EPISODE · Feb 23, 2026 · 39 MIN
A Conversation with Author & Self-Advocate Helen Simpson
from Living with FASD · host Patricia Kasper
In this episode of Living with FASD, host Patti Kasper and fellow author & self-advocate Helen Simpson explore their personal journeys with Fetal Alcohol Spectrum Disorder (FASD), the difference early diagnosis can make, and the importance of advocacy and community support. They share their experiences with bullying, the challenges of parenting children with FASD, and the need for more resources and understanding in the medical and educational systems. They also discuss the power of storytelling and literature in creating positive narratives for those affected by FASD, emphasizing the importance of compassion and support within the community.TakeawaysEarly diagnosis can significantly change the support and resources available to individuals with FASD.Social challenges and bullying are common experiences for those with FASD.Literature can empower children with FASD by providing positive narratives.Advocacy is crucial for improving resources and support for individuals with FASD and their families.Parenting children with FASD requires patience and understanding of their unique challenges.Community support through social media has transformed advocacy for FASD.There is a need for more programs focused on women in recovery from substance abuse.Compassion and understanding are essential in addressing the challenges faced by birth mothers of children with FASD.Self-care and finding joy are important for individuals living with FASD and their families.If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.If you want to pick up a copy of ABC’s of FASD, here is Helen’s Amazon link: https://a.co/d/fXI9grB .Chapters00:00 Introduction to Living with FASD01:46 Personal Journeys: Diagnosing FASD09:28 The Impact of Diagnosis on Life14:22 Creating Positive Narratives through Literature20:41 Advocacy and Community Support25:04 Parenting Challenges and Insights30:41 Future Aspirations for FASD Awareness36:34 Compassion and Understanding in the FASD Community
What this episode covers
In this episode of Living with FASD, host Patti Kasper and fellow author & self-advocate Helen Simpson explore their personal journeys with Fetal Alcohol Spectrum Disorder (FASD), the difference early diagnosis can make, and the importance of advocacy and community support. They share their experiences with bullying, the challenges of parenting children with FASD, and the need for more resources and understanding in the medical and educational systems. They also discuss the power of storytelling and literature in creating positive narratives for those affected by FASD, emphasizing the importance of compassion and support within the community.TakeawaysEarly diagnosis can significantly change the support and resources available to individuals with FASD.Social challenges and bullying are common experiences for those with FASD.Literature can empower children with FASD by providing positive narratives.Advocacy is crucial for improving resources and support for individuals with FASD and their families.Parenting children with FASD requires patience and understanding of their unique challenges.Community support through social media has transformed advocacy for FASD.There is a need for more programs focused on women in recovery from substance abuse.Compassion and understanding are essential in addressing the challenges faced by birth mothers of children with FASD.Self-care and finding joy are important for individuals living with FASD and their families.If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.If you want to pick up a copy of ABC’s of FASD, here is Helen’s Amazon link: https://a.co/d/fXI9grB .Chapters00:00 Introduction to Living with FASD01:46 Personal Journeys: Diagnosing FASD09:28 The Impact of Diagnosis on Life14:22 Creating Positive Narratives through Literature20:41 Advocacy and Community Support25:04 Parenting Challenges and Insights30:41 Future Aspirations for FASD Awareness36:34 Compassion and Understanding in the FASD Community
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A Conversation with Author & Self-Advocate Helen Simpson
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