41. Connection between ADHD, EDS and POTS: Vanessa’s journey through chronic health challenges

In this episode of ADHD Mums, I chat with Vanessa Anlezark, a 39-year-old Registered Nurse and Mum, about her experiences managing chronic health conditions, including EDS (Ehlers-Danlos Syndrome) and POTS (Postural Orthostatic Tachycardia Syndrome). Vanessa's journey highlights the importance of self-advocacy, finding the right healthcare team, and connecting with a supportive community. Her story sheds light on the realities of navigating multiple diagnoses and the resilience it takes to manage neurodiversity alongside chronic conditions.Key Takeaways:Understanding EDS and POTS: Vanessa breaks down what Ehlers-Danlos Syndrome and POTS are, explaining their impact on the body and their connection to neurodivergent conditions like ADHD and Autism. The Diagnosis Journey: With no genetic markers for hEDS, diagnosis can be difficult. Vanessa discusses the 2017 diagnostic criteria, the challenges of misdiagnosis, and the empowering nature of knowledge, even when no cure exists.Advocacy in Healthcare: From facing medical gaslighting to seeking specialised care, Vanessa shares practical advice on advocating for yourself or loved ones in the healthcare system.Finding Support and Community: Vanessa emphasises the importance of connecting with others, whether through online support groups or specialists knowledgeable in hypermobility and autonomic disorders.Self-Diagnosis and Validation: For those struggling to get an official diagnosis, self-diagnosis can still provide validation and help in managing symptoms effectively.Mentioned Resources:The Ehlers-Danlos Society – Visit WebsiteEDS Diagnostics 2017 (Note: This criteria can be used by any doctor for diagnosis) – Visit WebsiteThe Dysautonomia Project – Visit WebsiteThe Australian POTS Foundation – Visit WebsiteMast Cell Action – Visit WebsiteMast Attack – Visit WebsiteMast Cell Activation Syndrome & Dysautonomia - Dr. Lawrence Afrin – Watch VideoCONNECT WITH ME...If you’ve got a question or want to connect with other ADHD mums, we’ve got a whole community on our Facebook group. Click here to join and post your question. Don’t worry if it’s been asked before! I love to answer everyone in a group format.FOLLOW FOR MORE...I post more content, insights and help on my social media accounts. Follow along for more ADHD mum content.- Instagram: https://www.instagram.com/adhd_mums- Facebook: https://facebook.com/100091850469503/- TikTok: https://www.tiktok.com/@adhdmumsaus- YouTube: https://youtube.com/channel/UCB0uYIHpFKFo6AdhQQaBr1wLEAVE ME A REVIEWYour review means the world to me! Your thoughts really help others discover my content that I genuinely (and passionately) hope could make a difference in their lives. Your support creates a ripple effect of spreading my show around and hopefully reaching the right people (especially Mum’s who may be at their wit’s end). WANT TO COLLABORATE?If you’re enquiring about a collaboration or speaking engagement – please email [email protected]. EXTRA RESOURCES: Still not sure if you have ADHD or are Autistic? Get access to my recommended self tests as a guide to whether you should go for an assessment or not. https://adhdmums.com.au/self-tests/Can I access the NDIS? Use this link to get a free guide to the NDIS to start you on your journey. Find more answers, resources and guides on my website at https://adhdmums.com.au/#adhd #adhdparenting #adhdmums #adhdkids #adhdteen #adhdawareness #adhddiagnosis #neurodiversity See omnystudio.com/listener for privacy information.