Your Disease Worse? (Dr Gail Sharman, Functional Medicine Doctor)

    How does stress affect your body, and what can you do about it? In this episode, I sit down with Dr. Gail Sharman, a functional medicine doctor specialising in stress and anxiety, to explore how our thoughts, emotions, and lifestyle choices impact our health. We discuss the mind-body connection, the role of nutrition, and practical ways to reduce stress and build resilience—which I relate back to my journey healing MEN1.ABOUT OUR GUEST:I have had careers as both a qualified medical doctor and lawyer,  and I know all too well the demands of a high-pressured job as well as that of a mother.I am a Certified Functional Medicine doctor having trained with Dr Georges Mouton who is an internationally renowned pioneer of Functional Medicine. I completed a postgraduate training course with the BSEM (British Society of Ecological Medicine) in collaboration with the ACNEM (Australian College for Nutritional and Environmental Medicine), which is fully accredited by the Royal Australian College of General Practitioners (RACGP).I have additional qualifications in coaching and NLP (Neuro-Linguistic Programming).The coaching I am trained in is as follows:· Resilience Coaching· Confidence Coaching· Neuroscience and Coaching· Mindfulness· Behavioural Coaching with Acceptance and Commitment TherapyI have a passionate interest in the integrative approach to health and the impact of stress on our bodies as well as how our physiology can affect our minds.Having started my practice in Hong Kong, I now see patients either privately at my office in London or via skype/zoom. Reach out to me here.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #39 - Can You Choose to Heal? One Woman’s Profound Experience (Scientist & Former Cancer Patient)

    In this deeply moving episode of the MEN1 Mosaic Podcast, I sit down with my friend Kathryn to explore the powerful intersection of science, spirituality, and self-healing. Kathryn shares her incredible journey—from a life-changing diagnosis of kidney cancer to a profound near-death experience that shifted her entire perspective on health, fear, and the power of belief.We dive into:- How stress and emotional trauma can manifest in the body- The profound experience that changed Kathryn’s outlook on healing- Why self-trust and intuition play a crucial role in health- The role of energy work, reiki, and spiritual connection in her recovery- How science is beginning to validate what ancient traditions have long knownKathryn’s story is a testament to the idea that healing is not just physical—it’s mental, emotional, and even spiritual. Whether you’re navigating MEN1 or any other health challenge, this episode will inspire you to consider the role your mind and beliefs play in your healing journey.ABOUT OUR GUESTKathryn calls herself ‘a helper to those seeking a more spiritual path’ and specialises in healing limiting beliefs, past traumas, energy healing, physical, spiritual & emotional.Reach out to Kathryn hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #38 - The Gut-Brain Connection: How Nutrition Can Shape Endocrine Health (Nutritional Psychiatrist)

    Can what you eat really impact your mental and endocrine health? Dr. Pratima Singh, a consultant psychiatrist with a passion for functional medicine, joins me to uncover the powerful connection between gut health, mental well-being, and chronic illness. We explore why nutrition is more than just food, how inflammation plays a hidden role in disease, and why healing is as much about mindset as it is about medicine.In this episode, we discuss:- How gut health directly affects brain function and mood- The surprising role of inflammation in mental and physical illness- Why conventional medicine often overlooks nutrition in treatment plans- The power of intuitive eating vs. lab-based dietary changes- How to take the first steps toward a whole-body healing approachRESOURCESInstitute for Functional MedicineFeel Better Live More Podcast (Dr Rangan Chatterjee)ABOUT OUT GUESTDr Pratima Singh is an experienced psychiatrist withvast clinical experience in the UK since 2004. Shecompleted her training from Maudsley training schemeand worked as a consultant psychiatrist at SouthLondon and Maudsley NHS trust before moving toHertfordshire partnership NHS foundation trust towork as a community and adult psychiatristDr Singh's clinical interests lie in exploration of rootcauses of mental health conditions and in designingpsychological , spiritual and biomedical protocols thatconsider the individual, their unique circumstancesand needs.She has also trained under Institute ofFunctional medicine and strives to integrate the best ofconventional psychiatry with in-depth exploration ofnutritional, hormonal, stress or trauma related, toxicand infectious underlying causes of chronic mentalhealth symptoms. She works as a NHS psychiatristand also as an integrative psychiatrist at a functionalmedicine polyclinic.Clinical Practice: www.DrIndra.co.ukTalks: pratimasingh.com Twitter: @dr_pratimasinghAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #37 - Bloating, Cramps, Fatigue? Your Gut Might Be Screaming for Help (Yoga Teacher & Gut-Health Enthusiast)

    In this episode, I sit down with my close friend Emily to dive deep into the world of gut health. Emily shares her personal journey from years of digestive discomfort, bloating, and unexplained fatigue to finally discovering what was triggering her symptoms—and how she turned her health around.We discuss:- How gut health impacts energy, mood, and overall well-being- The connection between anxiety and digestive issues- Why exclusion diets can be a game-changer—and how to start one- The biggest mistakes people make when trying to heal their gut- What Emily wishes she had known years ago about food and the bodyIf you’ve been struggling with persistent gut issues and don’t know where to start, this episode is packed with insights that could make all the difference.Reach out to Emily hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #36 - Watch & Wait or Operate? A Top Surgeon Weighs In on MEN1 (Senior Endocrine Surgeon)

    When is the right time for surgery in MEN1? Should you act early or wait? The decision isn’t as straightforward as it seems—and even the world’s top experts don’t always agree. In this episode, I’m joined by Dr. David Scott-Coombes, a leading parathyroid surgeon, to dive deep into one of the most debated topics in MEN1 care.What You’ll Learn in This Episode:- Why timing is everything when it comes to parathyroid surgery.- The risks of early intervention vs. the risks of waiting.- What happens during MEN1-related parathyroid surgery.- The role of multidisciplinary teams (MDTs) in surgical decision-making.- What patients can do to ensure the smoothest surgical experience.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #35 - What Doctors Really Think About the NHS (You May Be Surprised!) [A&E Doctor & Clinical Fellow]

    In this episode, I sit down with Dr Kunmi George, an A&E doctor, to uncover the realities of the UK healthcare system. We dive into:- What’s working and what’s broken inside the NHS- Why waiting times are so long and how emergency cases are prioritised- The hidden challenges doctors face daily that patients rarely see- How patients can make their healthcare journey smoother- Lessons from global healthcare systems—what the UK does better (and worse)If you’ve ever wanted an honest, inside perspective on the NHS, this episode is for you.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #34 - Doctors Said ‘No Evidence’ – But My MS Recovery Proved Otherwise (Multiple Sclerosis Patient)

    When Cesca was diagnosed with multiple sclerosis (MS) in 2008, she was given the standard medical outlook—no known cure, disease-modifying drugs, and an uncertain future. But instead of accepting a path of inevitable decline, she took matters into her own hands.In this episode, Cesca shares how she turned to functional medicine, diet, and stress management to transform her health, despite neurologists telling her there was “no evidence” these changes would help. Sixteen years later, she remains stable with no new disease activity—defying expectations and proving the power of a proactive approach.We talk about:- How MS symptoms first appeared and what led to her diagnosis- Why she chose to look beyond conventional treatments- The key lifestyle changes that made the biggest impact- How she handles setbacks and maintains balance- The importance of patient-led health and advocating for yourselfThis is a must-listen for anyone navigating a chronic condition and wondering if there’s more they can do.ABOUT OUR GUEST"I am in my seventh decade and over the past fifty years have had several careers: Barrister-at-Law; merchant banker; children's charity CEO; and interior designer. I worked full-time for most of the time my three children were growing up. I live part-time in London and part-time in the Cotswolds. I continue to work part-time and live a full and healthy life."Reach out to Cesca hereRESOUCESWork with Matt Rowe hereWork with Dr Georges Mouton hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #33 - They Told Me I Was Just a Tired Mum… Then I Got an MEN1 Diagnosis (MEN1 Patient)

    For years, Holly was exhausted—so tired she could barely get through the day. Like so many others, she was told it was just the reality of being a busy mum. But deep down, she knew something wasn’t right. When a routine blood test revealed high calcium and parathyroid hormone levels, everything changed. What followed was a whirlwind of tests, miscommunication, and self-advocacy that ultimately led to an unexpected MEN1 diagnosis at 41.In this episode, Holly shares:- How she pushed for answers when doctors dismissed her symptoms- The shocking moment she learned she had MEN1—and how she found the right information- The importance of advocating for specialised care (and why she refused to settle for less)- The unexpected challenges of navigating genetic testing and family implications- Why she believes every patient needs to empower themselves and ask questionsIf you’ve ever felt unheard in your health journey, this episode is a must-listen.RESOURCESReach out to Holly hereMaternity and Neonatal Voices Partnerships (MNVPs or MVPs)Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #32 - MEN1 Symptoms or Just Life? How to Tell the Difference (Lizzie - Solo Episode)

    Are your symptoms a direct result of MEN1, or could something else be at play? It’s a question so many of us face, and in this solo episode, I’m breaking it down. After more than a decade of living with MEN1, I’ve learned that not every ache, fatigue, or issue can—or should—be blamed on the condition. But how do you know what’s what?I’m sharing:- What top MEN1 specialists say about distinguishing symptoms- My personal experience with symptoms that felt like MEN1 but weren’t- Why mindset and lifestyle play a bigger role than we realise- The one question I ask myself before jumping to conclusionsIf you’ve ever been told “it’s not MEN1-related” but still felt something was off, or if you’re constantly questioning whether your symptoms are serious, this episode is for you.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #31 - Fighting or Managing MEN1? Balance Changed Everything (MEN1 Patient, Mother, Sister & Daughter)

    Is there a difference between fighting MEN1 and managing it? Tori, a fifth-generation MEN1 patient, shares her incredible journey of balancing proactive healthcare with living a full life. From navigating aggressive treatments to learning when to step back, she opens up about what it means to take control without letting MEN1 define her.In this episode, we discuss:- Growing up with MEN1 and learning from family experiences- The challenge of balancing aggressive treatment vs. proactive management- How to build a strong support network and find the right doctors- The emotional exhaustion of lifelong illness—and how to handle it- Why "watch and wait" isn't always the only optionIf you've ever felt overwhelmed by MEN1 or struggled to find the right approach to managing your health, this episode is for you.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #30 - Always Tired or Unwell? Here's What You May Not Know... (Dentist & Thyroid Disease Patient)

    Why do some people stay stuck in cycles of illness while others find ways to regain control of their health? In this episode, I sit down with Anitha, a healthcare professional and patient advocate, to explore the powerful impact of diet, lifestyle, and environmental factors on chronic conditions.We discuss:- The key lifestyle changes that helped Anitha reduce inflammation and improve her health.- Why your daily habits could be holding you back from feeling better.- The link between oral health and overall wellness—what your mouth reveals about your body!- The power of community in healing—why going it alone makes the journey harder.If you're tired of feeling unwell and searching for answers, this conversation is for you.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #29 - Beyond Diet: The Missing Piece in Healing Disease (R. Arthritis Patient Healed Naturally)

    We’re often told that healing starts with food, but what if diet alone isn’t enough? In this episode, I sit down with Teresa to explore the powerful, yet often overlooked, role of the mind, emotions, and nervous system in chronic illness recovery. She shares how her journey with rheumatoid arthritis led her beyond food restrictions and into deep inner healing—transforming her health in ways she never expected.  We discuss:  - Why diet alone wasn’t the answer to Teresa’s healing  - The impact of fear, stress, and emotional patterns on physical health  - How subconscious beliefs shape our well-being  - Practical tools like Qi-flow, breathwork, and reprogramming the nervous system  - The power of community in finding support and strength  If you’ve ever felt like you’re “doing everything right” but still struggling with your health, this episode is for you.  Work with Teresa hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #28 - How to Build Your Dream Health Team (Cancer Patient Healed Naturally)

    Managing MEN1 is tough, but you don’t have to do it alone. In this episode, I sit down with Jane McCourt to talk about the power of building a strong support network—both medical and personal. We discuss:- How to choose the right people for your team- Communicating effectively with doctors and health professionals- The importance of patient communities and peer support- Why trusting yourself is just as important as trusting the expertsWhether you're navigating new diagnoses or looking to take more control of your care, this conversation will give you practical tips to build a team that truly supports you.You can find out more about Jane, her journey and working together hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #27 - MEN1 & The Fraudulent Feeling – What No One Talks About (Patient Advocate & NCUK Ambassador)

    Ever felt like a fraud when it comes to your health? Like you’re not “sick enough” to ask for help, or that others have it worse? In this episode, I sit down with Simon, a MEN1 patient advocate and NCUK ambassador, to unpack "the fraudulent feeling"—the struggle of living with an invisible illness while looking "fine" on the outside.  We discuss:  - How Simon went from a **diagnosis with no symptoms** to facing major health challenges  - Navigating work, medical retirement, and the importance of self-advocacy  - The **emotional toll** of MEN1 and why patients often feel like impostors  - How to balance resilience with asking for help  - Practical advice for creating a support network and working with your medical team  Join the conversation and know that you’re not alone.  Join my close MEN1 community for support & discussions hereABOUT OUR GUESTSimon is a NCUK ambassador and MEN1 patient advocate. He writes fantastic blog articles from time to time. Click the links below:Finding a New Role in Life After CancerThat Fraudulent FeelingAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #26 - Are You Managing MEN1 the Right Way? Expert Insights (Leading Consultant Endocrinologist)

    Managing MEN1 can feel overwhelming, but are you approaching it the right way? In this episode, I sit down with Dr. Ruth Casey, a leading consultant endocrinologist and endocrine genetics expert, to uncover the key insights every patient needs to know.  - How to build a strong relationship with your healthcare team  - The biggest challenges doctors face in MEN1 care  - Why being an active participant in your care matters  - The role of genetic insights in managing MEN1  - What happens behind closed doors in multidisciplinary team (MDT) meetings  Join us as we bridge the gap between doctors and patients, breaking down the barriers to better care and clearer communication.  ABOUT OUR GUESTDr Ruth Casey is a Consultant Endocrinologist in Cambridge University Hospital NHS Foundation Trust and holds an academic position as a senior research associate in the Department of Medical Genetics, Cambridge University. Dr Casey leads neuroendocrine tumour (NET) and endocrine cancer services in Cambridge encompassing both clinical practice and independently funded research.  She has a specialist research and clinical interest in, hereditary endocrine syndromes, NETs and SDH deficient tumours (phaeochromocytoma, paraganglioma and GIST).Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #25 - 14 Surgeries, No Answers – Until Decades Later... (MEN1 Patient)

    For decades, Neil endured surgery for kidney stones & unexplained symptoms without knowing the real cause. With no family history to guide doctors, his MEN1 diagnosis remained hidden for years. In this episode, Neil shares his extraordinary journey, the relief of finally getting answers, and how he took control of his health:- The first signs of MEN1 that went unnoticed  - Why his diagnosis took so long  - Navigating MEN1 without a family history  - His unique perspective on healthcare and treatment  Listen now for an inspiring and eye-opening conversation.  Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #24 - How I'm Thriving with MEN1—Not Just Surviving (MEN1 Patient)

    What happens when a life-changing diagnosis turns your world upside down? Hannah shares her MEN1 journey—from fear and uncertainty to empowerment and strength:- How she transformed her mindset, found the right support, and took control of her health.  - The role of meditation, research, and humor in navigating MEN1.  - Practical strategies to build confidence and self-advocate with doctors.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #23 - Parenting Through MEN1: A Mother's Perspective (MEN1 Mother & Cancer Survivor)

    What happens when MEN1 isn’t just your diagnosis—but a reality for your entire family? In this deeply personal episode, I sit down with my incredible mother, Amanda, to explore her journey as a wife, mother, and caregiver navigating MEN1.  - The emotional impact of learning MEN1 runs in the family  - Balancing care for a spouse and children with the condition  - Facing her own health challenges while supporting others  - The lessons, strength, and resilience gained through it all  Her wisdom, honesty, and unwavering support have shaped my journey, and I hope this conversation brings comfort and insight to anyone facing similar challenges.  Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #22 - 20+ Years of Misdiagnosis Before My MEN1 Discovery (MEN1 Patient)

    For over two decades, Tracy battled unexplained health issues, constant hospital visits, and misdiagnoses—until a single genetic test changed everything. In this raw and eye-opening episode, she shares:  - The years of medical confusion and misdiagnosis  - The unexpected way she finally discovered she had MEN1  - The reality of living with multiple tumors and ongoing health challenges  - How she stays strong, creative, and finds purpose despite it all  Tracy’s story is one of resilience, persistence, and the power of self-advocacy. Whether you're a patient, a caregiver, or just someone seeking inspiration, this episode is a must-listen.  Follow Tracy's journey here  Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #21 - Genetic Mutations & MEN1: How One Change Can Alter Everything! (Genetics Student & MEN1 Family)

    What if one small genetic change could alter your entire health journey? In this episode, I sit down with Brad, a genetics student with a personal connection to MEN1, to explore:- How MEN1 mutations impact the body at a molecular level- The surprising link between MEN1 and cancer development- Why genetics is shaping the future of rare disease research- What the latest scientific advancements mean for MEN1 patientsJoin the community for deeper discussions: https://lizziedunn.ck.page/jointhecommunityABOUT OUR GUESTHi, I'm Brad, and I'm a second year Genetics student at the University of York. The MEN1 gene runs in my family, meaning I have potentially inherited the gene. Despite this, I have (so far) decided against being screened. My long term goal post-graduate is to go into research in MEN1. I have keen interests in genetics (obviously), microbiology and biochemistry (in particular the interactions between molecules, and how this links to things like cancer). I love talking, reading and researching all things biology, and enjoy simplifying the often complex topics to enable all to understand. I hope you enjoy listening to my story. Reach out to Brad hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #20 - They Said ‘Just Get It Removed’—Why I Refused Surgery (Former Uterine Fibroid Patient)

    When Claire was diagnosed with a fibroid, doctors told her surgery was the only real solution. But something inside her told her there had to be another way. In this episode, Claire shares her deeply personal journey of self-healing, how she took back her power, and the unexpected lessons she learned about her body, mind, and energy along the way.What if your body is speaking to you? Are you listening?ABOUT OUR GUESTMum of three, yoga teacher, poet (author of In Light), navigating the latter half of my life by unlearning all that I thought was 'true', all that I thought was me and getting to know who I truly am at heart ❤️Reach out to Claire hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #19 - Big Pharma: Helping or Hurting Us? (With Former Pharma & Biotech Insider)

    Is Big Pharma really helping us heal—or just keeping us dependent?In this episode, I speak with Cass, a former strategist in global pharma and biotech, who’s now mentoring leadership teams across the industry. She brings a rare, honest perspective from the inside—one that challenged how I think about conventional medicine, drug pricing, and rare disease treatment.We cover:What’s really driving decisions inside pharmaceutical companiesWhy prescription costs are so high (and where the money goes)The challenge of developing drugs for rare diseases like MEN1What patients often don’t see when it comes to profit vs careWhy the alternative vs conventional medicine debate is flawedThis episode blends strategic expertise with a deep belief in human potential, especially powerful if you’re navigating rare disease as a patient and trying to make sense of the system.About Our GuestCass began her career in pharma sales and strategy before moving into global consulting. Today, she coaches leadership teams in £10M–£100M pharmaceutical and biotech companies, helping to drive purpose-led growth while improving wellbeing and retention. She’s also a yoga teacher and firm believer in the power of self-determination and conscious health.More about Cass hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #18 - Once on Death's Door...Now Cancer-Free (Triple Positive Breast Cancer Patient)

    What would you do if life kept throwing one health crisis after another your way?For Jane, it started with an undiagnosed burst appendix that nearly killed her—only to be followed by an aggressive breast cancer diagnosis. But instead of following the conventional route, Jane took matters into her own hands.In this episode, she shares her powerful story of healing, the radical changes she made, and how she’s now cancer-free six years later.Key Takeaways: How Jane went from intensive care to cancer-free The holistic approach she took, even when professionals called her reckless Why food, environment & inner-work are critical in keeping Jane's health stableABOUT OUR GUEST Following a burst appendix in May 2016, a triple positive breast cancer diagnosis in November 2017, and a few other health issues, Jane began to question whether there was a deeper connection between her health and how she was living. Her research into both conventional and holistic healing approaches led her to a radical shift in how she approached wellness—one that transformed her life.This journey inspired her to create The Breathing Space programme: a practical guide to help others explore diet, lifestyle, emotional patterns, and environmental factors to support healing and prevent chronic illness. Jane is passionate about helping people feel good—especially when it means breaking free from the patterns that no longer serve them. Work with Jane:The McCourt Method @themccourtmethodAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #17 - Surgeons Gave Me 20 Years to Live—But I Did This...(MEN1 Patient)

    "You’ve got 20 years to live."That’s what Brad was told after major pancreatic surgery. But instead of giving up, he chose to live—with intention, grit, and his own version of hope.In this deeply personal conversation, Brad shares his MEN1 journey from childhood diagnosis through multiple surgeries, isolation, and unexpected setbacks. With honesty and warmth, he opens up about how he rebuilt his life—mentally, emotionally, and practically—after being told that work might never be possible again.This episode is for anyone navigating MEN1 or a long-term health condition… especially those wondering if things can get better. Brad’s story reminds us that they can—and often in ways we don’t expect.In this episode:How Brad defied the odds after a devastating prognosisThe hidden emotional cost of living with MEN1Why trusting yourself can change the entire course of your health journeyWhat helped Brad stay grounded through life-altering challengesThe quiet power of resilience, even when you feel like giving upAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #16 - Your Thoughts Create Dis-ease! Change Your Thinking First (Dylan Ayaloo: Transformation & Inner Work Mentor)

    What if your symptoms weren’t just physical?In this episode, Dylan Ayaloo and I explore how stress, emotions and inner beliefs can show up in the body. We talk breathwork, movement, nervous system healing and the power of story work to shift your health from the inside out.We cover:The link between stress, emotions and diseaseHow movement and breath can unlock healingA simple practice to regulate your nervous systemDylan is a transformation teacher using yoga, meditation and inner work to help people live with more peace, freedom and vitality.Connect with Dylan here More on Dylan’s work hereAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #15 - Trust Your Gut: The Health Advice No One Gave Me (Thyroid Disease/Hashimoto's Patient)

    What if the key to healing wasn’t just medical advice—but trusting yourself? In this episode, Kate shares how she navigated her complex health journey, the power of intuition, and how community helped her detect her condition early.  Key Takeaways:✔️ Why listening to your intuition is crucial in rare disease care  ✔️ How community support can lead to life-changing discoveries  ✔️ The mindset shift that helped Kate take control of her health  Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #14 - The MRI Showed a Golf Ball-Sized Tumour (MEN2a & Breast Cancer Patient)

    What happens when doctors dismiss your symptoms—until an MRI reveals a golf-ball-sized tumor? In this episode, Kate shares her shocking MEN2A diagnosis, the unexpected discovery of multiple tumors, and how she’s navigating life after a whirlwind of surgeries and genetic testing.Key Takeaways:✔️ The subtle symptoms that led to a life-changing diagnosis✔️ The emotional impact of finding out her child also carries MEN2A✔️ The importance of self-advocacy in rare disease careJoin the conversation!Connect with our community for support & discussions: https://lizziedunn.ck.page/jointhecommunityReach out to Kate here for her (wedding) floristry work and here to keep up with her MEN2a.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #13 - Doctors Told Me to Accept My Disease—Then I Reversed It (Healed Rheumatoid Arthritis Patient)

    Doctors told Teresa she had no choice but to take medication for her autoimmune disease—but she chose a different path. In this episode, she shares how she reversed her rheumatoid arthritis naturally, the mindset shifts that changed everything, and why true healing goes beyond just diet and lifestyle.CONNECT WITH TERESA hereEPISODE RESOURCESBrandy GilmoreAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

  48. 12

    #12 - What No One Tells You About MEN1 (MEN1 Patient & Cancer Scientist)

    Many MEN1 patients don’t realise how much high calcium is draining their energy—until after surgery.In this episode, Stella shares her journey with MEN1, from her family history in Greece to navigating healthcare in the UK. She opens up about her recent parathyroid surgery, the unexpected boost in energy, and how her work in cell therapy research has shaped her perspective on cancer and MEN1.  We also discuss the challenges of getting diagnosed, the importance of trusted medical sources, and why life expectancy statistics can be misleading.  If you're looking for insight, reassurance, and a refreshing take on managing MEN1, this one's for you.  ABOUT OUR GUESTStella LOVES cats, yoga, cells & controversial, spicy chats! Reach out to Stella here.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #11 - Should You Wait or Act Now? (MEN1 Patient)

    When do you take action with MEN1, and when do you wait?In this episode, we dive into the tough decisions MEN1 patients face—balancing symptoms, surgery, and long-term health. Justin shares his personal journey, the challenges of navigating uncertainty, and the mindset shifts that changed everything.Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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    #10 - They Thought I was Drunk... It Was MEN1! (MEN1 Patient)

    "On my birthday, I ended up in the hospital, barely conscious. Doctors assumed I was drunk—but the truth was far more serious."In this episode, MEN1 Patient, Kinga, shares:🔹 The unexpected symptoms that led to her diagnosis🔹 The biggest mistakes she made at the start🔹 How she found support & learned to advocate for herself🔹 What she wishes she knew back in 2019If you or a loved one are navigating MEN1—or any rare condition—this episode is for you. 💛📌 Join My MEN1 Community: https://lizziedunn.ck.page/jointhecommunity⏳ Timestamps:00:00 Intro00:30 The night everything changed04:15 Getting diagnosed with MEN1 Mosaicism07:40 Learning to advocate for herself10:55 Managing MEN1 across different countries14:20 What she wishes she knew sooner16:00 Advice for anyone facing a rare diseaseAre you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.

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ABOUT THIS SHOW

Welcome!This podcast's mission is to raise the quality of conversation in MEN1, opening the floor to diverse, unique and much needed perspectives, each a valuable piece in this 'mosaic.'With guest speakers encompassing patients & practitioners from all over the health-sphere, join a curious, open-minded & engaging discussion amongst a different kind of rare-disease community.Click this link and receive the next episode straight to your inbox: https://lizziedunn.kit.com/men1mosaicpodcast *This page and any affiliated content is designed to educate and inform, not to provide medical or health advice. Always consult a qualified, medical professional, especially before making any changes to your diet, exercise or lifestyle.*

HOSTED BY

Lizzie Dunn

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