#4 - How We Make Noise for MEN1+ Patients (Head of AMEND & MEN2a Patient)

Have you found yourself being dismissed, overlooked or even misdiagnosed because MEN1 is such a rare disease?//Jo Grey, CEO of AMEND Charity & MEN2a Patient shares://1) how doctors missed her MEN2a symptoms & a psychiatrist implied she was hallucinating//2) why she 'accidentally' became AMEND's CEO when a newsletter advert helped find her people//3) what she does with AMEND to make noise, so that patient-needs continue to get met//Are you sure MEN1 can’t be influenced? Join my community to learn how better quality conversation and radical self-responsibility has kept me away from symptoms, surgery & meditation. Click hereDisclaimerI share my personal experience as a MEN1 patient. Nothing in this episode, including the opinions of my guests, is intended as medical or holistic advice. Please consult a qualified professional before making changes to your care.