42. Her Baby's Diagnosis Sparked a Movement

When Nasha Fitter’s third daughter was diagnosed with a devastating rare genetic condition, her entire world changed overnight.In this inspiring episode of Trust Me Mom (Season 2, episode 42), Nasha shares how she went from ambitious entrepreneur and Harvard MBA to full-time caregiver, advocate, and founder of organizations helping thousands of families navigate rare diseases.We talk about:• motherhood and ambition• burnout and unpaid labor• marriage under pressure• grief and resilience• raising a child with severe disabilities• building support systems• why moms need help, rest, and communityNasha also shares practical advice for exhausted moms, parents navigating diagnoses, and couples trying to survive difficult seasons together.00:00 Intro01:03 Meet Nasha Fitter02:06 Growing up ambitious as an immigrant daughter03:42 Marriage, motherhood & unequal labor05:22 Life before her daughter’s diagnosis06:05 The devastating FOXG1 diagnosis07:44 Surviving with 3 kids under 410:22 Grief, acceptance & emotional healing13:40 Why moms need help and rest18:35 Building therapies and rare disease organizations20:40 Advice for parents after a diagnosis22:13 What daily life looks like now26:13 Marriage struggles and staying together31:25 Fairness, communication & parenting roles33:11 Her daughter’s incredible progress34:41 Gene therapy and hope for the future35:38 Advice for exhausted moms38:27 Building deep friendships and community39:40 Final thoughts#TrustMeMom #SpecialNeedsParenting #RareDisease #Motherhood #WorkingMom #Caregiver #FOXG1 #ParentingPodcast #WomenInBusiness #MentalLoad #MarriageAndParenting #MomLife #DisabilityAwareness #ParentingJourney