EPISODE · Dec 13, 2024 · 29 MIN
64. A Life Beyond CF [Part 2]
from Everyday People Talking Health · host Silent Elephant Project
Danny has been on a long journey coping and navigating his life-work balance whilst living with Cystic Fibrosis (CF). We talk about Social Pedagogy - an approach that brings greater value and impact to an individual’s life outcome. Danny shares what living with CF is like now at at 38, and impact on life. Cystic Fibrosis (CF) is a genetic condition affecting more than 10,900 people in the UK. You are born with CF and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without knowing. [cysticfibrosis.org.uk] CF is a complex disease with almost 2,000 different mutations. Every experience is different. [Cystic Fibrosis Foundation] Links & Support: Leah's Friends of CF Cystic Fibrosis Care Cystic Fibrosis Trust Episode credits: Owen Thornton - Podcast editor & Contributor Support/sponsor the production and running of Everyday People Talking Heath podcast We hope you enjoy this episode 😃 Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic or via email- [email protected] What is SEP?Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.
What this episode covers
Danny has been on a long journey coping and navigating his life-work balance whilst living with Cystic Fibrosis (CF). We talk about Social Pedagogy - an approach that brings greater value and impact to an individual’s life outcome. Danny shares what living with CF is like now at at 38, and impact on life. Cystic Fibrosis (CF) is a genetic condition affecting more than 10,900 people in the UK. You are born with CF and cannot catch it later in life, but one in 25 of us carries the faulty gene that causes it, usually without knowing. [cysticfibrosis.org.uk] CF is a complex disease with almost 2,000 different mutations. Every experience is different. [Cystic Fibrosis Foundation] Links & Support: Leah's Friends of CF Cystic Fibrosis Care Cystic Fibrosis Trust Episode credits: Owen Thornton - Podcast editor & Contributor Support/sponsor the production and running of Everyday People Talking Heath podcast We hope you enjoy this episode 😃 Do you have a health story to share? Or know someone who would be interested? - We hope to connect with you @Freshrbcic or via email- [email protected] What is SEP?Silent Elephant Project (SEP) gives marginalised life limiting and long-term health conditions a platform, through creative and interactive projects. ‘An elephant in the room’ is an English-language metaphorical idiom for an obvious problem no one wants to discuss, or a condition no one wants challenge. This phrase has coined the main objective of the SEP.
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64. A Life Beyond CF [Part 2]
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