Living with FASD

In this episode, Patti Kasper chats with Morgane Borzee about a groundbreaking visual system that revolutionizes how we understand and regulate emotions, especially in neurodivergent communities like those affected by FASD. If you're ready to see emotions as protective parts and learn how to navigate them, this episode is your new best friend!In this episode:Morgane Borzee’s journey from trauma therapy to emotional intelligence mappingThe importance of visual tools in understanding emotional responsesHow emotional parts like the tiger, bunny, koala, and seagull symbolize our defense mechanismsThe neural research behind stress responses and traumaPractical ways to use visual maps for emotional regulation and self-awarenessHow this system can prevent re-traumatization and improve relationshipsThe role of parts work in healing attachment and authenticity issuesThe power of non-judgmental language around emotionsResources: tools, training programs, and how to access Morgane’s workTo reach Morgane and explore her program, visit equanima.io. Her website offers many free resources.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.To pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to https://books.by/yourfasdcoach. Large print edition is on Amazon.

In this episode, Patti Kasper engages in a candid conversation with Angela Geddes, a social worker and author, about the complexities of Fetal Alcohol Spectrum Disorder (FASD). They discuss the challenges of diagnosis, the impact of FASD on families, and the role of social workers in raising awareness and providing support. Angela shares her personal experiences and insights from her work in the field, emphasizing the importance of early intervention and the need for better education and training on FASD. The conversation highlights the societal implications of FASD and the necessity for a compassionate understanding of those affected by it.TakeawaysFASD is often misunderstood and misdiagnosed.Early intervention can significantly improve outcomes for individuals with FASD.Social workers play a crucial role in advocating for FASD awareness.The stigma surrounding alcohol use during pregnancy needs to be addressed.Families affected by FASD often face systemic challenges and trauma.Education on FASD should be integrated into all relevant professional training programs.Personal experiences can provide valuable insights into the challenges of FASD.There is a need for more resources and support for adults with FASD.The prevalence of FASD is higher than commonly recognized.Compassionate support is essential for individuals and families affected by FASD.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.)If you would like to pick up copies of Angela’s books, you can find them all on Amazon.·         A Complicated and Beautiful Brain – ASIN # B0F8NJ95CB·         Not Your Typical Growing Up & Adulting Guide – ASIN # B0GJS7LFF6·         Not Your Typical Growing Up & Adulting Guide  WORKBOOK – ASIN # B0GJT9ZKD8·         Not Your Typical Parenting Guide – ASIN # B0F8N3N3ZS·         Not Your Typical Teaching Guide - ASIN # B0FJ796V7GAmazon in Canada also has French editions of several of these titles.To access the free FASD checklist Angela offers on her website, visit: https://www.angelageddes.ca/professional-development/geddes-customized-support-toolTo reach Angela, email her at [email protected]. Follow Angela’s podcast, Kitchen Table Conversations, on your favorite podcast platform!

If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters. Winning the competition would bring in many listeners who would learn about FASD! Voting ends April 30th!In this episode, Patti Kasper and AJ Locascio delve back into the complexities of emotional regulation, exploring practical strategies to help individuals ground themselves and regain a sense of safety. They discuss the importance of laughter, activity, sleep, creative expression, and intimate connections in the regulation process. The conversation also touches on the significance of creating a 'nest' for emotional release, practicing mindful self-compassion, and understanding sensory systems. They emphasize the role of gratitude and celebration in fostering emotional well-being, while also addressing the challenges of grief and loss.TakeawaysLaughter can be a powerful tool for emotional regulation.Being active helps to ground and regulate emotions.Sleep is essential for emotional and physical health.Creative expression can serve as a form of regulation.Intimate connections can enhance emotional safety.Creating a 'nest' can provide a safe space for emotional release.Mindful self-compassion helps in managing negative thoughts.Understanding sensory systems is crucial for self-regulation.Grief and gratitude can coexist in the healing process.Celebration can be a form of regulation and connection.As always, please remember to like, subscribe & share this podcast episode, because it is by doing these things that more people can find the podcast and learn about FASD.To reach Patti Kasper, perhaps to suggest topics or guests, or to ask questions, or even just to say hello, email her at [email protected] .To reach Patti to explore FASD Life Coaching for yourself as an adult or as a parent of a little, or to arrange for professional development or community agency training on FASD, you can arrange for a consult at https://calendly.com/kaspertrainingandcoaching/consultationTo order a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit books.by/yourfasdcoach or Amazon. (Both are print on demand at a printer near you, but books.by offers its authors a few dollars more in royalties.)AJ’s resources:The Burnout Book, Emily & Amelia Nagoski: https://a.co/d/eJaSFDRSensory Checklist (.org is a broken link)Self-compassion quiz: https://self-compassion.org/self-compassion-test/Dr. Kristen Neff’s site: https://self-compassion.org/

If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters. Winning the competition would bring in many listeners who would learn about FASD!In this episode of Living with FASD, host Patti Kasper engages in a deep conversation with Jake Tjapkes, who shares his personal journey with Fetal Alcohol Spectrum Disorder (FASD). They discuss the challenges faced by individuals with FASD, the impact of prenatal alcohol exposure, and the systemic issues within the foster care and justice systems. Jake emphasizes the importance of awareness, advocacy, and the need for legislative changes to support those affected by FASD. The conversation highlights the complexities of living with FASD and the necessity for a compassionate understanding of the experiences of individuals and families impacted by this condition.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services through Kasper’s FASD Life Coaching & Training, LLC.If you would like to pick up a copy of her book, Sip by Sip: Candid Conversations with Adults Living with FASD, you can easily order it at books.by/yourfasdcoach or Amazon. Both options are print on demand, but lower overhead enables books.by to pay its authors a few more dollars in royalties.If you would prefer a male FASD life coach, or would like to reach Jake for other reasons, visit his website at www.mendingbrokenwings.com or email him at [email protected]:00 Introduction to FASD and Personal Stories02:04 Jake's Early Life and Foster Care Experience05:59 Understanding Closed Case Adoptions08:58 The Impact of Prenatal Exposure to Alcohol11:46 Cultural Perspectives on Alcohol Consumption14:57 The Journey to FASD Diagnosis21:07 Experiences in the Juvenile Justice System25:29 Creative Culinary Adventures26:00 Therapeutic Approaches in Care27:29 Understanding Behavioral Patterns in FASD29:08 Navigating the World of FASD30:37 Confabulation and Memory Challenges32:20 The Importance of Fact-Checking34:17 The Journey to Diagnosis36:37 The Complexity of FASD38:03 Challenges of Employment and Self-Sufficiency39:59 Transitional Years and Life Choices42:21 Rethinking Functionality in FASD44:06 The 3D Model of FASD46:40 Customization in Care48:01 The Impact of Alcohol and Trauma51:32 Understanding Teratogens and Their Effects54:16 Understanding ADHD and Neurodiversity56:40 Compassion and Acceptance in Family Dynamics01:00:00 Fostering Awareness and Support for Foster Parents01:02:02 The Importance of Early Identification and Testing01:10:00 Addressing Alcohol's Impact on Pregnancy and FASD01:17:58 Advocating for Policy Changes and Future Hope

If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters. Winning the competition would bring in many listeners who would learn about FASD!In this episode, Patti Kasper and Barb Clark delve into the complexities of Fetal Alcohol Spectrum Disorder (FASD), focusing on the concepts of anosognosia, denial, and delayed remorse. They discuss the impact of stress and anxiety on behavior, the importance of effective communication, and the LEAP method for engaging with neurodivergent individuals. The conversation highlights the significance of timing in discussions, the role of support systems, and the challenges of labeling in educational settings. Ultimately, the episode emphasizes the need for understanding and compassion in supporting those with neurodivergent conditions.Barb Clark , a beloved trainer & coach in the FASD community with both professional and living experience with FASD, is known for her down-to-earth style, & blend of honesty, humor, and practical wisdom, training with compassion and clarity on tough topics like raging, lying, and stealing. She has trained thousands across the U.S. and Canada. So let’s get started with this candid conversation.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services. Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD is available at books.by/yourfasdcoachBarb's book, "Raising Kids and Teens with FASD," is available here: https://a.co/d/0acN3WdbLink to the LEAP Institute: https://leapinstitute.org/Link to the TedTalkon anosognosia by Xavier Amador, PhD: https://youtu.be/NXxytf6kfPM?si=W3W6Y_dYD95293UbChapters00:00Introduction to FASD and Anosognosia03:07Understanding Denial, Anosognosia, and Delayed Remorse06:05The Impact of Safety and Delayed Remorse in Social Work08:58Exploring the Role of Fascia and Prenatal Alcohol Exposure11:57The LEAP Method for Effective Communication14:55Distinguishing Between Denial and Anosognosia18:01The Importance of Listening and Empathy21:01Understanding Delayed Remorse and Its Effects23:59Navigating Anxiety and Dysregulation in Medical Settings26:27Advocacy and Self-Advocacy Skills28:13Understanding Anosognosia in Children and Teens30:20Anosognosia in Adults and Its Impact on Relationships34:06Hoarding and Anosognosia: A Deeper Look36:02Supporting Individuals with Delayed Remorse40:06The Importance of Silence and Processing Time44:36Neurodiversity and Anosognosia in Different Conditions49:27Understanding Neurological Differences in Recovery

If you enjoy Living with FASD, please go to www.womenpodcasters.com/awards and choose Living with FASD in the Wellness category, for people’s choice award being sponsored by Women Podcasters. Winning the competition would bring in many listeners who would learn about FASD!In this episode of Living with FASD, Patti Kasper interviews Jennifer Henszel, who shares her family's journey through adversity following her husband Paul's life-altering accident. The conversation explores themes of community support, resilience, and the power of storytelling in healing. Jennifer discusses how they built a network to combat isolation, the importance of staying positive amidst challenges, and the role of insurance and medical support in their recovery. The episode emphasizes the significance of creating community resources and overcoming stigma associated with FASD, ultimately inspiring listeners to connect and find hope in their own journeys.TakeawaysJennifer and Paul faced significant adversity after his accident.Community support played a crucial role in their recovery.Isolation can hinder personal and professional growth.Building networks can lead to unexpected opportunities.Storytelling can be a powerful tool for healing.Staying positive is essential amidst challenges.Insurance and medical support can be complex and frustrating.Creating community resources is vital for those in need.Overcoming stigma is a shared struggle for many.Connection is key to finding hope and support.As always, if you enjoyed today’s episode, From Tragedy to Triumph: A Journey of Resilience & Power of Community, then please remember to like, subscribe and share this podcast episode, because the more it is shared, the more people can find Living with FASD and learn more about the many and varied effects of Prenatal Alcohol Effects.If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.If you want to pick up a copy of Paul Henczel’s book, Crushed Alive: A True Story of a Journey from Tragedy to Triumph, you can find it on Amazon by using this link: https://a.co/d/fh4wg3cIf you would like to watch Paul’s TED Talk, you can find it here: https://youtu.be/9z9HUvTy6aA?si=KUpj2dlaCWQv2EuL

In this episode of Living with FASD, Patti Kasper engages in a deep conversation with Dr. Jennifer Fraser about the complexities of medical gaslighting, particularly in the context of fetal alcohol spectrum disorders (FASD). They explore the vulnerabilities of individuals with FASD, the pressures faced by medical professionals, and the importance of empathy in healthcare. The discussion also highlights the significance of brain health, the impact of bullying and abuse, and the need for systemic changes in education and healthcare. Dr. Fraser shares insights from her research and personal experiences, emphasizing the potential for cognitive improvement through tools like BrainHQ and the importance of community support. As always, if you enjoyed today’s episode, From Tragedy to Triumph: A Journey of Resilience & Power of Community, then please remember to like, subscribe and share this podcast episode, because the more it is shared, the more people can find Living with FASD and learn more about the many and varied effects of Prenatal Alcohol Effects.If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.Jennifer Fraser is the author of 5 books that in one way or another examine how we learn. Her last two books - The Bullied Brain and The Gaslit Brain - examine the harmful impacts of false information to our brains. Most don't know that normalized bullying and gaslighting in our society can in fact cause physical damage to brains which is visible on scans. It is this research that Jennifer is harnessing to set in motion healthy change for all learners. With a PhD in Comparative Literature, Jennifer is an award-winning educator who writes a regular series, "The Bullied Brain," for Psychology Today.LINKS:Websitehttps://bulliedbrain.com/The Gaslit Brainhttps://www.amazon.com/Gaslit-Brain-Gaslighting-Institutional-Complicity/dp/1493090925The Bullied Brainhttps://www.amazon.com/Bullied-Brain-Scars-Restore-Health/dp/B09BDHVX9Q "Bullied Brain" series Psychology Todayhttps://www.psychologytoday.com/ca/blog/the-bullied-brainSubstack on Gaslightinghttps://bulliedbrain.substack.com/

In this episode of Living with FASD, host and guest Tami Eller delve into the complexities surrounding fetal alcohol spectrum disorders (FASD). They discuss how a diagnosis often becomes a mere label, failing to capture the unique experiences and challenges faced by individuals with FASD, or any other given diagnosis. Tami emphasizes that understanding the nuances of each person's condition is crucial for providing effective support. The conversation highlights the importance of recognizing the brain-body connection and how various physical and mental health factors can influence the experiences of those with FASD. They also touch on the societal expectations of independence and the need for a more nuanced understanding of interdependence, especially for individuals with neurodivergent conditions.Throughout the discussion, Tami shares personal anecdotes and insights from her experiences, illustrating the need for accommodations that consider the unique ways individuals with FASD process information and interact with the world. The episode serves as a reminder that labels can be limiting and that a deeper understanding of each person's journey is essential for fostering success and well-being.TakeawaysA diagnosis is just a label; it doesn't define the individual.Understanding the brain-body connection is crucial for support.Each person with FASD has a unique experience and needs individualized accommodations.Societal expectations of independence can be unrealistic for those with FASD.Interdependence is vital for success, regardless of neurodiversity.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.)Chapters00:00 Introduction to FASD and Tammy Eller01:13 The Limitations of Labels03:18 Understanding the Brain-Body Connection08:36 The Importance of Individualized Support18:25 Navigating Sensory Processing Differences29:26 Personal Stories and Early Recognition43:42 Challenging the Myth of Independence

In this episode of Living With FASD, host Patti Kasper speaks with Kyle Perkins about his experiences with ADHD and the broader implications of neurodiversity. They discuss the importance of community, the overlap between different neurodivergent conditions, and the challenges faced by individuals with FASD, ADHD, and autism. Kyle shares insights on task management, motivation, and his journey as a business owner, emphasizing the need for supportive environments for neurodivergent individuals. The conversation also touches on the power of fiction in understanding neurodiversity and the importance of advocacy and education in changing perceptions.To try the app Kyle referenced to improve getting and staying on task, look for “Motion” in your app store.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.)You can support Kyle’s business while getting customized merchandise by visiting https://www.bigfrog.com/raleigh-north/

In this episode of Living with FASD, Shannon returns to share her journey over the past three years since her last appearance. She discusses her diagnosis and her active involvement in the FASD community, including serving on various boards and mentoring adolescents with FASD. Shannon highlights her work as a peer supporter and the development of her innovative program called 'Anchor,' designed to provide accessible mental health support through bite-sized information. The program focuses on self-reflection and practical tools to help individuals manage their mental health challenges without feeling overwhelmed.Throughout the conversation, Shannon emphasizes the importance of lived experience in her work, sharing insights from her own journey with addiction and mental health. She discusses the significance of community support and the need for greater awareness of FASD, particularly in mental health and addiction circles. The episode concludes with Shannon reflecting on her ongoing commitment to helping others navigate their challenges, underscoring the power of vulnerability and connection in fostering healing and growth.Takeaways"I have been up to a lot actually since the last time we spoke.""The goal was to provide just enough structure and self-reflection to not overwhelm people.""People often feel relieved just noticing that their reactions are rooted in physiology and not personal failure.""It's about the power of small steps, building slowly, letting things be good enough.""I just want other people to know that it's possible as well."As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.) If you would like to reach Shannon, or to take her program, you can reach her at: www.instagram@shannonleebutt  or her website: www.shannonbutt.caChapters00:00 Reconnecting After Three Years02:59 Shannon's Journey and Community Involvement03:58 Introducing the 'Anchor' Program12:27 Feedback and Validation from the Pilot Program20:07 The Impact of Peer Support23:50 Future Directions in the FASD Space29:19 Bridging FASD and Addiction Awareness31:27 The Importance of Community Support

In this episode of Living with FASD, host Patti Kasper welcomes Eileen Devine, a prominent figure in the FASD community and host of the Brain First Parenting podcast. They discuss the complexities of Fetal Alcohol Spectrum Disorders (FASD), focusing on cognitive rigidity, emotional regulation, and the importance of relational intelligence. Eileen shares insights from her experiences as a parent and professional, emphasizing the need for understanding and support for individuals living with FASD. The conversation highlights the challenges of navigating relationships and the significance of developing coping strategies to manage rigidity and emotional responses.TakeawaysEileen Devine is a key figure in the FASD community, notably for training.Cognitive rigidity is often misinterpreted as a character flaw.Understanding neurobiology is crucial for supporting people with FASD.Emotional regulation skills are linked to cognitive rigidity.Relational intelligence is essential for maintaining friendships.Feedback from trusted individuals can help recognize rigidity.Planning and structure can alleviate anxiety for individuals with FASD.Support systems are vital for managing disappointments in life.The story we tell ourselves influences our emotional responses.Compassion and understanding are necessary for those living with FASD.If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.If you want to reach Eileen, visit her website at www.eileendevine.com.Please remember to like, subscribe and share this podcast so that others can discover it and learn about FASD.Chapters00:00 Introduction to FASD and Eileen Devine02:33 Brain First Parenting Podcast Overview06:02 Understanding FASD Characteristics09:21 Cognitive Rigidity in FASD18:11 Relational Intelligence and Long-term Friendships24:02 Recognizing Rigidity and Seeking Feedback29:10 Dealing with Ambiguity and Planning35:02 Emotional Regulation and Stress Recovery41:22 Conclusion and Support Systems

In this episode of Living with FASD, host Patti Kasper and fellow author & self-advocate Helen Simpson explore their personal journeys with Fetal Alcohol Spectrum Disorder (FASD), the difference early diagnosis can make, and the importance of advocacy and community support. They share their experiences with bullying, the challenges of parenting children with FASD, and the need for more resources and understanding in the medical and educational systems. They also discuss the power of storytelling and literature in creating positive narratives for those affected by FASD, emphasizing the importance of compassion and support within the community.TakeawaysEarly diagnosis can significantly change the support and resources available to individuals with FASD.Social challenges and bullying are common experiences for those with FASD.Literature can empower children with FASD by providing positive narratives.Advocacy is crucial for improving resources and support for individuals with FASD and their families.Parenting children with FASD requires patience and understanding of their unique challenges.Community support through social media has transformed advocacy for FASD.There is a need for more programs focused on women in recovery from substance abuse.Compassion and understanding are essential in addressing the challenges faced by birth mothers of children with FASD.Self-care and finding joy are important for individuals living with FASD and their families.If you want to reach Patti to discuss either FASD training or life coaching, you can schedule a call using this links: https://calendly.com/kaspertrainingandcoaching/consultation . Additional training topics can be found on her website, www.patriciakasper.com .If you want to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, go to either www.books.by/yourfasdcoach or Amazon (https://a.co/d/3XLnCyw ) Both are print-on-demand from a printer near you, but books.by pays its authors a few more dollars in royalties.If you want to pick up a copy of ABC’s of FASD, here is Helen’s Amazon link: https://a.co/d/fXI9grB .Chapters00:00 Introduction to Living with FASD01:46 Personal Journeys: Diagnosing FASD09:28 The Impact of Diagnosis on Life14:22 Creating Positive Narratives through Literature20:41 Advocacy and Community Support25:04 Parenting Challenges and Insights30:41 Future Aspirations for FASD Awareness36:34 Compassion and Understanding in the FASD Community

In this episode of Living with FASD, host Patti Kasper talks with AJ Locascio, founder of Umbrella ND, about the emotional regulation challenges neurodivergent people face, including those with FASD, autism, and ADHD. They explore how sensory environments, trauma histories, & everyday microaggressions can lead to dysregulation, panic, and disconnection, and why understanding individual sensory profiles and creating supportive spaces is so important. AJ shares her journey from middle school teacher to community advocate, emphasizing the value of connection, self-advocacy, and accommodations in schools, medical settings, and public spaces.Patti and AJ also dive into language, communication, and the role of curse words as a coping strategy for some neurodivergent individuals, explaining how the brain can retain emotionally charged words even when other language skills are compromised. They call for more nuanced, context-aware interpretations of behavior that prioritize safety, self-awareness, and emotional regulation over compliance. Throughout the conversation, they highlight how advocacy is both necessary and exhausting, reinforcing that no one should have to do it alone and that community support is essential for emotional well-being.Takeaways:Emotional regulation is crucial for neurodivergent individuals.Microaggressions can significantly affect emotional responses.Supportive, sensory-aware environments help reduce dysregulation.Knowing one’s sensory profile allows for better support and accommodations.Community and connection are vital for long-term well-being and advocacy.Memorable quotes:“When we are losing our ability to use language, we hang on to any words that get a big reaction from people.”“There’s no such thing as a bad word; it’s context specific.”“Connection can definitely happen even when you’re alone.”“Self-awareness is the key to becoming regulated when you’re dysregulated.”“Advocacy is exhausting; we all need advocates.”Stay connected:Like, share, and follow the Living with FASD podcast to help spread awareness and understanding.Contact Patti: [email protected] | www.patriciakasper.comSchedule a complimentary call: https://calendly.com/kaspertrainingandcoaching/consultationPatti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD: www.books.by/yourfasdcoach or Amazon.Connect with AJ and Umbrella in D: www.umbrelland.org | All AJ’s links: https://dot.cards/ajlocashioRecommended resources:Jaak Panksepp’s TED Talk: https://www.youtube.com/watch?v=65e2qScV_K8Burnout by Emily & Amelia Nagoski: https://a.co/d/eJaSFDR

In this episode of Living with FASD, Patti talks with FASD United’s Jen Wisdahl and Susan Shepard Carlson about the recent signing of the FASD Respect Act into law, highlighting the journey of advocacy that led to this significant achievement. They emphasize the importance of community involvement, storytelling, and continued advocacy on both State and Federal levels to ensure the successful implementation of the Act. The conversation also touches on upcoming events, educational initiatives, and the need for ongoing support and engagement within the FASD community.To get involved, visit www.fasdunited.orgTo reach Patti, for FASD training or life coaching, visit https://calendly.com/kaspertrainingandcoaching/consultation to schedule a call, or visit her website at www.patriciakasper.com.To get a copy of Patti's book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit books.by/yourfasdcoach or find it on Amazon. (Both are print on demand, but books.by has less overhead and pays its authors a few dollars more in royalties.)Chapters 00:00 Introduction to the FASD Respect Act03:01 The Journey to Legislative Success06:01 Community Advocacy and Engagement08:59 The Role of Stories in Advocacy12:03 Understanding the FASD Respect Act15:08 Next Steps for Implementation17:50 The Importance of Continued Advocacy21:01 Educational Initiatives and Community Involvement24:08 Building a Supportive Community26:47 Upcoming Conferences and Events30:00 The Power of Personal Stories33:08 Call to Action for Advocacy35:50 The Future of FASD Advocacy38:56 Conclusion and Gratitude  

This conversation explores the complexities of communication challenges faced by individuals with neurodivergence, particularly focusing on FASD and autism. Host Patti Kasper and special guest Carolyn Kiel, host of the podcast Beyond 6 Seconds, discuss the importance of storytelling, the impact of sensory overload, and the need for understanding and support within the neurodivergent community. They emphasize the significance of recognizing diverse experiences and the necessity of inclusive conversations that involve those with lived experiences. The discussion also touches on the stigma surrounding prenatal alcohol exposure and the importance of self-advocacy and grace in navigating these challenges.TakeawaysStories are relational and bring emotional learning.Communication challenges vary widely across neurodivergence.Expressive language skills can mask comprehension deficits.Sensory overload can lead to communication breakdowns.Safe spaces are crucial for emotional regulation.Self-regulation strategies are essential for neurodivergent individuals.Understanding one's neurodivergence can lead to self-acceptance.Inclusive conversations are necessary for effective support.The stigma of prenatal alcohol exposure affects diagnosis.Support should be tailored to individual needs.To reach Patti Kasper, perhaps to suggest topics or guests, or to ask questions, or even just to say hello, email her at [email protected] .To reach Patti to explore FASD Life Coaching for yourself as an adult or as a parent of a little, or to arrange for professional development or community agency training on FASD, you can arrange for a consult at https://calendly.com/kaspertrainingandcoaching/consultationTo order a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit books.by/yourfasdcoach or Amazon. (Both are print on demand at a printer near you, but books.by offers its authors a few dollars more in royalties.)To listen (and subscribe) to Carolyn’s podcast, Beyond 6 Seconds, you can find it here: https://open.spotify.com/show/43W7RSYBMRsT4ktoFSHpau?si=77ec834a13c443a9You can also visit her website at www.beyond6seconds.net. Please remember to like, subscribe & share this podcast so that more people can discover it and learn about FASD.Chapters00:00 Introduction and Collaboration02:48 The Power of Storytelling04:01 Communication Challenges in Neurodivergence10:26 Expressive vs. Receptive Language Skills18:31 The Impact of Sensory Overload25:08 The Importance of Safe Spaces30:33 Finding Balance and Self-Regulation34:19 Understanding Neurodivergence39:22 The Stigma of Prenatal Alcohol Exposure46:30 The Need for Inclusive Conversations51:44 Supporting Neurodivergent Individuals56:55 Conclusion and Future Topics

This conversation delves into the complexities surrounding Fetal Alcohol Spectrum Disorders (FASD) and the societal implications of alcohol consumption, particularly during pregnancy. The Meliorists discuss the stigma associated with alcohol use, the powerful lobbying of the alcohol industry, and the need for greater awareness and support for those affected by FASD. Personal stories highlight the challenges of sobriety and the importance of community support. The discussion emphasizes the need for open conversations about alcohol's impact on fetal development and the role of trauma in addiction. Ultimately, the speakers advocate for a cultural shift towards understanding and supporting individuals with FASD and their families.TakeawaysAlcohol is a neurotoxin that affects fetal development.The alcohol industry has a powerful influence on societal norms.Sobriety can be a challenging journey for many individuals.Support systems for pregnant women are often lacking.Community initiatives can raise awareness about FASD.Trauma plays a significant role in alcohol use and addiction.Cultural norms often normalize alcohol consumption in social settings.Education about fetal development is crucial for preventing FASD.Conversations about alcohol and its effects need to be more open.Embracing neurodiversity can lead to a more inclusive society. Jodee mentioned that all four of us have FASD books out. Here are the links:Deb Evensen: Thirteen Beams of Moonlight: Gentle Guidance for Families & Communities Living with FASD. https://a.co/d/fvdrZmUPatricia Kasper: Sip by Sip: Candid Conversations with Adults Living with FASD www.books.by/yourfasdcoachJodee Kulp: Embracing Zak: Community Compassion is a Powerful Force https://a.co/d/fvdrZmUAntonia Rathbun Lindsey: Parenting Your Porcupine: A Toolkit for Children with FASD, Other Drug Effects & Neurodiversity https://a.co/d/dBCjKJKIf you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.As always, please remember to like, subscribe & share this podcast, so that more people can discover it and learn more about Fetal Alcohol Spectrum Disorders.Chapters00:00 Introduction to FASD and Alcohol's Impact03:08 The Social Acceptance of Alcohol05:57 Personal Stories and Sobriety Challenges08:50 Support Systems for Pregnant Women11:45 Community Initiatives and Awareness15:05 The Role of Trauma in Alcohol Use17:59 Cultural Norms and Alcohol Consumption21:07 The Disconnect in Understanding Fetal Development24:10 The Importance of Conversations27:12 The Need for Education and Awareness30:09 The Power of Community Action32:55 Legacy and Future Generations35:53 Embracing Neurodiversity39:01 Conclusion and Future Discussions

In this episode of Living with FASD, host Patti and guest Tami Eller discuss the complexities of living with Fetal Alcohol Spectrum Disorder (FASD), focusing on the concept of perseveration, which refers to the tendency to get stuck on certain thoughts or activities. They explore the impact of privilege, trauma, and misconceptions surrounding FASD, emphasizing the importance of caregiver support and emotional regulation. The conversation highlights strategies for managing perseveration, the significance of closure, and the need for radical acceptance in navigating the challenges of neurodiversity. Tami shares her personal experiences and insights as a clinician working with youth affected by FASD, advocating for understanding and support within families and communities.TakeawaysPerseveration is a common challenge for individuals with FASD.Closure is essential for individuals to move on from tasks.Privilege and trauma significantly impact outcomes for those with FASD.Misconceptions about FASD can lead to emotional distress.Caregivers play a crucial role in managing perseveration.Radical acceptance helps in coping with FASD challenges.Assertive communication is vital for expressing needs.Planning ahead can minimize instances of perseveration.Understanding neurodiversity is key to effective support.Emotional regulation is important for both caregivers and individuals.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services, or visit ttps://calendly.com/kaspertrainingandcoaching/consultation to schedule a complimentary call.If you would like to pick up a copy of Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD, visit www.books.by/yourfasdcoach or Amazon. (Both print on demand, but due to lower overhead costs, books.by is able to pay its authors a few more dollars in royalties.)Chapters00:00 Introduction to FASD and Guest Background03:11 Understanding Perseveration and Its Impact05:54 The Role of Privilege and Support in FASD08:51 The Misconceptions of FASD and Intelligence12:01 Navigating Emotional Responses and Expectations14:52 Perseveration: Challenges and Strategies17:56 The Importance of Closure in Perseveration20:59 Perseveration in Arguments and Family Dynamics24:00 Reframing Perseveration as a Strength26:52 Conclusion: Managing Perseveration for Positive Outcomes28:36 The Power of Tenacity and Acceptance30:01 Managing Mental Load in Caregiving32:51 Learning Through Repetition and Support33:42 Understanding Neurodiversity and Personal Experience40:11 Navigating ADHD and Autism in Neurodiversity45:23 Radical Acceptance and Self-Regulation in Caregiving48:24 Assertive Communication in Relationships

In this enlightening episode of Living with FASD, host Patti Kasper welcomes Todd Capes, a dedicated PhD student at at Birmingham City University in the UK who is passionately researching the differentiation between Fetal Alcohol Spectrum Disorders (FASD) and Attention Deficit Hyperactivity Disorder (ADHD). Todd shares his journey into the world of FASD, detailing his systematic review that sparked his interest and led him to pursue a PhD focused on improving differential diagnosis and identifying the differences in attention and decision-making between FASD and ADHD, using an experimental and computational approach.The conversation delves into the complexities surrounding the comorbidity of FASD and ADHD, exploring the nuances of diagnosis and the significance of understanding the overlap between these conditions. Todd highlights the challenges of recruiting participants for his research, particularly adults with FASD, and the importance of building a comprehensive understanding of the spectrum.Listeners will gain insights into Todd's innovative research methods, including attention and decision-making tasks designed to uncover the distinct cognitive profiles of individuals with FASD and ADHD. The discussion also touches on the implications of prenatal alcohol exposure, the role of executive functioning, and the critical need for tailored interventions that address the unique challenges faced by individuals on the spectrum.As Patti and Todd explore these vital topics, they emphasize the importance of advocacy, awareness, and informed care for individuals living with FASD. This episode is essential for parents, caregivers, educators, and anyone interested in the complexities of FASD and the potential for positive change through research and understanding.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.To learn more about Todd's research and how you can participate, go to  [email protected]#FASD #LivingWithFASDpodcast #ADHD #Research #Awareness #Advocacy #Support

In this episode, host Patti Kasper and guest Carl Young discuss the launch of Season Four of 'Living with FASD,' emphasizing the importance of humor in coping with life’s challenges. They explore the intersection of FASD with other neurodiverse conditions, the impact of trauma, and the challenges of understanding cause and effect in neurodiversity. The conversation also touches on health challenges, personal growth, the significance of education, and the need for a supportive community for those affected by FASD. They reflect on their experiences and the importance of open dialogue about these topics.TakeawaysHumor is essential for coping with health challenges.Understanding neurodiversity requires looking beyond FASD alone.Trauma significantly impacts individuals with FASD.Cause and effect can be difficult for neurodiverse individuals to grasp.FASD often coexists with other diagnoses like ADHD and autism.COVID-19 has affected awareness and understanding of FASD.Physical health issues are common among those with FASD.Personal growth often comes from understanding one's challenges.Education systems need to adapt to neurodiverse needs.Community support is crucial for families affected by FASD.Sound bites:"You have to keep your humor.""Kids are not inherently evil.""We need a broad blanket of support."Links:Carl Young’s links:www.embracinghopebook.comPatti’s links:www.patriciakasper.combooks.by/yourfasdcoach Please remember to like, subscribe and share this podcast so that more people can discover and learn about FASD.Chapters00:00 Introduction to Living with FASD01:44 The Journey of Seasons and Health04:14 Embracing Humor in Health Challenges07:06 Understanding Neurodiversity and FASD09:36 Impulse Control and Cause-Effect Relationships11:15 Misdiagnosis and Its Implications12:24 The Impact of COVID-19 on FASD Awareness15:05 Broadening the Neurodiverse Community17:13 The Physical Impact of FASD20:25 Reflections on Regrets and Growth22:00 Reframing Challenges and Personal Growth23:36 Navigating Education and Neurodiversity25:31 Understanding Neurodiversity: Challenges vs. Behaviors27:03 The Importance of Diagnosis and Lived Experience29:45 Parenting Neurodiverse Children: Lessons Learned32:55 The Need for Support Systems in Neurodiversity34:18 Identity and the Language of Neurodiversity34:46 Embracing Neurodiversity in Society

In this captivating episode of Living with FASD, host PattiKasper is joined by Dr. Lyelle Palmer, a leading researcher in the field of primitive reflexes and their neurological implications for individuals with Fetal Alcohol Spectrum Disorder (FASD). Together, they delve into theoften-overlooked significance of primitive reflexes in human development and their critical role in understanding and supporting those affected by FASD.Dr. Palmer shares his extensive knowledge on therelationship between primitive reflexes and neurological development, discussing how these reflexes can impact sensory processing, emotional regulation, and overall behavior. He emphasizes the importance of earlyintervention and stimulation to ensure proper inhibition of these reflexes, which can lead to improved outcomes for children and adults alike.The conversation explores various reflexes such as the Mororeflex and the asymmetrical tonic neck reflex (ATNR), detailing their effects on movement, balance, and sensory integration. Dr. Palmer provides practical strategies for parents and educators to help children manage their reflexes, including engaging in playful activities that promote vestibular stimulation and sensory awareness.Viewers will gain valuable insights into how understandingand addressing primitive reflexes can lead to better support for individuals with FASD, ultimately fostering a more compassionate and informed approach to care. This episode is essential for parents, caregivers, educators, and anyoneinterested in the complexities of FASD and the potential for growth and development through informed practices.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Dr. Palmer’s insights provide a unique perspective on theintersection of reflexes and FASD, paving the way for future discussions and explorations in this critical area of research.#FASD #LivingWithFASDpodcast #PrimitiveReflexes#Neurodevelopment #Awareness #Support

In this impactful episode of Living with FASD, host Patti Kasper reunites with Dr. Jerrod Brown to explore the critical issue of vulnerability and victimization among individuals with Fetal Alcohol Spectrum Disorder (FASD). They delve into the multifaceted factors that contribute to the heightened risks faced by this population, examining the interplay of environmental influences, attachment styles, and adverse childhood experiences (ACEs).Dr. Brown shares his extensive insights from years ofconsulting on FASD cases, emphasizing the importance of understanding the neurobiological impacts of prenatal alcohol exposure. The discussion highlights how executive function impairments, social cognition deficits, and emotional immaturity can lead to increased vulnerability in social situations and relationships.Viewers will learn about the implications of suggestibility and gullibility, which can make individuals with FASD more susceptible to manipulation and exploitation, particularly in the digital age. The episode also addresses the need for protective factors and supportive interventions to help mitigate these risks, including the importance of education and awareness for both individuals with FASD and their families.Join Patti and Dr. Brown as they unpack these vital topics,encouraging a deeper understanding of the complexities surrounding FASD and the urgent need for advocacy and informed care. This episode is essential for parents, caregivers, and anyone seeking to support individuals navigating the challenges of FASD.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Dr. Jerrod Brown’s work and insights can be found in hispublications, which delve deeper into these critical issues. Stay informed and engaged in the conversation surrounding FASD.Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD can be found at Amazon as well as at books.by/yourfasdcoach .The book discussed in this episode, by Carl Young & Joel Sheagren, Embracing Hope: Innovative Strategies to Empower Parents Raising Neurodiverse Teens, is available on Amazon at https://a.co/d/925e1hs.#FASD #LivingWithFASDpodcast #Vulnerability #Victimization#Awareness #Advocacy #Support

In this compelling episode of Living with FASD, host PattiKasper engages with Dr. William Curran, a passionate advocate and researcher in the field of Fetal Alcohol Spectrum Disorder (FASD). Dr. Curran shares his unique journey into the world of FASD, revealing the pivotal moments that shaped his understanding of prenatal alcohol exposure and its profound impacts on child welfare.The conversation dives deep into the complexities ofdiagnosing and supporting children affected by FASD, emphasizing the need for a shift from a purely diagnostic approach to one that prioritizes functional assessments and individualized support. Dr. Curran introduces his innovativefive-step model, which aims to provide a practical framework for social workers and caregivers to better identify and meet the needs of children within the spectrum.Viewers will gain insights into the systemic challengesfaced by social workers and caregivers, as well as the importance of advocating for change within child welfare systems. Dr. Curran discusses the often-overlooked nuances of FASD, including the spectrum's varying severity, and the critical need for compassionate, informed care that recognizes the unique experiences of each child.As Patti and Dr. Curran navigate the intricacies of FASD,they highlight the importance of understanding the invisible challenges that many individuals face, urging listeners to become advocates for awareness and support in their communities. This episode is a must-listen for anyone seekingto deepen their understanding of FASD and the systemic changes needed to improve outcomes for affected families.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Dr. Curran’s paper, Captioning Invisibility, is availablefor those interested in exploring the systemic issues surrounding FASD further. You can reach Dr. Curran at [email protected]#FASD #LivingWithFASDpodcast #ChildWelfare#FunctionalAssessment #Advocacy #Awareness #Compassion

In this celebratory 100th episode of Living with FASD, host Patti Kasper is joined by her closest friends and fellow FASD advocates: Jodee Kulp, Deb Evenson, and Antonia Rathbun Lindsay. Together, they reflect on how their journeys with Fetal Alcohol Spectrum Disorder (FASD) have transformed their lives for the better. The conversation dives deep into personal experiences, sharing how understanding FASD has shaped their perspectives and enhanced their compassion for those affected by neurodiversity.The guests discuss the importance of observation overinterpretation, emphasizing how curiosity and empathy can foster better relationships and support systems for individuals with FASD. With humor and heartfelt anecdotes, they explore the lessons learned along the way, includingthe value of humility and the necessity of collaboration in advocacy efforts.This episode serves as a poignant reminder of the power of community in navigating the complexities of FASD. The group also teases an upcoming topic focused on the next generation and the importance of creating a brighter future for children affected by prenatal alcohol exposure.Join Patti and her friends as they celebrate this milestone and encourage listeners to continue advocating for awareness, understanding, and support within their communities. This episode is a must-listen for anyoneinvested in the FASD community and seeking inspiration from shared experiences.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her at [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Her book, Sip by Sip: Candid Conversations with Adults Living with FASD, is available worldwide at books.by/yourfasdcoach, Amazon and independent bookstores. Jodee's book, Embracing Zak, uses fiction to teach readersabout several forms of neurodiversity, including FASD. It has won numerous awards and is available at books.by/jodee-kulp, Amazon and independent bookstores. Antonia's book, Parenting Your Porcupine, is also a must-have resource for your bookshelf if you are a parent or professional working with neurodiverse youth. It is available at books.by/antonia-rathbun-lindsey. Deb’s book, 13 Beams of Moonlight, became available at Amazon and books.by in September 2025.#FASD #LivingWithFASDpodcast #Neurodiversity #Community #Awareness #Celebration

In this insightful episode of Living with FASD, host PattiKasper welcomes Kokeb McDonald, an experienced occupational therapist who specializes in the integration of primitive reflexes. Together, they delve into the overlooked role of primitive reflexes and their profound impact on behavior and learning in individuals with FASD.Kokeb shares her journey into occupational therapy and howher experiences with children struggling with developmental challenges sparked her curiosity about the neurological underpinnings of behavior. The discussion emphasizes the importance of understanding that many behaviors are reflexive rather than chosen, highlighting the need for a compassionate and informed approach to treatment.The conversation explores the intricacies of reflexintegration, the significance of movement in brain development, and how these factors can affect daily functioning. She discusses practical strategies fortherapists and parents to implement at home and in educational settings, emphasizing the importance of observation and individualized treatment plans.Viewers will gain valuable insights into the connectionbetween reflexes, emotional regulation, and social interactions, as well as the ongoing potential for neuroplasticity and growth, regardless of age. This episode serves as a powerful reminder of the importance of patience,understanding, and the pursuit of knowledge in supporting individuals living with FASD.Join Patti and Kokeb as they navigate the complexities ofFASD and encourage listeners to advocate for awareness and support within their communities. This episode is essential for parents, caregivers, educators, and both physical and occupational therapists, as well as anyone seeking to deepentheir understanding of FASD and its impact on lives.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding. Comments are always welcome too!If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Kokeb’s work and resources can be explored further on herwebsite, https://integratingreflexes.com/ where you can find her books andtraining programs.#FASD #LivingWithFASDpodcast #OccupationalTherapy#PrimitiveReflexes #Neurodevelopment #Awareness #Compassion

In this thought-provoking episode of Living with FASD, hostPatti Kasper reunites with Dr. Jerrod Brown for an in-depth exploration of neuroplasticity and its implications for individuals with brain-based impairments, particularly those affected by Fetal Alcohol Spectrum Disorder (FASD). Together, they delve into the concept of neuroplasticity—our brain's remarkable ability to adapt and change based on experiences—and discuss its critical role in learning, memory, and recovery.Dr. Brown emphasizes that while prenatal alcohol exposureposes significant challenges to neuroplasticity, there are numerous strategies that can enhance brain function and well-being at any age. From engaging in physical activity and healthy eating to practicing mindfulness and gratitude,listeners will discover practical tips that can promote neuroplasticity and improve overall quality of life.Throughout the episode, Patti and Jerrod address commonmyths surrounding FASD, including the misconception that individuals can simply outgrow their challenges. They highlight the importance of early intervention and the ongoing potential for growth and learning, regardless of age. The conversation also touches on the impact of environmental factors such as air pollution and chronic stress on neuroplasticity, underscoring the need for holistic approaches to support those affected by FASD.Join Patti and Dr. Brown as they unpack the complexities ofneuroplasticity and share actionable insights that can empower individuals with FASD and their families. This episode is essential listening for anyone seeking to understand the power of the brain's adaptability and the steps we can take to foster resilience and growth.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.To get a copy of her book, Sip by Sip: Candid Conversationswith Adults Living with FASD, go to books.by/yourfasdcoach#FASD #Neuroplasticity #LivingWithFASD#BrainHealth #Resilience #Growth

In this engaging episode of Living with FASD, host Patti Kasper welcomes Barb Clark, a passionate advocate and expert in the field of Fetal Alcohol Spectrum Disorder (FASD) and adoption. The two discuss their shared experiences in social work, foster care, and the journey of training and coaching families affected by FASD.Barb reflects on her 15 years of professional experience alongside 26 years as an adoptive parent, emphasizing the importance of providing the right supports to families. She shares her personal journey of discovering FASD and how it has shaped her understanding of both her daughter and herself, ultimately leading to her own diagnosis. The conversation touches on the challenges faced by adoptive and foster families, the need for better training for professionals, and the critical role of compassion and understanding in supporting children with FASD.Listeners will gain insights into the common misconceptions surrounding FASD, the significance of recognizing neurodiversity, and the impact of early intervention and education. Barb also discusses her upcoming book, "Raising Kids and Teens with FASD," which aims to provide practical strategies for navigating the complexities of parenting children with neurodivergence.Join Patti and Barb as they explore the nuances of living with FASD and the power of shared experiences in fostering understanding and support within the community. This episode is a must-listen for parents, caregivers, and professionals seeking to deepen their knowledge and enhance their advocacy for individuals with FASD.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services. Patti’s book, Sip by Sip: Candid Conversations with Adults Living with FASD is available at books.by/yourfasdcoachBarb's book, "Raising Kids and Teens with FASD," is available for pre-sale now on Amazon and Barnes & Noble. Be sure to check it out!As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.More important links: You've heard me talk about the ALC Changemakers [email protected]. Their first two surveys have been published and have inspired numerous research projects. They have a new survey out and it is very important that as many adults living with FASD participate in this one as well. All ALC Changemaker surveys are 100% anonymous and your ISP address will be hidden. To participate, go here: https://brock.ca1.qualtrics.com/jfe/form/SV_3VQc769cKFvMDxs#FASD #FetalAlcoholSpectrumDisorder #Adoption #FosterCare #Neurodiversity #LivingWithFASD

In this enlightening episode of Living with FASD, host PattiKasper welcomes Dr. Sarah Mattson, a renowned expert in the field of Fetal Alcohol Spectrum Disorder (FASD). With nearly 40 years of experience, Dr. Mattson shares her journey from her early research days to her current work in San Diego, where she collaborates with other leading professionals to advance understanding and treatment of FASD.Dr. Sarah discusses the evolution of knowledge surroundingFASD, including the critical realization that individuals can be affected by prenatal alcohol exposure even without the characteristic facial features associated with Fetal Alcohol Syndrome. The conversation delves into the importance of neuropsychological assessments, the ongoing challenges of public awareness, and the need for effective screening tools.Viewers will learn about two innovative screening tools developed by Dr. Mattson's team: the FASD Tree and Brain Online. These tools aim to improve diagnostic accuracy and accessibility for individuals suspected of having FASD. Dr. Sarah explains how these tools can help clinicians differentiate between FASD and other conditions, such as ADHD and autism, which often co-occur with FASD.Throughout the episode, Dr. Sarah emphasizes the need for continued education and advocacy to raise awareness about the risks of alcohol consumption during pregnancy. She highlights the importance of compassionate communication in healthcare settings to reduce stigma and improve outcomes for affected individuals.Join Patti and Dr. Sarah for a thought-provoking discussion that sheds light on the complexities of FASD and the ongoing efforts to support individuals and families living with this condition. This episode is essential for parents, caregivers, and anyone interested in understanding the realities of FASD.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services. For those interested in taking the Brain Online screening, go to: https://mattson.sdsu.edu/participate/#FASD #FASDScreeningTool #InvisibleDisabilities #Neurodiversity #FASDResearch #FASDPodcast #LivingWithFASDpodcast #YourFASDCoach

In this enlightening episode of Living with FASD, host Patti Kasper engages in a thought-provoking conversation with Dr. Jeffrey Wozniak from the University of Minnesota. With a rich history in Fetal Alcohol Spectrum Disorder (FASD) research, Dr. Wozniak shares insights from his extensive experience in neuropsychology, focusing on the unique needs and strengths of individuals with FASD.The discussion delves into the groundbreaking research being conducted at the University, including the use of brain imaging to understand the impacts of prenatal alcohol exposure on brain development. Dr. Wozniak highlights the promising potential of interventions, such as cholinesupplementation, aimed at optimizing cognitive functions in young children with FASD, emphasizing the importance of early intervention during critical growth periods.Listeners will be captivated as they explore the innovative neuromodulation techniques being developed to stimulate cognitive functions in adolescents, providing a glimpse into the future of FASD treatment. Dr. Wozniak discusses the challenges of diagnosis, especially in adults, and the ongoingefforts to improve accessibility to diagnostic resources for this underserved population.This episode is a must-listen for anyone interested in theintersection of research, clinical practice, and advocacy within the FASD community. Patti and Dr. Wozniak's conversation sheds light on the importance of understanding the complexities of FASD and the need for continued research and education to support affected individuals and their families.To participate in University of Minnesota FASD Research, go here: mailto:[email protected] As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Her book, Sip by Sip: Candid Conversations with Adults Living with FASD, is available worldwide at books.by/yourfasdcoach. #FASD #Neuropsychology #LivingWithFASD #Research #CholineSupplementation #Neuromodulation #Advocacy

In this enlightening episode of Living with FASD, host PattiKasper welcomes Dr. Maude Champagne, a seasoned expert in the field of Fetal Alcohol Spectrum Disorder (FASD) and author of the insightful book, "Decoding Aggression: Complex Behaviors and Brain-Based Disabilities." Dr. Maude shares her journey working with families affected by FASD and other brain-based disabilities, emphasizing the importance of understanding the whole family system rather than merely focusing on individual behaviors.The conversation dives deep into the complexitiessurrounding aggression in people with FASD, especially during challenging times such as the COVID-19 pandemic. Dr. Maude discusses her research findings on the increased rates of aggressive behaviors and the impact on family dynamics,highlighting the need for compassionate support and effective strategies to manage these behaviors.Listeners will gain valuable insights into the concept ofhostile attribution bias, the significance of co-regulation, and the importance of building a supportive network around families. Dr. Maude emphasizes the necessity of addressing the systemic issues that families face, advocating for a shift in how society perceives and supports individuals with FASD and their families.This episode is a must-listen for parents, caregivers, andprofessionals working with neurodiverse individuals, offering practical strategies and a hopeful perspective on improving the quality of life for everyone involved. Join Patti and Dr. Maude as they explore the nuances of living with FASD and the power of understanding and support.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Dr. Maude's book, "Decoding Aggression: ComplexBehaviors and Brain-Based Disabilities," is available here: https://a.co/d/5A7ltai , and she can be found on LinkedIn under Dr. Maude Champagne, where she shares resources and insights on FASD and related topics. Her website is www.maudechampagne.com The book Dr. Maude discussed as also being helpful for thosewho are struggling to help their transitionally-aged youth is Non-Emerging Adulthood: Helping Parents of Adult Children with Entrenched Dependence by Dan Dulberger, and is available at https://a.co/d/7FxyxUvPatti’s book, Sip by Sip: Candid Conversations with AdultsLiving with FASD, is available at https://a.co/d/fLolVRmAs always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.#FASD #FetalAlcoholSpectrumDisorders #InvisibleDisabilities #Microaggressions #ProtectiveReflexes #FASDPodcasts#YourFASDCoach

In this enlightening episode of Living with FASD, host PattiKasper welcomes Dr. Janet Oliver, a developmental psychologist with a wealth of knowledge about the intricate workings of the human brain and its impact on Fetal Alcohol Spectrum Disorder (FASD). Together, they embark on a deep dive into the significance of primitive reflexes in human development and the profound effects of prenatal experiences on lifelong outcomes.Dr. Oliver shares her insights on how the early stages ofbrain development can shape an individual's abilities, highlighting the critical role of sensory and motor functions. She discusses the importance of understanding each person's unique journey within the spectrum of developmental differences, emphasizing the need for individualized approaches in supporting those affected by FASD.The conversation explores various topics, including theimplications of birth experiences, the connection between reflexes and emotional responses, and the challenges faced by individuals with FASD. Dr. Oliver also sheds light on how trauma and environmental factors can compound difficulties, ultimately affecting emotional regulation and socialinteractions.Listeners will gain valuable insights into the complexitiesof neurodevelopment and the potential for therapeutic interventions to improve outcomes for individuals living with FASD. This episode serves as a powerful reminder of the importance of compassion, understanding, and the recognition of each person's unique gifts and challenges.Join Patti and Dr. Oliver as they unravel the layers of FASDand encourage listeners to advocate for awareness and support within their communities. This episode is a must-listen for anyone seeking to deepen their understanding of FASD and the transformative power of informed care.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services. Her book, Sip by Sip: Candid Conversations with AdultsLiving with FASD, is available worldwide at books.by/yourfasdcoach.Dr. Janet Oliver’s book, Inner Senses: Keys to ImprovingMovement, Attention, and Mood is available at https://a.co/d/aJqxC0e#FASD #LivingWithFASDpodcast #Neurodevelopment#PrimitiveReflexes #TraumaInformedCare #Awareness #Compassion

In this non-episode episode, host Patti Kasper speaks to those who have always struggled in life, not fitting in and not understanding why. She shares her own journey and how she recognized she too may be on the FASD spectrum. Patti then educates the viewer about Fetal Alcohol Spectrum Disorder. She shares how, once prenatal alcohol exposure was confirmed, powerful the shift in her perspective in life was and invites the viewer to consider FASD Life Coaching, by scheduling a complimentary consultation at: https://calendly.com/kaspertrainingandcoaching/consultation

In this thought-provoking episode of Living with FASD, a continuation of last week’s episode, host Patti Kasper engages with Carl Young and Joel Sheagren, two passionate fathers dedicated to raising awareness about Fetal Alcohol Spectrum Disorder (FASD) and its complexities. Together, they explore the innovative use of mind mapping as a tool for understanding relationships and adaptive skills in children affected by FASD.The discussion delves into the challenges of navigating social situations and friendships, highlighting the importance of visual learning and structured interventions. Carl and Joel share personal anecdotes about their sons, emphasizing the significance of adaptive skills and the unique ways in which individuals with FASD process information. They addressthe misconceptions surrounding IQ and adaptive functioning, illustrating how these concepts impact daily living.This episode also touches on the intergenerational effectsof alcohol exposure, the stigma surrounding prenatal alcohol use, and the need for compassion and understanding. Carl and Joel candidly discuss their experiences with the medical community and the importance of advocating for accurate diagnoses, as well as the potential for future research into the comorbid conditions associated with FASD.Join Patti, Carl, and Joel as they share insights and strategies for supporting individuals with FASD, fostering a deeperunderstanding of the disorder, and encouraging a collaborative approach to care. This episode is a must-listen for parents, caregivers, and anyone seeking to learn more about the realities of living with FASD.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Her book, Sip by Sip: Candid Conversations with AdultsLiving with FASD is available worldwide at books.by/yourfasdcoach. Joel & Carl’s book, Embracing Hope: Innovative Strategies to Empower Parents Raising Neurodiverse Teens is available on Amazon.

In this non-episode episode, Living with FASD podcast host Patti Kasper delves into the often-overlooked challenges faced by families affected by Fetal Alcohol Spectrum Disorders (FASD). Drawing from her extensive experience as a trauma-informed FASD coach, Patti addresses the common struggles parents encounter when raising children who may behave differently due to prenatal alcohol exposure.Patti emphasizes the critical need for awareness surrounding FASD, highlighting shocking statistics that reveal the prevalence of alcohol exposure during pregnancy and its far-reaching effects. She dismantles misconceptions about FASD diagnoses, explaining that many children do not exhibit the facial features associated with Fetal Alcohol Syndrome, leading to missed diagnoses and a lack of appropriate support.This video offers insights into the neurobiological impact of alcohol on brain development, and how this affects behavior and learning. Patti offers practical strategies for parents, including the importance of creating supportive environments and understanding the unique needs of their children. She encourages families to seek community support and advocate for their children's needs, emphasizing that they are not alone in their journey.This episode is a heartfelt call to action for parents and caregivers to adopt a compassionate, informed approach to parenting children with FASD. Tune in for valuable insights that can help transform the way families navigate the complexities of FASD.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti to schedule a complimentary meeting for coaching, go to: https://calendly.com/kaspertrainingandcoaching/30min.

In this engaging episode of Living with FASD, host PattiKasper welcomes Joel Sheagren and Carl Young to discuss their collaborative project, Embracing Hope, a parenting book for those raising teens on the Fetal Alcohol Spectrum. Their book is just one element of a broader project, theEmbraced Movement.Joel shares his personal journey of navigating thecomplexities of parenting a child with FASD and how this inspired the creation of a documentary narrative that highlights the strength and resilience of children on the spectrum. He reflects on the challenges faced within theeducational system and the importance of understanding the unique needs of neurodiverse children.As the conversation unfolds, Carl provides insights intotheir joint efforts to educate social workers and parents about FASD, emphasizing the need for systemic change in how these individuals are supported. Together, they discuss their writing process, the development of a feature film script, based upon the novel Embracing Zak, and the innovative ways they are using fictional characters to convey real-life experiences and challenges faced by families.This episode is a celebration of collaboration, creativity,and the power of storytelling in fostering understanding and acceptance of neurodiversity. Patti, Joel, and Carl highlight the significance of community support and the importance of equipping families with the tools they need to advocate for their children.Join them as they delve into the Embraced Movement, theupcoming release of their book, and their ongoing projects aimed at making a positive impact in the lives of those affected by FASD. This episode is a ust-listen for anyone interested in the intersection of authorship, advocacy,and education in the realm of neurodiversity.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Her book, Sip by Sip: Candid Conversations with Adults Living with FASD, is available worldwide at books.by/yourfasdcoach. You can sign up for book launch information at embracinghopebook.com#fasdbooks #FetalAlcoholSpectrumDisorders #EmbracedMovement #EmbracingHope #Neurodiversity #ADHD #ASD #Trauma

In this enlightening episode of Living with FASD, host PattiKasper engages in a heartfelt discussion with Suzanne Emery, a dedicated member of the FASCETS team, now known as the FASCETS Center for Neurodiversity.Together, they reflect on their transformative journeys within the realm of Fetal Alcohol Spectrum Disorder (FASD) and the profound impact of understanding brain-based differences.Patti shares her personal revelation of being on the spectrum, a pivotal moment that occurred during her training with Suzanne. The two delve into the life-altering experiences that have shaped their perspectives, emphasizing the importance of education and awareness insupporting individuals with brain-based differences. Suzanne recounts her own journey, highlighting the surprising transformations that occur during trainingsessions, where participants often discover insights about themselves as well as their loved ones.This episode underscores the significance of creating a safeand supportive environment for sharing personal stories, breaking down stigma, and fostering understanding. Patti and Suzanne discuss the evolution of FASCETS (Fetal Alcohol Spectrum Consultation, Education & Training Services) intothe FASCETS Center for Neurodiversity, broadening their focus to encompass all brain-based differences, and the positive changes they have witnessed in societal perceptions over the years.Join Patti and Suzanne as they explore the ripple effects ofeducation, compassion, and community support in the lives of those affected by FASD. This episode is a must-listen for anyone seeking to deepen their understanding of neurodiversity and the transformative power of sharedexperiences.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.Her book, Sip by Sip: Candid Conversations with Adults Living with FASD, is available worldwide at books.by/yourfasdcoach.#FASD #Neurodiversity #LivingWithFASD #Education#CommunitySupport #Transformation #FASCETS

In this heartfelt episode of Living with FASD, host PattiKasper engages in a candid conversation with Alison McCormick, a dedicated social worker turned assistance dog trainer. Together, they explore the profound impact of Fetal Alcohol Spectrum Disorder (FASD) on families and theinnovative ways assistance dogs can provide support and companionship.Alison shares her personal journey, detailing her transitionfrom traditional social work to the world of canine assistance. After adoptingthree children with FASD, she discovered the unique bond between her daughterand their family dog, which inspired her to train assistance dogs specificallyfor families dealing with FASD. Listeners will be captivated by her stories of resilience, the challenges of navigating the social care system, and the incredible benefits these dogs bring to both children and parents.This episode emphasizes the importance of advocacy,understanding, and community support for families affected by FASD. Patti and Alison discuss the need for systemic change in how social services approach families and the vital role that compassion plays in fostering understandingand acceptance.Join Patti and Alison as they share insights, laughter, andthe undeniable bond between humans and their canine companions. This episode is a must-listen for anyone looking for hope and inspiration in their journey with FASD.To order the book Alison recommended by Andrew James, go to: https://a.co/d/696HPCcAs always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.#FASD #AssistanceDogs #LivingWithFASD #Advocacy#CommunitySupport #Hope

In this inspiring episode of Living with FASD, host Patti Kasper welcomes Dr. Sandra Love, the daughter of frequent guest Jodee Kulp. Together, they embark on a heartfeltconversation that intertwines spirituality, personal growth, and the unique challenges faced by individuals living with Fetal Alcohol Spectrum Disorder (FASD).Dr. Love shares her transformative journey from atheism to aplace of deep compassion and understanding. She emphasizes the importance of recognizing our own blind spots and the need for humility in our relationships.Through her innovative board game, designed to foster introspection and connection, she illustrates how asking the right questions can lead to personal breakthroughs and enhanced communication.This episode highlights the significance of childlikecuriosity and compassion in navigating the complexities of life with FASD, whether as someone living with it or supporting others. Listeners will gain valuable insights into the power of community, the importance of core values,and the necessity of self-care for caregivers.Join Patti and Dr. Love as they explore these profoundthemes and encourage listeners to embrace their unique journeys with love and understanding. This episode is a must-listen for anyone seeking to deepen their connection with themselves and others while navigating the challenges of FASD.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services. Her book, Sip by Sip: Candid Conversations with Adults Living with FASD is available worldwide at books.by/yourfasdcoach#FASD #DrSandraLove #JodeeKulp #Compassion #LivingWithFASD #Curiosity #CommunitySupport

In this thought-provoking episode of Living with FASD, hostPatti Kasper continues her engaging Meliorist Mondays series with guests Jodee Kulp and Antonia Rathbun Lindsay. This week, they delve into the concept of "wiggle room" in both life and the systems that support individuals with Fetal Alcohol Spectrum Disorder (FASD).The conversation highlights the significant time lag—often17 years—between scientific discoveries and societal acceptance, demonstrating this in the recent passage through the US House of Representatives of the long-fought-for FASD Respect Act. The trio reflects on the challenges faced by families navigating complex systems, emphasizing the need for adaptability and understanding within medical and social frameworks.Listeners will gain insight into the importance of effectivecommunication and the necessity of presenting data in a manner that resonates with professionals. The discussion also touches on the personal experiences of the Meliorist Team members, illustrating the struggles and triumphs ofadvocating for loved ones in a world that often lacks awareness about neurodiversity.This episode is essential for anyone looking to understandthe intricacies of living with FASD and the importance of community, research, and personal narratives in driving change. Join Patti, Jodee, and Antonia as they navigate these vital conversations and inspire listeners to embrace thewiggle room in their own lives.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.  To order Sip by Sip: Candid Conversations with Adults Living with FASD, go to books.by/yourfasdcoach#FASD #MelioristMondays #WiggleRoom FASDRespectAct#CommunitySupport #LivingWithFASD

In this enlightening episode of Living with FASD, host PattiKasper continues her in-depth dialogue with Jodee Kulp and Antonia Rathbun Lindsay, exploring the intricate relationship between habilitation and Fetal Alcohol Spectrum Disorder (FASD). Titled "Habilitation and FASD: Reading the Body to Build the Brain," this episode delves into the importance ofaddressing foundational reflexes before implementing cognitive and psychological techniques.The conversation highlights the often-overlooked Fear Paralysis Reflex (FPR) and its profound implications on development and behavior. Jodee shares her personal experiences with her daughter Liz, revealing the challengesfaced when traditional methods fell short due to unaddressed reflexive gaps. Antonia elaborates on the survival mechanisms triggered by fear, drawing parallels between animal responses and human behaviors in moments of stress.Listeners will gain insights into the significance ofunderstanding neurodevelopmental processes, as the trio emphasizes the need for a holistic approach that combines both neurological and psychological perspectives. The discussion also touches on the critical role of communication, the necessity of creating safe spaces, and the impact of sensory environments on individuals with FASD.This episode is a must-listen for anyone seeking to deepentheir understanding of FASD and the importance of tailored interventions that address both the mind and body. Join Patti and her guests as they navigate these essential conversations and advocate for a more informed approach tosupporting individuals with FASD.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected]. Visit her website at www.patriciakasper.com to learn more about her coaching and professional development training services.#FASD #Habilitation #Neurodevelopment #JodeeKulp#AntoniaRathbunLindsay #LivingWithFASD #FearParalysisReflex #CommunitySupport

 In this engaging episode of Living with FASD, host Patti Kasper welcomes back  Jodee Kulp, and Antonia Rathbun Lindsay, as they dive into the inaugural installment of their new sub-series, "Meliorist Mondays." Together, they explore the intricate landscape of Fetal Alcohol Spectrum Disorder (FASD) through their collective experiences and insights.The conversation centers around the neurological implications of FASD, emphasizing the need for a developmental approach rather than a purely psychological one. Jodee shares her inspiring journey with her daughter Liz, detailing the challenges they faced and the innovative strategies they employed to support her learning and development. From the significance of proper nutrition to the importance of addressing foundational reflexes, thediscussion highlights the multifaceted nature of FASD and the necessity for tailored interventions.Listeners will gain valuable insights into the concept ofhabilitation versus rehabilitation, as the team unpacks the complexities of working with individuals affected by FASD. The episode also touches on the importance of curiosity and collaboration among caregivers and professionals in fostering meaningful progress.This episode is a must-listen for anyone interested inunderstanding the lived experiences of those with FASD and the power of community in driving positive change. Join Patti and her guests as they navigate these candid conversations and share their passion for supporting individuals with FASD.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding. If you would like to reach Patti, you can email her at [email protected]. You can visit her website at www.patriciakasper.com to explore her coaching andprofessional development training services.#FASD #MelioristMondays #JodeeKulp #AntoniaRathbunLindsay #CommunitySupport #LivingWithFASD #DevelopmentalApproach #BridgingDevelopmentalGaps #SporadicMastery

 In this powerful episode of Living with FASD, host Patti Kasper engages in a heartfelt conversation with Bruna Neptune, a talented voiceover director and authornavigating life with Fetal Alcohol Spectrum Disorder (FASD) and ADHD. Bruna shares her journey of growing up neurodivergent, revealing the challenges she faced in a world that often misunderstands the complexities of FASD.The discussion delves into Bruna's experiences with bullying, the impact of her parents' support, and the importance of finding one's voice amidst adversity. Bruna candidly reflects on her struggles with identity, grief, and the profound loss of both her parents at a young age, illustrating the resilience that has shaped her into the creative individual she is today.Listeners will be inspired by Bruna's passion for storytelling and her commitment to representation, particularly through her character, Candy Gore, who embodies her cultural heritage and personal experiences. The episode also addresses the stigma surrounding neurodiversity and the significance of community support in fostering understanding and acceptance.This episode is a must-listen for anyone seeking to understand the realities of living with FASD and the power of embracing one's identity. Join us as Bruna shares her wisdom on coping with life's challenges and encourages others to celebrate their uniqueness.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.Voting is open until May 31st for the Women in PodcastingAwards, where Patti has been nominated in the Society & Culture category. Your vote can help increase visibility for the podcast and raise awareness about FASD. Use this link to vote: womenpodcasters.com/awards=votingIf you would like to reach Patti, you can email her at [email protected] her website, www.patriciakasper.com,to learn more about her training and coaching services.#FASD #Neurodiversity #BrunaNeptune #VoiceOver#CommunitySupport #LivingWithFASD

In this heartfelt episode of Living with FASD, host PattiKasper reunites with Kathryn Page, her former co-host, for a candid conversation that reflects on their shared experiences with Fetal Alcohol Spectrum Disorders (FASD). The duo dives into the nuances of living with FASD, discussing the misconceptions that often surround their condition and theunique challenges they face in their personal and professional lives.Kathryn and Patti engage in a lively discussion about thecomplexities of self-identification and diagnosis, sharing personal anecdotes that illustrate the challenges of navigating relationships and work environments while managing their neurodevelopmental differences. They reflect on the importance of clear communication and the need for accommodations that can support their unique needs.This episode is a must-listen for anyone interested inunderstanding the lived experiences of those with FASD, as well as the broader implications for advocacy and education in the community. Tune in to hear their insights on fostering empathy, building supportive networks, and the power ofsharing one’s story.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding. Voting for the Women in Podcasting Awards is open until May 31, and your support can make a difference in bringing attention to FASD. Click the link www.womenpodcasters.com/awards-voting, choose the Society & Culture category, then select Patricia Kasper/Livingwith FASD from the dropdown menu. Thank you for your support! If you would like to reach Patti, you can email her at [email protected]. You can visit her website at www.patriciakasper.com to explore her coaching and professional development training services.#FASD #WomenInPodcasting #Advocacy #CommunitySupport #LivingWithFASD

In this enlightening episode of Living with FASD, host Patti Kasper reconnects with the insightful Jerrod Brown to explore the transformative concept of lifestyle medicine. Jerrod introduces listeners to the principles of lifestyle medicine, emphasizing its relevance for everyone, regardless of age or neurodevelopmental status. He shares how healthy lifestyle behaviors—such as proper nutrition, physical activity, stress management, and social connections—are essential for enhancing overall well-being.The conversation dives into the importance of health responsibility and the proactive steps individuals can take to improve their quality of life. Jerrod highlights the interconnectedness of physical and mental health, discussing the implications of lifestyle choices on chronic conditions and emotional well-being. He also touches on the concept of quality of life and how various social determinants can affect mental health, particularly for those living with FASD.Listeners will gain valuable insights into the six core components of lifestyle medicine and how they can be applied in daily life. Jerrod emphasizes the significance of self-compassion and positive self-talk, offering practical strategies for fostering a healthier mindset. The episode also introduces the concept of blue zones—regions where people live the longest—and discusses how their lifestyle habits can inspire positive changes in our own communities.This episode is a must-listen for anyone interested in understanding how lifestyle choices can impact health and well-being, particularly for those affected by FASD. Tune in to discover how small changescan lead to significant improvements in quality of life and learn how you can contribute to a supportive community for individuals with FASD.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding. Patti has been nominated again for the Women in Podcasting Awards in the Society & Culture category. Your vote can help increase the visibility for the podcast and raise awareness about FASD. Voting is open until the end of the month, and the link is below.If you would like to reach Patti, you can email her [email protected] or visit her website at www.patriciakasper.com.#LifestyleMedicine #FASD #JerrodBrown #HealthAndWellness#CommunitySupport #LivingWithFASDAs always, please remember to like, share, andfollow the Living with FASD podcast to help spread awareness and understanding.Voting is open during the month of May for the Women in Podcasting Awards, which Patti has again been nominated for in the Society & Culture category. Unconcerned about prizes, Patti’s desire to win this "people's choice" award is to gain visibility for the podcast, in order to help spread awareness of FASD. Click the link for voting below to cast your vote. Once you click it, navigate to the category “Society & Culture” then in the drop down, choose "Living with FASD/Patricia Kasper." I am grateful for your support!https://www.womenpodcasters.com/tr/2/6531291/10024356240/34770313/32582358120aad85c613d0f0010b35f6e4c763b35

In the latest episode of our podcast, we delve deep into the world of Fetal Alcohol Spectrum Disorder (FASD) with the remarkable Jodee Kulp, a beloved figure in the FASD community. Jodee shares her journey as an author, focusing on her latest book, Embracing Zak, which has garnered significantacclaim for its engaging storytelling and powerful themes of neurodiversity. Jodee's writing is not just about creating characters; it's about building a community. She emphasizes the importance of awareness and understanding for those who may not recognize the impact of FASD in their everyday lives. As she discusses the feedback from readers, it's clear that her characters resonate deeply with those who encounter them. Many readers express a desire to live in the world she has created, indicating the strong connection they feel to her narrative. Throughout the episode, Jodee reflects on the challenges and triumphs of her writing journey. From her early days of poetry to her award-winning books, she shares the personal experiences that have shaped her voice as a writer. The conversation highlights the necessity of telling stories that reflect real-life experiences, particularly for those affected by FASD. Jodee’s work is a testament to the idea that literature can be a powerful tool for change, fostering empathy and understanding in a world that often overlooks the complexities of neurodiversity. Listeners will also learn about Jodee's plans for future projects, including a sequel to Embracing Zak and her ongoing commitment to advocacy within the FASD community. As she navigates the complexities of writing while managing the realities of caregiving, Jodee inspires others to embrace their stories and share them with the world. This episode is a must-listen for anyone interested in the intersections of literature, advocacy, and the lived experiences of those impacted by FASD. Jodee Kulp’s insights remind us of the power of storytelling and the importance of community support in fostering understanding and acceptance. Tune in to discover how you can be part of this vital conversation and support the movement for greater awareness of FASD.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.Voting is open during the month of May for the Women in Podcasting Awards, which Patti has again been nominated for in the Society & Culture category. Unconcerned about prizes, Patti’s desire to win this "people's choice" award is to gain visibility for the podcast, in order to help spread awareness of FASD. Click the link for voting below to cast your vote. Once you click it, navigate to the category “Society & Culture” then click the tile for the Living with FASD podcast, and finally mash that “vote” button at the bottom. I am grateful for your support!https://www.womenpodcasters.com/tr/2/6531291/10024356240/34770313/32582358120aad85c613d0f0010b35f6e4c763b35 If you would like to reach Patti, you can email her at [email protected].#EmbracingZak #JodeeKulp #FASD #Neurodiversity #Storytelling #Advocacy #LivingWithFASD

In this thought-provoking episode of Living with FASD, host Patti Kasper welcomes Dr. Elizabeth Cleveland from the Fusion Center, a pioneering virtual clinic dedicated to diagnosing and supporting adults with Fetal Alcohol Spectrum Disorders (FASD) and other neurodiversities. Dr. Cleveland shares her journey into the FASD space, driven by personal experiences and a passion for helping others navigate the complexities of neurodevelopmental disorders.The conversation highlights the unique challenges faced by adults seeking diagnosis and support, emphasizing the importance of accessible, virtual services that break down geographical barriers. Dr. Cleveland explains the diagnostic process at the Fusion Center, which focuses on ruling out other conditions and ensuring a comprehensive understanding of each individual's needs.Listeners will gain insights into the significance of accurate diagnosis, the overlap between FASD and other neurodevelopmental disorders, and the critical need for a holistic approach to treatment. Dr. Cleveland also addresses the stigma surrounding FASD and the importance of advocacy and education in fostering understanding within the medical community.This episode is a must-listen for anyone interested in the intersection of FASD, adult services, and the evolving landscape of neurodiversity. Join us as we continue to shine a light on the challenges and triumphs faced by individuals living with FASD.As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.Voting opens up on May 1 for the Women in Podcasting Awards, which Patti is again nominated for in the Society & Culture category. Unconcerned about prizes, Patti's plea is to win the "people's choice" style award in order to gain visibility for the podcast, in order to help spread awareness of FASD. I've been asked not to share the voting link until May 1, so please be sure to check the show notes again next week for the link, or my social media accounts.If you would like to reach Patti, you can email her at [email protected].#FASD #FusionCenter #Neurodiversity #AdultServices #Diagnosis #Advocacy #LivingWithFASD

In this engaging episode of Living with FASD, host PattiKasper welcomes back the dynamic Dr. Christie Petrenko from the University of Rochester. Together, they delve into the exciting advancements in research aimed at supporting adults with Fetal Alcohol Spectrum Disorders (FASD). Dr.Petrenko shares insights about the innovative app, My Health Coach, designed specifically for adults living with FASD, highlighting its features such as a health coach chatbot, medication reminders, and personalized tracking tools.The discussion explores the collaborative effort behind theapp’s development, emphasizing the importance of user feedback and the role of the Adult Leadership Collaborative of FASD Changemakers in co-designing this essential resource. Dr. Petrenko outlines the app's capabilities, including symptom tracking and daily check-ins, which address the unique challenges faced by adults with FASD.Patti and Christie also touch on another exciting initiative, the Thrive program, aimed at empowering young adults throughpersonalized support and goal setting. Listeners will learn about the importance of community engagement in research and how individuals can get involved in both the My Health Coach app study and the Thrive program.This episode is a treasure trove of information for anyoneinterested in the intersection of technology, health, and FASD advocacy. Join us for this enlightening conversation that not only sheds light on groundbreaking research but also encourages community participation in shapingthe future of support for individuals with FASD.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her at [email protected] or visit her website at patriciakasper.com.To participate in the research discussd in today's show, visit:My Health Coach App study: https://redcap.link/6mg9srra2 min video explaining study: https://youtu.be/mk5stwb8COgemail: [email protected] FMF Connect Pro Study (Mental HealthProviders – US only)       No prior knowledge or experience with FASD required!    Providers receive accessible trainings on how to screen and diagnose FASD and support families using the FMF Connect app·        Receive free continuing education credits for participating in training       To learn more: https://providers.fmfconnect.com/·        Email: [email protected] Study (NP program directors)Needs assessment survey with directors of Nurse Practitioner training programs across the US.Results will help inform development of accessible training materials for NP traineesFor more nformation: [email protected] FASD Stigma DocumentaryAiming for release September 2025. We’re working on raising the last $50k to film final shots, add animation, and put on finishing touches. Reach out:  [email protected] withany ideas for last fundraising push, showings, or distribution.#MyHealthCoach #FASD #DrChristiePetrenko #ThriveProgram#FetalAlcoholSpectrumDisorders #Advocacy #Research #LivingWithFASDPodcast

In this enlightening episode of Living with FASD, host PattiKasper reconnects with Dr. Jerrod Brown for a fascinating exploration of psychogastroenterology and its implications for individuals living with Fetal Alcohol Spectrum Disorders (FASD). Dr. Brown shares his insights on the critical connection between gut health and mental well-being, emphasizing how the gut-brain axis plays a pivotal role in mood, sleep, and overall health.The conversation dives into the emerging research linkinggut health issues with FASD, shedding light on how dietary choices, stress, and lifestyle factors can significantly impact the well-being of those affected.Dr. Brown discusses practical strategies for improving gut health, including the importance of nutrition, sleep hygiene, and the timing of meals, while also addressing the challenges faced by individuals with FASD in maintaining healthyeating habits.Listeners will gain valuable knowledge on theinterconnectedness of mental health and gut function, as well as actionable steps they can take to foster better health outcomes. Dr. Brown's passion for this field of study shines through, making this episode a must-listen for anyone interested in understanding the holistic approach to health for those living with FASD.As always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected].#Psychogastroenterology #GutHealth #FASD #MentalHealth #Nutrition #GutBrainAxis #FetalAlcoholSpectrumDisorders #DrJerrodBrown#LivingWithFASD

 In this captivating episode of Living with FASD, host Patti Kasper reunites with the insightful Antonia Rathbun Lindsay to celebrate the impending release of her highlyanticipated book, Parenting Your Porcupine: Tools for Working with Children with FASD, Drug Effects, and Other Neurodiversities. Antonia shares her journey of crafting this essential resource, drawing from her extensive experience inthe field and her personal insights as a caregiver.The conversation delves into the significance ofunderstanding the unique challenges faced by children with FASD and the importance of bridging the gap between professionals and families. Antonia discusses the innovative concept of "body culture," emphasizing how sensory dysregulation affects behavior and communication in children. Listeners will gain valuable perspectives on the necessity of empathy and accommodation in interactions with children who have neurodevelopmental differences.Patti and Antonia explore the critical need for a commonlanguage that fosters collaboration between parents and professionals, ensuring that both perspectives are valued in the journey of raising children with FASD.This episode not only highlights the practical tools and strategies found in Antonia's book but also underscores the power of storytelling and shared experiences in creating meaningful change.Join us for this enlightening discussion that promises toempower families and professionals alike. As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected].#ParentingYourPorcupine #AntoniaRathbunLindsay #FASD#Neurodiversity #LivingWithFASD #Empathy #Collaboration #BodyCulture#ToolsForParents #FASDCommunity

In this episode of Living with FASD, host Patti Kasperwelcomes back the insightful Emily Hargrove, who shares exciting updates on her life and research journey. With the arrival of her second child, Emily reflects on the joys of motherhood while diving back into her doctoral studies, focusing on the intersection of faith, spirituality, and Fetal Alcohol Spectrum Disorders (FASD).Emily discusses her dissertation, which seeks to explore howadults with FASD express their spirituality, emphasizing the need for a holistic understanding of the condition. She highlights the importance of integrating spiritual development into the support systems for individuals withFASD, challenging the stigma surrounding their experiences within faith communities.The conversation also touches on Emily's involvement withthe Adult Leadership Collaboration of the FASD Changemakers International and her role as president of the FASD Collaborative Project. Listeners will gain valuable insights into the ongoing efforts to amplify the voices of adults living with FASD and the significance of collaborative advocacy in creating a supportive environment.Join us for this engaging episode that not only celebratespersonal milestones but also sheds light on the essential research and community initiatives aimed at enhancing the lives of those affected by FASD. If you would like to reach Patti, you can email her at [email protected] you would like to volunteer for Emily’s research, pleasereach out to her at [email protected] always, please remember to like, share, and follow theLiving with FASD podcast to help spread awareness and understanding.#Fasd, #Fetal Alcohol Spectrum Disorder, #Spirituality,#Doctoral Research, #Emily Hargrove, #Faith Development, #Neurodiversity, #Holistic Perspective, #Spiritual Abuse, #Life Tapestry Exercise, #Advocacy, #FasdChangemakers International, #Adult Leadership Collaboration, #Data Collection,#Community Support, #Stigma, #Personal Stories, #Research Participation,#Educational Resources, #Child Development

In this enlightening episode of Living with FASD, host PattiKasper welcomes back Dr. David Gilbert from the University of Salford for a deep dive into his groundbreaking research on Fetal Alcohol Spectrum Disorders (FASD) and the justice system. After a year since their last conversation, Gilbert shares updates on his collaborative research efforts aimed atunderstanding the complexities of suggestibility and confabulation in individuals with FASD, particularly in the context of police encounters.The discussion highlights the critical need for educationand awareness among law enforcement and forensic professionals, as Gilbert emphasizes that many individuals with FASD are not inherently criminal but may face challenges that lead to misunderstandings in high-pressure situations. Patti and Gilbert explore the nuances of confabulation versus intentional lying, shedding light on how memory can be affected by stress and trauma, and the implications this has for legal proceedings.Listeners will gain valuable insights into the importance ofincluding family testimonies in legal contexts and the necessity for accommodations that support individuals with FASD. As they discuss the upcoming FASD research conference, Gilbert expresses his excitement about connecting with families and professionals alike to foster a more inclusive understanding of FASD.Join us for this thought-provoking episode that challengesstigmas and advocates for a compassionate approach to individuals living with FASD. As always, please remember to like, share, and follow the Living with FASD podcast to help spread awareness and understanding.If you would like to reach Patti, you can email her [email protected].# DrDavidGilbert #FASDResearch #Collaboration #Understanding#Suggestibility #Confabulation #TheRoleofLawEnforcementinFASD #FetalAlcoholSpectrumDisorders #USalford #SeattleFASDConference #FASDResearchConference #FASD #FetalAlcoholSyndrome