A Chilling Patient Story & The Sequoia Project’s Consumer Engagement Group’s Patient Efforts

There has been tremendous progress in healthcare IT interoperability, but this video is a stark reminder of how much more we need to do to better support patients, caregivers, and their providers. Health information exchange is about more than just the technical connections, it also requires policy and culture support for sharing clinical data when and where it is needed.Anna McCollister, who is on the board of directors at The Sequoia Project and who leads and cochairs their consumer engagement strategy workgroup, shares her personal experiences in this video. Her story inspires empathy for patients dealing with difficult illnesses, and particularly the outrageous difficulties in getting their data to the doctors who need it to make informed care decisions.Thanks to her long-earned expertise as a patient advocate and health IT nerd, McCollister is an extremely informed patient. However, even she needed to be reminded of the “magic words” to resolve her most recent information blocking problem. She points out that the provider denying her the information didn’t even know the concept of “information blocking,” which has been a focus of HHS for years.Watch the video for McCollister’s fascinating story and the philosophy guiding the consumer engagement strategy workgroup at The Sequoia Project.Learn more about the Sequoia Project:https://sequoiaproject.org/Healthcare IT Today:https://www.healthcareittoday.com/