48. 'Not Disabled Enough?’ — The NDIS Changes Every Parent Needs to Hear with Senator Jordon Steele-John

❌ “Not disabled enough.” ❌ “Not lifelong.”If you’ve ever been told your child is “not disabled enough” for support — you’re not alone. And you’re not failing them.That’s what too many families are hearing through NDIS reforms — while kids who mask or “hold it together” risk losing the supports that keep households afloat. This episode unpacks what the changes actually mean, where the gaps are, and how to push back with lived experience at the centre.What We Cover in This EpisodeWhat “not disabled enough” and “not lifelong” decisions look like on the ground for ADHD and autistic familiesHow NDIS reviews measure parental burnout instead of real needWhy kids who mask (or parents who try to stay positive in reviews) can be penalisedSenator Jordon Steele-John’s lived experience with ADHD and disability advocacyWhat the proposed Thriving Kids program could mean — and the unanswered questionsHow parents can use advocacy, templates, and submissions to push backThis Episode Is For You IfYour child has been told they’re “not disabled enough” or “not lifelong” for NDISYou’ve felt crushed by reviews that demand proof of struggle before supportYou’re scared your child’s ability to mask will cost them the help they needYou’re trying to make sense of the new Thriving Kids programYou want to hear from a politician with both lived experience and a plan to fight backReferences & Resources MentionedNDIS Free Resources → (guides, templates, and jotforms to help parents navigate the changes)NDIS Jot form - document your experienceParliamentary Inquiry into the NDIS — open for submissions nowFull webpage of all Jane's NDIS advocacy work hereRelated Episodes🎧 NDIS is making psychology support harder to access and the new budget rules: Spotify | Apple Podcast✨ Listen now: Not Disabled Enough — The NDIS Changes Every Parent Needs to Hear (with Senator Jordon Steele-John) — on Spotify, Apple Podcasts, and adhdmums.com.au — because parents deserve support, not shame.JOIN THE COMMUNITY:Have questions or want to connect with other ADHD mums? Join our supportive Facebook group here and dive into the conversation. No question is too small, and I love answering in a group format!FOLLOW FOR MORE:Get daily tips, insights, and relatable content for ADHD mums by following me on Instagram, Facebook, TikTok or YouTubeLEAVE A REVIEW:Love this episode? Your review means everything! It helps other mums find this content and feel supported. Let’s spread the word and make a difference together.COLLABS:For collaborations or speaking engagements, email me at [email protected] RESOURCES:Still unsure if ADHD or autism applies to you or your child? Take my recommended self-tests here.