5. Navigating the healthcare system

from Rare Voices Podcast · host The Aplastic Anaemia Trust, PNH Support, DC Action, Fanconi Hope, SDS UK, and CAN.

When conditions are rare, even healthcare professionals fail to recognise them. This episode discusses some of the struggles that people living with rare blood disorders can experience when trying to get medical care. Conditions mentioned in this episode: Paroxysmal Nocturnal Haemoglobinuria, Shwachman Diamond Syndrome Further reading: fanconihope.org sdsuk.org pnhuk.org theaat.org.uk super-rare.org

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This episode was published on May 17, 2025.

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